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All TopicsForum: Not Diagnosed with a Recurrence or Metastases but Concerned → Topic: ~* The Waiting Room *~

Topic: ~* The Waiting Room *~

Forum: Not Diagnosed with a Recurrence or Metastases but Concerned — Meet others concerned about developing a recurrence or metastases.

Posted on: May 8, 2009 05:41 PM, edited May 8, 2009 06:14 PM by lexislove

lexislove wrote:

I have noticed there is always someone on the board who is waiting for results of a various scan or test. We all know how difficult the waiting for reslults can be! There is a lot of anxiety that comes along with this.I like to be able to follow up with people, but sometimes it is very hard to keep track of everyone and sometimes these individuals go MIA. I thought it would be a good idea to start a thread for those of us who are well....in the Waiting Room.

Soooo.... Have a pain, and waiting for your bone scan results? Having a PET scan or MRI? Mammogram? Ultrasound?

This is the place to be for support and encouragment. So grab a seat, pick up a magazine or have a cup of coffee....Smile

Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow." ~~~Mary Ann Radmacher
Dx 9/14/2007, IDC, 6cm+, Stage IIb, Grade 3, 0/6 nodes, ER+/PR+, HER2+
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Posts 1231 - 1260 (1,329 total)

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Jan 19, 2012 08:41 AM chrissyb wrote:

YAY!!!!!!!! Kris that is great news!!!!!!! Now you can breathe that huge sigh of relief.
Love n hugs. Chrissy

I found my peace which gave me strength.
Diagnosis: 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Jan 19, 2012 11:37 AM WinterStorm wrote:

Great news, Kris! You must be so relieved!

Mindy
Diagnosis: 7/21/2010, IDC, ER+/PR+, HER2-
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Jan 19, 2012 12:14 PM shar1225 wrote:

<table><tbody><tr><td>

Readsalot

Just noticed your message my daughter was dx in july 2010 with IDC stage 1 grade 1 had lumpectomy and radiation.  Went to hospital with severe chest pains in sept this year did not find anything but pleurisy. Had same thing lymph node swollen and lung noduleds lit up. Had biopsy of lymph nodes. No cancer but didnt say what it was for sure. They are thinking it might be sarcoidsis Finally to my question  she still has chest pains not as bad as before.but off and on. Did you have any sharp pains in chest that moves around?  It still worries her because dont know what it is for sure. I guess yours is still new so may not have any answers for me. She was in hospital in Sept for five days on strong pain meds. and did all the tests. Finally was put on predisone which she said would never do again if at all possible because of severe side effects.


</td></tr></tbody></table>
Shar (Daughters Diag)
Diagnosis: 7/24/2010, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2-
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Jan 19, 2012 12:25 PM readsalot wrote:

Shar-I sent you a PM.

Kris


Diagnosis: 2/24/2010, DCIS, <1cm, Stage 0, Grade 1, 0/5 nodes, ER+/PR+
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Jan 23, 2012 01:37 PM, edited Jan 23, 2012 01:38 PM by BettyBoo

Going to see doc on Wednesday re mammo and MRI result, GP said the preliminary report says fat necrosis and inflammation found. Still waiting to hear re CT, have constant pressure feeling in right abdomen where GP found the nodule, combined with on/off nausea and dull ache, I am worried.


Diagnosis: 2/15/2010, ILC, 6cm+, Stage II, Grade 2, 0/15 nodes, ER+, HER2-
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Jan 23, 2012 05:15 PM WinterStorm wrote:

BettyBoo, I'm surprised they don't give you all the test results over the phone. To have you wait... My clinic calls me when they have results. My last CT was at 11am 12/27 and my ONC called me at 4:30pm on the same day.

Here's wishing you great results to the tests and that there is nothing for you to worry about. I wish this for you and hope you can find some peace of mind until then.

Mindy
Diagnosis: 7/21/2010, IDC, ER+/PR+, HER2-
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Jan 23, 2012 07:47 PM chrissyb wrote:

Betty, keeping my fingers crossed that everything is as the prelim report said.  I agree with Mindy, this waiting for days on end is just not fair!  What would happen if you pushed a little to get the results over the phone?

Hanging in there with you.

Miny, what's happening with you now?

Love n hugs.  Chrissy

I found my peace which gave me strength.
Diagnosis: 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Jan 23, 2012 10:45 PM WinterStorm wrote:

Hi Chrissy, I was just now thinking that perhaps on Friday (1/27) I ought to reward myself with a little celebration because that will be the one month anniversary date of my last CT (12/27) and then one month later will have my follow up CT (2/27). Whew! I'll be halfway there come Friday.

Mindy
Diagnosis: 7/21/2010, IDC, ER+/PR+, HER2-
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Jan 23, 2012 10:53 PM, edited Jan 23, 2012 10:54 PM by chrissyb

Mindy, celebrate, celebrate, celebrate!....lol.... any reason is a good reason to celebrate and half way is better than the beginning.  It's amazing how time, even though it always moves at the same pace, can seem either slow or fast depending on what the anticipation is?  Hope it's moving fast for you.

Love n hugs.  Chrissy

I found my peace which gave me strength.
Diagnosis: 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Jan 24, 2012 02:59 PM BettyBoo wrote:

Thank you for your kind words of support. Here you very rarely get phoned with results, it really is a long wait at times!


Diagnosis: 2/15/2010, ILC, 6cm+, Stage II, Grade 2, 0/15 nodes, ER+, HER2-
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Jan 24, 2012 09:40 PM chrissyb wrote:

Hanging in there with you Betty!

I found my peace which gave me strength.
Diagnosis: 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Jan 26, 2012 04:59 AM BettyBoo wrote:

Thank you all for your encouragement, have had my check up, bc surgeon had quick prod of the area and is confident it's scar tissue from my lipofill reconstruction op last year. So no further tests needed, and he says no further check ups needed either, I am discharged from the Breast Clinic two years after DX. Odd, that's it now!


Diagnosis: 2/15/2010, ILC, 6cm+, Stage II, Grade 2, 0/15 nodes, ER+, HER2-
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Jan 26, 2012 05:17 AM chrissyb wrote:

Congrats Betty! That's great news! I'm so happy for you. I know you are going to feel adrift for awhile but it will pass. Just think of all the things you can do with all that extra time!

Love n hugs. Chrissy

I found my peace which gave me strength.
Diagnosis: 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Jan 26, 2012 06:44 AM, edited Jan 26, 2012 06:45 AM by alison34

hi ladies

please can i join

i am in the waiting phase at the moment and its not a nice place to be

i just had my diep flap surgery two weeks ago and got a phone call Tue to say while in the operation they noticed my intramammary node was enlarged and there not happy with it

back to the scan room for pelvis abdo and chest scan grrrrrr

its frightening times just when you think right all done put it behind you and get on - oh no

i get my scan thur 2nd feb results fri

i am hoping for the best but trying to mentally prepare for the worst

i have 2 girls 7 and 12 and i haven't told them about this set back - i think there's no point worrying them with something that i don't know what it it myself do you agree ???

thanks for letting me vent Alison x

3 rounds of fec 3 rounds of taxotere 30 blasts of radiotherapy tamoxifen for 5 yrs - in the middle of difficulty lies opportunity.
Diagnosis: 1/7/2010, IDC, 2cm, Grade 2, 3/18 nodes, ER+/PR+, HER2-
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Jan 26, 2012 08:10 AM chrissyb wrote:

Hi Allison, vent away. There is nothing worse that thinking all is done only to find that may not be the case. Being told that the intramammary node was enlarged would naturally make you think the worst. Here's hoping that isn't the case. I agree with about not saying anything to your children yet as you still don't know if there is anything to actually worry about. There is time enough to say something when you get some answers yourself. Good luck and do let us know how you get on.

Love n hugs. Chrissy

I found my peace which gave me strength.
Diagnosis: 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Jan 26, 2012 03:42 PM alison34 wrote:

Thank you Chrissy xxx

3 rounds of fec 3 rounds of taxotere 30 blasts of radiotherapy tomoxifen for 5 yrs - in the middle of difficulty lies opportunity.
Diagnosis: 1/7/2010, IDC, 2cm, Grade 2, 3/18 nodes, ER+/PR+, HER2-
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Jan 26, 2012 04:45 PM CherylinOhio wrote:

Just had 2nd mammogram on my single remaining side. All clear!! Yea... reconstruction surgery date has been moved from April to March 19.  Whew, am excited and nervous!!  Getting LD flap with one implant and one TE.  Can't wait to see how I pull that off!!

I have nothing to fear but fear itself, and spiders. Cheryl K
Diagnosis: 3/29/2011, Stage IIIc, Grade 3, 17/25 nodes, ER+/PR+, HER2-
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Jan 26, 2012 10:42 PM chrissyb wrote:

Yay ckgrayoh!!!!!  That date will be here before you know it and I'm sure you will do just fine.  You are one step further down the road..............way to go!!!!!

Love n hugs.  Chrissy

I found my peace which gave me strength.
Diagnosis: 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Feb 1, 2012 10:54 PM jrgolomb wrote:

Hello all-- I hope I can join you.  I went for an ultrasound of my uterus and the doc found an ovary with "shadow" around it. She said not to worry,Foot in mouth and she just wanted to have a second opinion.  Of course I am in a panic and trying not to think the worst, but it is hard.  I go on Monday for an improved ultra sound so they can get a clear picture of the ovary.  On the order form, she wrote in ovarian cyst.  Of course I looked up the stats and (BIG MISTAKE!) I am even more worried.  ARGH!

Jess--Multifocal-- IDC .
Diagnosis: 10/16/2008, IDC, 1cm, Stage II, Grade 1, 1/17 nodes, ER+/PR+, HER2-
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Feb 2, 2012 01:55 AM chrissyb wrote:

Hi Jess any thing that is 'unusual' is always a panic button thing for all of us.  Deep breathe and try to relax as more often than not, a cyst is just that, a cyst.  Hang in there, we're on the bench waiting with you.

Love n hugs.  Chrissy

I found my peace which gave me strength.
Diagnosis: 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Feb 2, 2012 07:25 AM jrgolomb wrote:

Thanks, ChrissyB-- I love this thread.  Plus, I know everyone here "know what I know".  My husband tries to be supportive and so do my friends, but still......"they don't completely know!, ya know??!!  Wink
Jess--Multifocal-- IDC .
Diagnosis: 10/16/2008, IDC, 1cm, Stage II, Grade 1, 1/17 nodes, ER+/PR+, HER2-
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Feb 2, 2012 08:16 AM chrissyb wrote:

Jess, yes I know exactly what you mean.

Love n hugs girl. Chrissy

I found my peace which gave me strength.
Diagnosis: 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Feb 3, 2012 03:16 PM alison34 wrote:

well ladies i come with good news
scans clear
i was told today that when i had my op they removed the intramammory node and got it biopsied
yes it had breast cancer in it this is the reason for the full body scan
next step now is to see the oncologist on tue to discuss some treatment
they dont think more chemo will be recommended but different hormone blockers and overies out
will know more next week
thanks for your support

3 rounds of fec 3 rounds of taxotere 30 blasts of radiotherapy tomoxifen for 5 yrs - in the middle of difficulty lies opportunity.
Diagnosis: 1/7/2010, IDC, 2cm, Grade 2, 3/18 nodes, ER+/PR+, HER2-
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Feb 3, 2012 08:03 PM, edited Feb 3, 2012 08:03 PM by chrissyb

Yay Alison, that is great news!!!!  I'm so happy for you, and I am presuming that because they are talking ovaries out that they will be putting you on an AI.  They are Arimidex, Aromasin and Femara. They all do basically the same thing they are just put together differently.  Good luck with it all!!!

Love n hugs.  Chrissy

I found my peace which gave me strength.
Diagnosis: 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Feb 4, 2012 11:58 AM jap62 wrote:

New here too, sure enjoy the gamesKiss

I too am in the waiting phase, my Do wants me to get ct of chest,ab,& pelvic and a bone scan, insurance denied it.The Drs office is trying to get it through and more than likely my Dr will have to give them hell.  So in the mean time I have desided to get a second opinion @John Hopkins,I go Wed, then after what they have to say I will decide on what I will do.  My DO want me to do chemo first, so if test aren't approved I will just get my bdx first.  I like how it is said stress is not good for bc patients and thats all you get from insurance co. guess they want me beyond help befor they will approve, idiots...yes it is being appealed

even though I walk through the valley of the shadow of death, I will fear no evil, for You are with me
Diagnosis: 1/9/2012, IDC, 1cm, Grade 3, ER-/PR-, HER2+
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Feb 4, 2012 12:48 PM chrissyb wrote:

Hi jap62, good luck with your appeal and I hope your Doc gives them what for. Waiting is the hardest part of the dx time but once all information has been gathered it goes so much quicker you almost want to say stop so you can get your breath.

Love n hugs. Chrissy

I found my peace which gave me strength.
Diagnosis: 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Feb 6, 2012 01:24 PM jrgolomb wrote:

Well, friends I am one hour away from the ultrasound of the ovarian cyst.  I pray I get the all clear........Hugs! It's been a long weekend! Plus, I had meetings today; I think I functioned okay.

Jess--Multifocal-- IDC .
Diagnosis: 10/16/2008, IDC, 1cm, Stage II, Grade 1, 1/17 nodes, ER+/PR+, HER2-
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Feb 6, 2012 11:01 PM chrissyb wrote:

JR, what's the news?  Do you know the results yet?  Hope they are all good!

Love n hugs.  Chrissy

I found my peace which gave me strength.
Diagnosis: 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Feb 7, 2012 01:03 AM wyattsmom wrote:

Here I am again.... waiting. I did have BRCA testing - family paid for it THANK GOD and FAMILY! The BRCA showed no genetic factor.

I'm here now because I have been having abdominal pain. It seems to be the whole pelvic area. It was coming and going. I asked my onc if I could be having phantom menstrual pain (since I have chemo induced menopause) and his answer was yes, some women have that. However the pain has become constant for the last week. After seeing my primary physician she ordered an ultrasound. Exterior and transvaginal. I had that procedure today. Most of my pain seems centered on the left side but the tech spent an inordinate amount of time on the right. I know I shouldn't have but I peeked at the images when she left the room and saw an area with lots of blue and red and arrows. Hmmm. I know much of that is blood flow markers and whatever but this just freaks me out. She told me that my doctor requested a fax of the information so she would send it right over. Why didn't I ask if she saw anything? Why didnt' I ask when my doctor would call? I was doing pretty good not constantly worrying about cancer but in a week or so I will mark one full year since the end of treatment and I'm so worried about recurrence. I wonder about the recurrent people. I KNOW everyone is different but I really wonder what the average time frame is for recurrence. Ugh! Waiting...


Diagnosis: 11/12/2009, IDC, 5cm, Stage IIIa, 1/3 nodes, ER-/PR-, HER2+
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Feb 7, 2012 01:12 AM wyattsmom wrote:

Hi JR~ I hope all went well for you. Please post and let us know how everything went. Truly hoping the very best for you!

When i had my ultrasound today the tech told me I had "a lot of bowel going on" ... (does that mean I'm full of **it?) :) so it is hard sometimes to see through the gas and stuff. Thankfully I had a full bladder when I went in also. I didn't know it was preferred for part of the exam. But ya know, that would be handy information to give us. If I knew that they would have better pics if my bowel was clear I would have taken a laxative and had clear fluids to be sure all was visible. More info sure would help us all not have to undergo additional tests if they can be avoided. 


Diagnosis: 11/12/2009, IDC, 5cm, Stage IIIa, 1/3 nodes, ER-/PR-, HER2+

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