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« Forum: New mammography guidelines : To read more about Breastcancer.org's perspective, go to: http://www.breastcancer.org/opinion/mammography_guidelines.jsp "The recommendation to change screening is a huge step backwards," Dr. Marisa Weiss

Topic: Sign the Petition Against the new Mammography Guidelines

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Joined: Sep 2007
Posts: 185
Moderators wrote:
Welcome the Petition!

It is a unique place to not only add your name, but tell your story in brief.

However, to add a Post to this petition, You will need to Register with the Community if you aren't already. Below are the directions to register. If this is too difficult though, please send your name to petition@breastcancer.org.

To Register, please click on "Register" at the top right-hand of this page (in the pink). You will need to provide a "User Name", a valid Email Address, and a Password. You will have an email verification sent to you immediately upon registering, and you may then post.

To add a Post (Signature) to the Petition, click the “Add a Post” link on the right hand side of any of the posts in this Petition. Then add your name and age of diagnosis, and story if you would like in the " Post a Reply" box that will be provided once you have clicked on this. Once you've added your name and/or story, you will then need to push "submit" and you are done!  

Thanks for going through this process. Your name and information WILL make a difference, and you can come back and post again in the discussion boards any time with your new Community Membership.

Yours,

The Breastcancer.org Team

p.s. please email "comments@breastcancer.org" anytime with questions.

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queenlurker…
Joined: Aug 2009
Posts: 39
Nov 17, 2009 09:05 am queenlurker wrote:

I do not support the change in mammogram guidelines.  No family history or high risk factors but diagnosed after a "painful and anxiety producing" mammogram with mult cysts.  Fast forward 2 months and was confident my "cysts" were growing thru SBE (classic according to Dr Love).  Would I have gotten seen earlier if not for the routine screening?  Probably, but it still would not have changed my treatment or prognosis with triple neg breast cancer at age 48 years.  Please find a cure!


Diagnosis: IDC, Stage IIa, Grade 3, 0/10 nodes, ER-/PR-, HER2-
glostagirl
Gloucester, MA
Joined: Dec 2008
Posts: 165
Nov 17, 2009 09:09 am glostagirl wrote:

Dorene McManus, Massachusetts.  I am stunned and appalled at these new guidelines!  

DX at age 51 and had a recurrence just a year later.   I found both lumps myself with SBE, confirmed with Mammogram and Ultra Sound.

I personally know women who were diagnosed when they went for their first Mammogram at age 40!

My thanks to you at BC.org for standing up for us, thank you Dr. Weiss!  

1st DX 01/05/08, IDC, T2, N0, MX, Trip. Neg. Lumpectomy, AC X 4, 33 Rads.
Diagnosis: 1/4/2009, IDC, 1cm, Stage IIa, Grade 3, 0/2 nodes, ER-/PR-, HER2-
carolinachi…
Fort Mill, SC
Joined: Mar 2009
Posts: 293
Nov 17, 2009 09:10 am, edited Nov 17, 2009 09:11 AM by carolinachick carolinachick wrote:

Jennifer White - Diagnosed on 1/7/09 at age 44.  Stage 1, Grade 3, triple negative breast cancer.

Be kind to everyone - for everyone is fighting some sort of battle.
Diagnosis: 1/7/2009, IDC, 1cm, Stage I, Grade 3, 0/4 nodes, ER-/PR-, HER2-
agyurnek
Joined: Mar 2007
Posts: 4
Nov 17, 2009 09:11 am agyurnek wrote:

I was diagnosed at 40.....  What would have happened if I had waited 10 more years!  Makes me so mad!

kdavis1163
Cincinnati, OH
Joined: Aug 2009
Posts: 21
Nov 17, 2009 09:12 am kdavis1163 wrote:

Karen Davis, dx via mammo at age 45. 


Diagnosis: 9/17/2009, DCIS, Stage 0, Grade 1, ER+/PR-
Denny123
Joined: Jan 2004
Posts: 2,509
Nov 17, 2009 09:13 am Denny123 wrote:

As a 7 year survivor of Stage 4 BC and a Reach to Recovery Volunteer trainer and coordinator for my county for 6 years, I find this appalling.

More and more younger women are being dx'd with BC and I feel that we should be pushing for even earlier screening.

Denise


Diagnosis: 12/14/2002, IDC, 5cm, Stage IV, 4/40 nodes, mets, ER+/PR-, HER2+
mommy2two
Crowley, TX
Joined: Sep 2009
Posts: 87
Nov 17, 2009 09:13 am mommy2two wrote:

Toyah Bray, dx at age 34 - No family history


Diagnosis: 8/11/2009, IDC, 1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2-
Brenda_R
IL
Joined: Dec 2006
Posts: 604
Nov 17, 2009 09:14 am Brenda_R wrote:

Brenda R. I found my lump at age 50.

Dx 12/12/2006, IDC, 3.7cm, Stage IIIa, Grade 3, 1/17 nodes, ER-/PR-, HER2+
Anxiousmama…
Round Rock, TX
Joined: May 2009
Posts: 89
Nov 17, 2009 09:15 am Anxiousmama wrote:

Denise Hammett, 38 at rx, no family history.

Stage 2A, ER/PR+, mama to two active boys
msdicken
MD
Joined: Jan 2009
Posts: 46
Nov 17, 2009 09:16 am msdicken wrote:

Molly Dicken dx 46
Hopbird
Joined: Oct 2009
Posts: 156
Nov 17, 2009 09:19 am, edited Nov 17, 2009 09:21 AM by Hopbird Hopbird wrote:

Diagnosed through one of those unnecessary mammograms at age 48.  Not in a high risk group. 

I guess the wonderful women on this board are statistically insignificant.  I strongly believe doctors lose something when they become too scientific and forget they are dealing with people.

Sherrena Lee 


Diagnosis: 8/13/2009, IDC, ER-/PR-, HER2+
kbram
Joined: May 2009
Posts: 97
Nov 17, 2009 09:31 am kbram wrote:

Kathy Bramlett...DX @ age 52 by BSE. No family history.   I have two girls ages 25 and 20.  What does this hold for them in the future?  This is our new proposed "health care system" at work!!  Everyone beware!!

Kathy


Diagnosis: 8/18/2008, IDC, <1cm, Stage II, Grade 3, 1/15 nodes, ER+/PR+, HER2+
CAZ
Fountain Hills, AZ
Joined: May 2008
Posts: 676
Nov 17, 2009 09:31 am CAZ wrote:

Carol Lind.  No family history. LCIS and ADH.  My latest mammogram at 44 lead to the BX and PBM, but it was the changes in the mammogram appearance over the previous two years that convinced the radiologist.  Fight hard, girls.
outnumbered…
Joined: Oct 2008
Posts: 4
Nov 17, 2009 09:32 am outnumbered wrote:

Sara K - DX age 40 - stage 1 triple negative high grade - lump found with self exam high up in the axilla would have been watched as assumed lymph node infection had I not been persistant.  No family history but turns out I am BRCA1+


Diagnosis: 6/24/2008, IDC, <1cm, Stage I, Grade 3, 0/1 nodes, ER-/PR-, HER2-
momoftwo71
AR
Joined: Sep 2009
Posts: 44
Nov 17, 2009 09:33 am momoftwo71 wrote:

For my sister Andrea DX at 31 found after preventive mastectomy

And my MIL Sherri DX at 46 found by BSE

Kim Matheny

Kim
monee
CT
Joined: Jun 2008
Posts: 83
Nov 17, 2009 09:40 am monee wrote:

IDC on left at 41, IDC on right at 49. Twice under the age of 50.


Diagnosis: 6/6/2008, IDC, 1cm, Stage II, Grade 2, 1/10 nodes, ER+/PR+, HER2-
breastcance…
Joined: Nov 2009
Posts: 1
Nov 17, 2009 09:44 am breastcancersista wrote:

Please don't change the current guidelines. My sister was 38 years old when she decided to get a mammogram due to our 38 year old sister in law having breast cancer. It was through that screening that my sister discovered she too had breast cancer. If it were not for that mammogram at age 38, she would have never discovered this very small, very agressive, Grade 3 tumor growing in her breast. That mammogram saved her life!!! How could anyone ever question the current guidelines, even if it is one life that is saved. Maybe one day it will be your Mother, Sister or Daughter it saves!!
2lkh538
High Point, nc
Joined: Jan 2009
Posts: 25
Nov 17, 2009 09:45 am, edited Nov 17, 2009 09:46 AM by 2lkh538 2lkh538 wrote:

DX age 42... not considered high-risk... found lump mammo and US confirmed, mammo 6 months earlier was negative... probably wouldn't be celebrating this Christmas if these new guidelines were in effect.


Diagnosis: 1/2/2009, IDC, 3cm, Stage IIa, Grade 3, 1/7 nodes, ER-/PR-, HER2+
whippetmom
Southern California
Joined: Nov 2008
Posts: 1,631
Nov 17, 2009 09:49 am, edited Nov 17, 2009 09:49 AM by whippetmom whippetmom wrote:

For my aunt Marcia - diagnosed age 41 - IDC, Stage IV - died age 42.

I knew you before I formed you in your mother’s womb. Jeremiah 1:5.
Diagnosis: 10/15/2008, IDC, 1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2-
don23
Joined: Apr 2009
Posts: 144
Nov 17, 2009 09:56 am don23 wrote:

I was diagnosed at age 51 - my lump could not be felt but was found on a mammogram. If I had waited until age 52 who knows where I'd be today. I hope they do not change the guidelines. I think early detection is crucial!


Diagnosis: 4/10/2009, IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
neesie
Joined: Aug 2006
Posts: 2,478
Nov 17, 2009 10:00 am neesie wrote:

Denise diagnosed at 49 via routine mammogram.  No Family History.

These guidelines are crazy...................now we'll even have to fight harder with Insurance Companies to get testing and treatments.

nancy258
Glenmoore, PA
Joined: Jul 2008
Posts: 152
Nov 17, 2009 10:04 am nancy258 wrote:

Nancy Palumbo diagnosed at age 47 with DCIS found on mammogram.  No papable lump.


Diagnosis: 6/18/2008, DCIS, Stage 0, Grade 3, 0/1 nodes, ER+/PR-, HER2+
CinD
Joined: Oct 2009
Posts: 51
Nov 17, 2009 10:18 am CinD wrote:

Cindy Hebe, diagnosed at age 49 by mammogram.  No lumps were felt by doctor or by me.  Mammogram before age 50 may have saved my life, since I don't know how big my cancer would have grown by waiting one more year.  The specifics of my cancer are still unknown, as I'm just beginning treatment.  When you're one of the 3%, the number seems much larger!  
rinna40
on
Joined: Mar 2009
Posts: 360
Nov 17, 2009 10:19 am rinna40 wrote:

Corinne McNaughton - DX 40, found lump through BSE


Diagnosis: 2/23/2009, IDC, 3cm, Stage II, Grade 3, 0/13 nodes, ER-/PR-, HER2-
dlb823
CA
Joined: Aug 2008
Posts: 2,371
Nov 17, 2009 10:23 am, edited Nov 17, 2009 10:30 AM by dlb823 dlb823 wrote:

Deanna B. ~ I'm over 50, but my sister and 2 cousins not on BCO were all dx'd in their early 40s.  While going through tx, I met several beautiful young mothers not on BCO who were in their 30s and early 40s.  This new guideline to remove screening that clearly saves young lives defies civilized thinking. 

P.S.  The every two years after 50 guideline is also WRONG!  I had annual mammos and my bc was still node+ when discovered.  I shudder to think where it would have been if I'd waited another year.

"The soul would have no rainbow if the eyes had no tears" Native American proverb
Diagnosis: 2/1/2008, 1cm, Stage IIa, Grade 3, 1/16 nodes, ER+/PR+, HER2-
swampy
Lake Placid, FL
Joined: Apr 2009
Posts: 144
Nov 17, 2009 10:27 am swampy wrote:

Diann Martin - age 67 - dx 3/31/09 DCIS. Self exam followed by mammogram (which was negative), but tumor showed up on a sonogram.

Mother - age 56 - SBE. Died at age 58 of mets to bone.

Aunt - age 52 - SBE. Died at 63 of recurrence

The new Mammography Guidelines ring a death bell for hundreds of thousands of women across this land. Why would you NOT want to check early and often for breast cancer? This is so regressive when we have made so much progress in both early dection education and awareness.

LittleC
IL
Joined: Jun 2008
Posts: 146
Nov 17, 2009 10:29 am LittleC wrote:

Carol Husak - found my own lump at 37 (doc ignored)

Mamogram found breast cancer tumor (smaller then tumor in lymph)

DX  one month after my 40th birthday.  Advanced Metastatic.

~carol~
Diagnosis: 2/2008, IDC, Stage IIIc, Grade 3, 27/30 nodes, mets, ER+/PR-, HER2-
MAGOB
TX
Joined: Aug 2009
Posts: 153
Nov 17, 2009 10:30 am MAGOB wrote:

My name is Mary.  Diagnosed at age 46.  Found lump myself.  The new guidelines are OUTRAGEOUS!


Diagnosis: 5/18/2009, IDC, 1cm, Stage I, Grade 1, 1/7 nodes, ER+/PR+, HER2-
texrn
Mansfield, TX
Joined: Jan 2008
Posts: 99
Nov 17, 2009 10:33 am texrn wrote:

Therese Daiy - diagnosed at 46 by BSE - ST IIa, grade 3, 0/9 nodes;  TN-IDC. No family history.

Therese
Diagnosis: 10/18/2007, IDC, 2cm, Stage IIa, Grade 3, 0/9 nodes, ER-/PR-, HER2-
smithlme
Fort Bragg, CA
Joined: Dec 2007
Posts: 1,099
Nov 17, 2009 10:39 am smithlme wrote:

Linda Macahilas diagnosed with IDC first at 47 and a year later with DCIS at 48. My sister was 36 at diagnosis and is a 20 year survivor.

Dx 3/31/08, DCIS, ER+/PR- BRCA2+...Life is a series of every day miracles...
Diagnosis: 3/28/2007, IDC, 2cm, Stage II, Grade 3, 0/9 nodes, ER-/PR-, HER2-

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