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Topic: Sign the Petition Against the new Mammography Guidelines

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Joined: Sep 2007
Posts: 189
Moderators wrote:
Welcome the Petition!

It is a unique place to not only add your name, but tell your story in brief.

However, to add a Post to this petition, You will need to Register with the Community if you aren't already. Below are the directions to register. If this is too difficult though, please send your name to petition@breastcancer.org.

To Register, please click on "Register" at the top right-hand of this page (in the pink). You will need to provide a "User Name", a valid Email Address, and a Password. You will have an email verification sent to you immediately upon registering, and you may then post.

To add a Post (Signature) to the Petition, click the “Add a Post” link on the right hand side of any of the posts in this Petition. Then add your name and age of diagnosis, and story if you would like in the " Post a Reply" box that will be provided once you have clicked on this. Once you've added your name and/or story, you will then need to push "submit" and you are done!  

Thanks for going through this process. Your name and information WILL make a difference, and you can come back and post again in the discussion boards any time with your new Community Membership.

Yours,

The Breastcancer.org Team

p.s. please email "comments@breastcancer.org" anytime with questions.

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Posts 1 - 30 (1,540 total)
cmharris59
GA
Joined: Nov 2007
Posts: 418
Nov 16, 2009 08:41 pm, edited Nov 16, 2009 09:40 PM by cmharris59 cmharris59 wrote:

Connie Harris << 48 y/o at dx - no family history

*edited to add age of dx

"The first thing I do in the morning is brush my teeth and sharpen my tongue." ~ Dorothy Parker
Diagnosis: 6/8/2007, IDC, 5cm, Stage IIb, Grade 3, 0/1 nodes, ER-/PR-, HER2+
hipchik47
Joined: Oct 2007
Posts: 193
Nov 16, 2009 08:42 pm hipchik47 wrote:

Barbara Mcmanus

Most people don't know that there are angels whose only job is to make sure you don't get too comfortable and fall asleep and miss your life. "Storypeople" 1994
Diagnosis: 10/15/2007, DCIS, Grade 2, 0/1 nodes, HER2+
djd
Dallas, TX
Joined: Apr 2005
Posts: 794
Nov 16, 2009 08:43 pm djd wrote:

Donna Dailey

(on behalf of myself, who was diagnosed at age 39, and for my sisters KariLynn and TheresaPW who were early 40's when they died of BC)

Donna
Diagnosis: 12/13/2004, IDC, 1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2-
konakat
Ottawa, ON
Joined: Jun 2007
Posts: 3,355
Nov 16, 2009 08:43 pm, edited Nov 20, 2009 09:24 PM by konakat konakat wrote:
This Post was deleted by konakat.
OmahaGirl
Long Island, NY
Joined: Jul 2008
Posts: 511
Nov 16, 2009 08:46 pm OmahaGirl wrote:

Linda Karschner (early detection of IDC mamogram)

Linda ( 5-09 Bilateral Pleomorphic LCIS)
Diagnosis: 5/30/2008, IDC, <1cm, Stage Ia, Grade 1, 0/4 nodes, ER+/PR-, HER2-
Morgan513
Joined: Sep 2008
Posts: 509
Nov 16, 2009 08:46 pm, edited Nov 16, 2009 08:47 PM by Morgan513 Morgan513 wrote:

Lorrie Morgan-Age 48


Diagnosis: 4/9/2008, 2cm, Stage IIa, Grade 3, 0/3 nodes, ER-/PR-, HER2-
golfer779
Poulsbo, WA
Joined: Nov 2007
Posts: 1,318
Nov 16, 2009 08:47 pm golfer779 wrote:

Carol Salo ... diagnosed 44

Carol ... Currently taking Femara / Zometa infusion twice year
Diagnosis: 10/3/2007, ILC, 3cm, Stage IIb, Grade 1, 3/34 nodes, ER+/PR+, HER2-
septemberso…
Joined: Oct 2009
Posts: 85
Nov 16, 2009 08:48 pm septembersong wrote:

Ann Beaton


Diagnosis: 5/19/2008, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR-, HER2+
Jean09
Joined: May 2009
Posts: 116
Nov 16, 2009 08:48 pm, edited Feb 13, 2010 12:18 PM by Jean09 Jean09 wrote:
This Post was deleted by Jean09.
nene2059
Joined: Feb 2009
Posts: 208
Nov 16, 2009 08:50 pm, edited Nov 16, 2009 10:42 PM by nene2059 nene2059 wrote:

jennifer o-age 37..found my own lump with BSE at age 36. Digital mammogram confirmed. MRI found another in other breast.  We need routine screenings early! Was not at high risk for BC.


Diagnosis: 1/28/2009, IDC, 2cm, Stage IIa, Grade 2, 0/9 nodes, ER+/PR+, HER2-
cheers247
Seattle, WA
Joined: Apr 2009
Posts: 256
Nov 16, 2009 08:50 pm, edited Nov 16, 2009 09:14 PM by cheers247 cheers247 wrote:

Jessica Moore, age 34 -- No family history!

Jessica, Age 34 5mos chemo, bilat, ALND & total hyst 10/09. Rads, Zometa, Herceptin, Aromasin & Tumor Vaccine Clinical Trial. ~ www.caringbridge.org/visit/jessicam
Diagnosis: 4/17/2009, IBC, 2cm, Stage IIIc, Grade 3, 2/21 nodes, ER+/PR+, HER2+
AlohaGirl
Joined: Mar 2009
Posts: 123
Nov 16, 2009 08:51 pm, edited Nov 17, 2009 11:35 AM by AlohaGirl AlohaGirl wrote:

Heather White (diagnosed with DCIS as a result of mammogram at age 40).  Edited to add no family history.


Diagnosis: 2/18/2009, DCIS, Stage 0, Grade 3, 0/0 nodes
patoo
Central, NJ
Joined: Feb 2009
Posts: 2,352
Nov 16, 2009 08:54 pm patoo wrote:

Phyllis Archibald (on behalf of African American women who have a higher BC mortality rate because of late detection)

Each time you read a post from me know that a prayer is going up for you.
Diagnosis: 10/24/2008, ILC, 1cm, Stage Ib, Grade 1, 0/5 nodes, ER+/PR+, HER2-
blah
Joined: Aug 2009
Posts: 44
Nov 16, 2009 08:54 pm, edited Nov 16, 2009 11:37 PM by blah blah wrote:

Charlene Glassmyer, dx'd at age 42 while breast-feeding (Mammo confirmed lump that I just knew was cancer)  ~

 in honor of my friend lv2cmp, dx'd at 36 and died last month at only 41

"only the good die young" and "nice guys finish last"
Diagnosis: 3/14/2007, IDC, 2cm, Stage II, Grade 3, ER+/PR+, HER2-
CoolBreeze
Sacramento
Joined: Aug 2009
Posts: 685
Nov 16, 2009 08:57 pm, edited Nov 16, 2009 08:59 PM by CoolBreeze CoolBreeze wrote:

Ann Silberman  

(cancer found at 50, doctor thinks it had been growing many years, since early 40s.  I myself didn't get mammograms and now have many years of treatment ahead of me, at increased cost to the insurance co)

Ann's cancer blog. http://butdoctorihatepink.blogspot.com multicentric, multifocal IDC/ILC + DCIS, LCIS and ADH. Official dx? "Your breast was a mess."
Diagnosis: 8/17/2009, IDC, 4cm, Grade 3, 0/3 nodes, ER+/PR-, HER2+
KellyC
Joined: Oct 2008
Posts: 812
Nov 16, 2009 09:00 pm KellyC wrote:

Kelly Covello - 36, no prior mammo, felt a lump......Age 41 now, Stage IV

If life hands you a lemon, stuff your bra with it!
Annie62
NJ
Joined: Jan 2005
Posts: 347
Nov 16, 2009 09:02 pm Annie62 wrote:

Anne Marie Flynn, diagnosed at age 41 Stage IIIC. I was told my cancer wouldn not have been large enough to be felt  for 7-8 years. It was already in 11 nodes. I am now 5 years out and NED.

Dx 11/2004 Stage IIIc IDC, 6 mm, Grade 2, 11/19 nodes, ER+/PR+ Her2-
vtmom
Joined: Oct 2009
Posts: 45
Nov 16, 2009 09:03 pm, edited Nov 16, 2009 09:06 PM by vtmom vtmom wrote:

Amy Mattinat

Diagnosed with DCIS as a result of my 1st mammogram at age 50 following a previous benign lump. I call it my "lucky lump".


Diagnosis: 4/4/2009, DCIS, 1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+
sta1129
IL
Joined: Apr 2008
Posts: 37
Nov 16, 2009 09:03 pm sta1129 wrote:

Stacie Fidlar, diagnosed at 38 with a mammogram (follow-up to a previous benign lump).


Diagnosis: 4/3/2008, IDC, <1cm, Stage Ib, Grade 2, 0/3 nodes, ER+/PR+, HER2-
Moderators
Joined: Sep 2007
Posts: 189
Nov 16, 2009 09:04 pm Moderators wrote:

this is powerful! Keep it going!!
cmb35
Joined: Oct 2005
Posts: 1,511
Nov 16, 2009 09:06 pm, edited Nov 16, 2009 09:23 PM by cmb35 cmb35 wrote:

Colleen Creamer, dx at age 41, felt a tiny lump, which was not visible on baseline (age 40) mamm, aggressive triple negative cancer had already spread to my lymph nodes, now age 46 and NED


Diagnosis: 5/27/2005, IDC, 1cm, Stage II, Grade 3, 1/15 nodes, ER-/PR-, HER2-
NJLinda
NJ
Joined: Jul 2009
Posts: 7
Nov 16, 2009 09:07 pm NJLinda wrote:

Linda L. Goldberg

Linda
Diagnosis: 6/8/2006, DCIS, 3cm, 0/21 nodes, HER2+
Makraz
MA
Joined: Sep 2008
Posts: 5,607
Nov 16, 2009 09:08 pm, edited Nov 16, 2009 10:36 PM by Makraz Makraz wrote:

Linda K      DX 41  found lump 1 month after mamo.  No family history.

Linda Thanks to all my sistahs for helping me get through this hell. started Tamox 10-08
Moderators
Joined: Sep 2007
Posts: 189
Nov 16, 2009 09:08 pm Moderators wrote:

Feel free to add age of diagnosis !
seyla888
NY
Joined: Jul 2009
Posts: 8,313
Nov 16, 2009 09:10 pm, edited Nov 16, 2009 09:44 PM by seyla888 seyla888 wrote:

Sheila P.  DX age 53.


Diagnosis: 4/1/2005, IDC, 1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2+
AnnNYC
Joined: Aug 2007
Posts: 3,372
Nov 16, 2009 09:10 pm, edited Nov 16, 2009 09:16 PM by AnnNYC AnnNYC wrote:

Ann Rupel, diagnosed at age 54 -- lump discovered through breast self exam was never visible on mammogram.  Multiple screening modalities are needed, for women of all ages.


Diagnosis: 3/9/2007, IDC, <1cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2-
deborye
MA
Joined: Aug 2007
Posts: 2,561
Nov 16, 2009 09:10 pm, edited Nov 16, 2009 09:13 PM by deborye deborye wrote:

Deborah M. Ryer, diagnosed at 54, lumps could not be felt, mammo at 53 showed nothing.  Found IDC and DCIS. Digital mammogram saved my life!!!!

Mother diagnosed at age 58, died at age 64. 

NEVER GIVE UP/NEVER SURRENDER/www.deborye.multiply.com
Diagnosis: 3/23/2007, IDC, <1cm, Stage Ib, Grade 2, 0/3 nodes, ER+/PR+, HER2-
marie317
MT PLEASANT, SC
Joined: Aug 2009
Posts: 159
Nov 16, 2009 09:13 pm marie317 wrote:

Marie Hebert, diagnosed with IDC at age 43 as a result of mammogram.  An MRI found a pre-cancerous lump in the same breast.  Left mastectomy performed in August, 2009.

THE DEFINITION OF INSANITY IS DOING THE SAME THING OVER AND OVER AND EXPECTING DIFFERENT RESULTS - BENJAMIN FRANKLIN
Diagnosis: 6/2/2009, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
Wren
SE of the Emerald City
Joined: Sep 2007
Posts: 315
Nov 16, 2009 09:14 pm Wren wrote:

Karen Loomis *If it weren't for a routine screening at age 45... I don't know if I'd still be here two years later to sign this petition. Please don't change the screening guidelines.
MAMAQ
Joined: Apr 2009
Posts: 239
Nov 16, 2009 09:16 pm, edited Nov 16, 2009 09:52 PM by MAMAQ MAMAQ wrote:

Joanne M - dx .age 40 (found on a mammogram)  microscopic and already in lymphs.  10 more years would have probably been too late. 

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