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Topic: Bone scan. is it claustrophobic?

Forum: Not Diagnosed with a Recurrence or Metastases but Concerned — Meet others concerned about developing a recurrence or metastases.

Posted on: Jan 26, 2011 10:43AM

GG27 wrote:

I have claustrophobia quite bad & have a bone scan scheduled for Monday.  I'm wondering if I should be getting ativan or something?  Or am I being silly?  I've looked at the machine & it doesn't seem too bad.  Perhaps someone who's been through it can reassure me?  Thanks, Dee

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Jan 26, 2011 12:23PM changes wrote:

Hi Dee,

It's not bad - you lie on the table, and the machine starts at your head and moves its way down. I found it a teeny bit claustrophobic when it was at my head, just because it's only inches from your nose. It doesn't stay in one place very long, though, and I just closed my eyes and when I opened them again, it had moved further down. It found it much LESS stressful than an MRI or CT scan. Good luck with your scan - sending positive thoughts your way,

Karen

IDC Stage 1, Grade 1

Dx 5/14/2010, IDC, 1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-Hormonal Therapy TamoxifenRadiation Therapy ExternalSurgery 05/27/2010 Lumpectomy (Left)
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Jan 26, 2011 12:30PM sheila888 wrote:

Hi Dee. This is the machine like Karen said when it gets to your head it is kind of close but your sides are open.

Good Luck to you.

Sheila

Sheila♥

Dx 4/8/2005, IDC, 1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2+
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Jan 26, 2011 12:44PM GG27 wrote:

That machine is much different than what I found on google.  I know I will need ativan, I get shortness of breath just looking at the picture. 

Thanks to both of you for answering.  Cheers! Dee

Bilateral breast cancer, IDC, 3 1/2 cm, Stage 2 Grade 2, 4/12 nodes, ER+/PR+,

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Jan 26, 2011 12:46PM sheila888 wrote:

Maybe it was the machine for bone density test.

Sheila♥

Dx 4/8/2005, IDC, 1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2+
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Jan 26, 2011 12:53PM GG27 wrote:

You're right Sheila, that's exactly what I was looking at, I went back & looked on google again.  This is why I love coming here, everyone makes sure you know exactly what you're doing. Thanks! Dee

Bilateral breast cancer, IDC, 3 1/2 cm, Stage 2 Grade 2, 4/12 nodes, ER+/PR+,

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Jan 26, 2011 12:55PM sheila888 wrote:

Dee...its not really that bad.

Sheila♥

Dx 4/8/2005, IDC, 1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2+
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Jan 26, 2011 01:34PM Cynthia1962 wrote:

Dee,

I have to have valium before I can have a bone scan and I still feel like crying when it's over my face.  The first time I had one, it didn't linger too long over my head, but this last time the machine had a glitch and it was there awhile.  I thought I was going to freak out.  lol   You're probably safer taking an ativan.  Good luck!

Cynthia

Mets to bones

Dx 1/3/2007, IDC, 2cm, Stage IIIa, Grade 2, 4/18 nodes, ER+/PR+, HER2-Dx 11/11/2010, IDC, Stage IV, ER+/PR+, HER2-Surgery 02/16/2007 Lumpectomy (Right); Lymph Node Removal: Axillary Lymph Node Dissection (Right)Chemotherapy 03/19/2007 Adriamycin, Cytoxan, TaxotereRadiation Therapy 09/06/2007 ExternalHormonal Therapy 11/09/2007 TamoxifenHormonal Therapy 11/01/2010 ArimidexChemotherapy 06/01/2012 XelodaChemotherapy 11/14/2012 Navelbine
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Jan 26, 2011 03:12PM, edited Jan 26, 2011 03:18PM by faithfulheart

HI Dee,

I have been wondering the same thing myself. I had anxiety before cancer, and all the scans!

Now it's xanax city come scan time. I had an opph in June due to my ER  statis, and started tamoxifen in sept. I have had lots of pain that comes and goes in my upper right leg sometimes  it will go down my leg or around my hip.

I really can't totally pin point it,  I am so scared of a bone scan,  I am so not prepared for anymore bad news. I Really hope its just lack of estrogen. I don't want to live in denial either. Dee may I ask what your scan is for,  if thats to personal I apologize. It sometimes just helps to know what others are getting scans for. My onc won't scan ,only if he feels strongly enough about it.

I just feel I am going crazy.  Praying  this pain I have had since oct, is not mets. I think I will join you in a bone scan dee!  Praying for good news for you!

God bless

Stephanie

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Jan 26, 2011 05:21PM GG27 wrote:

Cynthia,  Yes, I think I'm going to get an script, I remember now having one of these when I was first diagnosed & although I had one ativan & my DH came in with me & held my hand, I was still very upset when it passed over my head.

Stephanie,  I had leg pain when I was first taking T & went & had acupuncture & haven't had any leg pain for about a year now, you may want to try that, it took 3 treatments to get rid of it totally.  

The bone scan is for the rib pain that I have had for a year now.  The onc is thinking that it's probably from rads, but because it won't lessen she wants to make sure it's nothing.  She is also running all the usual tumor marker blood tests.

Cheers! Dee

Bilateral breast cancer, IDC, 3 1/2 cm, Stage 2 Grade 2, 4/12 nodes, ER+/PR+,

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Jan 26, 2011 06:49PM chrissyb wrote:

Hi Dee, I also am claustrophobic but don't have too much drama with the bone scan.  I make sure I do a little relaxation while they set up and then I close my eyes.  If you are at all unsure, I would suggest getting something to relax you.  Hope it all goes well for you.

Peace, strength, love n hugs.  Chrissyb

I found my peace which gave me strength. 52 at dx. (Sugar Glitter Cheeks)

Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Jan 27, 2011 01:44AM Leah_S wrote:

Dee, when I had the bone scan I was lying on a table that was completely open and the camera passed slowly over my body - it was a different type of machine than the one Sheila posted (guess there's a variety in them!). The tech told me when it was about to pass over my head (started at my feet). So I have 3 suggestions:

1. take the ativan

2. ask the tech to tell you when it's about to pass over your head so you can be mentally prepared.

3. CLOSE YOUR EYES WHEN IT GOES OVER YOUR HEAD.

Even if the machine is like the one in the picture that should help. If you look carefully at the picture you'll see that it's not completely enclosed like other scan machines but open at the side. It also doesn't cover you whole body at once.

Best of luck. And don't forget suggestion #3!

Leah

Dx 11/3/2008, IDC, 1cm, Stage IV, Grade 3, 6/17 nodes, ER+/PR+, HER2-
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Jan 27, 2011 10:33AM Faith316 wrote:

Curious as I have never had a bone scan.  Approximately how long is it over your head?

DX 4/08 IDC, ER-, PR-, HER2+, IIB, Grade 3,lumpectomy,2/8 nodes,4 AC,12 wks.Taxol,Herceptin,30 rads. DX IBC 6/09 while still in treatment. Now Stage III. 6 mo. of Xeloda done, still on Tykerb. Uni-mx & another node dissection 2/4/10.

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Jan 27, 2011 10:35AM sheila888 wrote:

Not that long Faith.

Sheila♥

Dx 4/8/2005, IDC, 1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2+
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Jan 27, 2011 10:39AM changes wrote:

Dee,

A word of warning - don't be freaked out if they "rescan" a body part. They did that for my head and ribs (and I went in with LEG pain). I was absolutely convinced it was because the radiologist had "found" something, but it was nothing.

Karen

IDC Stage 1, Grade 1

Dx 5/14/2010, IDC, 1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-Hormonal Therapy TamoxifenRadiation Therapy ExternalSurgery 05/27/2010 Lumpectomy (Left)
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Jan 27, 2011 10:42AM Amy4199 wrote:

holy moly!  the first time I had a bone scan I was alone - freaked out - I tried to crawl out of the machine sideways - they had to restart whole thing - you are NOT crazy - second time - I took my prescription of clonipin, had husband hold hand hole time and still cried - made tech stand by so minute I was done she could release me - anxiety thinking about it - I would definitely go with the ativan and have some support - try to have them keep your mind busy!  GOOD LUCK!  I will say prayer!

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Jan 27, 2011 10:51AM Faith316 wrote:

Do most places let you have somebody in the room with you?

DX 4/08 IDC, ER-, PR-, HER2+, IIB, Grade 3,lumpectomy,2/8 nodes,4 AC,12 wks.Taxol,Herceptin,30 rads. DX IBC 6/09 while still in treatment. Now Stage III. 6 mo. of Xeloda done, still on Tykerb. Uni-mx & another node dissection 2/4/10.

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Jan 27, 2011 11:00AM GG27 wrote:

I don't know if most places let someone in with you, but the Nanaimo hospital does.  I've got a prescription for ativan which I will take an hour before hand.  If I take two, I won't care if it's on top of me, but last time I only took one & it was horrible for me.

I would like to get a handle on my claustrophobia, does anyone have any thoughts on hypnosis or anything else?  I've had nightmares since I was a kid about being in a dark room with only a tiny window & not being able to get out.  It's just gotten worse with all these scans, esp the bone scan & the sentinal node scan.

Thanks everyone for your support, I appreciate it.  Dee

Bilateral breast cancer, IDC, 3 1/2 cm, Stage 2 Grade 2, 4/12 nodes, ER+/PR+,

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Jan 27, 2011 03:57PM Cat123 wrote:

It's not bad....just close your eyes!

Cat123

Dx 7/29/2010, IDC, 6cm+, Grade 3, 4/17 nodes, ER+/PR+, HER2-
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Jan 27, 2011 05:15PM GG27 wrote:

Cat123, That's very easy to say if you don't have claustrophobia.

Bilateral breast cancer, IDC, 3 1/2 cm, Stage 2 Grade 2, 4/12 nodes, ER+/PR+,

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Jul 17, 2011 04:29PM dsiemens wrote:

I realize it's a little late for my reply, but I thought I'd add my two bits. I just had a bone scan done and wasn't prepared for how claustrophobic I would be. I really had trouble when the machine passed over my face. Even though my eyes were closed I couldn't stop thinking about being stuck.  The technician said he would be there for me and could move the camera higher if I needed that. I began to panic and called out "how much longer?" (which was bad because my voice echoed off the camera, giving me an indication of how close it was) and there was no response. He had left the room. At this point I contemplated rolling off the table. I thought I was going to throw up. However, I survived. It really required a lot of mental energy for me.