Posted on: Feb 28, 2005 03:21 PM
CarrieDe68 wrote:Hi my name is Carrie.
Posts 31 - 55 (55 total)
Sep 10, 2008 02:58 PM, edited Sep 10, 2008 03:00 PM by Jacquilyn
Hi Anna from Sweden, I have stage 3 BC cancer that started in 2000, 15 nodes affected but didn't spread else where one breast taken off. I had 6 months chemo, stem cell transplant, and 30 days of radiation. My cancer came back in April of 2008, I think due to depression, and not eating right. It came back as stage IV in my pelvis, 7cm, liver 2/2 cm tumors, and 13 cm on my oviars,and they cannot tell if the fluid in my right lung is cancer. I had my overies out and tubs. They said get my life in order. I ordered some Poly MVA and started taking 8 teaspoons a day since May, 08, along with eissac tea, and colloidal silver, a quart a day, and ordered a rife machine that I've havn't started yet looking for a amp.Well five weeks ago they said my makers drooped from 200 to 116, that was 5 weeks ago I'm scheduled to have blood work again. My doctor wants me to stop the poly to see if Femara is the one that's working but I'm not going to do this. I hate the drug Femara because I have thinning of the hair, and trying to fine a estrogen blocker thats natural to stop tumor growth. I know there are cures around the corner here in the USA like the IT101 trails in Ca, and nanobots, but these are going to take either 3/5, or 7 years more testing to be done. I'm scared of chemo and ct scans because it makes cancer come back and you become more resistance to treatment with drugs like these later. I'm fighting this the best way in knowledge of alternative medicine in diet, get juicing fresh organic vegetables and fruits a day to help. Good luck with everything, I starting my survivorship I guess but wanted to let you know I have similar symptoms.
Sep 10, 2008 03:27 PM Maryiz wrote:
Jacquilyn, I saw your post. Thanks for sharing your story of courage and hope. Just hand in there, please, I saw your note about cures around the corner in the US and them taking 3-7 years to come out. Remember, if something is found to work amazingly well, they may fasttrack it and send it right out of trial into the real world. Hang in. You must be doing something right to get your tumor markers down. I am thinking of you. Maryiz
Nov 12, 2008 09:48 AM, edited Nov 12, 2008 09:49 AM by curls
Thanks for telling your story. It gives me hope. I have recently been diagnosed with stage IV Cancer - a big surprise, as just last February I was diagnosed with stage I BC. I had a lumpectomy and radiation and thought I was cured. I was taking Femara as adjuvant therapy. On a fluke when I needed a CT scan for another reason, they found cancer in my bones. I have no pain and it was such a shock to me. My oncologist looked at a CT scan that I had last January before I was diagnosed with BC and he said he could see it in my bones by looking at that scan. So it was actually in my bones before I was diagnosed with BC. I have been distraught these last couple of weeks. I am now on Zometa in addition to Femara. I did have the flu like (really achy)symptoms with my first dose of Zometa and ran a fever, which I'm just now getting over. I'll be dreading my next dose.
Nov 12, 2008 07:05 PM Rainbolt wrote:
I am so happy for you! It gives me hope! I am also Stage IV w/ mets to C-T-L-Sacral spines, shoulder, ribs, and hips. Also to lungs. My prognosis is poor- 2 yrs (that was 2 years ago). I am curious of other stories of this type of metastis and survival. Have you changed your diet at all? How are you? I, myself, have been limping around due to bone and nerve damage, but just got back from San Miguel de Allende w/ some girl friends and I did lots-O- shopping/ walking! We just can't let it stop us!
Nov 12, 2008 08:51 PM Rainbolt wrote:
I too have stage IV BC. I was diagnosed intially w/ BC in 1999 had Surgery, chemo and XRT followed by Tamoxifen. Like a dummy, I quit taking the Femara because it was so expensive and I thought I had it licked. Well, it came back in 2006 as mets to my bones and lungs. Yikes! One MD gave me a 2 yr guestimate and I'm still here. I have tried hormonal tx - 1 worked for awhile. Then Abraxane which worked for awhile, then I tried Xeloda which didn't work at all for me, now I'm on Gemzar and my numbers keep climbing. It's funny how some Rx's work for some, but not others. I have certainly learned that you can't compare individuals. We are all so different. So don't get into that way of thinking. Even my reaction to chemo and radiation the first time around was nothing compared to the 2nd time around ('99 vs '06). Everybody and each time will/can be different. I've heard lots of good stories out there. Keep me posted if you hear of any great stage IV stories. I wish the best for you. Rebecca
Jan 28, 2009 09:53 PM, edited Jan 28, 2009 10:04 PM by kims
Ten years ago I was diagnosed with Stage II Breast Cancer. I went through 4 treatments of Chemo and 25 radiation treatments. I had surgery...pleaded with the doctor to take both breasts, but they would not do it. At the ripe old age (ha) of 41 I was once again diagnosed with BC on the other breast with bone mets. I knew in my heart before I was diagnosed that it was in my bones. The pain was unbelievable, but nobody ever knew. I was told by my doctor that he would try to make what time I had left as easy for me as he could. I looked him straight in the eye and said "it's you, me and God in this..lets just see what happens. Almost 2 years later, still taking chemo and feeling good. (My doctor is in complete shock...I like that) The cancer is almost completely gone. I had it in the base of my skull, collar bones, breast bone, ribs, spine and hips. It is as if God put his hand on my head and it is going away, first in the base of my skull, then collar bones and so on. If you didn't know me you would have NO idea that I'm having treatments. I wore scarves for a long time, but a bunch of girlfriends went wig shopping for the fun it. I got one that is so unlike me, but have found out I can have fun with that. My 12 year old son didn't like it at first, but now he loves it. The only reason I wanted to share is I know that there are other Stage IV women/men out there that would like to see just one person surviving. I don't read much on the internet...I just read the bible when it comes to cancer and know God is in full control. None of us know how much time we have, but we should enjoy each and every minute we can. I truly believe I will beat this. Don't let yourself get down or depressed. Stay strong...I'm not saying I don't have a down day or 2, but God will always pick me back up. Keep Fighting...I pray that I will be a Grandmother someday and the Lord Willing...I will. I've been blessed with this disease.I know that sounds totally insane. I've been asked if I could choose to have it or not, I would probably choose to have it. It has made me a better person and I have found out just how much faith I have. Please don't take me wrong...I really really don't want to die, not yet. I have so much to live for and you know what I don't like the treatments, but I have been blessed with a lot of new people/friends in my life. Don't feel like your alone...I'm fighting this battle with you. May God Bless you......"Trust in the Lord with all your heart and lean not on your own understanding" "Do not have fear of bad news, your heart is steadfast trusting in the Lord"
Jan 28, 2009 10:10 PM kims wrote:
Rebecca..Thank you for your story. As i said in my story...i just don't do these, but for some reason I was reading tonight. your story made my heart smile....Keep Fighting .. I like you, have found we are all so different on how we react to the treatments, so that is why I didn't say to much about that. I do know one thing we all have in common and thats our "will" to fight. I'm proud to be in that group with you and everyone else.
Apr 20, 2009 10:22 PM danni36 wrote:
Thank you so much for your uplifting post. I was just diagnosed 2 weeks ago with stage 4 BC with mets to my liver. I just want to find one doctor who will look at me with hope in their eyes. I have been told about the max 5 year survival rate. I have a two month old and a 3 year old, I have to survive this. Reading all these posts gives me hope. I am flying to NY (sloan kettering memorial hospital) next week for a second opinion. Keep on posting ladies, I need it!
May 18, 2009 01:15 PM suspott wrote:
They told me 16 months 3 years ago and I am now NED! Get a second opinion. I was fortunate enough to get in with Dr Gabriella D'Andrea at Sloan-Kettering. They just have a different outlook on stg4 up there. I feel like I will live to be a crochetty old lady at this point! BTW my mets were in my liver
May 20, 2009 05:01 PM DARLENEDENISE wrote:
Suspott: I noticed on one of you other posts that you are from VA? If so, what area? I live in Va Beach. I was interested in your post since I am a liver metsister too. Can you share a little more of your history? If you do live in Va, do you see a local onc and get supporting care at Sloan or is Sloan your primary care?
Thanks for sharing...Darlene
Sep 13, 2009 07:28 AM arbynoor wrote:
I'm very much inspired by your dad's story as i'm a stage v breast cancer with mets at my spine. Currently undergoing chemo with FEC+T. Well still another 3 cycles to go and 20 radiotherapies.
Mar 9, 2010 05:52 AM staystrongthrougheverything wrote:
thought id just say thankyou to all these ladies who have shared their stories, without it ladies like myself would at some point think their was no hope left.
I first found my breats cancer november 10 2007,but was diagnosed in feb 2008,had lumpectomey,an node removal from arm pit,had 14 out of 16 positive nodes,an uneven margins ,so they needed to do mastectomy,they decided to give me chemo first ,i found more lumps develope in my breast while i had chemo which i was told was highly unlikely.
Told oncologist i felt if they left my breast there any longer id die so please take it now,when they took it, i was right 2 other lumps had developed so i was reisstant to fec the chemo drug,an docitaxil,made me incredibly sick,so i had to stop it on second bout.
When they looked at my breast they found out i was not growth 2 but 3,with high grade dcis,while all this went on it spread to my colar bone nodes,they sent me for radio therapy on the whole area the cancer had been an now these new nodes, i was told it was highly unlikely id get through it as i had so many nodes positive, but in december 2008 i was told i was unoffically free of cancer.
Its now been just over a year an i have had some odd an very unpleasant symptoms happening, gp thought it was nothing ,then 2 lumps appear in my neck,i knew then without anyone telling me it was back,i had had a clear bone scan a few months before an have now had a clear ct from the neck down, due my head scan results soon.
I was told about on the 19 feb 2010 my cancer was now secondary an in my neck,its growing at some amazing rate,which is scaring the life outa me, i keep pushing them to take my ovaries,or at least give me zolodex,but Im being made to wait an try Xeloda,with herceptin as im her2 positive,but what really got me me is how long it takes them to get you into treatment,al the time i wait i watch my body get worse an worse.
I have lost all movment in the left side of my neck,im in accute pain constantly from my left shoulder blade to middle of spine an all way up to my neck,it has stopped me doing the simplest of things,but luckily one gp came to my rescue, im now on 60 mg of morphine twice daily,along with oramorph every 4 hours,i wish i didnt have to take such things but i just cannot function with out it.
Im a mother of four kids all under 10,an all i ask for is another 15 years,let me bring my kids up,then who ever it is up there that decides can have me,just not yet please.
All these stories have given me hope even if i can feel my body getting worse,as soon as my treatment starts hopefully i shall be as lucky as the ladies here.
God bless you all,all my best Jervinia.x
Nov 9, 2011 01:22 AM CarsonAriesGrl wrote:
Just bumping this thread and looking for more inspiration. I was diagnosed with stage III breast cancer in august and after a long story of shoulder pain no one would listen too im now all the sudden stage 4 with mets to my bones sitting in a rehab center after it was found emergency spine surgery was needed to save my T1 and right arm. I went from being told a little chemo and i was looking at a normal life span to now radiation and a lot of chemo might extend my life a few years depending on how the lesions react to the chemo. I need the stories of stage four long term survivors!! Im 28, i want to know a family and a normal life could still be out there....
Nov 9, 2011 02:04 AM Heidihill wrote:
I am about twice your age, carsonariesgrl, and have now been progression-free four years. Next year, progression or not I plan to be doing a lot more traveling as well as continuing to exercise daily. So yes, one can have a normal life with stage IV. You can find stories of long-term survivors on www.mbcn.org. Hang in there!
Nov 9, 2011 02:17 AM sutherndiva wrote:
It's so frustrating when things change so rapidly. The great news is that if things can get worse they sure as hell can get better. I'm praying for many many years for you and that you'll get the family and love you desire:)
Jan 16, 2012 05:42 PM luckygirl1 wrote:
Hi, Heidihill, I am 50 years old Stage iv Er positive only with mets to liver and bones. Been on Abraxane and Carboplatin for 4 months. Tumor markers went back up and had Pet Scan today. Wondering how you are doing and how you got ned. What medicines did they give you. Was your cancer slow, moderate or fast growing.
Jan 29, 2012 04:25 PM, edited Jan 29, 2012 04:44 PM by Barb312
TO TEXAYN 2005 My story is so similar to yours that I had to write and thank you for the encourgement. I went in for an MRI on 1/12/2012 for back pain and two hours later was told that I had bone mets with unknown primary diagnosis. They could not find cancer with pet or cat scans. I had a biopsy done on the spine and now they are pretty sure the cancer is from the breast. I am having a MRI of the breast tomorrow. I had a mammo done a month ago and it was negative. I am still in shock. I do not have a clue what is in store for me, but will let .know. I found this site today and what a blessing. God Bless YOu.
Jan 30, 2012 03:15 PM Heidihill wrote:
Luckygirl1, I had taxotere among others (TAC) for 6 cycles. That got me to Ned. Then I had surgery, radiation and hormonal therapy. Also zometa for the bones. I could feel my lumps getting bigger and the pain in my back getting worse and my body getting weaker in general, so I think my cancer was speeding up. Since chemo kills rapidly dividing cells, it was the answer to my prayers.
Feb 22, 2012 07:45 AM IVBCSIS wrote:
BARB My sister's diagnosis is similar to yours in that she also had regularly scheduled mammograms and breast cancer was not found until she was having digestive issues and the cancer was eventually found in her colon. She also had mets to the bone as well as other places. She has invasive lobular carcinoma which as I have read is often not found in mammograms because it does not form tumors but sheets. She was diagnosed @ stage IV in fall of 2006, went through a clincal trial and used hormone therapy, had her 1st grandchild in 2007 and was clear for 2 to 3 yrs, had her 2nd grandchild. They detected slight disease progression about 1.5 yrs ago and she began chemo again and has continually been on a couple of different chemo treatments. What she is taking now may be helping but it is too toxic for her. I can only imagine she will try something different in the next couple of weeks. I wish you well!
Oct 14, 2012 01:02 AM, edited Oct 14, 2012 01:06 AM by JLScudero31
Your story gives me so much hope! I was re-diagnosed with stage IV breast cancer last November while being 8 months pregnant. Since then I have had 9 rounds of chemo and had my ovaries removed. I go in next Thursday for a CAT and Bone scan, but at this point I am in remission and just really pray that I am OK, every ache and soreness scares me it's just so hard to believe I have a possibility of being normal. Thank you for your post! I was initially diagnosed with cancer when I was 31.