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Jan 2, 2010 01:22AM MaryDee wrote:
Me too!!! In Feb 09 I had my gallbladder removed because of gallstones, and during regular pathology they found primary lymphoma of the gallbladder. I weaned my baby just before the gallbladder op, so found out about the lymphoma just as I started to notice the breast lump. Even at that stage the general surgeon did an ultrasound and said the breast tumour was nothing. So I consider I was pretty lucky to be referred to the oncologist at that stage. My BC was actually found as a result of PET scans done to stage the lymphoma.
Because lymphoma is by nature a systemic disease, we didn't know at the start whether the breast tumour was another lymphoma site or BC. All up it was 6 weeks from when the lymphoma was diagnosed to when the BC was biopsied and a treatment plan made. You can imagine my state of mind during that time. Luckily for me it was still DCIS although all up they excised 7 cm first and then another 3cm during my mastectomy. Given the size,grade, etc I wonder how long I might've gone being fobbed of with ultrasounds if the lymphoma hadn't been found. So I consider myself a pretty lucky lady that it was caught before it became invasive disease.
Treatment involved a WLE - they didn't get clear margins - followed by 4 months of chemo for the lymphoma. I then needed a mast to remove the remainder of the DCIS, and I was lucky to have an immed Lat Dorsi recon. That was 3.5 weeks ago and still very much in recovery mode.
Delilah I know what you mean when you say your life has changed drastically, it's one almighty wakeup slap isn't it? I feel like my whole life now needs to be rehabilitated - my fitness & arm movement, my daily routines, I even delayed returning to work because of treatment so that looms ahead of me. But I've had 10 months now to come to grips with it - and believe me I read a lot and sat in the bath a lot and stayed in bed a lot during that time - just thinking, crying, processing, making sense of it all. You're in the early days yet. You need time to process. Talk, share, cry, get some counselling, read books by other survivors. Think about what changes, if any, you want to make to support your ongoing physical and emotional health. Make these changes slowly, and with love for yourself and what you have experienced. I feel like I've had a journey through the underworld, and I don't expect everyone in my life to understand what that is like. Be kind to yourself, you need time to adjust to what has happened. xxx
Healing takes courage, & we all have courage, even if we have to dig a little to find it. (Tori Amos). Dx with Lymphoma Feb09 & DCIS Apr09, Lumpectomy Apr09, Chemo May-Sep09, Unilat Mx & LD flap recon 7 Dec 09.