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All TopicsForum: Advocacy → Topic: Sign the Petition Against the new Mammography Guidelines

Topic: Sign the Petition Against the new Mammography Guidelines

Forum: Advocacy — Join here to discuss issues where we can have a voice!

Posted on: Nov 16, 2009 08:36PM, edited Dec 4, 2009 03:51PM by bco-administrator

Moderators wrote:

Welcome the Petition!

It is a unique place to not only add your name, but tell your story in brief.

However, to add a Post to this petition, You will need to Register with the Community if you aren't already. Below are the directions to register. If this is too difficult though, please send your name to petition@breastcancer.org.

To Register, please click on "Register" at the top right-hand of this page (in the pink). You will need to provide a "User Name", a valid Email Address, and a Password. You will have an email verification sent to you immediately upon registering, and you may then post.

To add a Post (Signature) to the Petition, click the “Add a Post” link on the right hand side of any of the posts in this Petition. Then add your name and age of diagnosis, and story if you would like in the " Post a Reply" box that will be provided once you have clicked on this. Once you've added your name and/or story, you will then need to push "submit" and you are done!  

Thanks for going through this process. Your name and information WILL make a difference, and you can come back and post again in the discussion boards any time with your new Community Membership.

Yours,

The Breastcancer.org Team

p.s. please email "comments@breastcancer.org" anytime with questions.
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Posts 1 - 30 (1,630 total)

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Nov 16, 2009 08:41PM, edited Nov 16, 2009 09:40PM by cmharris59

Connie Harris << 48 y/o at dx - no family history

*edited to add age of dx

"The first thing I do in the morning is brush my teeth and sharpen my tongue." ~ Dorothy Parker

Dx 6/8/2007, IDC, 5cm, Stage IIb, Grade 3, 0/1 nodes, ER-/PR-, HER2+
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Nov 16, 2009 08:42PM hipchik47 wrote:

Barbara Mcmanus

Most people don't know that there are angels whose only job is to make sure you don't get too comfortable and fall asleep and miss your life. "Storypeople" 1994

Dx 10/15/2007, DCIS, Grade 2, 0/1 nodes, HER2+
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Nov 16, 2009 08:43PM djd wrote:

Donna Dailey

(on behalf of myself, who was diagnosed at age 39, and for my sisters KariLynn and TheresaPW who were early 40's when they died of BC)

Donna

Dx 12/13/2004, IDC, 1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2-
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Nov 16, 2009 08:43PM, edited Nov 20, 2009 09:24PM by konakat

This Post was deleted by konakat.

Elizabeth's Mantra: When in doubt, eat cake. When you haven't a clue, add ice cream. Elizabeth's Mets: Liver, bones, brain (yuck), and lungs (more yuck).

Dx 5/2007, ILC, 3cm, Stage IV, Grade 3, 13/19 nodes, mets, ER+/PR+, HER2+
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Nov 16, 2009 08:46PM OG56 wrote:

Linda Karschner (early detection of IDC mamogram)

(5-09 Bilateral Pleomorphic LCIS)

Dx 5/30/2008, IDC, <1cm, Stage Ia, Grade 1, 0/1 nodes, ER+/PR-, HER2-
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Nov 16, 2009 08:46PM, edited Nov 16, 2009 08:47PM by Morgan513

Lorrie Morgan-Age 48

Dx 4/9/2008, 2cm, Stage IIa, Grade 3, 0/3 nodes, ER-/PR-, HER2-
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Nov 16, 2009 08:47PM golfer779 wrote:

Carol Salo ... diagnosed 44

Carol ... Currently taking Femara and had a DIEP Jan 2010

Dx 10/3/2007, ILC, 3cm, Stage IIb, Grade 1, 3/34 nodes, ER+/PR+, HER2-
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Nov 16, 2009 08:48PM septembersong wrote:

Ann Beaton

Dx 5/19/2008, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR-, HER2+
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Nov 16, 2009 08:48PM, edited Feb 13, 2010 12:18PM by Jean09

This Post was deleted by Jean09.
Dx 4/2009, IDC, 1cm, Stage IIa, Grade 2, 1/6 nodes, ER+/PR+, HER2-
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Nov 16, 2009 08:50PM, edited Nov 16, 2009 10:42PM by nene2059

jennifer o-age 37..found my own lump with BSE at age 36. Digital mammogram confirmed. MRI found another in other breast.  We need routine screenings early! Was not at high risk for BC.

I can be changed by what happens to me but I refuse to be reduced by it-Maya Angelou

Dx 1/28/2009, IDC, 2cm, Stage IIa, Grade 2, 0/9 nodes, ER+/PR+, HER2-
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Nov 16, 2009 08:50PM, edited Nov 16, 2009 09:14PM by cheers247

Jessica Moore, age 34 -- No family history!

Jessica, Age 34 @ dx; 6 mos chemo, Bilat, ALND & Total Hysterectomy 10/09. 35 Rads, Zometa, Herceptin, Tamoxifen. ~

Dx 4/17/2009, IBC, 2cm, Stage IV, Grade 3, 2/21 nodes, mets, ER+/PR+, HER2+
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Nov 16, 2009 08:51PM, edited Nov 17, 2009 11:35AM by AlohaGirl

Heather White (diagnosed with DCIS as a result of mammogram at age 40).  Edited to add no family history.

Dx 2/18/2009, DCIS, Stage 0, Grade 3, 0/0 nodes
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Nov 16, 2009 08:54PM patoo wrote:

Phyllis Archibald (on behalf of African American women who have a higher BC mortality rate because of late detection)

"for we live by faith, not by sight" - 2 Corinthians 5:7

Dx 10/24/2008, ILC, 1cm, Stage Ib, Grade 1, 0/5 nodes, ER+/PR+, HER2-Surgery Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Hormonal Therapy 02/12/2009 ArimidexRadiation Therapy 04/02/2009 External
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Nov 16, 2009 08:54PM, edited Nov 16, 2009 11:37PM by -angel-

Charlene Glassmyer, dx'd at age 42 while breast-feeding (Mammo confirmed lump that I just knew was cancer)  ~

 in honor of my friend lv2cmp, dx'd at 36 and died last month at only 41

~ "When it gets dark enough you can see the stars" Lee Salk ~

Dx 3/14/2007, IDC, 2cm, Stage II, Grade 3, ER+/PR+, HER2-
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Nov 16, 2009 08:57PM, edited Nov 16, 2009 08:59PM by CoolBreeze

Ann Silberman  

(cancer found at 50, doctor thinks it had been growing many years, since early 40s.  I myself didn't get mammograms and now have many years of treatment ahead of me, at increased cost to the insurance co)

Ann's cancer blog: www.butdoctorihatepink.com .....multicentric/multifocal IDC/ILC+DCIS/LCIS/ADH Official dx? "Your breast was a mess." ~UniMastectomy/Chemo/Herceptin/Tamoxifen/Recon Almost Done! Oh wait. mets to liver 5/21/11 Now Stage IV

Dx 8/17/2009, IDC, 4cm, Stage IIa, Grade 3, 0/3 nodes, ER+/PR-, HER2+
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Nov 16, 2009 09:00PM KellyC wrote:

Kelly Covello - 36, no prior mammo, felt a lump......Age 41 now, Stage IV

If life hands you a lemon, stuff your bra with it!

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Nov 16, 2009 09:02PM Annie62 wrote:

Anne Marie Flynn, diagnosed at age 41 Stage IIIC. I was told my cancer wouldn not have been large enough to be felt  for 7-8 years. It was already in 11 nodes. I am now 5 years out and NED.

Stage IV 8/2012 Bone, liver, pleural mets. Xgeva, Doxil. Past chemos - Gemzar, Navelbine, Xeloda, Faslodex Orig Dx 11/2004 Stage IIIc IDC 11/19 nodes AC and Taxotere. Tamox, Aromasin, Recurrence 2011 Abraxane and Gemzar , ER+/PR+ Her2- BRCA-

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Nov 16, 2009 09:03PM, edited Nov 16, 2009 09:06PM by vtmom

Amy Mattinat

Diagnosed with DCIS as a result of my 1st mammogram at age 50 following a previous benign lump. I call it my "lucky lump".

Dx 4/4/2009, DCIS, 1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+
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Nov 16, 2009 09:03PM sta1129 wrote:

Stacie Fidlar, diagnosed at 38 with a mammogram (follow-up to a previous benign lump).

Dx 4/3/2008, IDC, <1cm, Stage Ib, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Nov 16, 2009 09:04PM Moderators wrote:

this is powerful! Keep it going!!

To send a Private Message to the Mods: community.breastcancer.org/mem...

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Nov 16, 2009 09:06PM, edited Nov 16, 2009 09:23PM by cmb35

Colleen Creamer, dx at age 41, felt a tiny lump, which was not visible on baseline (age 40) mamm, aggressive triple negative cancer had already spread to my lymph nodes, now age 46 and NED

Dx 5/27/2005, IDC, 1cm, Stage II, Grade 3, 1/15 nodes, ER-/PR-, HER2-
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Nov 16, 2009 09:07PM NJLinda wrote:

Linda L. Goldberg

Linda

Dx 6/8/2006, DCIS, 3cm, 0/21 nodes, HER2+
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Nov 16, 2009 09:08PM, edited Nov 16, 2009 10:36PM by Makratz

Linda K      DX 41  found lump 1 month after mamo.  No family history.

Linda...♥♥♥ Never, never, never give up ~ Winston Churchill

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Nov 16, 2009 09:08PM Moderators wrote:

Feel free to add age of diagnosis !

To send a Private Message to the Mods: community.breastcancer.org/mem...

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Nov 16, 2009 09:10PM, edited Nov 16, 2009 09:44PM by sheila888

Sheila P.  DX age 53.

Sheila♥

Dx 4/8/2005, IDC, 1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2+
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Nov 16, 2009 09:10PM, edited Feb 19, 2011 11:40AM by AnnNYC

AnnNYC, diagnosed at age 54 -- lump discovered through breast self exam was never visible on mammogram.  Multiple screening modalities are needed, for women of all ages.

Dx 3/9/2007, IDC, <1cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2-
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Nov 16, 2009 09:10PM, edited Nov 16, 2009 09:13PM by deborye

Deborah M. Ryer, diagnosed at 54, lumps could not be felt, mammo at 53 showed nothing.  Found IDC and DCIS. Digital mammogram saved my life!!!!

Mother diagnosed at age 58, died at age 64. 

~~~Deb~~~NEVER GIVE UP/NEVER SURRENDER**IDC 6mm & DCIS 7mm

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Nov 16, 2009 09:13PM marie317 wrote:

Marie Hebert, diagnosed with IDC at age 43 as a result of mammogram.  An MRI found a pre-cancerous lump in the same breast.  Left mastectomy performed in August, 2009.

http://thepinkbirdie.blogspot.com

Dx 6/2/2009, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Nov 16, 2009 09:14PM Wren wrote:

Karen Loomis *If it weren't for a routine screening at age 45... I don't know if I'd still be here two years later to sign this petition. Please don't change the screening guidelines.

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Nov 16, 2009 09:16PM, edited Nov 16, 2009 09:52PM by MAMAQ

Joanne M - dx .age 40 (found on a mammogram)  microscopic and already in lymphs.  10 more years would have probably been too late. 

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