Topic: CALLING ALL STAGE I SISTERS

Nov 29, 2012 08:51 PM grannydukes wrote:

as you all know i am not shy...i will come into GCS dancin....in the red dress.

Chevy---no i dont have spell check and i dont need it.lol.

everyone knows what im tryin to say...i thought you understood me after all these years.

BTW are you comin to GCS for the reunion??????

And take those vitamins.

I am not stage 1...im stage 2 but was first dx stage 1 sooo the sistas let me stay....Im still grateful that im feelin good...goin on 3 yrs....I did a lot of complaining at the beg.but life is good and im happy to be alive.

Nov 29, 2012 09:02 PM sheila888-♥ wrote:

{{{{{{{♥Granny♥}}}}}}}

I love you my sister/friend.......

Nov 30, 2012 07:47 AM Chevyboy wrote:

Morning gals.......Yes Tigger, I'm so grateful also.  And I'm thankful that I was much older than some of you gals when I heard I had BC.  It's  frightening anyway, and then to be younger with little kids, I don't know what I would do.

But I had DH, both our Daughter's, and Rosie.... Rosie was from Viet Nam, and she and my one Daughter became friends.... she got married years ago, but she says we are her "other Mom and Dad."  So she's like my Daughter from another Mother.  They took me to the Hospital for the surgery, and THEN went shopping, lunching out, and had all KINDS of fun while I was "under the knife"...Ha!  Surgeon had to call them to ask if they would come get me, that I was ready to go home!  They were so fun to be around, that I didn't have time to think about ANYthing.  

And Kantalope.... I'm thankful for her... She makes me laugh all the time, and we love teasing each other.   See, I think everyone needs people around them, that will comfort you, and hold you in their arms, and just make you feel safe.  And you have to have someone that will make you laugh.... So I think that's why we are here for each other.  And that's your lesson for today girls!  Ha, ha! 

So I'll close my eyes when you gals all get together, and think of you in GCS!  I can't come and be with you.... I sort of can't leave DH alone for too long....But I'll BE there with you, in my heart.  I would love to think of you all gathered around, with music playing, and you guys dancing and just having a ball! 

Nov 30, 2012 07:51 AM purple32 wrote:

iatigger

Can I be honest ? In a word, iatigger ? No!

Actually, I feel UNfortunate that  the (local) newspaper article that just came out around 2 weeks ago saying ppl with my stage  might consider just the ' watch and wait' instead of stirring things up!

Sure wish someone had told me that at the time. I just figured  BIG C - surgery! 
I got no rads, SNB  LX and 2 nodes out , and I have lymphedema.  We are ALL at risk for it ... no matter the stage , and it is lifelong.

I may ( or may not) get a  recurrence and any one of us can get into another stage. We are not out of the woods by any means.
I'm as grateful as the next person for what I DO have , but as my husband ( who was a stage 4 btw) always says : " If you're going to wish, wish BIG!"  I wish they never detected it in the first place to be honest with you!

Nov 30, 2012 01:22 PM, edited Nov 30, 2012 01:56 PM by TinaT

purple32 - I read that article as well.  Unless the one printed in my local paper was edited somehow the specific BC diagnosis was never stated, it only said "early breast cancers".  I assumed they were referring to Stage 0 DCIS or LCIS.  Did the article you read have more specifics?  I was a little surprised that they were so vague.

Additional areas of lobular neoplasia and multiple ADH throughout left breast found at mastectomy.
Dx 12/8/2010, ILC, <1cm, Stage Ib, Grade 1, 0/1 nodes, ER+/PR+, HER2-Dx 12/18/2010, DCIS, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+Dx 2/16/2011, <1cm, Stage 0, 0/1 nodesSurgery 02/16/2011 Mastectomy (Both); Lymph Node Removal (Left); Reconstruction: Tissue expander placement (Both)Hormonal Therapy 04/15/2011 ArimidexSurgery 08/24/2011 Reconstruction: Breast implants (permanent) (Both)

Nov 30, 2012 08:19 PM, edited Nov 30, 2012 08:34 PM by TinaT

purple32 - My local paper must have truncated the article.  I don't remember reading any of what you wrote.  I was, of course, looking for my own stats in the piece.  Hmmmm, mine were all under 1cm, but I had an ILC, a DCIS, lobular neoplasia, and multiple areas of ADH "sprinkled throughout the mid-breast".  None of this showed up on my mammo.  The ILC was borderline (18) on the Oncotype DX testing so I had to decide about chemo.  Unless I read something more conclusive than this I'm still going to be satisfied that I made the right choice for me by choosing BMX.  I just had too much going on to convince me that leaving it all alone would have been the right path. 

I think most of us play the "what if" game throughout this process.  I'm sorry this article casts a shadow over your treatment choices, especially in light of your resulting lymphedema.  It all just plain sucks! 

Dec 1, 2012 08:26 AM Chevyboy wrote:

Morning Purple.... You know, speaking for myself, I didn't have to go through anything like you did... I mean we are all so different.   I maybe could have NOT even had the MammoSite radiation, but listening to my surgeon, convinced me that it would help, and also the 3 nodes were clear.  I COULD have done chemo, with an Onco score of 19, but I didn't want to.  I took Tamoxifen for 14 months and lost my hearing.  BUT I'm 3 years out now, doing good, and I DO find a lot to be thankful for.  When things affect us like they sometimes do, it's easy to understand why we really get down and have a hard time seeing anything good about what happened to us....

I just thank God everyday, that I am beyond all that happened in my life 10 years ago.......  I went through it, we got everything straightened out, but at the time I thought I couldn't and didn't want to go on anymore.  I was just done.   But  with the help of my friends, and my beliefs and determination, I came through it.   It WAS the darkest part of my life.  So I DO find things to be grateful for...  My breast cancer wasn't easy, but for me, maybe going through what I DID before, made it easier for me to face.

Take good care.

Dec 1, 2012 09:10 AM Chevyboy wrote:

No Scottiee....  They told me it is "permanent nerve damage"....  I've been wearing hearing aids for almost 2 years now... I researched it all, and I know Tamoxifen is a "chemo drug".... so maybe it affected the little nerve "hairs" in my ears, like it does the hair on your head.   I was so afraid when it happened, but you just get through it.  

I know it doesn't happen to everyone.... I still have tinnitis, but that's also something you just have to live with.   By the way, the ENT Doc didn't know if it was possible or not, that Tamoxifen caused it.....but just one morning my left ear closed up.... then my right ear.  My Doc thought it was allergies, so for another month, we treated it for that.  But finally she referred me to an ENT... All I knew was I could not hear....

I took Tamoxifen for 14 months.... I wish I could have taken it for the 5 years, but I was just too afraid.

Dec 1, 2012 12:21 PM purple32 wrote:

My breast cancer wasn't easy, but for me, maybe going through what I DID before, made it easier for me to face.

sorry chevyboy...not too sure what you mean ( before ?) 

but yes, I appreciate the fact that we all have very different experiences .  Furthermore, we are all at a  different stage ( denial, acceptance, depressed, content, happy, miserable, afraid, alone, grateful, depressed etc ) that is fluid- hopefully.

Thank you for your post.

Dec 1, 2012 02:52 PM grannydukes wrote:

good afternoon

Chevy thanks for the pic.I know you will be in GCS..As Val says im gonna blow in the air.think of me...and you my sista i will think of you too.

next-I remember when you lost your hearing....oh how i remember that...Im glad you are doing good with the hearing aids.Yeah it coulda been a lot worst...Like yesterday kantalope came to visit me....my breast is that size again.went to the dr.and now i need pt....Im icing it and sleepin with a raised pillow.I dont remember what else to do so im doin my lite stretches and massaging and waiting to call for an appt.yeah the LE is back.grrrrrrrrrrrrr.

I dont even want to talk about the first yr of this train wreck that i went on all i will say is that it took 4 BS to figure it all out...That was back in 2010.If it wasnt for this thread i think i would have killed myself or anyone who got in my way....Chevy can vouch for that.....

Im sorry for all of us.....I pray every nite for a damn cure/vacine....It hurst soo bad when i read about the young gals with small children..I consider myself lucky that i got it at age 69....but that dont mean i wont bitch and complain about this shit storm....

ill be back!!!!!!

Dec 1, 2012 07:16 PM, edited Dec 1, 2012 07:16 PM by purple32

Hi Purple.... I meant that what I went through 10 years ago, before I got Breast Cancer, was worse on me

Hi Chevy

I had an idea that was what you meant- I just dont know what you went thru 10 yrs ago/sorry.

Feel better, granny !

PS  Massage ( regular ) is NOT a good idea ofr LE

Dec 2, 2012 07:13 AM purple32 wrote:

I carried a box of pirex dishes in kmart.didnt think they were gonna be that heavy

That'll do it !
Granny,

sounds like you know ML D- good to do both morning and night.  Dont forget to drink lots of water and raise your arm up over your head now and then and very slowly open and close the fist.  Lots of deep breathing when you think to do it.

Hope this subsides.

No more lifting!!! 

Dec 2, 2012 12:20 PM grannydukes wrote:

Well i think i caught it just in time...yesterday i did the massage every time i thought about it.today is the first day i put the bra on and it feels good.now i know why they say that stage 0 is dangerous..i did neglect it while i was away.AND did all those no nos.i keep forgetting cause i feel good.ill never take this for granted again.

Chevy--darling that sounds yummy but you know im on a restricted diet.I dont eat beef.ever...i eat bison.I hate mac & cheese.I hardly eat dairy only yogurt and greated cheese...hormones my dear is pumped up in both and you know im not takin the 5 yr.meds sooo im careful with what goes in my tummy.I do drink lots and lots of water.I even drink coconut water.You gave me the recipe for conge(something like that) and i do make it with the natural chicken....

Dec 3, 2012 07:18 PM iatigger wrote:

So where did everyone on this thread go? Are Granny and Chevy out partying without us. Maybe I am just getting signed in early tonight. We had record temps today got up to 68! Normal temps are usually in the 30's. Just doesn't feel like Christmas is only a few weeks away. Everyone have their shopping done?

Dec 3, 2012 10:18 PM mimi1964 wrote:

No not done shopping here, no tree or decorations up yet and what with all of us having had the flu the last 2 weeks haven't felt like doing much.  It may not happen until the week before Christmas at this rate.  Besides I'm still mad with my hubby because I wanted a new tree and he didn't want me to spend over a 100.00 on a new tree, but he blew almost 200.00 on a drill, flashlight, and shop vac that he didn't need right now.  Ugh... MEN!!!

Now... I have an appt. with my Med Onco tomorrow and before his appt. I have my appt. to get my yearly mammo.  Let's just say I am worrying myself to death.  I am totally stressed out and will be till I get an all clear back.  I hate this time of year.  It would help so much if they just gave me the results tomorrow, but NO!!! I will have to wait a week till I get a letter or a call from the nurse letting me know.  Normally I have gotten both.  Anyway I have been so stressed I have had a migraine for 3 days.