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Topic: Alternative Treatment

Forum: Alternative Medicine — This forum is a safe, judgement-free place for Alternative Therapy users and for those wishing to discuss about alternative therapy only. Alternative medicine refers to treatments that are used INSTEAD of standard, evidence-based treatment. Please refrain from providing individual medical advice.

Posted on: Aug 8, 2011 10:32 AM

dougbrimor wrote:

Has anyone used alternative treatments such as Lorriane Day, Chris Beat Cancer, The Hallelujah Diet and skipped the cookie cutter 6 weeks of radiation and five years of Tamoifen?  I am so confused , even the 2011 cancer book that the radaition department gave me in my red folder states that radiation can cause a second cancer, that they are working on improving these satatics.  I read the whole book cover to cover and was just blown away by what they are admitting of these chemicals.  Anyway, would like to know if anyone else is swinging on this bridge?  Thanks


Diagnosis: 7/18/2011, <1cm, Stage I, ER+/PR+, HER2-
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Apr 18, 2012 08:01 PM dunesleeper wrote:

Alert:

I definitely do not recommend MMS. It has been renamed a number of times, trying to avoid the FDA. It is sometimes called Miracle Mineral Supplement, Master Mineral Supplement, and Advanced Oxygen Therapy. It was recommended to me by a friend, and she swears she has never felt better since she started taking it. However, it is poison. 

They refer to healing reactions or detox reactions during this tx. In other words, these are days you may be throwing up or having diarrhea. For me it was terrible stomach pain followed by vomiting.

I stopped taking it but my urine continued to smell strongly musty. When I looked that symptom up, I became very concerned. I called the guy who sold it to me and all sorts of red flags went up for me.

As I researched it more, I found that I had taken industrial strength bleach: chlorine dioxide. On the advice of a friend I called poison control. They wanted me to go to the ER. However, this was 2 days later. I drank a lot of water and forced myself to eat in order to try to eliminate it from my system.

The only thing they would be able to do for me is to check my GI track to see if it did any damage. Hopefully it did not. I only took it 2 days.

So, while I am determined to do alternative, I hope you will learn from my mistake. I don't think this is a good one to try.


Diagnosis: 2/7/2012, IDC, 4cm, Stage IIb, Grade 3, 1/31 nodes, ER+/PR+, HER2-
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Apr 19, 2012 02:12 AM Momine wrote:

Dune, how scary! I am glad you are OK, but I guess we can conclude that the profit motive is alive and well on both sides of the aisle and that we have to be vigilant about our treatments from all sources.


Diagnosis: 6/1/2011, ILC, 5cm, Stage IIIb, Grade 2, 7/23 nodes, ER+/PR+, HER2-
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Apr 19, 2012 12:53 PM dunesleeper wrote:

You betcha Momine!


Diagnosis: 2/7/2012, IDC, 4cm, Stage IIb, Grade 3, 1/31 nodes, ER+/PR+, HER2-
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Apr 20, 2012 11:40 AM essiactea wrote:

I agreed with allison M as I has used alternative treatment like Essiac to support my immune system which is helpful instead of expensive medicines.

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Apr 20, 2012 03:20 PM sweetbean wrote:

Essiactea,

Are you being (or have you been) treated for BC or are you just using Essaic tea for prevention?  There's a huge difference and you should definitely clarify on a breast cancer site.  


Diagnosis: 11/18/2010, ILC, 5cm, Stage IIIa, Grade 2, 2/15 nodes, ER+/PR+, HER2+
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Apr 20, 2012 03:24 PM Kadia wrote:

Isn't essiac tea estrogenic? If so, not good for those of us who are ER+.

Multicentric/multifocal IDC & DCIS; Lumpectomy 12-11; UMX with immediate recon (TEs) 1-12; chemo began 2-12 (TCx4); Tamoxifen 5 years starting ??
Diagnosis: 10/2011, IDC, 2cm, Stage IIa, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Apr 20, 2012 05:34 PM, edited Aug 10, 2012 05:31 PM by SunflowersMA

delete

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Apr 20, 2012 05:59 PM abigail48 wrote:

tripple ouch.  was it intravenous?  have to look again, but I don't do that either after 7 years of heroin, no thanks.  opiates by the way, the way most allopathy kill their patients, are regurgetants, that;s oksy, opens the bile ducts (& decalcifies the teeth), but it also constapates, & that as well as the lungs shutting down kills fast.

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Apr 20, 2012 06:12 PM abigail48 wrote:

my advice get the realname if you can or the substances you take.  dca & waht does that mean also?

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Apr 20, 2012 07:16 PM dunesleeper wrote:

Essiac tea is estrogenic. I returned what I had bought (unopened). The guy refunded my money but also enclosed a note saying "Whoever gave you this information was not correct. Women have been using Essiac for over 90 years with no side effecs as it is safe - natural - with no side effects and has been approved in writing by the FDA for over 11 years."  Printed on the paper is something from July 2001, saying "Phytoestrogens are estrogen-like chemicals found in plant foods such as beans, seeds, and grains. Foods made from soybeans have some of the highest levels of phytoestrogens and have been studied the most. In spite of initial optimism, it is not clear whether eating foods rich in phytoesgrogens decreases breast cancer risk."

Clearly, this man does not have ER+ breast cancer. LOL. I don't know if phytoestrogens are dangerous or not. However, my sense of the matter has me leaning AWAY from them for safety.

I think Essiac may be good for some cancers, but NOT breast cancer, particularly ER+.


Diagnosis: 2/7/2012, IDC, 4cm, Stage IIb, Grade 3, 1/31 nodes, ER+/PR+, HER2-
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Apr 21, 2012 07:56 PM abigail48 wrote:

& I'm wondering whether the men on that thread drink beer or use pot:  great estrogen both.  I had a lot of pain when I cooked up some red beans a few months ago, no beans or soy since

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May 3, 2012 01:27 PM abigail48 wrote:

wow.  you pulled survivors who have used only alternatives????????wow wow wow.  are you trying to make it difficult to post here except on conventional threads where we'll be subject to real horror stories.

joy:  in a very recent time magazine report it's been discovered that people who get dintal exrays have a much greater incidence of USUALLY, unquote non -cancerous brain tumors.

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May 3, 2012 02:06 PM sweetbean wrote:

Phytoestrogens are beneficial for ER+ cancer.


Diagnosis: 11/18/2010, ILC, 5cm, Stage IIIa, Grade 2, 2/15 nodes, ER+/PR+, HER2+
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May 3, 2012 02:10 PM Ruby- wrote:

Sweetbean, I have repeatedly asked that you provide back up to your statement and you have repeatedly failed to do so - phytoestrogens are NOT beneficial for ER+

Different strokes for different folks / The power that made the body heals the body. It happens no other way.
Diagnosis: 2010, IDC, 2cm, Stage IIb, Grade 1, 3/5 nodes, ER+/PR+, HER2-
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May 3, 2012 02:12 PM Ruby- wrote:

Abigail, I think you've hit it on the nail 

Different strokes for different folks / The power that made the body heals the body. It happens no other way.
Diagnosis: 2010, IDC, 2cm, Stage IIb, Grade 1, 3/5 nodes, ER+/PR+, HER2-
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May 3, 2012 02:42 PM abigail48 wrote:

green tea is a phytoestogen:  there ar hundereds contained in fruits & vegetables, nearly all are benifical for health.  there's a linus pau;ing institude at the u of oregon I think, I researched this subject fairly recently

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May 3, 2012 03:43 PM abigail48 wrote:

phyto chemical, my error

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May 3, 2012 03:56 PM Ruby- wrote:

Abi, phytoestrogens as in food have both estrogen agonist and estrogen antagonist activity in different tissues. They don't work the same way as regular estrogen hormone.  However, phytoestrogenic herbs and supplements are a whole different issue and they are not recommended for ER pos breast cancer.  I have seen enough warnings out there to convince me.

Green tea is a miracle worker

Epidemiological data have suggested that EGCG may provide protective effects against hormone related cancers, namely breast or prostate cancer.

Researchers at the University of Murcia in Spain and the John Innes Center in Norwich, England have shown that EGCG prevents cancer cells from growing by binding to a specific enzyme. They showed for the first time that it inhibits the enzyme dihydrofolate reductase, which is a recognized, established target for anti-cancer drugs. Green tea has about five times as much EGCG as regular tea. Green tea has been suspected to decrease rates of certain cancers but scientists were not sure what compounds were involved or how they worked. Nor had they determined how much green tea a person would have to drink to have a beneficial effect. EGCG is probably just one of a number of anti-cancer mechanisms in green tea. EGCG targets multiple MMP-mediated cellular events in cancer cells and provides a new mechanism for the anticancer properties of that molecule. Understanding the basic principles by which EGCG inhibits tumour invasion and angiogenesis may lead to the development of new therapeutic strategies, in addition to supporting the role of green tea as a cancer chemopreventive agent.

Green tea helps protect against breast cancer by enhancing glucuronization of estrogens in the liver, a process through which estrogens are rendered inactive by being conjugated with glucuronic acid, a form in which they are excreted from the body. 

Also, a study done at the University of Shizuoka in Japan found that epigallocatechin gallate (in green tea) does in fact inhibit the secretion of collagenases by tumor cells (in this study, highly metastatic lung cancer cells), thus arresting their ability to invade normal tissue.

Now, I would stay that benefits outweigh the risks if green tea is estrogenic which I have not read so far 

Different strokes for different folks / The power that made the body heals the body. It happens no other way.
Diagnosis: 2010, IDC, 2cm, Stage IIb, Grade 1, 3/5 nodes, ER+/PR+, HER2-
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May 3, 2012 04:06 PM abigail48 wrote:

no it's definitely not, my error, my error, I read phytochemicals.  now gonna make my 2nd mega green tea for today, & a few T of olive leaf decoction.  great post, maud.

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May 3, 2012 04:09 PM Ruby- wrote:

Enjoy that cuppa Abi Wink
Different strokes for different folks / The power that made the body heals the body. It happens no other way.
Diagnosis: 2010, IDC, 2cm, Stage IIb, Grade 1, 3/5 nodes, ER+/PR+, HER2-
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May 3, 2012 04:11 PM abigail48 wrote:

it vv bitter but I've never minded bitter.  it does contain a bit of white rice, I guess to prevent caking

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May 3, 2012 04:19 PM Ruby- wrote:

I'm sure you know not to pour boiling water on green tea which makes it less bitter Cool
Different strokes for different folks / The power that made the body heals the body. It happens no other way.
Diagnosis: 2010, IDC, 2cm, Stage IIb, Grade 1, 3/5 nodes, ER+/PR+, HER2-
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May 3, 2012 04:48 PM Kaara wrote:

I've never been in the chat rooms and I don't think, from what Charlene says, that I have any interest in going there.  It sounds like a group of women who are set in their ways and aren't interested in hearing another's point of view.  When I post on the conventional sites, I don't mention my alternative choices unless I'm asked.  There is lots to discuss without going there.  

There are a lot of nice women on all the different threads, but if someone doesn't understand an alternative approach, it is completely confusing and scary to them.

I'm getting close to the end of my IV infusions...3 more to go and I'm done.  Then I just watch my diet and take my supplements and hope for the best I guess.  I have a digital diagnostic mammo scheduled for the end of the month which is the alternate to the thermography I just did.  I will then have a baseline after the surgery for both for future reference.

Almost time to head to NC for the summer. 

Kaara
Diagnosis: 11/14/2011, IDC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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May 3, 2012 05:47 PM abigail48 wrote:

you know I think it's red tea.  decaff, how does that compare?  the red part.  & bee propolis, how does it work for our trouble?  acidix? not? estrogenic? not?  I use bee pollen every day, pollen being a male substance

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May 3, 2012 09:49 PM sweetbean wrote:

Maud, seriously?  I know I've quoted  articles from the Block Center for starters.  Provided the links and everything.  Honestly, I went through it with my CAM-friendly ob-gyn as well  - she showed me how the phytoestrogens work similar to Tamox and also help process your body's estradiol down non-carcinogenic pathways.  she is big on diet as a prevention tool and she has found soy/flaxseed etc to be good.

Phytoestrogens are really weak forms of estrogen - they fool the cancer cells into thinking it is food.  The phytoestrogen fills up the cancer cell's receptors (like Tamox), but there isn't actually enough estrogen to feed the cancer.  So it works synergystically with Tamoxifen. 

Here's the thing - if you don't want to eat any form of phytoestrogen, then don't.  But it isn't harmful.  Xenoestrogens, on the other hand, are very bad.  

And what's up with the rude tone?  Seems uncalled for. 


Diagnosis: 11/18/2010, ILC, 5cm, Stage IIIa, Grade 2, 2/15 nodes, ER+/PR+, HER2+
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May 3, 2012 10:33 PM, edited May 3, 2012 10:38 PM by Ruby-

Rude no, frustrated yes.  You push your soy eating habits here when it is proven time and time again that soy is strongly discouraged for ER +.
 

I'm glad to see that most ladies are very prudent about this issue and that you are a lone voice out there.

For those who have not followed the most recent discussions on soy, here are the links:

community.breastcancer.org/for...

community.breastcancer.org/for...

community.breastcancer.org/for...

Different strokes for different folks / The power that made the body heals the body. It happens no other way.
Diagnosis: 2010, IDC, 2cm, Stage IIb, Grade 1, 3/5 nodes, ER+/PR+, HER2-
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May 3, 2012 10:36 PM sweetbean wrote:

Yikes, you are really being unpleasant.  Fine, don't eat soy.  Sheesh. I'm out.  See you all later.


Diagnosis: 11/18/2010, ILC, 5cm, Stage IIIa, Grade 2, 2/15 nodes, ER+/PR+, HER2+
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May 3, 2012 11:40 PM Ang7 wrote:

Gosh Maud~

"you push your soy eating habits here."  Come on.  Sweetbean never pushed anything on anybody.

Very pleased Penguin Cold Cap user
Diagnosis: 5/25/2009, IDC, 2cm, Stage IIa, Grade 2, 1/4 nodes, ER-/PR-, HER2+
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May 3, 2012 11:47 PM Ruby- wrote:

In this study (2011), we show that genistein can induce estrogen-dependent MCF-7 tumor cell growth and increase breast cancer-associated aromatase expression and activity in vitro

www.mendeley.com/research/geni...

Dietary genistein negated/overwhelmed the inhibitory effect of TAM on MCF-7 tumor growth, lowered E2 level in plasma, and increased expression of E-responsive genes (e.g., pS2, PR, and cyclin D1)

www.mendeley.com/research/diet...

Tons more studies like those above

Unpleasant, no.  You are stirring the pot

Different strokes for different folks / The power that made the body heals the body. It happens no other way.
Diagnosis: 2010, IDC, 2cm, Stage IIb, Grade 1, 3/5 nodes, ER+/PR+, HER2-
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May 4, 2012 12:34 AM, edited May 4, 2012 12:34 AM by Nancynow

Hi ladies,

I posted the other day on another thread that my former Onc at UCLA advised soy intake is OK in moderation.  

You can look at a study from JAMA (Journal of American Medical Association) from 2009....results stated in part:  "In summary, in this population based prospective study, we found that soy food intake is safe and was associated with lower mortality and recurrence among breast cancer patients..."  "This study suggests that moderate soy food intake is safe and potentially beneficial for women with breast cancer".  I suggest you take a look.  If the link doesn't work, Google search "soy and breast cancer".

jama.ama-assn.org/content/302/...

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