Posted on: Nov 30, 2011 10:46 AM
southcentral, wi
Joined: Jan 2011
Posts: 2,623
thefuzzylemon wrote:
So here I am. Out of active treatment. Found out that looking forward to "it getting easier" and "getting back to a "normal" hasn't happened. Instead, I discovered that the journey only began - that I will forever fight this disease, my mental health continues to be challenged and making "changes" to avoid reoccurance just makes me feel like Cancer gets to control my quality...screwed up, right?
So, here it is...Fuzzy's Romp Room. I'm so ready to drop F Bombs and smack stupid people for the insensitive crap that they say and do. I'm sick of medications "getting me through." I have had just about enough of people on the other side who just don't get it, yet feel they need to say something to make a cancer patient "feel better about themselves" or whatever that reasoning is...
I'm hoping that this thread will just give a place to be 100% open. I do love to write, and I do love all of my sisters here. I do not want to offend anyone, ever. I just need to let it out...feel free to do the same. I thought by opening up my own thread, it would keep me from offending anyone else on thread's that they have built. I'm just such a friggin' mess and I need some help to get it together ...
Fuzzy's Romp Room comes complete with padded walls, restrictive clothing/accessories (for the really bad days) and an endless supply of love to all of ya all. Believe it or not, I do have tons of love and forgiveness in my heart ... it's just my head that's a wreck.
thefuzzylemon
Diagnosis: 1/20/2011, 2cm, Stage IIIc, 14/15 nodes, ER+/PR+, HER2-
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May 18, 2012 09:26 AM, edited May 18, 2012 09:27 AM
by sas-schatzi
Teresa what a nice thing to say. It really means allot to a nurse when someone says it the way you did
Dune I ditto what Gail said.
Crog I interpret that you have been given clearance to do all PT. Pyriformis stretch:lay flat on back>>take either foot and put it over the knee and let it rest on the flat bed. Take the opposite hand and place it on the crossed knee. Gently pull the knee towards your face ,the knee wil be pointing at the 10-11 o'clock position. If pyriformis is tight you will fell a pull/stretch in the butt . Stop and hold for about 15 to 20 seconds, relax, then repeat. Once you feel no or a much reduced pull/stretch in the butt move to the next clock position----, then pull knee towards 12 o'lcock position and repeat hold and relax. Then pull knee towards 9'o'clock position. repeat hold and relax. Then put opposite hand at ankle and same side hand at knee and pull towards face this is essentially the 3 o'clock position. Each change in pull position will have a corresponding stretch on the butt. Repeat steps with other leg.This should not cause pain. It should feel good as the muscle releases. So significant pain is a reason to stop.
Hips: flat on your back---raise either leg from the hip off the bed to 45 degrees. holds and then lower to bed >>relax repeat. Repeat at higher degree of height off bed. Next with leg straight foot in normal position>>move leg out to side. Hold and then bring back to center line and relax. Repeat with other leg. This can be down in standing position also. Laying and standing , you will feel different groups of muscles supporting the leg and the use of hip and butt muscles low back and upper back muscles.
Low back. My guess is your Pt has given you many stretches for lower back, I'll add one. Flat on your back cross on leg over the other, your body wile rotate a bit as you hang the leg over side of bed. If possible have helper hold leg and stretch it towards your head very slow and gently. This also should feel good versus pain. Pain stop and return to neutral position.
From your first post your PT has you doing the standing exercises. so, I won't go through those. Good luck. Your last response where you said "OH ok. " I could just hear you, Crog. If you need a physical description of pyriformis let me know. L&H's sheila
SAS
veggy
PA
Joined: Dec 2009
Posts: 5,270
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May 18, 2012 09:51 AM veggy wrote:
Sometimes you just want to hit some people (bosses included) over the head with something...
But like this nail, they don't learn their lesson and continue to be stupid...
If you sneak up on them and bash them while their back is turned...
Might make the problem worse.
So take Dogeyed's advice...
Equal Employment Opportunity EEO info on cancer:
www.eeoc.gov/facts/cancer.html
ADA Section 11 discusses accomodations for employees with cancer
www.eeoc.gov/policy/docs/fmlaa...
Family and Medical Leave Act defines length of medical leave
Contact them.
Diagnosis 5/26/09 *Chemo 6/9/09 - 10/6/09 *Lumpectomy 12/1/09* Grade 2b* Nodes 1/17* Triple Negative* Thyroid surgery 4/12/10
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May 18, 2012 09:56 AM, edited May 18, 2012 09:57 AM
by sas-schatzi
Folks, my musical experience in the left ear apprantly rebooted the right ear. Silence for about 12 hours. It was heaven. But now has returned in right ear--not as roaring. I 'll add link if anyone wants to read about the sience behind"rebooting the neurons"
www.medical.hear-it.org/index....
already had added this but didn't add the --what --- about what it had done.
SAS
crog234
Scarborough, ME
Joined: Dec 2010
Posts: 472
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May 18, 2012 10:21 AM crog234 wrote:
Thanks so much Shelia for all your help with exercises. You have been such a big help to me.
So the music is back.. Going to read the link you posted...
Have a great day everyone...
Cindy
Diagnosis 12/16/10. ILC ER+/PR+ HER2-
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May 18, 2012 10:39 AM sas-schatzi wrote:
Crog happy the exercises help. The tinnitus the music "rebooted the neurons"(description in link) in the left ear for about 12 hours there was silence. Golden. Now the right ear has started again , but not as loud.The left that had the music is silent. NOW I hope the music starts again in the left , may be it will reboot the right again.
SAS
LaurenM730
Long Island, NY
Joined: Feb 2012
Posts: 365
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May 18, 2012 10:55 AM LaurenM730 wrote:
Dune - I've been having the same problem with idiotic male bosses, and just work in general. HR gave me some bad advice, which I took not knowing it was bad, and that screwed things up for my royally. I'm doing what I need to do for me and just saying F them! Don't rely on HR to help you. Ladies here have recommended documenting everything that happens. They can't discriminate against us, we're protected under the ADA. Take care of yourself, and if you feel like its really unfair, get a lawyer. They're the only ones who will be on your side when it comes to work issues.
Crog - PT did wonders for me. Although yesterday was a bitch and I kept having back spasms so she couldnt work on me. Does your PT specialize in BC patients? That was my requirement. We do massage, stretching and strength training. What a world of difference.
So my exchange is in less than 3 weeks and I can't wait. I'm counting down to getting these awful bricks off my chest. I feel like I'm at the end of a pregnancy when you're so big you can't move and just laying down hurts, not to mention trying to roll onto your side or get up. I can see the light, although its dim at this point.
Yeah, they're fake... The real ones tried to kill me!
Dx 12/6/2011, DCIS, 6cm+, Stage I, Grade 3, 0/3 nodes, ER+/PR+
SpecialK
Tampa, FL
Joined: Feb 2011
Posts: 5,716
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May 18, 2012 11:01 AM, edited May 18, 2012 11:02 AM
by SpecialK
Are you all familiar with the urban dictionary? DD and I submitted a new word the other day - tumblebunny. She looked under her bed and there were some very large dust bunnies that resembled tumbleweeds! There are some very funny words on the urban dictionary - if you need a laugh it is a fun place to go. During chemo I also spent some time looking at www.damnyouautocorrect.com - always made me laugh! It is totally inappropriate, and sometimes downright disgusting, but always funny. If you are sensitive - don't look at it!
DCIS/IDC ON RT, ADH/ALH ON LFT, NS BMX 11/1/10, ALND 12/6/10, 4 TE/Skin surgeries from 12/21/10 - 7/19/11, TCHX6 (2/17/11-6/2/11) Herceptin done 1/19/12 Exchange done 2/24/12
Dx 9/27/2010, IDC, 2cm, Stage IIb, Grade 3, 2/14 nodes, ER+/PR+, HER2+
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May 18, 2012 06:33 PM, edited May 18, 2012 06:40 PM
by dunesleeper
Thanks Gail, Veggy, and oh geez. I forgot, but anyway your information is very helpful!
Dx 2/7/2012, IDC, 4cm, Stage IIb, Grade 3, 1/31 nodes, ER+/PR+, HER2-
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May 18, 2012 07:39 PM sas-schatzi wrote:
Special K checked it out --yes , it's not for the sensitive, but LMAO. Another fun site is the "Darwin awards" this is a site for people that have done something so STUPID it cost them their life. That may sound cruel, But here's an example. Someone who was given the assignment to clean out a Gasoline tanker, who uses a cigarette litter to see if it's empty. Well, blew up him and the tanker. The Slush Pile on this site is for those stories where "someone" did something so STUPID, but they survived. The Darwin Award is for the person that removed themselves from the gene pool by their stupidity.
SAS
dogeyed
Asheville
Joined: Jan 2011
Posts: 859
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May 19, 2012 06:00 AM dogeyed wrote:
DUNE, I sent you a PM private message.
CINDY NOW, Where are you??? I want to hear from our girl ASAP. I miss seeing your little kitty avatar. And you are the originator of the "Fuzzinator," and Fuzzy needs a name for her new bike. I just find you so approachable and pleasant, please come home, dear one. GG
IBC, IDC, Melanoma/ 5 mos ACT chemo, mastectomy, rads to 10/28, Arimidex one month
Dx 2/14/2011, IDC, 5cm, Grade 3, 2/11 nodes, ER+
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May 19, 2012 05:49 PM, edited May 19, 2012 06:26 PM
by Nancynow
Hi Fuzzy and Everyone,
Veggy, I hope you are OK....been thinking of you. (((Veggy)))
Dogeyed....it's me. Hi lovey! My dear....my name is Nancynow. You know, I love the name Cindy (and our wonderful Crog-Cindy). But unfortunately....I'm Nancy - for now. Thanks for the compliment. How are you?
I was gone for a week on a biz trip...mostly hated it. Stress level thru the roof. It was a company executive's dream and the worker bee's nightmare (guess which one I am). TONS of money spent, and for what? I flew over 2500 miles and got to see very little of the awesome place we were at. So, I got home after a 6 hour flight - to rush hour traffic. In a very crappy mood. My water pressure at home was down to a trickle. Idiots who own the property kept shutting it off to fix a leak in the downstairs unit.
Me: phone call number 1 ripping head-off, "get your asses over here now to get my water running. I don't care how late it freaking is!" Me: phone call number 2, ripping head off to lymphedema pump med company harassing me over a week's period: "it took you 3 months to get back to me with a quote, and in one week you can't reach me, so you harass me with 10 phone messages...you want an answer? here it is...keep your damn freaking pump, I don't want it anymore and don't ever call me again..got it?!". Me: (last victim of the night - my cat....he was a challenge to my highly paid sitter all week. I chased him all over the complex to get him inside for the night. Went down to get my luggage, and he escapes): "fine, get eaten by a coyote you little sh*t! I don't care!". Trust me, I am almost NEVER like this. Thank goodness it was late enough for any additional victims to be safely in their homes.
I slept for 8 hours and woke up a candidate for sainthood. 
Work just sucks! More travel ahead in the next 1-3 months. Thanks for letting me rant.
Love y'all. Now, I need to go back to last Saturday's posts here and catch up. My cat sends his love too. Little sweety is asleep on my bed right now.
Edited, grammar (which is still far from perfect Lol)
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May 19, 2012 05:59 PM, edited May 19, 2012 05:59 PM
by Nancynow
This Post was deleted by Nancynow.
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May 20, 2012 02:36 AM dunesleeper wrote:
Nancynow, work most certainly can sour my mood. Ugh! Here's to a better week ahead.
Dx 2/7/2012, IDC, 4cm, Stage IIb, Grade 3, 1/31 nodes, ER+/PR+, HER2-
dogeyed
Asheville
Joined: Jan 2011
Posts: 859
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May 20, 2012 05:56 AM dogeyed wrote:
NANCY NOW, I swear, I know your name, and I even made a point of saying to myself, I says, "Self, it's Nancy, now, not Cindy. This has happened before. Now, remember, it's Cindy." Hahahaha. Oh, dah'lin that was some funny story about when you get home all tore up from the trip, and anyone in your way becomes an instant grease spot! Ha! Best of all, tho, is your comment, "woke up a candidate for sainthood," how come you is so creative?! Thanks for checking in, I figured I must have missed some previous post letting us know about your trip. GG
IBC, IDC, Melanoma/ 5 mos ACT chemo, mastectomy, rads to 10/28, Arimidex one month
Dx 2/14/2011, IDC, 5cm, Grade 3, 2/11 nodes, ER+
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May 20, 2012 04:29 PM Nancynow wrote:
GG/ Dogeyed, thanks so much for the big laugh. I love to laugh (you wouldn't have believed it if you crossed my path on Friday night, eh?). I was a crazy person before leaving, trying to get everything ready, so didn't post much about it. BTW, a few years ago, I don't know why - but everyone was calling me "Karen". It was strange yet funny. The name Nancy hasn't been popular in a very long time, hmmm.
dunesleeper, thanks for understanding. Will be at home base for about 4 weeks before more out of town, whoooppee!
Sas, wow, interesting stuff & I hope both ears clear up & stay that way.
SpecialK, very cute about the tumble bunnies. My neighbor had a cat she named tumbleweed. Her coat had large swirling patterns. I loved the name. Gonna check out the urban dictionary and your link...(considered forewarned).
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May 20, 2012 08:48 PM grannydukes wrote:
Where is VEGGY??????????????????????
Dx 4/15/2010, DCIS, 4cm, Stage II, Grade 2, 1/6 nodes, ER+/PR-, HER2-
veggy
PA
Joined: Dec 2009
Posts: 5,270
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May 20, 2012 09:34 PM veggy wrote:
I don't know. I have been looking for her.
Diagnosis 5/26/09 *Chemo 6/9/09 - 10/6/09 *Lumpectomy 12/1/09* Grade 2b* Nodes 1/17* Triple Negative* Thyroid surgery 4/12/10
SpecialK
Tampa, FL
Joined: Feb 2011
Posts: 5,716
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May 20, 2012 10:35 PM SpecialK wrote:
veggy - ha-ha!
Nancy - the urban dictionary is fine, it is the damnyouautocorrect site that comes with the heads up warning!
DCIS/IDC ON RT, ADH/ALH ON LFT, NS BMX 11/1/10, ALND 12/6/10, 4 TE/Skin surgeries from 12/21/10 - 7/19/11, TCHX6 (2/17/11-6/2/11) Herceptin done 1/19/12 Exchange done 2/24/12
Dx 9/27/2010, IDC, 2cm, Stage IIb, Grade 3, 2/14 nodes, ER+/PR+, HER2+
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May 21, 2012 01:15 AM Nancynow wrote:
Wait, Fuzzy got a trike? Fuzzcycle, trike-inator, Fuzzymobile...cool. I wanna go for a ride!
Veggy, good to hear from you.
Sommer43
United Kingdom
Joined: Feb 2012
Posts: 599
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May 21, 2012 09:41 AM Sommer43 wrote:
This thread has been one of the funniest, heart warming, beautiful threads, I have ever read, and not just here.
Hats off to you ladies, I have been wetting myself reading this...
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May 21, 2012 09:50 PM thefuzzylemon wrote:
Sommer ... WELCOME!!! It's such a special place and your post was so sweet. I needed a little sweet today!!!
Oh boy....I gots me a little tiny tan going on!!! WHOOHOOOO!!! I was Chemo Crisco White ALL LAST YEAR!! Me and the Fuzzinator...Trikinator....Fuzz Mobile...Captain Freedom.....Drive It Up Their As.....no, not that one....hee hee - have put on almost 400 miles!!! Oh yeah. My DH is a little PO'd - I will qoute, "I spent all last year worried for your life and then you drive this to Madison?" To which I replied, "Fate does not temp me any more....and I bought a helmet sweetie!!" HAHAHAAAA Didn't help him at all but I giggled like a little girl! And I haven't put that helmet on yet - kinda screws up the freedom thing ya know?
So...I need to take my girls (my angel faces - my darling little babies - the most amazing people ever) on a special vacation this year. My baby graduated high school and got into a great college and my older baby worked her butt off to get into a private college and completed her sophmore year on the Dean's List...and got a SUPER COOL internship...something about creating standard operating procedures for building DNA or some awesome thing I know nothing about! Sorry...I rambled a little...
So, I would like to take the girls to Virginia Beach for a week. Any suggestions? Hotel? Sights to see? Good deals? Best food? I have never stayed in the area and we plan on just hanging out at the beach and relaxing...we haven't been on a vacation together in years and last year was a definitive year to say the least! So, if anyone can give me any info to make this as special as it can be ... I will love you forever! Ok, I will love everyone of you forever anyway and you already know that!!
I have made it through day one....wasn't too bad in the shitstorm...I think the winds have changed...updates soon :) My baby puppy missed me so bad! Oh...can I take him on vacation too? Maybe not...he'll be so upset.
Nancy - Pick you up around beer thirty tomorrow!! vroooom vrooom HAHAHAHAHAAA
The Fuzzy Lemon
Dx 1/20/2011, 2cm, Stage IIIc, 14/15 nodes, ER+/PR+, HER2-
dogeyed
Asheville
Joined: Jan 2011
Posts: 859
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May 22, 2012 07:36 AM, edited May 22, 2012 07:41 AM
by dogeyed
FUZZY, you is so cool, riding that FuzzMobile and being commentated on by your hubby. Funny girl. Takes me a whole year to put 400 miles on our CAR. Hahahaha. SOMMER, glad you like the weather here, there's some mighty sweet ladies talking with us. Love to my sisters always, GG
IBC, IDC, Melanoma/ 5 mos ACT chemo, mastectomy, rads to 10/28, Arimidex one month
Dx 2/14/2011, IDC, 5cm, Grade 3, 2/11 nodes, ER+
crog234
Scarborough, ME
Joined: Dec 2010
Posts: 472
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May 22, 2012 08:25 AM crog234 wrote:
Hi all. Nothing special going on but wanted to shout out a hi to everyone. Rainy here today. Good day to relax and read, oh and exercise!!!! Most of you know that the last year has not been an easy one for me. I am just getting back to moving around at a better pace. Well I was able to wash some windows this weekend and boy I found some muscles that I have not used for a long time!!! It is all good though... Sore muscles means I am still alive!!!!!
Ok here is to a good day for everyone.....
Cindy
Diagnosis 12/16/10. ILC ER+/PR+ HER2-
LaurenM730
Long Island, NY
Joined: Feb 2012
Posts: 365
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May 22, 2012 08:43 AM LaurenM730 wrote:
Hi everyone! I took me a few minutes to catch up on all the posts since I was on last week... Things at work have been crazy so I've had no time to check in. Im counting the days till my exchange (2 weeks from tomorrow) because I'm still in awful pain. My back is killing me at all times and my boobs literally feel like they are going to bust open.
SAS - I just read your post about the Darwin Awards, and had to laugh. Even though someone died from their stupidity. It was a guilty laugh.
So is anyone planning another NY get together? Maybe when the weather gets nicer? its been so crappy here during the week that I just want to crawl in bed and play Words with Friends all day. I'm addicted to my iPad games. Words, Draw Something, Scramble with Friends. Awful...
Yeah, they're fake... The real ones tried to kill me!
Dx 12/6/2011, DCIS, 6cm+, Stage I, Grade 3, 0/3 nodes, ER+/PR+
crog234
Scarborough, ME
Joined: Dec 2010
Posts: 472
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May 22, 2012 09:05 AM crog234 wrote:
Lauren. I am addicted to my IPad games too. Words with friends and scramble with friends. Good way to pass a rainy day though. Well that and reading....
Hope the next 2 weeks go quickly for you. It is no fun to be in pain......
Cindy
Diagnosis 12/16/10. ILC ER+/PR+ HER2-
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May 22, 2012 02:49 PM sas-schatzi wrote:
Hello been gone a few days--computer virus, if it really gets bad and no computer I will let Nancy or Fuzzy know.
Fuzzy congrats on the great kids-----a true accomplishment. Kudos. Vacation could always be Florida--Hint, Hint. Go to orlando (or here). Orlando's more exciting though. Special K and I could come and we could go see Harry Potter.
Welome sommer.
Nancy glad you divested yourself of all that negative energy--whew.
Crog weird to do normal things again ?
gail, and veggy, Granny, lauren, SK Hello and hugs
Several days without noise, no changing almost hourly. Would love so nice music !
SAS
crog234
Scarborough, ME
Joined: Dec 2010
Posts: 472
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May 22, 2012 04:04 PM crog234 wrote:
SAS. It feels good to do some normal things... Now if my foot would feel normal (probably never will) that would be even better..... But seeings how a year ago the surgeon couldn't say for certain if I would even walk again I guess I shouldn't complain to much!!!!
Cindy
Diagnosis 12/16/10. ILC ER+/PR+ HER2-
veggy
PA
Joined: Dec 2009
Posts: 5,270
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May 22, 2012 05:07 PM veggy wrote:
Tomorrow I am meeting my new team (surgeon and plastic surgeon). I am so excited and scared at the same time. MY stress level isn't too bad. I am hoping they scheduled me really soon for the operation. Who is all in my pockets?
Diagnosis 5/26/09 *Chemo 6/9/09 - 10/6/09 *Lumpectomy 12/1/09* Grade 2b* Nodes 1/17* Triple Negative* Thyroid surgery 4/12/10
crog234
Scarborough, ME
Joined: Dec 2010
Posts: 472
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May 22, 2012 05:15 PM crog234 wrote:
I am in your pocket tomorrow Veggy.....
Diagnosis 12/16/10. ILC ER+/PR+ HER2-
sheila888-â…
Westchester County, NY
Joined: Jul 2009
Posts: 23,725
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May 22, 2012 05:19 PM sheila888-♥ wrote:
Me 2 veggy.....♥
Sheila♥
Dx 4/8/2005, IDC, 1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2+