Topic: Hi. New member of the club no one asks to be in.

Jun 8, 2012 12:50 PM Kelloggs wrote:

Welcome Matt from another reluctant member.  I got married last year to my soulmate after being single for 12 years.  It was a lovely spring wedding on May 14th.  On October 18th I was diagnosed with breast cancer.  He has been so wonderful through this whole journey and I can tell you are going to be the same kind of supportive partner.

I had a lumpectomy, re-excision for clear margins and port placement followed by 6 rounds of TCH.  My husband is a seasonal worker and was laid off during the time I was going through chemo so he was there every step of the way....what a blessing!  Just prior to starting chemo I had scans done which showed lung nodules, so stage IV from the get go!  But the chemo worked and scans after my last tx showed my lung nodules had completely resolved!

I am finishing radiation now, continuing with Herceptin every 3 weeks for a year and just started my 5 years of Tamoxifen.  It has been one hell of a year but I am so grateful for the ladies on this site and my dear husband.  Stick by her side and come here any time you need comfort, support, questions answered, or just to vent!  We've heard it all and we can relate.  Bless you and good luck to you and your fiancee!

Jun 8, 2012 03:46 PM Moderators wrote:

((((Hugs)))) to you and your fiancee Matt. She's a lucky girl to have you! Thank you for sharing your story here...while we hate that you're here, we're happy you found us.

Please keep us posted with how your fiancee is doing (along with the wedding plans!).

And congrats on your graduation tomorrow!

--Your Mods

Jun 8, 2012 10:49 PM mdg wrote:

I had lots of watery eyes during chemo and a bit after.  It can be a side effect of the chemo.....

Jun 9, 2012 03:10 AM gwelin_Nigel wrote:

Hi all,
I came across this true story of a victim.I really can't stop wondering after knowing about the amazing benefits of chanting Vishnu Sahasranama.
I've given the link below.
feastforthought.blogspot.com/2...

I felt I really wanna help the girls. n mothers struggling to survive every day day n night. I know the pain n grieves of friends. Pls have faith n give it a try.its TRUE!!!!
To download Vishnu Sahasranama follow this link www.hindu-blog.com/2009/06/vis... I'm chanting this daily n getting unbelievable results. Hope this s useful to u all. I post this because I really care for my friends facing this life challenging pain.... Love, Gwelin

Jun 15, 2012 03:20 PM, edited Jun 15, 2012 03:25 PM by LLMax00

EDB:  Oh my gosh.  Eighteen!  I'm so sorry you've had to come here, but you're going to be glad you've found this place.  I wish I could give more substantial advice, but I think there are some amazing people here that can relate a little better than I.  Good luck to you and your daughter!

My fiancee was supposed to start taxol today.  

Unfourtunately, her WBCs were too low and came back at 1,000.  It was expected though.  

See, for her first three rounds of A/C, she got a neulasta shot the next day.  Her MO got a little worried after her third round follow up blood work came back with her WBC count at 47,300.   He decided against giving her the shot after the fourth round, and the followup blood work after that one was at a reasonable 5,000.  

Looking back at her other blood work sheets, her WBC count had been nearly doubling from the first followup to the second, then again on the third.  That neulasta must be some powerful stuff.  My fiancee's going in two week cycles instead of three -- I wonder if a smaller dose wouldn't make them go up as much?

She took it really hard having to get turned away from chemo today.  Her desire to get this done is unbelievable, but this lingering cough and sneezing she has isn't helping much.  We're up against the clock a little with our wedding in October, but I think we've got plenty of cushion on the calendar for little bumps in the road like this.

Like I told her, I'd much rather deal with these little speed bumps instead of what could happen if she pushed through treatment too hard.  

Oh, those eyedrops she got last week helped a ton.  She's not waking up with an eye swollen shut anymore!

Jul 17, 2012 12:50 PM LLMax00 wrote:

I thought I should share that my fiancee is now halfway through her four taxol treatments. 

They've become more of a bear to her than the AC rounds.  She had some terrible bone pain three days after the first round - she says it was some of the worst pain she's had in her life.  We're chalking that up to restarting the neulasta shots, since she didn't experience any bone pain after her second round last week.  We'll be making sure her MO knows when we see him for the first time since the end of the AC treatments.  

The other change is she's been in more of a fog longer than her AC rounds.  Severe enough where she doesn't want to drive.  

I've told her about this community, and she has lurked around a couple of threads including this one.  I'm hoping she'll take part here sometime soon...  she's been forced onto medical leave from her job as an assistant director of a daycare center starting this week so she'll have the time! 

Question we're starting to wonder about for anyone to answer:  in neoadjuvant chemotherapy, when is the safest window surgery must occur?  For anyone that had neoadjuvant chemo, how soon was your surgery after the last treatment?  Just wondering for planning purposes and what to expect from our MO.

Oct 15, 2012 09:40 AM LLMax00 wrote:

Our story was published yesterday the 14th!

www.philly.com/philly/health/1...

Oct 15, 2012 11:08 AM Jomama2 wrote:

Wishing you both a long and healthy life together!!  Thanks for sharing!