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Topic: post lymph node dissection pain

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  • Posted on: Jul 5, 2009 02:57 pm
Joined: Nov 2005
Posts: 2
br1950 wrote:

I succumbed to an exceedingly rare surgically induced permanent disability- unremitting agony mid chest to fingertips. Like most of the approximately 7% of node dissected women who are simliarly afflicted with this torture, I have extensive lymphedema which encompasses the entire treated side of my body. Thankfully,- not visible- -Temporary lines of stagnated lymph appear every A.M.

Despite the fact that my submissions have been printed in 4 cancer magazines, I have only been contacted by 9 other fellow sufferers in the 10 years since my trauma. I am designated as a 1 armed worker by the social security disability & teach GED 5 hours per week.

I am the contact person for nerve pain for Y-me's match program, H&R Bloch cancer group, RSD pain group & CT's Info line.

Barbara  

Posts 1 (1 total)
Binney4
Joined: Aug 2004
Posts: 4,617
Jul 5, 2009 11:22 pm Binney4 wrote:

Barbara, goodness! I noted your last post in 2005, and it sounds like nothing much helpful has happened since then -- I'm so sorry. May I ask if you had radiation as part of your treatment as well, or is all this damage from surgery alone?

You certainly are busy, though -- and it all sounds like very satisfying and fulfilling work.

Be well,
Binney

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