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Apr 9, 2012 08:55 AM Janet_M wrote:
I'm a little late jumping onto this thread - but so glad I found it. I was diagnosed last year, have gone through chemo, resection of a margin, am about to start rads, and have not heard personal stories from women with bilateral breast cancer until this morning. What a relief!s
I too have received conflicting feedback about BBC. Boo307, you wrote that your rad tech only sees one case of bilateral rads a year. And Kathy 1925, you said that your team was very matter-of-fact. I've been getting the same sorts of feedback. My surgeon was quite matter-of-fact, and my rad doc told me that it happens in about 10% of the cases, which sounds high to me. Recently I saw another Dr who said, 'Wow, your case is remarkeable'. I had no idea what she was talking about, but she told me it was highly unusual, Especially since I have no family history, and tested negative for the BRCA gene.
In my case the lumps were found a week apart. I'd been diagnosed with IDC on the right and had been given my course of treatment. Then we did an ultrasound on the left and found something that was 'probably insignificant' and the Dr called his colleague in for a look. They did a biopsy, which showed it to be a similar tumour. So, I had bilateral lumpectomies followed by chemo.
My surgeon recommended a BMX as I am at 'slightly higher risk' of recurrence. My Rad Onc says that bilateral radiation will give me a comparable rate of survival. I'; been conflicted (a huge understatement) for months but have chosen to go the BMX route. I'm haunted by the fact that the left tumour almost slipped by. And, so grateful that they found it.
However, I'm still confused as to whether or not I've chosen the right course of treatment. 'Slightly Higher Risk' isn't enough information for me and the numbers keep changing depending on who I talk to . Is a BMX too drastic? There are some days where I think that BBC in'st a big deal, and other days where I think - what the heck? (I'm being polite. 'Heck' is not the word I used)
Id be interested in hearing what other Surgeons and Rad Onc had to say. Did they treat it as two separate cancers? Is BMX a logical route? Has anyone had rads only? I would love to hear from others in our siutation
Also - I read the article posted by Boo307. In summary it say,'Mean overall survival of patients with MBBC was significantly longer than thoe with SBBC.' But - wat are MBBC and SBBC. Am I missing something obvious?
Thank you, thank you. Janet
Balderdish.blogspot.ca. Just because you're having a meltdown doesn't mean you're not coping.
Diagnosis: 7/7/2011, IDC, 2cm, Stage II, 2/16 nodes, ER+