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All TopicsForum: Not Diagnosed with a Recurrence or Metastases but Concerned → Topic: Symptoms of Bone Mets?

Topic: Symptoms of Bone Mets?

Forum: Not Diagnosed with a Recurrence or Metastases but Concerned — Meet others concerned about developing a recurrence or metastases.

Posted on: Dec 27, 2011 02:59PM

nancymarie wrote:

Hello Ladies,

 I really have not posted in years.  Just wondering what the symptoms of bone mets are (and I guess how you can tell the difference from that or arthritis).  Having alot of pain lately in my left hip (near the groin area) which I never used to have until this year.

Thanks in advance,

-Nancy

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Posts 1 - 27 (27 total)

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Dec 27, 2011 03:08PM chele wrote:

I didn't have any symptoms. Now that I know I've got lots of mets all over I really can't tell when it's bone pain or arthritis when I have both in the same area.

Chocolate for Breakfast! Mets to lots of bones, sternum, marrow, liver.

Dx 11/2/2009, IDC, 2cm, Stage IIb, Grade 2, 3/9 nodes, ER+/PR+, HER2-Dx 3/11/2011, IDC, Stage IV, metsSurgery 11/18/2009 Mastectomy (Left); Prophylactic Mastectomy (Right)
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Dec 27, 2011 03:08PM goldie123 wrote:

i was having pain in my ribs and hip for a few months and then i was always 'pulling' a muscle  somewhere in my body and for sure i thought because its all over that it was just arthritis. i went to my primary dr and told him to test me for everything and the blood test came back with raised tumor markers.. do yourself a favor , have yourself checked out. either way you'll know whats going on

Dx 7/2/2006, LCIS, 6cm+, Stage IV, Grade 2, 26/35 nodes, ER+/PR+, HER2-
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Dec 27, 2011 03:18PM Frapp wrote:

I had no symptoms from the bone mets.

Dx 12/24/2009, ILC, 6cm+, Stage IV, Grade 2, mets, ER+/PR+, HER2-Dx 12/19/2011, IDC, Stage IV, Grade 3, mets, ER+/PR-, HER2-Dx 9/28/2012, 6cm+, Stage IV, Grade 3, mets, ER+/PR-, HER2-Surgery 11/02/2012 Mastectomy (Both)Targeted Therapy 12/20/2012 AfinitorHormonal Therapy 12/20/2012 AromasinChemotherapy 02/20/2013 Taxol
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Dec 27, 2011 03:23PM nancymarie wrote:

Thanks everyone for your quick replies.  Wouldn't mets show up in your blood work though?  My last appt. was 8/2.  It wouldn't hurt to get checked out and find out what is causing this pain so I have a call into my doctor since my next check-up is either January or February.

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Dec 27, 2011 03:27PM Frapp wrote:

Bones mets will only show up on scans.  Mine show on PET scans but I have heard others that have had them show on CT scans.

Dx 12/24/2009, ILC, 6cm+, Stage IV, Grade 2, mets, ER+/PR+, HER2-Dx 12/19/2011, IDC, Stage IV, Grade 3, mets, ER+/PR-, HER2-Dx 9/28/2012, 6cm+, Stage IV, Grade 3, mets, ER+/PR-, HER2-Surgery 11/02/2012 Mastectomy (Both)Targeted Therapy 12/20/2012 AfinitorHormonal Therapy 12/20/2012 AromasinChemotherapy 02/20/2013 Taxol
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Dec 27, 2011 03:29PM nancymarie wrote:

Thank you!  I will definitely get my appt. scheduled then. 

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Dec 27, 2011 03:53PM Chickadee wrote:

Had no symptoms initially. Scan found the first one.

I'm in such bad shape, I'm wearing prescription underwear." Phyllis Diller 1917-2012

Dx 9/1/2009, IDC, 1cm, Stage IV, Grade 3, mets, ER+/PR+, HER2-
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Dec 27, 2011 03:57PM reesie wrote:

One of the biggest difference between arthritis and mets is that mets hurt when at rest. The pain is sometimes even worse when at rest (I.e. Sleeping). This is because the muscles around the bone "squeeze" the bone and when relaxed the bone is able to expand and contract causing the pain( (per my orth onc). If the pain wakes you up at night it definitely needs checking.

However, since you're so close to your check up anyway you might want to get it checked now. There's so much that can be said for peace of mind.

BTW my bone mets show on bone scan but not all do.

Marie - It's A Great Day To Be Alive. Dx 10/29/2010 ER+/PR+, HER2- Stage IV mets to bones, liver, lungs, skin, pleural effusions

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Dec 27, 2011 04:57PM Ellie1959 wrote:

Thanks Marie - my bone pain definitely wakes me up - and is worse at rest - but so far no uptake on scans or labs - it is always a worry though - I have an MRI tomorrow on my neck and my lower back is a mess too - so of course my mind always goes to mets- Love to all - Elllie

Dx 12/27/2005, ILC, 5cm, Stage IIIa, Grade 3, 2/12 nodes, ER+, HER2-
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Dec 27, 2011 06:51PM annemoloney wrote:

I was told in June I had cancer in the uterus(which was true)...while waiting for a hysterectomy my primary care doc suggested a CT scan - that showed bone mets throughout - from neck to pelvis. (later confirmed in a PET scan and bone biopsy)....no pain then, whatsoever, none yet.  Final diagnosis in late August:  breast cancer that metasasized to uterus, ovaries, and all those bones...so you never know.

Dx 8/2011, ILC, Stage IV, mets, ER+/PR+
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Dec 27, 2011 08:37PM nancyh wrote:

Dear Nancy,

Any unexplained pain that lasts longer than a few weeks should be checked with a scan.  Lab tests (tumor markers) are not reliable for everyone, so you should absolutely ask for a bone scan.  Hope everything goes okay!  My bone mets never caused pain, I was completely suprised.

NancyH 

Stage 4 in 2009, mets to liver, lungs, bones, and brain.

Dx 8/12/2002, IDC, 1cm, Stage IIb, 3/12 nodes, ER+/PR+, HER2-Dx 4/2/2007, IDC, 1cm, Stage II, ER+/PR+, HER2-Dx 9/1/2009, IDC, Stage IV, mets, ER+/PR+, HER2-Chemotherapy 10/01/2002 Adriamycin, CytoxanChemotherapy 01/01/2003 TaxolHormonal Therapy 05/01/2003 TamoxifenRadiation Therapy 05/01/2003 ExternalSurgery 05/01/2007 Mastectomy (Both)Chemotherapy 06/01/2007 Cytoxan, fluorouracil, methotrexateSurgery 05/01/2008 Reconstruction: Tissue expander placement, Latissimus Dorsi flap (Both)Targeted Therapy 09/01/2009 AvastinChemotherapy 09/01/2009 AbraxaneHormonal Therapy 06/01/2010 FemaraChemotherapy 09/01/2011 XelodaHormonal Therapy 01/01/2012 FaslodexChemotherapy 06/01/2012 NavelbineChemotherapy 05/01/2013 GemzarHormonal Therapy 06/01/2013 AromasinTargeted Therapy 08/01/2013 AfinitorChemotherapy 10/28/2013 Halaven
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Dec 27, 2011 10:46PM SusieMTN wrote:

I agree, see your Onc.  My first symptom was pain which was different than joint pain.  I ended up having a CT scan, bone scan and MRI.  You should see your Onc. 

Best of luck to you!

Susie

When I grow up I STILL want to be an old woman.....Mets and ALL!

Dx 7/22/2008, ILC, 6cm+, Stage IV, 2/3 nodes, mets, ER+/PR+, HER2+
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Dec 27, 2011 11:13PM blondiex46 wrote:

I got a bone scan just b/c the onco. wanted me to and it was discovered in my neck...which hurts alot of the time, now have pain in my shoulders and spine, sometimes in my pelvis, so he said he will get another one, so will make the appt tomorrow....have to go back to onco. on the 17th and want to have the results back by then...

Original 8/96 - 1cm, chemo, rads. Recurrence..9/09...Mets to lungs, chest wall, lymph nodes under arm & chest, cervical & lumbar spine, ribs, hip. Femera, Falsodex, Zometa, Xeloda, Gemzar, Taxotere, Adriamycin moving to Havalen

Dx 9/1/2009, 3cm, Stage IV, ER+/PR-, HER2-
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Dec 28, 2011 12:13AM Jac53 wrote:

I had a fractured pelvis from mets.  No other pain or symptoms.

Jeannie. "You only live once, but if you do it right, once is enough."

Dx 6/19/1995, 10/15 nodesDx 2/18/2011, Stage IV, mets, ER+/PR+, HER2-Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
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Dec 28, 2011 02:52AM cheryl1946 wrote:

Dx with stage IV mets to bone at onset. No pain;bone mets found on mri

DX 7/6/11 with stage IV at the start;mets to several bones No surgery,rads,or chemo letrozole failed after 17 mos. 2 other hormonals failed; now on to xeloda

Dx 7/6/2011, IDC, 6cm+, Stage IV, Grade 2, mets, ER+/PR+, HER2-
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Dec 28, 2011 04:33AM Kazzie61 wrote:

I have pain in my right shin which spreads down to my ankle at times & it is only when I'm resting (as Reesie suggested could be mets!)...it aches when I go to bed each night as well as when sitting in the evening - much worse in bed though. The question is....would bone mets occur in the lower leg? I've always believed they occurred in the upper half of the body but can't help 'thinking the worst'!
Can't help thinking I'm over reacting but...............

Dx October 2010, Triple Negative, Stage 1, Grade 3, IBC. BMX with immediate DIEP May 2011. Now Stage 4. Dx bone mets May 2012, liver mets Feb 2013, brain mets Dec 2013.

Dx 10/5/2010, IDC, 2cm, Stage I, Grade 3, 0/1 nodes, ER-/PR-, HER2-Dx 5/21/2012, 4cm, Stage IV, Grade 3, 0/1 nodes, ER-/PR-, HER2-Surgery 10/21/2010 Lumpectomy (Left); Mastectomy (Both); Lymph Node Removal: Sentinel Lymph Node Dissection (Left); Prophylactic Mastectomy (Right); Reconstruction: DIEP flap (Both)Chemotherapy 11/20/2010 Cytoxan, TaxotereRadiation Therapy 05/30/2012 ExternalChemotherapy 12/06/2012 Gemzar, TaxotereChemotherapy 02/13/2013 XelodaChemotherapy 12/19/2013 EllenceChemotherapy 01/30/2014 Navelbine
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Dec 28, 2011 05:07AM, edited Dec 28, 2011 09:41AM by K-Lo

Cut to how much better do I feel on Xgeva than before?  Wow!   Too much better.  Forgetting to be careful!    Edited to emphasize:   possible to get checked (MRI) and catch it early.

Kathy

Dx 8/30/2010, IDC, 4cm, Stage IV, 8/12 nodes, ER+/PR+, HER2-
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Dec 28, 2011 05:41AM Racy wrote:

Kazzie, does the pain feel like it's in the bone or could it be a nerve or muscle pain? Does it burn?

Dx 2010, ILC, 2cm, Stage IIa, Grade 3, 0/22 nodes, ER+/PR+, HER2-
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Dec 28, 2011 06:12AM, edited Dec 28, 2011 06:13AM by Kazzie61

Racy, it's 'in' my shin, not muscle i don't think..
No, it doesn't burn, more like a dull ache & only there when I'm sitting or lying down - mostly in the evening.....

Dx October 2010, Triple Negative, Stage 1, Grade 3, IBC. BMX with immediate DIEP May 2011. Now Stage 4. Dx bone mets May 2012, liver mets Feb 2013, brain mets Dec 2013.

Dx 10/5/2010, IDC, 2cm, Stage I, Grade 3, 0/1 nodes, ER-/PR-, HER2-Dx 5/21/2012, 4cm, Stage IV, Grade 3, 0/1 nodes, ER-/PR-, HER2-Surgery 10/21/2010 Lumpectomy (Left); Mastectomy (Both); Lymph Node Removal: Sentinel Lymph Node Dissection (Left); Prophylactic Mastectomy (Right); Reconstruction: DIEP flap (Both)Chemotherapy 11/20/2010 Cytoxan, TaxotereRadiation Therapy 05/30/2012 ExternalChemotherapy 12/06/2012 Gemzar, TaxotereChemotherapy 02/13/2013 XelodaChemotherapy 12/19/2013 EllenceChemotherapy 01/30/2014 Navelbine
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Dec 28, 2011 10:58AM, edited Dec 28, 2011 10:58AM by sandilee

Kazzie, you could have "shin splints" from over excercising or other reasons.  I have bone mets, but none in my shin.  Yet my right shin hurt on and off for a couple of years due to an exercise injury, even at rest. These are hard to heal once you have them.

  It's never a mistake to get a scan if you feel any doubts, though.

mets to spine, ribs, and skull, 6/2011 radiation, Xgeva and Faslodex 7/2011

Dx 11/2007, IDC, 1cm, Stage I, Grade 3, 0/6 nodes, ER+/PR-, HER2-Dx 6/2011, metsHormonal Therapy 01/10/2008 AromasinRadiation Therapy 06/30/2011 ExternalHormonal Therapy 07/15/2011 Faslodex
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Dec 28, 2011 06:26PM Kazzie61 wrote:

Thanks Sandilee...I see the onco in 2 weeks & I will mention it but I'm not sure mets would be that far down - hopefully.....can't help the worrying though:))

Dx October 2010, Triple Negative, Stage 1, Grade 3, IBC. BMX with immediate DIEP May 2011. Now Stage 4. Dx bone mets May 2012, liver mets Feb 2013, brain mets Dec 2013.

Dx 10/5/2010, IDC, 2cm, Stage I, Grade 3, 0/1 nodes, ER-/PR-, HER2-Dx 5/21/2012, 4cm, Stage IV, Grade 3, 0/1 nodes, ER-/PR-, HER2-Surgery 10/21/2010 Lumpectomy (Left); Mastectomy (Both); Lymph Node Removal: Sentinel Lymph Node Dissection (Left); Prophylactic Mastectomy (Right); Reconstruction: DIEP flap (Both)Chemotherapy 11/20/2010 Cytoxan, TaxotereRadiation Therapy 05/30/2012 ExternalChemotherapy 12/06/2012 Gemzar, TaxotereChemotherapy 02/13/2013 XelodaChemotherapy 12/19/2013 EllenceChemotherapy 01/30/2014 Navelbine
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Dec 29, 2011 08:17AM rubyjune40 wrote:

Kassie, I had pain in my shin bone (tibia) that started in June. family dr says one week off of it. After one week of icing and staying off of it it did feel better. but the pain was still shooting up the tibia from my ankle, xrays showed nothing wrong, cat scan nothing wrong, so he sent me to a podiatist who in september sent me for a MRI, the report said I had a bone spur on the inside of the tibia in the ankle joint. Well the cortizone shot helped for 2 weeks then the pain was back. PT and more shots the pain worsen, this dr sent me to a foot and ankle surgeon. November the surgeon looked at the MRI and said you dont have a bone spur , you have a divet in the tibia, HUH???? I had surgery 6 weeks ago . He removed the bone spur that had chipped off my tibia, Of course I was sure the cancer is back, but now I figure it is the SE from the arimidex messiing with my bones. it showed on the MRI, after nearly six months of pain I am almost able to walk without pain, we have to speak up to the dr , we know our bodies  better then them.

DX 8/29/09 new primary IDC .3cm stage 1 grade 2 ER/PR+ unilateral mx recon,arimdex

Dx 8/15/2006, IDC, 1cm, Stage I, Grade 2, 0/7 nodes, ER-/PR-, HER2-Dx 8/28/2009, IDC, <1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
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Dec 29, 2011 09:35AM Ellie1959 wrote:

Off to the orthopedist for ungodly lower back pain, radiating in my hip and leg - and something seriously wrong with my neck - results of MRI today. Seems sad to be posting a whoo-hoo in one breath for 6 years out and total panic and fear for a recurrence today - Could degenerating discs come from chemo and radiation and AI's? Sometimes I feel like blaming everything on tx - lots of love and positive thoughts for you all.............., Ellie

Dx 12/27/2005, ILC, 5cm, Stage IIIa, Grade 3, 2/12 nodes, ER+, HER2-
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Jan 5, 2012 04:49PM CherylinOhio wrote:

Have been having neck pain since new years eve.  I was in a rear end collision about 10 years ago on the highway and have suffered from neck and shoulder pain every since.  I am wondering if this neck pain is being brought on by tamoxofin?  At first when I touched my neck bone or vertebra it was tender, now I just have muscle aches that radiate to my shoulder (not side of bc but opposite).  It scares me that some of you had no symptoms of bone mets.  I see my onc on the 20th and am thinking of asking him for a ct of body. Supposed to get reconx done next month. Also had a neck and chest xray back in October both were clear save for some degeneration of my neck.  Guess I am dissinegrating.....

Some days there won't be a song in your heart...sing anyways. Emory Austin

Dx 3/29/2011, 4cm, Stage IIIc, Grade 3, 17/23 nodes, ER+/PR+, HER2-Chemotherapy 05/25/2011 Cytoxan, TaxotereRadiation Therapy 09/22/2011 ExternalSurgery 03/19/2012 Reconstruction: Breast implants (permanent), Latissimus Dorsi flap (Right)Surgery 09/18/2012 Mastectomy (Left); Reconstruction: Breast implants (permanent) (Both)Surgery 12/20/2012 Prophylactic Ovary Removal (Both)Hormonal Therapy 01/02/2013 Arimidex
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Jan 5, 2012 05:23PM pj12 wrote:

Kassie,

I have heard it is rare to have BC bone mets from the knees down. Not impossible, but not common. But having won the breast cancer lottery we all worry we are likely to get the rare condition :(

Good luck and get it checked out.

"Nobody told me there'd be days like this ~ Strange days, Indeed. " John Lennon................... Treatment: Lumpectomy, 36 Radiation, Arimidex, now Tamoxifen

Dx 3/3/2009, IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
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Apr 14, 2014 09:55PM juneping wrote:

I could feel the pressure at my lower tibia while i exercise. Is it bone met? I am meeting my MO at the end of may....I'll bring it up. But just want to ask if it sounds familiar....

http://juneping.wordpress.com/

Dx 11/15/2013, DCISDx 11/15/2013, IDC, 6cm+, Stage IIIa, Grade 2, 2/35 nodes, ER+/PR+, HER2-Surgery 12/19/2013 Mastectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection, Axillary Lymph Node Dissection (Right)Hormonal Therapy 02/05/2014 Tamoxifen
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Apr 16, 2014 09:26PM squeaktoy wrote:

I had recurring discomfort around my middle rib area that would at times be in the front rib area, at times in the back rib area.  I attributed it to a pulled muscle that I got after getting up from a massage table (I know- so not right!) After a while I mentioned it to my primary care doc who said, yes, a pulled muscle can do that. Since I was in the Tailorx trial I saw my MO regularly  and my tumor markers were always good even with the rib discomfort. (I never mentioned it to my MO.) I saw my MO in Nov. 2013 and then after that a lump appeared on the chest wall.  That came back positive for a recurrance and fast forward.... after a PET can "just to be sure" I was diagnosed with a bone met to rib in April. 

So... lesson learned. Mention everything.

Wishing you good luck,

Lisa

Dx 7/12/2007, DCIS, Stage I, Grade 2, 0/1 nodes, ER+, HER2-Dx 2/27/2014, DCIS, mets, ER+, HER2-Surgery 07/25/2007 Mastectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection (Left); Prophylactic Mastectomy (Right)Hormonal Therapy 09/01/2007 TamoxifenHormonal Therapy 04/02/2014 Femara