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All TopicsForum: "Middle Age" 40-60(ish) Years with Breast Cancer → Topic: MIDDLE-AGED WOMEN 40-60ish

Topic: MIDDLE-AGED WOMEN 40-60ish

Forum: "Middle Age" 40-60(ish) Years with Breast Cancer — Meet others in this age-range who share similar life issues.

Posted on: Aug 21, 2009 06:25PM, edited Apr 17, 2014 05:33AM by elimar

elimar wrote:

I started this thread for "middle-aged" women. At the time, we didn't have our own category on the pull-down Forum menu. The ages 40-60 in the header are unofficial--we don't "card" anyone, wink, wink---so if you are close in age it's meant for you as well. We aren't young with small children. Many of us have just gotten to the stage where we were all set to enjoy the freedom of our kids being grown when, Bam!, we got breast cancer instead. We aren't retired yet, so we get to juggle cancer and a job. We might have to care for an elderly parent on days when we feel like we could use a caregiver ourselves!

(BTW, those are general statements, NOT a checklist for belonging to this group. Even I don't fit that to a tee, so it's fine if you have some variation!!!)

Our disease unites us with ALL the strong sisters on this site, but here we can bring up some topics to share with others in the "middle."

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May 2, 2012 01:43PM, edited May 2, 2012 01:45PM by midnight1327

iI am a little niaeve of all these abreviations, DX etc and BMX etccan anyone put me straight as to what those abbreviations mean. i had a lumpectomy after they found grade 3  Breast cancer, HER+ and my biggest fear is it RETURNING. I am om Tamox for 5 years, 4.5 of those to go with this  treatment, mamogram this month, 6 months after radio therapy and my boob is quite sore, which is common after radaiation, am not looking forward to the mamagram as that machine pressed down on the boob and already sore when you touch it, but would appreciate knowing about DX and BMX if somebody could help me with that.

Dx 8/12/2011, IDC, 1cm, Stage Ia, Grade 3, ER+/PR+, HER2-Surgery 08/31/2011 Lumpectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection (Left)Radiation Therapy 10/10/2011 ExternalHormonal Therapy 11/23/2011 Tamoxifen
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May 2, 2012 02:05PM cmbear wrote:

Midnight -- check out the abbreviations for newbies forum. It will answer all your questions. DX stands for diagnosis and bmx is bilateral mastectomy.

Claire

Dx 6/11/2010, ILC, 6cm+, Stage IIIb, Grade 3, ER+, HER2-Dx 10/31/2013, ILC, Stage IV, metsHormonal Therapy 11/20/2013 Faslodex
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May 2, 2012 02:19PM, edited May 2, 2012 02:22PM by elimar

Woah, woah, woah!  I know somebody asked me about the Abbreviations for Newbies, and if I could post a link to it, so I did!   Right here, at the top of the page, underneath the opening post.  Around here, all a Newbie has to do is ask for something and poof! there it is.  That's just how accomodating I am, so all you Newbies BETTER USE THAT LINK!  Yell  (Just kidding about the yell.)

Dx 6/24/2009, IDC, <1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
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May 2, 2012 02:22PM, edited May 2, 2012 03:13PM by elimar

I have to say I miss seeing some of you in your avatars, now that many are guarding their privacy more.  I do think it is a good thing tho', which you probably have guessed since I have been a pink doggy for years now.
Dx 6/24/2009, IDC, <1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
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May 2, 2012 02:26PM mommy4 wrote:

Congrats on one year and I will say my prayers for sweet Julia.

Dx 9/3/2009, IDC, Stage II, Grade 3, ER+/PR+, HER2+
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May 2, 2012 03:10PM LovesChristmas-Barb wrote:

Thank you elimar and mommy4....Julia is out of surgery now. It lasted over 10 hours. The doctors think they got it all...now we just hope and pray that God gave her a miracle. She had the HIPEC treatment where they put heated chemo directly into the abdominal cavity. It has lengthened people's lives for several years. We're hoping and praying for more!

Dx 5/2/2011, IDC, <1cm, Stage Ib, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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May 2, 2012 03:20PM midnight1327 wrote:

Thankyou for that i have found those abbreviations. i knew some  of them, but some i didn't, now i  know and know where to  look. (((( COOL ))))) thank you  lovely ladies. Smile
Dx 8/12/2011, IDC, 1cm, Stage Ia, Grade 3, ER+/PR+, HER2-Surgery 08/31/2011 Lumpectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection (Left)Radiation Therapy 10/10/2011 ExternalHormonal Therapy 11/23/2011 Tamoxifen
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May 3, 2012 01:41AM barsco1963 wrote:

Hi all - just trying to catch up. I haven't been here for a couple of days and there is so much going on.

Welcome to any newbies that have joined us. You will find great support and friendship here.

LCBarb - I pray that Julia is recovering well and that a miracle has been granted.

My week so far - My scans from last week are still showing shrinkage of all tumors - YAY!

Tested positive for BRCA2 - a non-truncating variant. BOO! Not sure what it all means yet. I think what saddens me the most is that my siblings (5 sisters/2 brothers) are now also possibly affected by all of this crap on a more personal level. 

Spent yesterday at hospital with my son (18 yrs) as he was getting all of his wisdom teeth yanked. He did well and has no swelling.

Today might just turn into a pj day! 

Humour is life's greatest shock absorber!

Dx 5/30/2011, IDC, 4cm, Stage IV, Grade 2, 21/29 nodes, mets, ER+/PR+, HER2-Hormonal Therapy 07/25/2011 Tamoxifen
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May 3, 2012 02:13AM reesie wrote:

Did I miss the MP reveal?

Marie - It's A Great Day To Be Alive. Dx 10/29/2010 ER+/PR+, HER2- Stage IV mets to bones, liver, lungs, skin, pleural effusions

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May 3, 2012 02:15AM, edited May 3, 2012 02:17AM by elimar

barcso,  Shrinkage is a wonderful word.  Can't hear enough of that one.  Yay for you!

You really have to look at the BRCA info. as a trade-off for your siblings.  Yes, a little fear might now be their constant companion, however, what if one of their lives is saved becasue they now know they have to be ultra vigilant?   If they want to each get tested, that is now up to them.  I think if they have daughters, they might want to

I am always unclear on  how the BRCA affects boys.  Are they just as likely as a woman to get B/C then, or more than the average male, but less than a woman?  Is the gene passed just as easily through fathers as it is though moms?  Barsco, what do you know about this?  Anybody?

My poor sons turned chipmunk when they had their wisdom teeth out.  Both had a problem with impaction on their lower ones and cutting was involved.  Yow.

p.s.  Reesie, you did not miss it.  I don't think Paula66 actually told us.  There were only a few guesses.  

Dx 6/24/2009, IDC, <1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
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May 3, 2012 02:27AM Dianarose wrote:

http://www.cancer.gov/cancertopics/factsheet/Risk/BRCA

This article talks about the BRAC gene in males.

6/10/13 mets to ovary now stage IV

Dx 3/22/2012, ILC, 1cm, Stage IIIc, Grade 2, 17/17 nodes, ER+/PR+, HER2-Chemotherapy 05/31/2012 Cytoxan, fluorouracil, methotrexateRadiation Therapy 12/03/2012 3-D conformal external beam radiationHormonal Therapy 08/10/2013 Aromasin
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May 3, 2012 02:37AM, edited May 3, 2012 02:39AM by Paula66

O so sorry about the mp. Meece guessed it right away.  It was a picture of lips.  I know it was to easy, but darn photo bucket was miss behaving that morning and wouldn't let me do any uploading. 

Eli from my understanding on the BRCA gene in men, it does up their chances of male breast cancer. Not as high as a womans risk.  But in the whole picture of things, it rasises it abit more as far as male B/C goes. My Onc explained that just by me having the gene and our family history, my bros chances are increased from the average population at 2% up to 4%. It can be from the fathers side as well.  Since we dont know alot of my dads family history, but tons of my moms, we kinda think thats where it is coming from.  We don't tell my mom this because she has always had a hard time with my sissy having it then me having it.  She was just beside herself in the doctors office that day.  I do know that they have talked to me about having my daughter tested, but never really bring up my son.  So when we go to this genetic counsler, Im gonna ask them about him and why are they not putting him in this group.  It could be because of his age right now, so I will see.

Barb Im keeping Julia in my prayers. 

Fight Like a Girl!!!

Dx 10/24/2010, IDC, 2cm, Stage II, Grade 3, 2/3 nodes, ER+/PR-, HER2-
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May 3, 2012 02:48AM lisamarie68 wrote:

Dianarose I hope u get all this worjked out soon enough so u can find a piece of mind . I am always thinking of u .

NNYBBR i dont know if that is right ur post is a ways back , I actually live on Long island .. MY town eastport is on east end towards the Hamptons . I do love florida .. welcome sorry on such yucky terms 

I had  such a bad day yesterday , i am having troubles with pooping and pain meds .. so I am off the damm things today  pain and all. I threw up all over last night .. anyway went to BS yesterday and my pathology results turned out good news . My left breaast and nodes clear . my right breast nodes clear but the breast was very active sge said with Lcis and ADH and that i made the right decision . now its time to heal and get my life and my self back .. if that is possible . The TE's are totally uncomfortable and painful , I hatew it . I almost feel like backing out of reconstruction all together .. looks arent everything .. :( anyway if I missed stuff I am sorry ..Julie I hope all went well with u hugs .. I am sorry I dont know anything about Braca.. LUv and hugs ladies 

lisamarie

Dx 1/18/2012, LCIS, Stage I, 0/13 nodesSurgery 04/24/2012 Mastectomy (Both); Lymph Node Removal: Sentinel Lymph Node Dissection (Both)Surgery 04/24/2012 Reconstruction: Tissue expander placement (Both)Surgery 07/12/2012 Reconstruction: Breast implants (permanent) (Both)Surgery 02/12/2013 Reconstruction: Breast implants (permanent) (Both)
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May 3, 2012 03:03AM Sherryc wrote:

Barb I hope Julia is doing well.  Will continue to pray for her.

barcso so happy your tumors are shrinking that is always good news.

Lisa Marie the TE's will get better I just had my BMX on March 26th.  I had my first fill on April 23rd.  They were bothering me until about one week before my fill.  Then will the fill my right TE was sore for a week.  Now I don't even know they are there.

Sherry--lump left breast 9/30/10. No chemo, Zometa-6tx over 3 years.Oncotype score 23 with 14% recurrence rate. 34 rads. No family history, BRCA neg. 48 years old @ diagn. BMX/TE 3/26/2012, Exchange surgery 8/21/12, Revision surgery 11/27/12

Dx 9/27/2010, IDC, 1cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2-Surgery 05/12/1997 Lumpectomy (Left)Surgery 09/30/2010 Lumpectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection (Left)Radiation Therapy 12/03/2010 ExternalHormonal Therapy 02/07/2011 TamoxifenSurgery 11/03/2011 Lumpectomy (Right)Surgery 03/26/2012 Mastectomy (Both); Reconstruction: Tissue expander placement (Both)Surgery 08/21/2012 Reconstruction: Breast implants (permanent) (Both)Surgery 11/27/2012 Reconstruction: Breast implants (permanent) (Both)
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May 3, 2012 03:06AM Dianarose wrote:

Lisamarie- don't give up on the TE's just yet. I hate them too, but once the swelling gets better it is much more tolerable. You have come this far and you can do this too. I am 3 weeks out and 95% better as far as the TE's are concerned. After all this crap we deserve to look good.

The only meds I take are Xanax at night to help with the muscle spasms and sleep. Glad you path report was good. Hang in there. I have been eating oatmeal every morning to help with the whole poop thing.

6/10/13 mets to ovary now stage IV

Dx 3/22/2012, ILC, 1cm, Stage IIIc, Grade 2, 17/17 nodes, ER+/PR+, HER2-Chemotherapy 05/31/2012 Cytoxan, fluorouracil, methotrexateRadiation Therapy 12/03/2012 3-D conformal external beam radiationHormonal Therapy 08/10/2013 Aromasin
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May 3, 2012 03:09AM Ossa wrote:

Lisamarie.. Tissue expander becomes much more "comfortable" I sometimes forget about it.. Getting it switched out on May 11.. wooohoooo

Today is the first day of the rest of your life.... NED Nov 2011

Dx 4/7/2011, IDC, 6cm+, Grade 3, 3/7 nodes, ER+/PR-, HER2+Chemotherapy 05/19/2011 Adriamycin, CytoxanTargeted Therapy 08/11/2011 HerceptinChemotherapy 08/11/2011 TaxotereSurgery 11/22/2011 Mastectomy (Right); Lymph Node Removal (Right); Reconstruction: Tissue expander placement (Right)Hormonal Therapy 12/28/2011 TamoxifenRadiation Therapy 01/27/2012 ExternalSurgery 05/11/2012 Reconstruction: Breast implants (permanent) (Right)Surgery 10/26/2012 Reconstruction: Nipple reconstruction (Right)
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May 3, 2012 03:30AM elimar wrote:

Thanks, Dianarose, for the BRCA article.  Not too much info. about men tho'.  Here is a BRCA Risk Calculator link I just found, men and women

Dx 6/24/2009, IDC, <1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
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May 3, 2012 04:20AM chachamom wrote:

Thanks for posting the abbreviations elimar!
LCBARB:: I will be praying for Julie too! At the same time I was dealing with my DX, I found out a friend of mine has peritoneal cancer....she's in her 50's though.
She starts her chemo on May 4th so we've been corresponding by email.
I had my 2nd opinion from a new MO yesterday (fist MO said no chemo due to the small size. This MO says she takes the entire pathology into consideration, including the HER2+ STATUS and the multi FOCI with the possibility that my biopsy might have reduced the size of the measure of the tumor.
She's checking with the pathologist ..but sounds more inclined to offering herceptin alone as the minimum. I feel much more confident in the new MO.

Jill. Age 59. "Life is a shipwreck, but we must not forget to sing in the lifeboats." - Voltaire. No chemo/herceptin and no radiation because the largest of multi focal tumors was 3mm

Dx 3/12/2012, IDC, <1cm, Stage Ia, Grade 2, 0/5 nodes, ER+/PR+, HER2+Surgery 04/03/2012 Mastectomy (Right)Hormonal Therapy 05/30/2012 TamoxifenSurgery 11/09/2012 Prophylactic Mastectomy (Left); Reconstruction: DIEP flap (Both)Surgery 10/07/2013 Reconstruction: Nipple reconstruction (Both)
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May 3, 2012 04:23AM Paula66 wrote:

Hang in there Lisamarie.  The TE do get better.  Once you are further into the healing process it will change.  I was having the same issues as well.  At the start I was so uncomfortable I wanted to scream.  Ad I started to heal I noticed a huge difference. 

Fight Like a Girl!!!

Dx 10/24/2010, IDC, 2cm, Stage II, Grade 3, 2/3 nodes, ER+/PR-, HER2-
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May 3, 2012 04:52AM madpeacock wrote:

Hey Paula - I had BRCA done because of my relatively young age at diagnosis (48) and my father's Ashkenazi Jew background. It came back negative, but the counselor was very focused on my daughter. I have no siblings, so no concern there. However, since I now have a history of BC, and my mother-in-law had BC, as well as her sister having BC AND ovarian CA, they were more concerned about what a positive BRCA would mean for my daughter. That said, she is 13 now, and they wouldn't even test her until age 18. With the negative BRCA, but with history on both sides, they likely will recommend that she start screening mammos at an earlier age.  

An interesting side note is that there is somewhat of a connection between melanoma and BRCA (1 or 2 - can't remember right now). My father died of melanoma and every one of his family members has had some form of skin cancer. So, that plus the Ashkenazi connection was another reason for me to be tested.  

Hope you're feeling better each day Lisamarie! 

~Joanna~ "Whatever doesn't kill me...better start running." Diagnosis: 08/17/11 IDC 1.7 cm, Grade 2, Stage Ic, ER+/PR+, HER2-, 0/4 nodes, Mammosite completed 10/21/11. Oncotype = 8.

Dx 8/17/2011, IDC, 1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2-Surgery 09/08/2011 Lumpectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection, Axillary Lymph Node Dissection (Left)Radiation Therapy 10/17/2011 Internal
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May 3, 2012 06:39AM barsco1963 wrote:

I have done a bit of searching on BRCA - found the following in relation to males.

Men with harmful BRCA1 mutations also have an increased risk of breast cancer and, possibly, of pancreatic cancer, testicular cancer, and early-onset prostate cancer. However, male breast cancer, pancreatic cancer, and prostate cancer appear to be more strongly associated with BRCA2 gene mutations (2-4).

I believe the melanoma risk is associated with BRCA 2 also.

Eli - the risk calculator gave me a 10% risk - wonder how accurate it is?

My sisters and I have all certainly been vigilant with mammos etc since mom's dx (15 yrs ago). Now with the BRCA 2 mut found, it looks like the brothers will need to be on top of things also. It is likely that the mutation came from my mom, but having dad's blood tested just to be sure as mom has passed away.

Humour is life's greatest shock absorber!

Dx 5/30/2011, IDC, 4cm, Stage IV, Grade 2, 21/29 nodes, mets, ER+/PR+, HER2-Hormonal Therapy 07/25/2011 Tamoxifen
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May 3, 2012 07:17AM Paula66 wrote:

barsco even though I have already had the testing done and am BRCA+ I, had BC in each breast, I went ahead and put my info in just to see what it says.  I came up with 21%.  I put in both my kids and it came back a 6%.  I am even more confused then I was before I spoke with her doctor.  Mind you Her background isn't a good one in the family area, so I am abit concered with the 6%.  Its not like I'm wanting this (BC) for my kids, I just want a better chance for both of them when it comes to early detection.  I know science has come along ways.  Its just that from one month they say this, then the next month someone else says no this is the way to do.  Example last year I heard that a gal who had an Aunt with BC needs to have a mammo done 10 years sooner then when the Aunt was diagnosed.  Well my sissy had it 2 times in her early 30's.  They say in their 20's a mammo is not a good tool.  What then would you do if it were your daughter.  Here is a breif family run down.  My granny- 50yrs , my auntie-70yrs, my sissy-32, 34yrs, me 43,44yrs  What do you girls think?  Am I being a bit over the top on this or should I just let it go for awhile? 

Fight Like a Girl!!!

Dx 10/24/2010, IDC, 2cm, Stage II, Grade 3, 2/3 nodes, ER+/PR-, HER2-
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May 3, 2012 07:57AM NativeMainer wrote:

Paula, I don't think you are being over the top.  The risk calculator is a tool, not a definitive answer.  Given the family history and your BRCA mutation status your daughter should be made aware of being at higher risk, and she should discuss this with her doctor, around the age of 18 to 20 yrs old.  She and her doctor can look at all the specifics of her situation and determine what would be the best way and best time to start monitoring.  It may be that mammos, MRIs or a combination of the 2, or some new test that comes along in the next few years may be the best way for her to be monitored.  Or him, if your child/children are boys. 

dx 3/07, Stage 2, Grade 2 IDC, 2.8cm, ER+PR+, Her2(-), SN-, lumpectomy & rads, mastectomy 8/15/08, right prophy mast and bilateral DIEP recon 6/21/10

Dx 3/9/2007, IDC, 2cm, Stage II, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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May 3, 2012 09:09AM Dianarose wrote:

My primary doc called today and said she preferred to get me into Beth Israel. She was working on it this afternoon. She said she would do the chemo despite the onco score because of the nodes. I don't have a problem with that, but I want the right chemo. I will be glad to get another opinion and get a plan and move forward. I was really out of sorts today so I did some retail therapy at Marshalls.

Paula66- I want to have the BRCA testing too. I have 2 sisters and 4 kids and 5 granddaughters. Did your insurance pay for the test?

6/10/13 mets to ovary now stage IV

Dx 3/22/2012, ILC, 1cm, Stage IIIc, Grade 2, 17/17 nodes, ER+/PR+, HER2-Chemotherapy 05/31/2012 Cytoxan, fluorouracil, methotrexateRadiation Therapy 12/03/2012 3-D conformal external beam radiationHormonal Therapy 08/10/2013 Aromasin
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May 3, 2012 09:24AM Paula66 wrote:

Dianarose my insurance did pay for it.  The first time they denied it.  But my onc worked it out so they covered it.  Its a pretty expensive test.  I was lucky and by then most of my deductible was met. So my out of pocket was alittle ovet $600.00.  They call and let you know if the insurance will cover it before they proceed.  They also worked out a payment plan so I paid on it monthly.  Im so happy to finally have that bill gone.

Thanks NM, I still have troubles trusting the medical community and I guess this is why I would rather turn to you gals for advice.  My daughter is 22 and I just want whats best for her.  The same goes for my son who is 19.  He is still abit imature and I don't think that now is a good time for him to persue this, but my daughter is at an age where I feel she needs to start looking at her options when it comes to BC and prevention.

Fight Like a Girl!!!

Dx 10/24/2010, IDC, 2cm, Stage II, Grade 3, 2/3 nodes, ER+/PR-, HER2-
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May 3, 2012 09:49AM Kleenex wrote:

Dianarose & Lisamarie - have you tried the amazing Orange Essence Dried Plums - formerly called "prunes" - VERY tasty. They always help me with travel or pain-med-related constipation...

Dianarose - I'm with everyone who wants you to have a second opinion from a medical oncologist, hopefully one who has some experience with ILC and chemo. Is Beth Israel a good venue for that?

My doctors pushed me to have BRCA testing because I was 45 at diagnosis - it was covered by my insurance, and I came back negative. This wasn't surprising because it's kind of the wrong kind of cancer for BRCA, and I don't have the right gene pool or family history. I still think there may be some genetic link that they don't know about, due to my lack of known risk factors. Or possibly they're going to find out about a new risk factor, such as drinking a lot of Pepsi in one's 20's, or chewing Orbit peppermint gum for years, or excessive amounts of chocolate during pregnancy...

Dx 6/19/2008, ILC, 2cm, Grade 1, 0/2 nodes, ER+/PR+, HER2-
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May 3, 2012 10:13AM NativeMainer wrote:

Paula66-At 22 your daughter may want to meet with a genetic testing counselor and find out about getting BRCA tested herself.  Very personal decision but one she needs to know exists for her.  Given that males are at lower risk even when at high risk your son should be fine not dealing until he gains the maturity necessary. Just remember that all you can do about all this is give your kids the info, make sure they understand the importance of it all and what choices they have and pray they choose wisely for themselves regarding testing and monitoring.  

Kleenex, you are right that there may be (are) mutations that we don't know about yet.  One of the results the BRCA testing can have is finding mutations of unknown signficance.  And there are probably a million or more other things that influence the development of cancer.  We'll probably never know for sure.  

dx 3/07, Stage 2, Grade 2 IDC, 2.8cm, ER+PR+, Her2(-), SN-, lumpectomy & rads, mastectomy 8/15/08, right prophy mast and bilateral DIEP recon 6/21/10

Dx 3/9/2007, IDC, 2cm, Stage II, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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May 3, 2012 10:30AM cat61 wrote:

I sympathize with you gibby, I am a very active person. I walk on a regular basis , I work out on my bow flex weight machine regularly,kayak, hike and do aerobics. I have had some drawbacks because of my very unpredictable past year but I was getting back on track when I found out I had bc, I was diagnosed with IDC. I just found out that I will be having an expander put in at the same time of my mastectomy. But the surgery and following treatments will put me even farther behind. I miss being so active and cant wait to be back to normal again, feeling like myself. 

cat61

Dx 4/17/2012, IDC, 2cm, Stage I, 0/1 nodes, ER-
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May 3, 2012 10:40AM elimar wrote:

Welcome, catno!  I think you are posting to a comment on a page way, way back there.  Hurry and read all 600+ pages to catch up.  Just kidding.  We will quiz you, however.  Still kidding.  Seriously, we have a couple women right now that just got their expanders in the last couple weeks, so you will get support here.Let us know when you will have surgery.
Dx 6/24/2009, IDC, <1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
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May 3, 2012 10:52AM fmakj wrote:

When I got my Genetic testing done, they said that if I was positive, my sisters should be tested.  He did say that my brother could be tested for 'his daughters' chances of carrying the gene.  I was negative for the 2 known genes, but was told to keep up with genetic breakthroughs as there is bc and ovarian cancer in my Dad's family. 

Mary Louise

Dx 6/1/2009, IDC, <1cm, Stage I, Grade 3, 0/1 nodes, ER-/PR-, HER2-

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