Jun 26, 2012 09:04 AM veggy wrote:
Everyone is in my pocket and ready to go? I'll beg my husband to come here and let you know how I am doing.
All Topics → Forum: Relationships, Emotional Crises, Anxiety, and Depression → Topic: Fuzzy's Romp Room
Posted on: Nov 30, 2011 10:46 AM
So here I am. Out of active treatment. Found out that looking forward to "it getting easier" and "getting back to a "normal" hasn't happened. Instead, I discovered that the journey only began - that I will forever fight this disease, my mental health continues to be challenged and making "changes" to avoid reoccurance just makes me feel like Cancer gets to control my quality...screwed up, right?
So, here it is...Fuzzy's Romp Room. I'm so ready to drop F Bombs and smack stupid people for the insensitive crap that they say and do. I'm sick of medications "getting me through." I have had just about enough of people on the other side who just don't get it, yet feel they need to say something to make a cancer patient "feel better about themselves" or whatever that reasoning is...
I'm hoping that this thread will just give a place to be 100% open. I do love to write, and I do love all of my sisters here. I do not want to offend anyone, ever. I just need to let it out...feel free to do the same. I thought by opening up my own thread, it would keep me from offending anyone else on thread's that they have built. I'm just such a friggin' mess and I need some help to get it together ...
Fuzzy's Romp Room comes complete with padded walls, restrictive clothing/accessories (for the really bad days) and an endless supply of love to all of ya all. Believe it or not, I do have tons of love and forgiveness in my heart ... it's just my head that's a wreck.
Posts 2281 - 2310 (6,357 total)
Jun 26, 2012 09:04 AM veggy wrote:
Everyone is in my pocket and ready to go? I'll beg my husband to come here and let you know how I am doing.
Jun 26, 2012 09:48 AM luvmygoats wrote:
Veggy - In your pocket from Texas. Today's the day, right? Bringing what sounds like your fav. snack Turkey Hill Ice Cream. Seriously have to go looking for that. Girls, move over. Will need BIG cooler for ice cream, no melting allowed. Only the best of thoughts for you today!
Jun 26, 2012 10:55 AM SpecialK wrote:
veggy - definitely in the pocket!
Jun 26, 2012 01:31 PM sas-schatzi wrote:
Fuzzy, I only edited out versus delete b/c i always wonder what was the delete-----thus avoiding curiosity over nothing...Thanks for you kind words ,sweetie, you always brighten my day----now on your way to fun
getting to like this toy more and more---did I mention the vibrating---feel like a queen when in the electric bed. now if a butler with just a tie on would bring the tea, that would be really superlative.
Jun 26, 2012 01:46 PM LaurenM730 wrote:
I've been a little MIA lately, trying to keep busy. Glad I stopped by to wish Veggy luck and let you know I'm in your pocket.
Hugs all around
Jun 26, 2012 04:18 PM Blessings2011 wrote:
Sas and chabba -- dang! My MO wants me on Arimidex after I get off this diet. We've already had "the talk" about how I already have most of the AI side effects from other medical conditions...and how I already have osteopenia, spinal stenosis, degenerative disk disease, and fibromyalgia. She said she'd also put me on one of those bone-building drugs and at that point my mind just shut down. All I could think of was building this fake exoskeleton around my already crumbling bones, and snapping my femur when I step off a curb. But another BC sister suggested perhaps Tamoxifen instead of Arimidex, so maybe I'll check it out.
Fuzzy - Its a 32 foot camper so its more like relocating than camping
Too funny! My DH is a regular outdoorsman, and for me, roughing it is a
hotel without room service. I do not pee in the woods. So years ago, we decided to get a travel trailer so we'd have the best of both worlds. Well, BC, his health, and life got in the way, so we don't have one yet, but we know what we want. Hope you have a fabulous time relocating!!!
Sending sunny Cali vibes from your pocket, Veggy!!!!
DH went to the dentist this morning to get a tooth filled, and came home with it yanked out. So now I'm playing Nurse Nancy, making sure he takes his meds, blending up things for him to eat, and refilling his ice packs. Thank God we manage to take turns being sick, so we can take care of each other. He was a real trooper after my BMX/recon, so I'm happy to devote a day (maybe a day and a half!!! ) to his comfort!!!!!
I am struggling with getting these TEs out NOW, or waiting til September. Lots of decisions to make. Lots of numbers to calculate. Math makes my head hurt. I think I need a nap. Maybe I'll hide that bell I just gave DH!!!
Hope everyone has a lovely day today.
Jun 26, 2012 06:10 PM LaurenM730 wrote:
Blessings - too funny about the bell. My daughters ashen sick in bed for a few days so I gave her a bell. She rings it every other minute. She's 6 so she thinks it's hysterical. She remembered that I had that and the tray when I had my BMX in January. Makes her feel special...
We're getting ready for a long weekend - sans kids- in Atlantic city. Can't wait! We will drive to my parents tomorrow night, stay over with the kids, then finish the drive Thursday morning three whole nights away. This is way overdue. Needing a little R&R after this whole ordeal. Yay!
Jun 26, 2012 07:42 PM grannydukes wrote:
Veggy----i know tomorrow is your day...Not only will i be in your pocket ill have a Ruben Sandwich for ya...Remember you ate that when we went to the restaurant...Good luck Honey...YOU KNOW WHERE TO FIND ME
Brain dead...just got back from an evaluation of lumps i found after a bug bite....I GOT FREKIN LE....I am sooo pissed off.5 min.outdoors and a lifetime of a shitstorm.PT 3x a week for 4 weeks.
can you tell il pissed.i came home from the evaluation and went right to sleep.
and the shit goes on....hugggggggggs K
Jun 27, 2012 01:07 AM, edited Jun 27, 2012 01:12 AM by sas-schatzi
Granny, (^%$##%6-------so sorry about LE. Damn Bug^$#%^&*0. The medical/research community just doesn't get how LE affects us. They truly don't. With my brain sx, I refused 3x's to have an IV in Left arm. Consciously mentally competent adult, not under the influence of medication. Explained left breast .and axillary and upper inner arm LE. Told there experts stated there was "only" a 3 % risk factor. After giving them a lecture- I reitterated-- No consent period. Woke up with an arterial line in left radial artery. Later after afew weeks --- Obtained anesthesia record--It stated 2 attempts at right radial. In hospital I checked out right radial at point of awareness--i.e thinking okay. There were no puncture sites at radial artery site. A LAY PERSON MAY NOT KNOW WHERE TO LOOK, BUT I SURE DO. They lied.
I wrote in my evaluation. That once a patient denies a procedure and it is done , it becomes an assualt and battery. That is a criminal offense--a felony. I may have to threaten a police complaint to get there attention. Hope it doesn't get to that. I loved Moffit in all other ways, But anesthesia docs apparently believe they are above the law. Will keep you updated.
Veggy.my longer message to you is on Bonfires, don't know how to C&P yet with new machine. L&H's sweetie.
Lauren glad things are going well , have a good trip. Love the story about your 6 y/o. "The Princess with the Bell".
Jun 27, 2012 01:24 AM thefuzzylemon wrote:
Oh damn Granny!!! Sorry 'bout the LE!!! That is a shitstorm fo sho! Keep us updated though....those techniques really do work...
So my DH got us all hooked up and made tacos on the grill (Yes....friggin amazing and his signature dish...) then he left....with the baby puppy and I got sad. It will be too hot for Baby and DH has to work. But, the girls and I caught a turtle while kayaking!! Then we went to Wisconsin Dells on a Fudge hunt!! Oh I have eaten some fudge tonight! So, today has been a joy. Tomorrow should be even better.
Veggy....just waiting for DH to let us know how you're doing....I got a little brainfreeze from.the ice cream but hanging in your pocket and not leaving until you're home safe and sound!!!
Did you say you're on holiday with your ex? Is That a holiday?? LOL. Tell us more!! He must be spoiling you....I Hope!
Ok...WE LOVE THE TURTLE MAN!! Has anyone watched this show? Oh he's a hoot! So, Tomorrow we are going to make Our own version of "live action" and send it to him. AHAAAAAHAHAAA this should be very funny!!
Jun 27, 2012 01:28 AM thefuzzylemon wrote:
HOLY CRAP SAS!!!! WHO FO THEY THINK THEY ARE????
Throw the F'n book at 'em. That's bullshit. I'm Sorry but that is very upsetting. 3% my ass!! And you said NO!! ugh.
Jun 27, 2012 05:56 AM kingjr66 wrote:
Veggy - my thoughts are with you, sorry I missed the pocket party. Damn, I'm always missing the parties.
Jun 27, 2012 10:19 PM dunesleeper wrote:
Hey Fuzzy. I think I want to start cutting back on my Celexa next week. How did you get off your SSRI? I want to get off my sleep meds too. I am going to try to do that aggressively beginning next week. Anyway, I really want to get off this stuff and find out what is me and what is drug.
Jun 27, 2012 11:20 PM sas-schatzi wrote:
Dunes one drug at a time otherwise your mind is going to rebel--like wacko.. slow and easy one drug at a time. Legally you need to obtain your doc's advice as to withdrawal routine. Others may describe what happened to them, but only doc's can give the advice you are requesting. leave a washout period between drugs. That means after you have followed your doc's advice Then allow several weeks --a pretty statndard washout is 8 weeks---before starting to wean off the second drug. Playing the role of ---"I can beat this" sets you up for problems---that even can be catastrophic not managed right.
Jun 28, 2012 12:15 AM dunesleeper wrote:
Thanks sas. I have actually been through the SSRI withdraws before, so I kind of know what to expect. I just don't know if I can handle it. I think you are right. I will focus on the sleep meds first. I'm just having to take toooooo much to be able to sleep, so it is time. I don't want to run this by the doc because I am trying to get disability retirement. You and I both know there are better ways to get healthy than through Big Pharma. However, I'm not so sure the docs on the Medical Board deciding my eligibility know this. Long ago, people would travel to resort-like locations, where they would rest, spend time in nature, probably help grow the food, meditate, take spas, etc. This is sort of how I am viewing my retirement. I won't be able to travel anywhere to do it, but I can work on making my home more of a retreat and my body more of a temple.
Jun 28, 2012 12:34 AM thefuzzylemon wrote:
Oh the withdrawals for me were brutal!!! Getting better now...I'd suggest Googling what they are all about. At least you'll know why the weird shit is happening...IF it happens to you - they say "some people" get withdrawal issues. But, you'll see that its more than "some". I can't believe how hard it was to get where I am but I'm very very Glad I stuck it out. You should work with your doc for sure...I didn't want to be put on meds to get off meds so I went cold Turkey...I Did it soooooo slowly and sooooo carefully....still got severe withdrawals. But, my sisters here helped me tremendously and I will gladly support you too!!!
Jun 28, 2012 12:44 AM thefuzzylemon wrote:
Loooooove the retreat idea!!! That's very special and you deserve it!!
No word on Veggy.....I'm worried. I'll stalk other site and see if there's anything....
Nancy....where oh where have you gone? Gather up ladies....the search party is gearing up....
GG....You wouldn't believe how many times I thought of you tonight. It was kinda strange!! LOL I guess I just needed you in my head tonight! Thanks for visiting....
Camping was a hoot Today. Took a river tour and my little one fell in the drink!! Lost her shoe and laughed the whole time! My oldest
...as I learned today....CANNOT SWIM!!! LOL but its so funny to watch her! She laughs so much that she sinks! They caught a turtle and I got some fun pics of that. Oh...we found a lovely cafe for breakfast too (after the fuses blew and the griddle stopped working)....but it all worked out and we'll go there again in the morning: )
Jun 28, 2012 03:38 AM dunesleeper wrote:
Well, I had quite the adventure tonight; and I consider myself a very lucky girl. My parakeet, Puff, is still hanging in there. Actually, he is doing better than hanging in there. He refused to go into his cage for the night, and I was determined I was going to have air conditioning. He needs to be covered when the AC is on. So, we went through our ritual of him flying from room to room and me chasing after him, except tonight he had a lot more energy than usual. Being a bird, he takes advantage of heights; so I stepped on the edge of a clutter-filled chair, and the whole thing toppled over. My left elbow took a beating and got a huge gash that produced a lot of blood. I don't think I broke anything. I managed to find a bandage and tape from when I had surgery. I got it washed and put some neosporin on it and have it covered. It's not the best place for a bandage.
Why am I lucky? It is the left elbow. If it had been the right elbow I would probably be looking at a major LE problem!!!
Thank you God!
Jun 28, 2012 09:02 AM, edited Jun 28, 2012 09:07 AM by dogeyed
God bless everyone here in Fuzzy Land.
Awwww, Dune, love your avatar with your budgies. I also love your attitude about your fast-approaching retirement time. Yes, ye shall be free, with gashed arm and all.
And Missy Fuzzy, just yesterday evening, as it grew quiet, husband and I sat in an ever-darkening room and I told him how close I was to you, my dearest friend, and then we both talked about old friends. Your trip sounds like so much fun, you deserved it, girl.
Sassy, I am proud of you for getting right on that new computer and being your talky self, giving us aid and assistance in our medical needs, but wow, that was something else about your I.V. thing going in the wrong arm. It's almost like when you go in the OR, some other entity takes over the situation and whatever is supposed to be done is thrown right out the window to best attack the problem at hand, no matter what the cost. I came out of a simple chemo catheter op with bruises around my neck, to where I asked my surgeon if they tried to strangle me to death.
Lauren (and Blessing), oh that bell stuff is some kinda wonderful, charming stories indeed. And HELLO VEGGY coming out of your coma-like state.
ME, YES, FOLKS, I AM BECOME A NEW PERSON. Last couple days were scary, had so many chores to take care of before I yank the phone out of the wall and not go anywhere for a whole month, to just kicking back and feeling the breeze on the front porch of my life. I managed to get my pills renewed, stocked the kitchen, and got my bills in order, pushed my doc appointment to a couple months from now, and said EFF YEW WORLD, it's time for me to build up myself in quiet reclusion, I've been pushing at this thing for sooooo long, a lifetime of disasters in one year, and then dragging my spirits out of the deep volcanic crater and standing in the light of God's will. I am back on the path, so well-lit by the Christ, as I often say, I follow along with my sheep brethren in silent agreeance, the flock all round me, as Jesus opens the gate and lets us thru to green pastures and still waters. May the mist of peace float around us all and lift us up into heaven's soft sounds, for Grace is with us always as long as we follow the sound of His voice and His will. Amen. GG
Jun 28, 2012 02:19 PM Blessings2011 wrote:
Aw, dogeyed....sending up big prayers for God's peace and comfort to always surround you, and His grace and mercy to always lift you up!!!!!
Jun 28, 2012 06:44 PM grannydukes wrote:
Still no word of Veggy???????????
I sure hope she is sleeping and doin ok..
ill be away for a few days....goin to brooklyn my GDs birthday is Sat.Indoors so the heat wont make me swell.
happy 4th everyone hugggggggs K
Jun 28, 2012 09:46 PM dunesleeper wrote:
WTG GG! I love your analogy of the breeze on the front porch of your life. It is a sweet thing to look forward to. I am soooo ready.
Jun 29, 2012 02:19 AM thefuzzylemon wrote:
GG....I melted with your words...we really have each other and it was truly a joy to read your post. You found you!! That's amazing and I'm so happy for you; )
Living room Olympics should only be completed by trained professionals!!! Or...if the EMT's are close and super cute....gosh I'm glad that wasn't worse!!
NANCY IS BAAAAACK!!!! WHOOT WHOOT!! Ok. You Are grounded young lady. Ok. You're un-grounded and YEAH! You're back!! Doing the happy dance for mama! Were you in Chicago? I'm just a hop skip and a jump from There!! Next time, if You like, I would love to come see ya! My brain is really on its own agenda...I gave you my Cellie I hope!
Last day of camping for me and my squirrels (girls..LOL). It was wonderful. Hot as hell but it kept the bugs away! I'll be prepping for my baby girls graduation when I get back. Its on Sunday so I may be missing for a few days....
Does anyone have any thoughts on obtaining assistance for prescriptions/costs? I did a lot of research tonight and sent the websites but I'm sure I didn't get them all....I'm hoping the ones I did find are legit! I can't believe the costs for this stuff. Its criminal.
Oh...now if Veggy would just pop her gorgeous little head in here....or the DH......just a little somethin '....oh man I hope you're ok. I know You had a hard time with the decision....:( I'm still with the pocket peeps and we ain't leaving til you say you're ok!! Or...until you wash these parachute pants as I am not a strong swimmer...
Jun 29, 2012 03:32 AM dunesleeper wrote:
I'm glad the bugs stayed away Fuzzy. I was wondering how that works. I understand we have to be especially careful about bug bites because of the risk of lymphedema. So I'm supposed to wear long sleeves all summer? How does that work? I really can't see it. If anyone passes through Baltimore and sees a very wet woman mowing the lawn wearing long sleeves, it just might be me. LOL
Jun 29, 2012 06:50 AM kingjr66 wrote:
Dune - why do I get the feeling that Puff was watching the whole time you were tending to your wounds and feeling a little friskie in doing so.