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All TopicsForum: Not Diagnosed with a Recurrence or Metastases but Concerned → Topic: thyroid nodule?

Topic: thyroid nodule?

Forum: Not Diagnosed with a Recurrence or Metastases but Concerned — Meet others concerned about developing a recurrence or metastases.

Posted on: Apr 9, 2009 02:22 PM

raro wrote:

Well, I got my pet scan back, and at least my organs are all clear. I have a spot on my rib, and the ginormous blob on my sacrum, but what lit up the most was a 1.2-cm nodule on my thyroid. Could this be cancer from previous radiation treatments?! We still don't know if the main tumor is cancer. Has anyone had any such problem? I've never had any thyroid issues or problems, so I'm clueless, and I can't find any information about it. Thanks

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Apr 9, 2009 02:43 PM karen4u wrote:

When I had my Pet following my liver mets a nodule lit up on my thryoid also.  I had never had any thryoid issues before either so I was very much concerned that it was cancerous also.  An ultrasound was done on it and the radiologist felt it was nothing to worry about and we would keep a check on it.  When I got to my onc office later that afternoon he had recommended to biopsy it on his report...I guess to ease my mind.  The biopsy did show it to be benign.  I would definitely pursue further testing of it if I were you, just in case. 

Karen    

For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind. 2 Tim 1:7
Dx 6/2004, IDC, 5cm, Stage IIb, 1/9 nodes, mets, ER+/PR+, HER2+
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Apr 9, 2009 07:40 PM Joviangeldeb wrote:

I'm going through something similar except mine is in the left adrenal gland, so my doc is sending me to an endocrinologist. i have an appointment 4/30. It's more than likely benign, but I want to make 100% sure. Best of luck to you.

Debbie
Dx 10/1/2007, IDC, 6cm+, Stage IIIa, Grade 2, 1/3 nodes, ER+/PR+, HER2-
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Apr 10, 2009 03:39 AM faeriesong wrote:

raro - how scary for you!  I'm praying it will be B9.

Have they scheduled a biopsy of the other areas?  How did they manage to get NO cells on the previous attempt...that must have taken some doing!

I really feel for you - it's bad enough feeling like c*&p without having to deal with the endless 'mishaps' and unnecessary waiting.  I often wonder how fast these medics would move if it was their wife/daughter/sister they were dealing with...

big hugs to you

Mary xxx

Never go to a doctor whose office plants have died ~ Erma Bombeck
Dx 3/19/2004, IDC, 1cm, Stage I, Grade 3, 0/5 nodes, ER+
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Apr 10, 2009 09:32 AM hopefor30 wrote:

I have just been told my thyroid is enlarged by my endo -- I have been hypothyroid for years and take synthroid, but have not had an enlarged thyroid before.   My endo did not seem concerned, but I am very worried that is something bad.   She said no nodules, but I can definitely tell it feels different -- sometimes bothers me when I swallow.

I will see onc on Monday and can't wait to see what he says -- I would at like to have it scanned or have an ultrasound -- my endo/PCP didn't seem concerned at all, but it scares me.   Will know more after my appt. on Monday and will post back.

M.

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Apr 10, 2009 09:35 AM Bugs wrote:

On my follow up PET scan after chemo/rads they found a nodule on my thyroid.  Sent me for an ultrasound and a biopsy and it was B9.  My onc wanted the biopsy..said he wouldn't be doing his job if he didn't make sure it was B9.  Push for the biopsy to make sure and ease your mind.

Thyroid issues seem to be very common among bc patients.

Good luck!

Bugs


Dx 2/1/2006, IDC, 6cm+, Stage IIIa, Grade 3, 3/16 nodes, ER+/PR-, HER2-
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Apr 10, 2009 10:10 AM NancyD wrote:

Thyroid issues are very common. Even pre-bc, I had benign thyroid nodules. The first were diagnosed back when I was in my twenties. I had half my thyroid removed then. The remaining half has grown to the point that it takes up as much space as the whole thyroid did, and then some. Still benign.

Endos see a lot of this and are pretty savvy about what is cause for concern. But I'm surprised they wouldn't want at least an ultra sound. They would then get some kind of baseline measurement to use for future reference.

I'm not a complete idiot. Some parts are missing.
Dx 2/28/2008, IDC, Stage IIIa, Grade 2, 4/10 nodes, ER+/PR+, HER2-
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Apr 10, 2009 11:14 PM hopefor30 wrote:

Well I talked to my endo again today -- we were discussing how long I should stay on the Prilosec she prescribed for indigestion.   Then I asked again what about my neck and she asked what about my neck?   Huh?  I am totally disillusioned......glad I am seeing the onc on Monday.   Hopefully it is nothing, but my thyroid has not been enlarged before and it bugs me ---I would definitely like to get an ultrasound just to be sure.

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Apr 11, 2009 12:10 AM gale1220 wrote:

Hi,  I just went thru something similar. I am a five year BC survivor but when I got my 6 mo. checkup my Oncologist did a chest exray which prompted a catscan of my lungs which they thought they saw spots on but turned out to be a lung which didn't completely expand but while doing this test they also saw nodules on my thyroid and had to go for an ultrasound which was followed by Biopsies a week ago and results showed one was B9 & one was suspicious so sent it off to Mayo Clinic for second opinion and just got results yesterday & it is B9 also, thank Goodness.  I was very surprised as I had no symptoms but I was told these are common & usually benign but he wanted to be sure and relieve my thoughts.  I love him as a Doctor but I don't want to go back for awhile. I think they all should be followed with an ultrasound. Good Luck to anyone dealing with this.

Gale

Gale
Dx 1/26/2004, IDC, 2cm, Stage IIb, Grade 3, 0/12 nodes, ER-/PR-, HER2+
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Apr 11, 2009 12:23 AM Wink333 wrote:

I just recently had a CT and no mets but nodule/cyst on right side of thyroid. Rad recommended US and/or needle biopsy. Surgeon feels it is definitely B9 and recommends US again in 6 months. If it isn't one thing it's another to worry about.  TSH and other thyroid test are normal.

Wink

Wink333
Dx 2/28/2007, 2cm, Stage IIIc, Grade 3, 11/25 nodes, ER-/PR-, HER2-
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Apr 11, 2009 07:06 AM Crystalady wrote:

Please be vigilant with checking on these nodules.7 years after my BC they found I had a multi-nodular goitre. I had a biopsy on the largest one. It was B9. I might add that my blood tests showed that my thyroid function was in the normal range.

The next year I had another scan & wanted to do another biopsy. I said he'd have to put me out to do it. He said if he was going to put me out, he wanted to take it out as a precautionary exercise. After getting another opinion I decided to get it out and then go on Oroxine. Mt Doc said that there is definitely a link between BC & Thyroid Cancer & he has many patients with both.

Anyway, my bloods before the OP said everything was normal, BUT after he did the surgery he said"thank God we took it out. That nodule was cancer & you have 4 other sites."

Needless to say I don't trust blood tests and Last Dec I was diagnosed Stage 1V BC even though my TM's showed everything was normal.


Dx 12/4/2008, 3cm, Stage IV, Grade 3, 2/22 nodes, mets, ER+/PR-, HER2-
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Apr 13, 2009 05:12 PM kimf wrote:

raro,

On my first ct scan after bc dx they found a thyroid goiter and several (7) nodules. I had a biopsy done of the goiter and it was negative. Completed all tx including herceptin, then had the thyroidectomy due to the number of nodules and the size of the goiter...turned out to be positive for thyroid cancer - completely unrelated to bc. Thankfully, even after 10 months, it had not become invasive and I only needed one radioactive iodine tx for a cure. Can't say if a pet would have picked it up b/c I never had one before the thyroid surgery, but did have one afterward. Oh, and I never had any thyroid trouble prior to having it removed...now on synthetic hormone (Synthroid) for life.  No lump is a good lump in my book.

Kimf
Dx 12/16/2004, IDC, 3cm, Stage IIIc, Grade 3, 15/23 nodes, ER-/PR-, HER2+
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Apr 14, 2009 09:23 AM hopefor30 wrote:

Well, now I am more frustrated than ever and worried.   I saw my new onc on Monday and he agreed that my thyroid is enlarged and recommended an ultrasound, however, he didn't want to order it -- sent me back to my PCP/endo.    Well, I called her office to have say that onc recommended it and would they schedule it and the answer I got was onc can schedule it himself and that my  PCP/endo won't schedule it until she gets something in writing!   What's with that?  Now it is just taking longer to get this settled......don't they realize how much stress I am already under worrying about this and now we have to quibble over who will order the test?

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Apr 14, 2009 09:50 AM Crystalady wrote:

Hi Kimf,

My surgeon said my Thyroid Cancer was another Primary Cancer also. However, he did say that he often has BC patients who develop this. 

I bet you are sick of this whole cancer thing like I am and wish you could get on with a "Normal" life.


Dx 12/4/2008, 3cm, Stage IV, Grade 3, 2/22 nodes, mets, ER+/PR-, HER2-
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Apr 14, 2009 11:27 AM kimf wrote:

Ha Crystal, wouldn't that be a treat...a "normal" life? You are dealing with a lot more than me, so I emphathize completely with you! Ah well...it is what it is and we can only do what we can. I hope for the best always and just stay in tune with my body. I think we all rolled the crap shot but, like many, I have three little ones to be here for so I'm pushing on like everyone. Just put a call into my Onc for a persistant rib pain...cross your fingers. All my labs were normal in January, so I'm feeling good that it is nothing, but still have to have it checked out.

Hope - dang it...the PCP doesn't seem to be in your corner but I'm more concerned that the Onc wouldn't push for this to be done asap. My Onc called the Endo herself and ordered the u/s and biopsy...I'd go back to him and push for help. Good luck!

Kimf
Dx 12/16/2004, IDC, 3cm, Stage IIIc, Grade 3, 15/23 nodes, ER-/PR-, HER2+
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Apr 14, 2009 12:07 PM, edited Apr 14, 2009 12:11 PM by hopefor30

Yes, that is what I am doing -- sent an email and I am waiting to hear back -- onc did not say it was urgent, but he did say it should be done.   I think he was trying not to get my endo mad, but it looks like it is too late for that.   Hopefully this will get resolved soon and perhaps I will look for a new endo.

 kimf -- did you have symptoms from your goiter?   I don't believe mine is that big -- it is not visible, but I can feel it -- have been complaining to my endo for 3 months and she keeps blowing me off.   I have also made an appt with an ENT  -- they were nice and will see me tomorrow, so maybe I'll get my ultrasound that way.

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Apr 14, 2009 08:41 PM kimf wrote:

Hope, I didn't have any symptoms at all...had no idea I had breast cancer either, so I must not be very observant! Good luck with your appt!

Kimf
Dx 12/16/2004, IDC, 3cm, Stage IIIc, Grade 3, 15/23 nodes, ER-/PR-, HER2+
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Apr 15, 2009 04:04 AM Crystalady wrote:

Kim I'll keep my fingers crossed too and Hope Good luck with your tests.


Dx 12/4/2008, 3cm, Stage IV, Grade 3, 2/22 nodes, mets, ER+/PR-, HER2-
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Apr 22, 2009 02:09 AM Mazy1959 wrote:

raro,

I had an enlarged thyroid found by my breast surgeon. It ended up being a goiter and he only had to remove half of the thyroid so I dont have to take pills. Hugs, Mazy

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Apr 29, 2009 10:44 PM hopefor30 wrote:

Well, here's my update --- my thyroid ultrasound came back with one dominant solid nodule on the right side which requires a FNA biopsy, several smaller nodules and yet another one on the left that does not need a biopsy.   I am freaking out!

I am so disappointed with my endo who wouldn't even do the ultrasound even though I have been telling her for 4-5 months that my neck didn't feel right.    They keep telling me I shouldn't be able to feel the nodule -- it is only 1cm, but I know it's there and I can feel it.  

I am having my FNA biopsy done at the hospital where I am treated for my bc -- hopefully it will be benign, but I am very nervous.   Even if benign, I am afraid that it will have to be removed.   I have had 5 surgeries in the last 1.5 years -- not looking forward to another one -- and I can't believe I am this unlucky.

Did anyone have a solid hypoechoic nodule on their thyroid that was b9?   I think my biopsy is scheduled for next week -- will post back when I know more.

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Apr 30, 2009 08:49 AM snufflesmom wrote:

OMG I'm going through this right now.  I was dx with a goiter back in the 90's.  I had several nodules on it.  A couple of them were cold (which can be cancerous).   Well I had a couple biopsies done and they came back inconclusive.  So we just monitored it and I was put on levoxly.  Well in 05 i got the BC DX, when they did the scans to see if it spread they also noticed my thyroid nodules.  I was like I know I will deal with this after the bc.  So just yesterday I finally got the approval to have my thyroid out.  I so happy, it has been a problem for 10 years, but none of my endo docs really did anything about it till this new one I have.  I'm going back to Mass General to have this surgey.  I had all my BC treatment at Mass General and I love the care that i get there.

 Randi

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Apr 30, 2009 11:43 AM, edited Apr 30, 2009 11:43 AM by hopefor30

Hi snuffesmom,

 I am in Boston as well -- treated at BIDMC --will have my FNA biopsy next Thursday.   I was able to get an appt. with the director of the Thyroid Clinic so I am happy with that.    I think I just want the damn thing out -- but we'll say what he says.    Let me know how your surgery goes and best of luck.

Won't be going back to my old endo -- even after I faxed her the ultrasound report she had very little to say beyond - you need a biopsy.     She is also my PCP so I will be looking for a new doctor.

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Apr 30, 2009 01:21 PM snufflesmom wrote:

It took me 10 years to get to an endo that finally took me serious.  My thyroid has 3 nodules on one lobe and 4 on the other, what a mess it is.  I'm so happy to finally be getting it out.  Th doctor that sent me to the surgeon, his assistant just had hers out 4 weeks ago and she is already back to work.  She also had BC, that is how they found the nodule, when she had her scan. 

 Do you live in Boston or outside?  I live in lowell about 30 miles from boston.

HAve you ever had a FNA?  I hate them and would never have one again.  It is not so much pain as pressure and well I'm just not a fan.

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Apr 30, 2009 10:47 PM hopefor30 wrote:

Hi snufflesmom --

I live outside of Boston -- just west of 495 --

I am having an FNA done next Thursday -- sorry to hear it is not pleasant, but it needs to be done.    Hope it isn't too bad.    I can't wait to meet with this new endo -- I have completely lost faith in my old one.   Hopefully I will get some answers --- I am afraid of having thyroid cancer too, but have been told most of the nodules are benign -- I will keep my fingers crossed.

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May 3, 2009 10:40 PM jap wrote:

Can you give me more information on FNA?  I ned to have it done and am very worried about the level of pain.

Jo Anne


Dx 4/20/2008, IDC, 3cm, Stage II, Grade 2, 2/10 nodes, ER+/PR+, HER2+
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May 4, 2009 01:11 AM, edited May 4, 2009 01:13 AM by leaf

I've never had it done, but 25 years ago, when I was a pharmacy student, I saw it done several times. 

The doc wore gloves, the person sat up, and the doctor stabilized the thyroid nodule by spreading two fingers around it.  Then he took a very fine needle.  I don't remember seeing the person flinch.

But this study suggests that pain can be a problem.  From by wire excision, I have an idea what its like to go through a painful procedure.

A topical analgesic reduced the pain in this study from about 40 out of 100 to about 25 out of 100.www.ncbi.nlm.nih.gov/pubmed/17... Another study used needle free lidocaine. www.ncbi.nlm.nih.gov/pubmed/17...

I had a big thyroid nodule myself, but never had it FNAed.  It was so big (3cm), they removed 1/2 of my thyroid instead.  

As my surgical nurse friend used to say, No procedure should be a painful procedure.  Best wishes.

If you're going through hell, keep going-Winston Churchill
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May 4, 2009 03:09 AM NYCarol wrote:

I had a FNB thyroid a few years ago.  A radiologist did the procedure.  He took about 6 samples.  First he gave me a local anesthesia, which hurt as much as when you get novicane at a dental office, and that was it.  No pain during the biopsy...just some pressure.  I kept expecting pain as he removed one needle and put another in, but it never happened.  He told me to let him know if it hurt and he would give me more novicane, but I never needed it beyond that first shot.  I had three cold nodules.  All were benign.  Wishing you the same!

Carol


Dx 2002, IDC, <1cm, Stage IV, Grade 2, 0/2 nodes, mets, ER+/PR+, HER2+
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May 4, 2009 10:10 AM kimf wrote:

Jo Anne,

I had the FNB on my thyroid and it wasn't pleasant, but was nothing compared to the fear I had before it was done. I didn't have any anesthesia, the radiologist said that numbing the area can sometimes numb the airways and cause problems with breathing...so I toughed it out. She took three samples. I didn't cry etc., but if you aren't getting numbed beforehand, maybe take some tylenol before going in? As I said, it wasn't pleasant, but it wasn't terribly painful either. More pressure than anything. Good luck!

Kimf
Dx 12/16/2004, IDC, 3cm, Stage IIIc, Grade 3, 15/23 nodes, ER-/PR-, HER2+
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May 6, 2009 08:59 AM Wintermoon623 wrote:

Geez!! I saw onc yesterday for 4 month check up...blood work was good..everything was good til she examined me and said that very dreaded..."Hmmmm." when she checked my neck.  She said she felt some "thickening" there and is sending out my bloodwork for a thyroid check.  Can radiation mess up your thyroid?  Or chemo?  I've had both.  I don't have any symptoms other than I seem to be gaining weight, which is annoying as hell...but I thought that was chemopause (and tiramisu!!).  Now I feel like I feel something in my neck, but it may just be because she said something....just like my head starts to itch whever someone says the word lice or bed bugs.


Dx 10/25/2007, IDC, 3cm, Stage II, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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May 11, 2009 11:24 PM hopefor30 wrote:

Well my biopsy results are in -- "suspicious" for thyroid cancer -- but no definitive diagnosis -- so now I will have to have surgery to have my thyroid removed.    I've had 5 surgeries since July 07 so I can't wait for another one.

I am not really holding out any hope that the final diagnosis will be b9 -- I am expecting to have thyroid cancer -- I just hope it hasn't spread anywhere since my PCP/endo ignored me for 6 months.  I meet with a surgeon on Thursday and hope they can do it right away. 

I can't believe this is happenng to me -- just think - two years ago I was happy and healthy without a care in the world -- now I might actually have two different cancers -- how sad and how unlucky can I get......I suppose I should be thankful that no one has suggested breast cancer mets (at least not yet) but I won't know anything for sure until I get the final pathology.

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May 12, 2009 08:03 AM Crystalady wrote:

I know how you feel. Been there, done that. If it's any consolation the cure is not that bad and they all say that if you ever had to have cancer thyroid is the one to have. Also the tablets are well tolerated with few side effects.

Oh by the way, the surgery really wasn't all that bad either. I was quite surprised that my throat really didn't hurt that much afterwards. Don't tell anyone though, play it up for all it's worth. You deserve to be spoiled.

Good Luck.


Dx 12/4/2008, 3cm, Stage IV, Grade 3, 2/22 nodes, mets, ER+/PR-, HER2-

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