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Topic: Australian Sisters

Forum: Australian and New Zealand Breast Cancer Survivors — Australian health care, clinical trials, and life in general in the land down under.

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Posted on: Dec 15, 2010 05:13 PM

Trisha-Anne wrote:

Calling all Australian Sisters!

I'm in Canberra and have just done my second chemo treatment.  I'm have 3 cycles of FEC then will have 3 cycles of Taxotere and 12 months of Hercepten.

It might be nice to see how many of us are in Oz and if we aren't too far away from eachother try to organise a meeting.


Diagnosis: 9/17/2010, IDC, 1cm, Grade 3, 1/6 nodes, ER+/PR+, HER2+
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Aug 18, 2012 08:34 PM Kate60 wrote:

I was just thinking, what a lovely way to end a pretty crappy year for a lot of us. I will be with you gals on the 1st anniversary of my breast surgery. I am so looking forward to it, actually I'm more so about meeting you gals than seeing my darling sister who I haven't seen for 2 years.

"I have heard there are troubles of more than one kind. Some come from ahead and some come from behind. But I've bought a big bat. I'm all ready you see. Now my troubles are going to have troubles with me!" - Dr. Seuss"
Dx 10/16/2011, IDC, <1cm, Grade 3, 0/1 nodes, ER+/PR+, HER2+
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Aug 18, 2012 08:40 PM kyliet wrote:

Wow Kate, my first op was on the 7/12/11. It will be a special cancerversary. x

When life gives you a 100 reasons to cry, show life you have a 1000 reasons to smile. Mulitfocal, ECE, lymph. channel invasion, Chemo over, RADs over.
Dx 11/11/2011, IDC, 1cm, Stage IIa, Grade 1, 3/26 nodes, ER+/PR+, HER2-
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Aug 18, 2012 09:02 PM suzieq60 wrote:

I was 5' 9" but owing to age shrinkage not that tall anymore. But ask Chrissy if I am tall.

I would love to put more of you up in December, but Chrissy is all I can mange - sorry. Steve would probably run for the hills if I invited all of you :)

2nd diagnosis October 2010 - IDC 5.8mm node negative - missed on mammogram in October 2009
Dx 10/13/2009, ILC, 1cm, Stage I, Grade 3, 0/5 nodes, ER+/PR+, HER2+
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Aug 18, 2012 09:07 PM Linda1966 wrote:

lol I could put some up, but youd be competing for space with 5 yappy dogs who like nothing more than to make my house a pigsty on a daily basis, definately not relaxing. I wouldnt do that to my worst enemy Laughing
Dx 12/4/2008, IDC, 1cm, Stage Ib, Grade 2, 1/18 nodes, ER+/PR-, HER2-Surgery 12/15/2008 Mastectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection (Left)Surgery 12/19/2008 Lymph Node Removal: Axillary Lymph Node Dissection (Left)Chemotherapy 01/19/2009 Cytoxan, Ellence, fluorouracil, TaxotereHormonal Therapy 08/10/2009 Arimidex
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Aug 18, 2012 11:15 PM Trisha-Anne wrote:

Linda and Sue - don't feel bad - there are too many of us, and we can get something in the city Cool I have a feeling Kate and I will be competing to see who is the loudest snorer. According to my DH I wake the dead lol

It will be a wonderful way to end a crappy year

Trish

xoxo 

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe
Dx 9/17/2010, IDC, 2cm, Stage IIa, Grade 3, 1/6 nodes, ER+/PR+, HER2+
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Aug 18, 2012 11:17 PM Linda1966 wrote:

Bags my own room Tongue out
Dx 12/4/2008, IDC, 1cm, Stage Ib, Grade 2, 1/18 nodes, ER+/PR-, HER2-Surgery 12/15/2008 Mastectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection (Left)Surgery 12/19/2008 Lymph Node Removal: Axillary Lymph Node Dissection (Left)Chemotherapy 01/19/2009 Cytoxan, Ellence, fluorouracil, TaxotereHormonal Therapy 08/10/2009 Arimidex
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Aug 18, 2012 11:25 PM Jennt28 wrote:

My surgery date last year was..... wait for it..... 7th December!!!!

Three of us had surgery on the same day!

Jenn

Jennt28: 3 x FEC, 11x weekly Taxol, 12 months Herceptin, 12 days rads (planned 28 but quit), planning BMX (now))
Dx 12/1/2011, IDC, 2cm, Stage IIa, Grade 3, 1/1 nodes, ER+/PR+, HER2+Targeted Therapy HerceptinSurgery 12/07/2011 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Chemotherapy 01/12/2012 Cytoxan, Ellence, fluorouracil, TaxolHormonal Therapy 08/02/2012 Tamoxifen
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Aug 18, 2012 11:30 PM suzieq60 wrote:

It's my mother's birthday on the 7th - you girls coming will be my excuse for not going down to see her. I'll try to visit the weekend before.

2nd diagnosis October 2010 - IDC 5.8mm node negative - missed on mammogram in October 2009
Dx 10/13/2009, ILC, 1cm, Stage I, Grade 3, 0/5 nodes, ER+/PR+, HER2+
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Aug 19, 2012 12:49 AM, edited Aug 19, 2012 12:50 AM by Kate60

Just did a quick search and we can get a two bedroom apartment at the Oaks Aurora which is centrally located for $188 per night for 4 people. Howzat sound gals??  (PS and there is a balcony that Trish can have if she snores too loudly) xxxx

"I have heard there are troubles of more than one kind. Some come from ahead and some come from behind. But I've bought a big bat. I'm all ready you see. Now my troubles are going to have troubles with me!" - Dr. Seuss"
Dx 10/16/2011, IDC, <1cm, Grade 3, 0/1 nodes, ER+/PR+, HER2+
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Aug 19, 2012 01:26 AM Racy wrote:

Great pics from yesterday ladies.

Kylie, wow your hair is growing well!

So, at last count for Brivegas in December we have Sue, Lynda, Racy, Chrissy, Kate, Trish and Kylie.

Oaks Aurora may be the one on corner of Ann and Wharf? I remember that Kate likes a balcony :-).

Dx 2010, ILC, 2cm, Stage IIa, Grade 3, 0/22 nodes, ER+/PR+, HER2-
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Aug 19, 2012 02:09 AM Kate60 wrote:

460 Queen Street, just near Customs House. It was just a quick search. I defer to my other 'roomies' for their opinions/suggestions.

"I have heard there are troubles of more than one kind. Some come from ahead and some come from behind. But I've bought a big bat. I'm all ready you see. Now my troubles are going to have troubles with me!" - Dr. Seuss"
Dx 10/16/2011, IDC, <1cm, Grade 3, 0/1 nodes, ER+/PR+, HER2+
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Aug 19, 2012 02:10 AM Linda1966 wrote:

Cant remember her name (sincerest apologies, but the memory is still shotEmbarassed), but I know we have someone in Beaudesert who might be able to travel and join us. We also had a brissie girl who popped in here a while back, she might lose her shyness and join us too? Hopefully there's some more out there who are reading  but not posting who might pop up before December and want to join us too, you never know. Either way it should be a great fun time for all who can come. Smile
Dx 12/4/2008, IDC, 1cm, Stage Ib, Grade 2, 1/18 nodes, ER+/PR-, HER2-Surgery 12/15/2008 Mastectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection (Left)Surgery 12/19/2008 Lymph Node Removal: Axillary Lymph Node Dissection (Left)Chemotherapy 01/19/2009 Cytoxan, Ellence, fluorouracil, TaxotereHormonal Therapy 08/10/2009 Arimidex
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Aug 19, 2012 03:03 AM Racy wrote:

Kate, I know where that is now. It's not far from the river and Eagle Street restaurant district. It's a new building, very tall.

Dx 2010, ILC, 2cm, Stage IIa, Grade 3, 0/22 nodes, ER+/PR+, HER2-
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Aug 19, 2012 03:50 AM Racy wrote:

I see that Oaks Aurora is 69 storeys ... dizzy... :O

Dx 2010, ILC, 2cm, Stage IIa, Grade 3, 0/22 nodes, ER+/PR+, HER2-
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Aug 19, 2012 06:29 AM suzieq60 wrote:

Eagle St Pier would be nice for lunch!!!

2nd diagnosis October 2010 - IDC 5.8mm node negative - missed on mammogram in October 2009
Dx 10/13/2009, ILC, 1cm, Stage I, Grade 3, 0/5 nodes, ER+/PR+, HER2+
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Aug 19, 2012 07:35 AM Kate60 wrote:

It sure does Susie Smile and then we can all come back to the apartment to freshen up for a big night. Yep reckon I'll make a mighty effort to at least stay out until 10.00pm!!!
"I have heard there are troubles of more than one kind. Some come from ahead and some come from behind. But I've bought a big bat. I'm all ready you see. Now my troubles are going to have troubles with me!" - Dr. Seuss"
Dx 10/16/2011, IDC, <1cm, Grade 3, 0/1 nodes, ER+/PR+, HER2+
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Aug 19, 2012 10:12 AM melp27 wrote:

hi ladies!!!

things are a bit up and down still for me. good news is i went for my followup mammogram last week on my right side and they found no suspicious lumps!!! have a small nodule on the other side but surgeon thinks its scar tissue but will scan it to make sure.

bad news is i still havent found work. went to an interview the other day though but i didnt do as well as i wanted to. nerves got to me. finances are really stressing me. any idea if SA cancer council would give someone whos over 1 year post dx any financial support? i got all the brochures about it at the start but didnt use them as i had money from income protection. 

Dx 7/24/2011, LCIS, 6cm+, Grade 3, 20/24 nodes, ER+/PR+, HER2-Hormonal Therapy TamoxifenSurgery 08/15/2011 Mastectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection (Left)Radiation Therapy 02/15/2012 External
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Aug 19, 2012 10:32 AM, edited Aug 19, 2012 10:32 AM by chrissyb

Melp I can't answer your question as I have found the Cancer council in SA to be next to useless.  They have never been any help in any wasy to me or my family when it counted or otherwise.  Sorry, I just think they need a kick up the arse as to me they are as useless as tits on a bull!   Sorry girls but it is a very sore point with me and one reason I am so passionate about helping anyone with BC in any way I can.

Maybe you should phone them and ask the question.  The worst that could be said is no. 

Love n hugs.   Chrissy 

I found my peace which gave me strength.
Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Aug 19, 2012 05:34 PM Trisha-Anne wrote:

Mel I'm sorry to hear you still don't have a job.  At least you are getting interviews - that's a start ... but I know it's no comfort if you aren't landing them. I don't know anything about the Cancer Council's help, but you probably need to go in to Centrelink and register - at least you'd be able to get some assistance there.  Good luck, and I'm thinking of you.

Wow Kate! That's an awsome rate, sounds good to me.  The only thing we'll need to make sure of is that they can offer 4 single beds.  Most will have a queen in one room and two singles in the other, and while I know we'll all get on pretty well, I also know no-one wants to actually share a bed with me lol.

Trish

xoxo

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe
Dx 9/17/2010, IDC, 2cm, Stage IIa, Grade 3, 1/6 nodes, ER+/PR+, HER2+
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Aug 19, 2012 08:21 PM kyliet wrote:

10pm is sounding late for me... I seem to go to bed okay then wake up at 1am for a few hours. I bet that makes you want to share LOL. Hopefully by then my sleep will be sorted.

Mel - sorry about the job situation. I have to start looking soon and it is really hard because we still have to have time off for appt's. It makes it hard applying for a job when you have restrictions on hours. I was actually thinking this morning that the whole cancer thing would be so much easier if we could have weekend doctors appts, but I can't see that happening.

Ditto Kate, that rate sounds great, I agree with Trish about the bed thing.

This will be the first time in my adult life I will have gone away without children or DH. Sounds sad when I put it like that, but I am looking at is as a new experience.

Kelpie, I hope you are okay, thinking of you.

When life gives you a 100 reasons to cry, show life you have a 1000 reasons to smile. Mulitfocal, ECE, lymph. channel invasion, Chemo over, RADs over.
Dx 11/11/2011, IDC, 1cm, Stage IIa, Grade 1, 3/26 nodes, ER+/PR+, HER2-
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Aug 19, 2012 10:06 PM Trisha-Anne wrote:

Kylie - 10pm is pretty late for me too lol.  Don't worry about the sleep issue though, at least if we have an apartment, it will be easy to go out to the loungeroom area and read or watch tv or whatever without disturbing others.

Where would you look for a job, Kylie? Most employers are fairly flexible when it comes to dr's appointments, I've found, and if they aren't then they really wouldn't be good employers.

And yes - Kelpie - hoping you are going ok? 

Trish

xoxoxo

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe
Dx 9/17/2010, IDC, 2cm, Stage IIa, Grade 3, 1/6 nodes, ER+/PR+, HER2+
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Aug 19, 2012 11:15 PM Trisha-Anne wrote:

I started a Brisbane topic in the get togethers thread.  Just in case anyone saw it and wasn't reading here.
Trish

xoxo

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe
Dx 9/17/2010, IDC, 2cm, Stage IIa, Grade 3, 1/6 nodes, ER+/PR+, HER2+
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Aug 20, 2012 12:05 AM kyliet wrote:

Thanks for organising that post Trish, it was really thoughtful of you.

Trish - job mmm??? I had finished working in day-care 3 weeks before I was diagnosed. I can't imagine doing it now and had stopped because I was finding it physically too hard before all of this.  

I am doing an online Cert111 in Admin, very slowly. It is hard to get motivated by yourself. I would like to do office work but it has been years since I have done any. So basically I don't know.

I am being very maudlin at the moment. I think it because treatment has finally finished and I am at the 'what now' stage. Some days I find it really hard to think about the future, but if I don't do something then it's like I am giving up. Sorry girls if I sound sorry for myself but I think/hope you will all understand.  xxx 

When life gives you a 100 reasons to cry, show life you have a 1000 reasons to smile. Mulitfocal, ECE, lymph. channel invasion, Chemo over, RADs over.
Dx 11/11/2011, IDC, 1cm, Stage IIa, Grade 1, 3/26 nodes, ER+/PR+, HER2-
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Aug 20, 2012 12:30 AM Trisha-Anne wrote:

Oh Kylie - we understand - a lot of us have been just at the stage you are up to now ((((hugs))))  Just take your time, it will all work out.  You are where I was near the beginning of the year, and it's ok to have down days Kiss

Good for you for doing a Cert III - and you are more motivated than me, I couldn't get myself to finish my Cert IV in Project Management that I started just after chemo.

Trish

xoxo

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe
Dx 9/17/2010, IDC, 2cm, Stage IIa, Grade 3, 1/6 nodes, ER+/PR+, HER2+
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Aug 20, 2012 01:03 AM Linda1966 wrote:

Kelpie, thinking of you, hope your feeling well.

Kylie, weve all been there, its not a nice feeling but it will pass and then you will go forward. Gentle hugs to you.

 Looks like I'll be hitting the casino on my own while you ladies are in town. 10pm on holidays is way too early for bed Tongue out. Might have to tuck you all in and head out Laughing. Just ask any early risers be gentle on me lol

Dx 12/4/2008, IDC, 1cm, Stage Ib, Grade 2, 1/18 nodes, ER+/PR-, HER2-Surgery 12/15/2008 Mastectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection (Left)Surgery 12/19/2008 Lymph Node Removal: Axillary Lymph Node Dissection (Left)Chemotherapy 01/19/2009 Cytoxan, Ellence, fluorouracil, TaxotereHormonal Therapy 08/10/2009 Arimidex
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Aug 20, 2012 01:05 AM Trisha-Anne wrote:

Linda lol - we'll be gentle on you if you're quiet coming to bed. Otherwise we'll have our revenge.

Mind you it might be a bit different when we are all up there together and on hols - who knows I might have a lot more energy!!

Trish

xoxo

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe
Dx 9/17/2010, IDC, 2cm, Stage IIa, Grade 3, 1/6 nodes, ER+/PR+, HER2+
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Aug 20, 2012 06:54 PM midnight1327 wrote:

gosh i would love to come over amd meet you all, but it will be at a very busy time of year for us with the bussiness, would be lovely tho. lol trish i bet i could beat you at the snoring too, i am chronic, you would be tossing me on the roof.  get up there you noisy women you would be saying, hubby grabs my nose and that wakes me up,  GOSH WOMEN DO YOU HAVETO SNORE SO LOUD< I CANT HEAR THE TV.  lol, i know you ladies will  have a grand time. if i could come i would.
Dx 8/12/2011, IDC, 1cm, Stage Ia, Grade 3, ER+/PR+, HER2-Surgery 08/31/2011 Lumpectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection (Left)Radiation Therapy 10/10/2011 ExternalHormonal Therapy 11/23/2011 Tamoxifen
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Aug 20, 2012 10:14 PM, edited Aug 20, 2012 10:20 PM by Alyson

Hi all,

Do hope you day is going well. Have not got near the computer as DH has had business reports to write and was just too lazy to set up my laptop. Also had fairly busy time. 

Friday night had wonderful time with DD@ and her BFF. It was like old times because the BFF used to spend so much time here she is like another daughter really but now as she has small children we don't see her so much. Anyway they came with me to a fashion show put on by the Breast Cancer Research Trust. This is something I do support and there is no pink anywhere and all proceeds go to research both for cure and cause. Show was great (would love to be able to afford the clothes) and then we went and had tapas and dessert. Real girl night.

Had friends here for dinner on Saturday and then went to sleep watching the rugby. DH had gone to a school match in the afternoon where he caught up with several of DS's friends who were there supporting their old school team. I went in search of patchwork fabric as I am making a quilt for DD2. I know that as soon as DD1 sees it she will want one as well.

On Sunday we took the grandchildren out to see their great grandma. They were great thank goodness. 

So it was all go over the weekend and yesterday, again searching for fabric a whole lot of junk fell out of a high cupboard so I had to sort that out. Two large rubbish bags of stuff have gone out, goodness knows why I was keeping it!

So now I must get back to the patchwork, then tonight I will get on with my knitting which I do until my hands and arm get sore. Have nearly made a third baby jacket while my sister is busymaking booties whic the hospital have asked for.

So that's me at present. I did see my RA doc who had some good suggestions. He listens and explains what is happening and why he and the oncs don't want me to have certain drugs so it does limit choice.

I would love to be able to join you lot in December but don't think its possible. I am working on it

Do love the hair photos, makes me laugh as I coloured mine as soon as I could. Though I did have a trip around Europe sporting short white hair. 

Have a good week

If you are sent down a stony path God will give you strong shoes
Dx 12/19/2006, IDC, 3cm, Stage IIIc, Grade 2, 23/24 nodes, ER+/PR+, HER2-Surgery 01/19/2007 Mastectomy (Left); Lymph Node Removal: Axillary Lymph Node Dissection (Left)Chemotherapy 02/23/2007 Cytoxan, Ellence, fluorouracil, TaxolRadiation Therapy 08/10/2007 ExternalHormonal Therapy 08/10/2007 Femara
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Aug 20, 2012 10:39 PM Kate60 wrote:

Wow Alyson, you have been very busy. Sounds like you had a really lovely and full weekend.

Well I must say... the novely of being on my own has sort of worn off. One week today and Paul will be home. It's been really good in terms of my diet, I eat when I want too (main meal usually at about 3pm) and I am starting to loose weight, which is good. But it is very mundane and boring. There is lots I could be doing to keep myself out of mischief but either the weather is against me (as in now) or I've been feeling a bit underwhelmed with motivation.

I went to a nursery on Sunday and I bought two big establishd frangipani trees (about 6 foot tall). Suddenly, and I don't know if this is due to my BC or not, but I'm not wasting my time on smaller trees/shrubs etc. I want them big so I can enjoy them now, not have to wait years for the same effect. They were supposed to be delivered yesterday but I haven't got them yet. No matter, they will just have to stay in my driveway as I cannot get them up the 11 front steps, then up the other steps up the back to where I am going to plant them. Their root ball is huge. I will have my work cut out just digging a big enough hole, although luckily we have sand here not clay, so it's relatively easy.  I've put this task on my ever growing list for Paul to do when he gets back.

He's coping really well with being away, which I am relieved about. He said it's what you make it. There are about 1,000 people there and apparently all sorts. He has very long days, starting at 4.00am when he gets up, then works from 5 - 5. After dinner he's usually in bed by 8.30pm. I'm sure he's looking forward to sleeping in when he gets home. He has started to pace himself regarding the meals. Everything is buffet and he's spoilt for choice with a huge selection. If you feel like a steak instead of what's in the bay-maries, they will do that for you. For the first week he was having a big cooked brekky every morning, but now he just sticks to coffee. I wouldn't be surprised if he's found the weight I've lost Smile.

So he'll be home for a whole week, then back there for 3 and so on. I just need to learn how to manage myself. I am thinking of undertaking an Enrolled Nursing course next year... I can't say I have a passion for it, but given my age and that I do like helping people, it could be a good choice. I know I don't want to work in an office anymore, so my prospects are somewhat limited.

Have an awesome day girls. xxx

"I have heard there are troubles of more than one kind. Some come from ahead and some come from behind. But I've bought a big bat. I'm all ready you see. Now my troubles are going to have troubles with me!" - Dr. Seuss"
Dx 10/16/2011, IDC, <1cm, Grade 3, 0/1 nodes, ER+/PR+, HER2+
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Aug 21, 2012 04:14 AM kyliet wrote:

Alyson and Kate, you have both been very busy. Kate, it will be lovely to have DH home.

My DD's good friend is organising the local 'Girls Night In' for breast cancer. Last year they raised $20,000. Today DD and I went around a heap of shops for donations, people are very generous. It took me a while to register that we were asking for donations for BC and I was a BC person. I asked DD if I still looked like I had cancer and she said 'no-one would deliberately cut their hair like that' but you look gorgeous. Have to love them.

Anyway this fundraiser is very dear to my heart. Last year DD had just been to it and was chatting to my Mum (who is 10 yrs out from BC) about what a great night and great cause. I jokingly said I suppose i should check my breasts. Well I guess you can guess what happened next....here I am.

Giants, huge hugs, Kylie 

When life gives you a 100 reasons to cry, show life you have a 1000 reasons to smile. Mulitfocal, ECE, lymph. channel invasion, Chemo over, RADs over.
Dx 11/11/2011, IDC, 1cm, Stage IIa, Grade 1, 3/26 nodes, ER+/PR+, HER2-

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