We are 144,899 members in 73 forums discussing 114,714 topics.

Help with Abbreviations

All TopicsForum: Young with Breast Cancer → Topic: Young BC Survivors: Support questions

Topic: Young BC Survivors: Support questions

Forum: Young with Breast Cancer — Connect with those under 40 who have been diagnosed.

Posted on: Nov 9, 2012 08:51AM

KrisLiz wrote:

Hi all, am 32 and was diagnosed this July, DMX w/TE's and rads, and I'm in the "finished treatment limbo" stage of all this. I want to make something meaningful from this hell-ish breast cancer experience, and I wanted input from other young BC survivors. I know we're all at slightly different stages and ages, but I wanted some input from the younger faction of survivors. I know for me I've felt a little alone in the BC community because of my age (I'm always the youngest by 30 or so years in every Dr. office), and the closest Young Survivors group is two hours away from where I live. So I'm looking for insight and ideas that would help young women like me get through diagnosis and treatment with a little more help. 

1. How old were you when you were diagnosed?

2. Do you/did you have children during diagnosis/treatment?

3. What was most difficult for you physically during treatment?

4. What was/is the hardest part mentally and emotionally for you?

5. What do you wish was "out there" for young breast cancer patients/survivors? (i.e. what kind of support did you not get that you wish you could have had?)

Any other thoughts/ideas you have would be GREATLY appreciated!

THANKS!!!!

Log in to post a reply

Page 1 of 2 (37 results)

Posts 1 - 30 (37 total)

Log in to post a reply

Nov 9, 2012 09:36AM katylynn wrote:

Hi KrisLiz!! I was 30 when diagnosed this past March. I started with chemo, followed by BMX with TE placement, and I'm going to start radiation soon. I am also still receiving Herceptin treatments until next May. My husband and I have three children, the youngest being 3. I can relate about not being sure how to feel after treatment is over. I started to have some of those feelings after chemo and surgery, but my path continues for awhile yet. I also know what you mean about being the youngest person in the waiting room. It is such an awful feeling and the thoughts of "why me?" seem to come roaring back then.  This has journey has been by far the hardest thing that my husband and I have ever been through. Not only has it tested each one of us as individuals, but it has and continues to test our relationship.  Surgery was very, very tough on me. I have pretty much had an uneventful course, which I am very thankful for. However, I was very depressed both before surgery and after.  I was completely ambivilent about losing my breasts, but for some reason I sank to an all-time low.  (I don't think you ever realize how low you've gone, until you've started to make your way back.)  We are so blessed to live in a small community where we have received a TON of support.  We also belong to a great church where we can learn more about God's promises for our lives. I can honestly say that it is only because of Him that I am still alive today.  However, I wish too that there was some way to physically connect with other young breast cancer patients. This website is great, but I find it very hard to actually to get to know someone unless you can be on here all the time. Thanks for sharing a little of your story. HUGS to you!!!!

Katy

Dx 3/7/2012, IDC, Stage II, Grade 3, ER-/PR-, HER2+Targeted Therapy HerceptinChemotherapy 03/22/2012 Adriamycin, Cytoxan, TaxolSurgery 09/06/2012 Mastectomy (Right); Lymph Node Removal: Axillary Lymph Node Dissection (Right); Prophylactic Mastectomy (Left)
Log in to post a reply

Nov 9, 2012 11:53AM BilateralBeauties wrote:

1. How old were you when you were diagnosed?

I was 43, but started going to the Young Survivors support grou.

2. Do you/did you have children during diagnosis/treatment?

My son was 10, two 20 something step children. Hardest conversations were about the things he could see - hair loss, radiation burns, tears. The watch everything and say little. I tried to find one-on-one time to ask if he had questions. He often did, but unless invited wouldn't speak up.

3. What was most difficult for you physically during treatment?

Working full-time, breadwinner, caregiver and the family tired very quickly of seeing me sick. Hubby almost made up illness for himself to motivate me to do more through it all. It is tough on young families with demanding children, financial and other obligations.

I was also surprised at how physically debilitating radiation was. And between chemo and radiation I started having gallbladder attacks that it took 10 months to diagnose. Just had surgery this month. It's been 15 straight months of treatment, tests and wondering.

4. What was/is the hardest part mentally and emotionally for you?

Bilateral was/is scary. High Oncotype of 42. 10 months of puking after chemo where we looked for mets rather than a rotten gallbladder. Missing very little work through it all. It was very hard to see my son express concern and worry. He was much more in tune to my physical state than husband/older kids.

5. What do you wish was "out there" for young breast cancer patients/survivors? (i.e. what kind of support did you not get that you wish you could have had?)

It might be worth a two hour trip to a Young Survivors Group. I travel about 45 minutes for the one I go to. I felt more alive and understood there than anywhere else. Women were wrestling with many things. Many had been misdiagnosed or pushed aside as nothing when it turned out to be cancer. Some diagnosed during pregnancy and making decisions to stop Tami to try for more. Others giving up on children for best chance of survival. Work and husband/boyfriend topics. One woman's (age 27) her boyfriend found her tumor and told her to get it checked out. There is also a national conference for young survivors that some in my group had been to.

What else would I have liked - more support/knowledge on bilateral. I received great support to advocate for myself as well from this group.

Good luck

Dx 8/23/2011, IDC, <1cm, Stage Ia, Grade 3, 0/3 nodes, ER+/PR+, HER2-Surgery 09/07/2011 Lumpectomy (Both); Lymph Node Removal: Sentinel Lymph Node Dissection (Both)Chemotherapy 10/13/2011 Cytoxan, TaxotereRadiation Therapy 01/09/2012 ExternalHormonal Therapy 03/09/2012 Tamoxifen
Log in to post a reply

Nov 10, 2012 11:44AM min937 wrote:

I am 40, with three kids (ages 10,8,5), and was diagnosed in September of this year. Just had a BMX with tissue expanders 2 1/2 weeks ago. Waiting to find out what is next, although I suspect with my age they will recommend chemo and tamoxifen. Not looking forward to either, since I thought I only had DCIS going into surgery.

My kids have handled it well, but they haven't had to deal with prolonged sickness or hair loss yet, so that may change.

Physically, I can only comment on the mastectomy and expanders, since that's all I've had so far. The drains were a pain, and I was so grateful to get those out (two after the first week, and the other two at two weeks post surgery). Most of my discomfort has been muscle related. When I get cold, my chest muscles tighten up and it doesn't feel good. Muscle relaxers help, but I usually only take those at night if I can't sleep. A lot of my breast and underarm area is numb, which is probably good, because I really haven't felt a lot of pain from the surgery/incisions/etc.


Mentally/emotionally - I've gone through a couple of phases - the initial one, where I woke up every day thinking it was all a dream. (I was diagnosed with DCIS through routine mammogram, no other symptoms.). I had finally wrapped my head around surgery (decision to do both even though left was fine), and then found out after surgery that I had two small areas of IDC in the same breast. Good thing my DCIS was scattered enough to warrant a MX! Anyway, so now I'm in emotional phase 2 - anticipating the treatment(s) they will want me to have even though it is stage 1, no lymph nodes, etc. I think a lot about my kids and husband when I get scared, and realize that being here for them long term is a priority.

Connecting locally with other young women recently diagnosed would be helpful. I have had tremendous local support from family, friends, and my hospital, but still wish there was someone my own age that I could connect with. We do have a chapter of Pink Ribbon Girls here, so that is my next step. I had a hard time getting a response from them, but I think it was because October was such a busy month for them. Regional or national conferences for young survivors would be great!

Good Luck!

Age 41, Multifocal DCIS in right breast, IDC found in right breast during BMX, oncotype 16, no chemo/rads, started hormonal therapy Jan. 2013 - tamoxifen/zoladex/zometa

Dx 9/19/2012, DCIS, ER+/PR+Dx 10/26/2012, IDC, 1cm, Stage I, Grade 1, 0/5 nodes, ER+/PR+, HER2-Surgery 10/24/2012 Mastectomy (Right); Lymph Node Removal (Right); Prophylactic Mastectomy (Left); Reconstruction: Tissue expander placement (Both)Surgery 02/07/2013 Reconstruction: Breast implants (permanent) (Both)
Log in to post a reply

Nov 10, 2012 02:39PM engk916 wrote:

i was diagnosed at age 38 two weeks ago with 3 IDCs in my right breast, and have 3 kids youngest aged 4.  i was told i need a MX because the tumors are too far apart for an LC.  after considering DIEP flap, i'm thinking i might forego any reconstruction so i can start my chemo and my life faster.  still grappling with the loss of my breast. it makes me sad but i don't like the continued fuss that reconstruction requires. 

i am getting a second opinion from a breast surgeon on tues and if she agrees with the MX i will go from there. 

this is a great thread, thanks for starting - i know what you mean by being the youngest person in the waiting room!

Dx 10/31/2012, DCIS, 2cm, Stage II, Grade 3, 1/22 nodes, ER+/PR+, HER2+Targeted Therapy HerceptinHormonal Therapy TamoxifenSurgery 12/05/2012 Mastectomy (Right); Reconstruction: Tissue expander placement (Right)Chemotherapy 01/21/2013 Adriamycin, Cytoxan, Taxol
Log in to post a reply

Nov 10, 2012 03:06PM, edited Nov 10, 2012 03:10PM by markat

1. I was 30 when diagnosed.

2. I have two girls. They were 6 and 7 when I was diagnosed.

3. Fatigue was the worst for me during treatment. I was too tired to do the normal parent thing- driving kids around to activities, etc. Pain, was bad during surgery phase for me.

4. The hardest part mentally and emotionally was feeling like that I will never be the person that I was before cancer. Missing that care free attitude and energy that I had before. Friends don't really understand, but that's okay.

5. I feel like I received adequate support for my age. I was contemplating joining a support group that was all women in the 50+ age group rather than driving the two hours to the young women with breast cancer support group. I decided that my local support group was good. They have been through the same physical and emotional struggles. I'm sure it's different for all people. Some deal with families, jobs, dating, medicare, school, or all of the above :) 

Best wishes to you!

Dx 11/9/2011, IDC, 4cm, Stage IIb, Grade 3, ER+/PR-, HER2+Targeted Therapy 12/05/2011 HerceptinChemotherapy 12/05/2011 carboplatin, Taxotere
Log in to post a reply

Nov 11, 2012 12:06AM Pgjoh wrote:

Hi everyone
1. I was 34 years old when diagnosed
2. my daughter Ana was 15 months old
3. physically not having the energy, or ability to hold, cuddle, play with my daughter. chemo truly made me feel like on the doorstep to death.
4. Two experiences were especially difficult mentally/emotionally. During my first round of chemo I had a blood clot to the lung and almost died...just like that...that rocked me and I began to have panic attacks, inability sleeping afraid of dying in the night and anxiety reaching into the word, fears about family driving ect... The other emotional toll was that my young daughter wasn't aware of this, and my fear was I will live until she is old enough to know and experience my illness, if it recurrs around the time she is seven or eight, a horrible time for a young child to witness their mother dying, due to this feeling I went through a time where I thought it would be better to die now and save her the pain, that was a very hard time for me. I also found myself distancing for my husband and daughter, just in case.
5. I really wish I had some young bc sisters close, in person to share my feeling, laugh, cry and bond and become stronger with. It's lonely sometimes.

I am now done treatment and much of this is behind me for now, but things sneak up all the time, my new normal changes every day. I'm stronger and better for having this disease...AS LONG AS IT NEVER EVEr EVER COMES BACK!

Hugs to all of you

Dx 1/18/2012, IDC, 2cm, Stage IIIa, Grade 1, 5/14 nodes, ER+/PR+, HER2-
Log in to post a reply

Nov 15, 2012 02:59PM Nat23 wrote:

Hello,

I am 27 years old and was diagnosed in June. I have two kids. My daughter, Hailey is going to be 4 in two weeks and my son, Trevor will turn 2 in December. It was definitely a horrible reality to hear I have BC. Still cant believe it.  I am currently finishing my chemo, then will have DMX in Jan, followed by radiation. Physically I did not experience much pain. I had some body aches, bloody noses, a bad rash on my face, and some other side effects :( but it was all bearable. Emotionally, I have good and bad days. I hate this disease and have no choice but kick some cancer *ss. I know I am not alone. I have a lot of family and friends that have been very supportive. I have not joined any BC groups in my community, so I hope I can connect with some girls in my age group here :) Thanx for starting this KrisLiz!

Dx 6/18/2012, 2cm, Grade 2, ER+/PR+, HER2+Targeted Therapy 07/05/2012 PerjetaChemotherapy 07/05/2012 TaxotereTargeted Therapy 07/05/2012 HerceptinSurgery 01/07/2013 Mastectomy (Both); Lymph Node Removal (Right); Reconstruction: Tissue expander placement (Both)
Log in to post a reply

Nov 30, 2012 10:38AM, edited Nov 30, 2012 10:39AM by kmadigan

I was 33 when I was diagnosed (2 months ago) and just turned 34 last Sunday.  I have a 7-month-old daughter.

So far chemo has been the hardest part of my treatment.  I went through the double mastectomy without too much emotion - maybe that still needs to kick in.  My biggest fear then was that I wouldn't wake up from the surgery, so when I did, I guess I just felt grateful for that.  I am getting reconstruction and was never really thrilled with my little A cups, so in a weird way I'm looking forward to having the breasts I had always hoped for - although I'd give them up in a heartbeat i it meant I could trade in the cancer.

Chemo has definitely been the thoughest for me.  My SE include severe nausea that kicks in the same day I have treatment.  At first I was scared something was wrong with me, but then my oncologist said they tend to see stronger reactions in younger women - lucky us.  It has been very emotionally difficult to not be able to play with my daughter or work.  I've always been a doer - I was in the gym when I was 9 days overdue, so laying in bed fighting a stomach that won't settle for days just screws with my head.  But with that said - getting through chemo is absolutely possible and it feels like I'm one step closer when it is done!

The other part that has been hard has been the "outcome" predictors.  Everything is in 5 and 10 year increments which makes sense because many of the latest treatments weren't even in use 10 years ago, but it is still so scary.  I'd love to see a study that shows, "Women forty years +".  Afterall, we are in our 30's - don't we all plan to live at least that long?

When I do start to get overwhelmed I remind myself to slow down and think of just today.... and sometimes I slow down to just the next 10 minutes.  Whatever it takes to get through.  I've found that staying positive but letting those that love you see your fears too is essential.  We need to know we are not alone in our fears and our loved ones need the same thing.  I also plan on having an amazing blow out of a party when I finish my last Herceptin treatment!

So far, I haven't really joined a regular group, but I have been doing counseling with my husband hich has been great, and we have tried to take advantage of as many workshops/supports as possible that are offered through our treatment center.  Counseling together has been key - we already had a great realationship, but it gives us another stepping point to talk about our fears and different points of view on everything.  He is still very angry about my diagnosis and I'm a bit more at peace with the whole "God has a plan for me" idea. 

Not sure if any of this helps....  Def. not wanting to sound negative, but I want to be honest just the same.  Thanks!

Dx 9/28/2012, IDC, Stage IIIa, Grade 3, 8/17 nodes, ER+/PR+, HER2+Targeted Therapy HerceptinHormonal Therapy TamoxifenSurgery 10/15/2012 Mastectomy (Both); Reconstruction: Tissue expander placement (Both)Chemotherapy 11/12/2012 Adriamycin, Cytoxan, Taxol
Log in to post a reply

Dec 2, 2012 07:11PM christina0001 wrote:

Hey ladies!

1. How old were you when you were diagnosed? I was 32 years old.

2. Do you/did you have children during diagnosis/treatment? No children for me. That has been the hardest part. DH and I were about 6 months away from when we were planning on trying for a little one. Now that has gone down the tubes. I am afraid of having a bio child; I am going to be starting tamoxifen soon and I don't want to stop it. Also my mom and her sister have had breast cancer; we are not BRCA+ but obviously something genetic is probably going on, and I don't want to pass that on. DH and I talk about adopting sometimes, but I don't think we will go that route either. I am slowly accepting that I may not be meant to have children, and I am doting on other kids in the family instead, which is making me feel better. Maybe I am just meant to be a fabulous auntie...

3. What was most difficult for you physically during treatment? Chemo was rough. I mostly had fatigue and stomach pain. Never got sick though, thankfully. Chemo wasn't easy but honestly, it wasn't as bad as I thought it would be.

4. What was/is the hardest part mentally and emotionally for you? Not having kids. Fear of it coming back. Got very depressed when I went on tamoxifen in between chemo and radiation. And the UMX really threw me for a loop. Much harder emotionally than I expected.

5. What do you wish was "out there" for young breast cancer patients/survivors? (i.e. what kind of support did you not get that you wish you could have had?) I do wish there were a support group nearby for young cancer patients. The nearest one is an hour away and I don't have time for that. Fortunately I have a friend at work not much older than me who has been through multiple skin cancers, and she has been a fabulous support. I wish this forum, for young people, were more active, too.

Dx 1/16/2012, IDC, 2cm, Stage IIa, Grade 3, 0/7 nodes, ER+/PR+, HER2+Surgery 01/11/2012 Lumpectomy (Right)Surgery 02/10/2012 Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Chemotherapy 02/13/2012 carboplatin, TaxotereTargeted Therapy 02/13/2012 HerceptinSurgery 08/10/2012 Mastectomy (Right)Hormonal Therapy 08/24/2012 TamoxifenRadiation Therapy 10/01/2012 ExternalSurgery 07/30/2013 Reconstruction: DIEP flap (Right)
Log in to post a reply

Dec 3, 2012 09:31AM, edited Dec 3, 2012 09:33AM by KrisLiz

Hey Christina0001,

Thanks for your honest  and open answers... ugh cancer sucks. 

This treatment process is so difficult physically, but I'm having a harder time with the emotional part of it all now that I'm surgery and radiation. I'm with you on the kid aspect of all this. I was 32 when I was diagnosed, and my husband and I had tried for years prior to my BC dx to have kids, and now it's not looking like it'll never happen since I'll be on Tamoxifen for another 5 years. I'm trying to come to terms with not having kids... we'd kind of explored adoption about two years ago but decided that we weren't ready for that. 

I guess I just feel like BC has taken so much from me already, and I'm trying not to be angry that it's also taking away any chance at children. I like what you said about being a good aunt...it's one of my favorite things to be in this time of my life, so I'm going to focus more on that.

Thanks to all of you for your input! It's helped me to put things into perspective a bit more. kmadigan, I like what you said about slowing down and taking things in smaller time increments. Sometimes I can get myself on the verge of a panic attack when I think about recurrance and life years (hopefully) down the road. Taking life 10 minutes at a time is sometimes all I can handle. 

Dx 7/18/2012, DCIS, 6cm+, Stage 0, Grade 3, 0/2 nodes, ER+/PR-, HER2-Surgery 08/14/2012 Mastectomy (Both); Lymph Node Removal (Left); Reconstruction: Tissue expander placement (Both)Radiation Therapy 09/25/2012 External
Log in to post a reply

Dec 3, 2012 11:35AM MiniMacsMom wrote:

1. How old were you when you were diagnosed? 27, I flew to MDA for a second opinion on my 28th birthday

2. Do you/did you have children during diagnosis/treatment? Yes my son was 15 mo old at my Dx and just turned two when I finished treatment

3. What was most difficult for you physically during treatment?  The exhaustion, most of the SE were managed ok. travelling to TX for parts of treatment

4. What was/is the hardest part mentally and emotionally for you?  Had harder time here, missed my son, or rather missed getting to be "normal with my son"  Had a hard time being on quaranteen during the winter, I got sick once and ended up in the hospital for 4 days :(  Watching how hard it was on my son to be stuck at home with me and not get to play with other kids...  Finding a happy medium between letting my family understand the severity of my situation while not scaring them shitless.  I didn't do a good job of this, most of my family is just now coming to understand the severity of my disease. 

Diagnosis: 10/25/2011, IDC, 9cm, Stage IIIa, Grade 3, 4/15 nodes + Rotter's Node, ER+/P+-, HER2-, BRCA 2+

Log in to post a reply

Jan 1, 2013 08:46PM PinkSurvivor wrote:

1. How old were you when you were diagnosed?   I was 33

2. Do you/did you have children during diagnosis/treatment?  Yes, 2 daughters ages 6 and 8

3. What was most difficult for you physically during treatment? Extreme fatigue and feeling like I was dying, I couldn't get out of bed for a week after chemo, it was horrible. 

4. What was/is the hardest part mentally and emotionally for you? Mentally I always wondered if I was going to die and not be around to watch my children grow up, it was a constant thought in my mind.  I also wondered what effects it would have on my children in the long run, watching their mother go thru breast cancer, losing my hair, going thru all the surgeries.  I still have these fears, I wonder if I will get another cancer, I want to be around to see my children have children.  I still wonder "why me"

5. What do you wish was "out there" for young breast cancer patients/survivors? (i.e. what kind of support did you not get that you wish you could have had?)  I was very fortunate and had a ton of support.  I also met up with a bunch of young breast cancer survivors, 1 was from this board who lived about 10 minutes from me and we now try and meet up about once a month.  We have a group of about 8 of us now, it is so nice to be with other people who know exactly what each other has gone thru, even though I had a ton of support from family, friends and co workers, it wasn't the same, they could never really understand what I had gone thru, or the feelings I was having.  I am so thankful to have my little "breast friends" as we call ourselves.

Tina

Dx 7/19/2010, IDC, 5cm, Stage II, Grade 2, 0/5 nodes, ER-/PR-, HER2+
Log in to post a reply

Jan 6, 2013 03:38PM tatasister10 wrote:

1. I was 25 when I was diagnosed. I know...crazy. 

2. I was breastfeeding my 4 month old daughter at the time. 

3. I did really well with treatment...surgery, chemo ect. I wasnt sick or anything. I was more tired than anything and had a hard time keeping my counts up...red, white and platlets. 

4. Hands down, hardest thing was and still is worrying about seeing my daughter grow up. 

5. I wish there was more support for YOUNG survirors. We have unique issues and should not be grouped together with our older counterparts. We have fertility issues, more aggressive tumors and a entire life ahead of us. I just wish there were more studies out there for young people, and more support groups. 

question for you all? what was your  KI-67. Mine was super high at 91% I never paid much attention before but I have read that the higher it is more aggressive. I had TCH chemo and am wondering if I should have had ACTH. 

STILL I RISE!

Dx 10/31/2011, IDC, Stage I, Grade 3, 0/7 nodes, ER+/PR+, HER2+Surgery 11/16/2011 Mastectomy (Both); Reconstruction: Tissue expander placement, Breast implants (permanent), Nipple reconstruction (Both)Chemotherapy 12/28/2011 carboplatin, Cytoxan, TaxotereTargeted Therapy 12/28/2011 HerceptinHormonal Therapy 05/01/2012 Tamoxifen
Log in to post a reply

Jan 7, 2013 10:24AM Jennifer404 wrote:

Hi all...I hope I am not too old to be in this group...I know I am older but my marriage is newer and my kids are younger...so I find that I can relate to younger moms/wives problems more often than women my own age.
Dx: er+ 90% pr+ 90% her 2 +++
Age 39 June 2012
2.1 centimeter tumor
No lymph node involvement.
6 x tch , no rads, now doing herceptin
Bmx nov 2012 with immediate and perm implants
Two children...daughter 2 1/2
Son 10 months (at time of diagnosis)
Married for three years... Together for five.
Chemo was tough...but emotionally right now is the hardest for me. Just had a pet scan scare and it has rocked me to say the least.
My daughter has struggled with all the changes and has shown signs of stress. Currently looking to get her into play therapy.
I am sorry you are all here...but, if we all stand together on this, we will stand stronger:)
My wish is that there were supports groups for living a healthier life after cancer. Diet, meditation, excercise, so I am starting one here! I am also including play dates for bc moms with kids:)

Dx 6/22/2012, IDC, 2cm, Stage IIa, Grade 2, 0/2 nodes, ER+/PR+, HER2+Chemotherapy 07/02/2012 carboplatin, Taxotere
Log in to post a reply

Jan 8, 2013 04:30PM tatasister10 wrote:

hi jennifer404! We have very similar stats! How are u doing with everything? I see I'm a bit futher out than you, so let me know if u have any questions! 

STILL I RISE!

Dx 10/31/2011, IDC, Stage I, Grade 3, 0/7 nodes, ER+/PR+, HER2+Surgery 11/16/2011 Mastectomy (Both); Reconstruction: Tissue expander placement, Breast implants (permanent), Nipple reconstruction (Both)Chemotherapy 12/28/2011 carboplatin, Cytoxan, TaxotereTargeted Therapy 12/28/2011 HerceptinHormonal Therapy 05/01/2012 Tamoxifen
Log in to post a reply

Jan 8, 2013 10:56PM Jennifer404 wrote:

Hi! Thank you for the warm welcome. I am doing well...just trying to get through this year of herceptin:)
Now if I could just get my hair to grow in faster.

Dx 6/22/2012, IDC, 2cm, Stage IIa, Grade 2, 0/2 nodes, ER+/PR+, HER2+Chemotherapy 07/02/2012 carboplatin, Taxotere
Log in to post a reply

Jan 9, 2013 09:57PM tatasister10 wrote:

I just finished my last herceptin today ladies! 52 down!!! At 8 months after chemo, I got swoop bang extensions put it. My hair is now adorable. They did them in the salon and I recomend them to anyone who is as impatient as me with hair growth! With a wash, trim, cost of extensions and then to put them in it was 150. AND they are reusable. They grow with your hair. I go have them replaced back at the root in Febuary. You should look into it! 

STILL I RISE!

Dx 10/31/2011, IDC, Stage I, Grade 3, 0/7 nodes, ER+/PR+, HER2+Surgery 11/16/2011 Mastectomy (Both); Reconstruction: Tissue expander placement, Breast implants (permanent), Nipple reconstruction (Both)Chemotherapy 12/28/2011 carboplatin, Cytoxan, TaxotereTargeted Therapy 12/28/2011 HerceptinHormonal Therapy 05/01/2012 Tamoxifen
Log in to post a reply

Jan 10, 2013 02:00AM Jennifer404 wrote:

Tatasister...sounds so cute! Lets see a picture!!!:)

Dx 6/22/2012, IDC, 2cm, Stage IIa, Grade 2, 0/2 nodes, ER+/PR+, HER2+Chemotherapy 07/02/2012 carboplatin, Taxotere
Log in to post a reply

Jan 11, 2013 12:26AM tatasister10 wrote:

Extensions!!! 

STILL I RISE!

Dx 10/31/2011, IDC, Stage I, Grade 3, 0/7 nodes, ER+/PR+, HER2+Surgery 11/16/2011 Mastectomy (Both); Reconstruction: Tissue expander placement, Breast implants (permanent), Nipple reconstruction (Both)Chemotherapy 12/28/2011 carboplatin, Cytoxan, TaxotereTargeted Therapy 12/28/2011 HerceptinHormonal Therapy 05/01/2012 Tamoxifen
Log in to post a reply

Jan 11, 2013 11:00PM Jennifer404 wrote:

Sooooo CUTE! You look so pretty...and I want to squeeze that baby:) lol

Dx 6/22/2012, IDC, 2cm, Stage IIa, Grade 2, 0/2 nodes, ER+/PR+, HER2+Chemotherapy 07/02/2012 carboplatin, Taxotere
Log in to post a reply

Jan 21, 2013 02:21PM jkeller3 wrote:

Hi! Happy I found this post.  I was diagnosed 12/10/12 and am 39 years old.  I have two young boys ages 4 and 10 mos.  They are my heart!!! I start chemo the first week of February and feel overwhelmed.

Dx 12/10/2012, IDC, 2cm, Stage IIa, Grade 3, 0/1 nodes, ER+/PR+, HER2+
Log in to post a reply

Jan 21, 2013 03:24PM BilateralBeauties wrote:

jkeller - hugs to you. We hear you. One day at a time. It does get easier. Chemo was manageable for me. Radiation harder. Mental part is tough. It's been almost a year since treatment ended and just since Christmas, I feel like life is normalizing. Let the group know if you have specific questions.

Dx 8/23/2011, IDC, <1cm, Stage Ia, Grade 3, 0/3 nodes, ER+/PR+, HER2-Surgery 09/07/2011 Lumpectomy (Both); Lymph Node Removal: Sentinel Lymph Node Dissection (Both)Chemotherapy 10/13/2011 Cytoxan, TaxotereRadiation Therapy 01/09/2012 ExternalHormonal Therapy 03/09/2012 Tamoxifen
Log in to post a reply

Feb 28, 2013 10:18PM justegan wrote:

Hi all, my name is Justine...great posting idea! =)

1. I was 23 when I was diagnosed back in July 2012 (I just turned 24 in January 2013). 

2. No children.

3. Not being able to run due to not only chemotherapy but due to my tissue expanders. At the time, I had not fully adjusted to them (not after chemo I have no problems running with them) and running was exhausting in general. It made me extremely sad because before I was diagnosed I was running 3-4 miles a day. Going to graduate classes/teaching was also extremely tough but I got through. 

4. The hardest part is the fear. I feel like even when you think it is gone and you feel okay it finds a way to creep back in. I try not to be scared all of the time...and alot of the time recently I'm not. But sometimes...I'm afraid of what this means for my life expectancy. Yes, I may not die tomorrow....but does this mean I will die at like 40, 50 instead of the 70 or 80 I had imagined? I try not to think this way but sometimes it is hard not too. More recently, I am afraid that my period will not come back. I lost it when chemotherapy started and it hasn't come back. I'm scared that I will go into early menopause even though the statistics for that are low considering my age. However, the odds were supposedly for me when I was getting my lump checked out and of course I got the short end of the stick when diagnosed with BC. I hate feeling afraid to live...I see people years and years out and who have seen no reoccurence...I can only hope and pray that that is me. 

5. I wish that breast cancer in young women was more vocalized. I know that does not really answer the question but yeah. I feel like (and no offense to women over 40) the younger women get forgotten. I wish there were more support groups and that they met more often. 

"You gain strength, and courage, and confidence by every experience in which you really stop to look fear in the face...you must do the thing you think you cannot do." - Eleanor Roosevelt

Dx 7/30/2012, DCIS, 1cm, Stage 0, Grade 3, ER+/PR+, HER2-Dx 8/15/2012, IDC, <1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2-Surgery 08/08/2012 Mastectomy (Right); Reconstruction: Tissue expander placement (Right)Surgery 08/08/2012 Prophylactic Mastectomy (Left); Reconstruction: Tissue expander placement (Left)Chemotherapy 09/28/2012 Adriamycin, Cytoxan, TaxolHormonal Therapy 02/14/2013 TamoxifenSurgery 05/22/2013 Reconstruction: Breast implants (permanent) (Both)
Log in to post a reply

Mar 7, 2013 04:53PM Mumtobe wrote:

Hi ladies,

Any Triple Negative young survivors out there? Despite it being a disease that hits younger women more than older women, I always feel like the youngest out there....

Dx 6/21/2012, Grade 3, ER-/PR-, HER2-Radiation Therapy ExternalChemotherapy 06/29/2012 Adriamycin, Cytoxan, TaxolSurgery 09/24/2012 Mastectomy (Right); Lymph Node Removal: Axillary Lymph Node Dissection (Right)Radiation Therapy 02/25/2013 ExternalRadiation Therapy 02/27/2013 External
Log in to post a reply

Mar 8, 2013 07:58AM leecy5 wrote:

Im triple negative. Just completed my second TAC chemo. Will have BIlateratal MX in june and ovaries out too. BRCA1 w 5 children - 15,13,11, 2, and 1. I will be 39 this month.
Wrapping up w 33 rads in august/sept.

Dx 1/28/2013, IDC, 6cm+, Stage IIIb, Grade 3, ER-/PR-, HER2-Chemotherapy 02/08/2013 Adriamycin, Cytoxan, TaxotereSurgery 06/13/2013 Mastectomy (Both); Lymph Node Removal (Right)
Log in to post a reply

Mar 18, 2013 07:17PM Cassandreamy wrote:

1. I was 26 when I was diagnosed in November of 2012. 

2. I did not have any children at the time.

3. What has become most difficult for me is maintaining the physical intimacy between myself and my boyfriend. I'm on Zoladex to protect my ovaries which means I'm sort of menopausal state and have zero interest in sex. 

4. The hardest thing, mentally and emotionally, is worrying about other young women who could also face breast cancer. My best friend had one benign mass removed several years ago, and a second that she is 'too poor' to have biopsied. I don't want to fear her into doing something she doesn't feel is necessary but I find it hard to not worry about her constantly. 

5. What I hope there is enough of for young survivors is competent social workers in the oncology field. I have been very fortunate that the oncology department I go to has a fantastic social worker who is almost like a big sister to me! 

Dx 11/27/2012, IDC, 2cm, Stage IIa, Grade 2, ER+/PR+, HER2+Targeted Therapy 12/07/2012 HerceptinChemotherapy 12/07/2012 TaxolChemotherapy 03/01/2013 Cytoxan, Ellence, fluorouracilSurgery 06/21/2013 Mastectomy (Right)
Log in to post a reply

Mar 19, 2013 07:21PM HyaT wrote:

Hi I am a tripple negative survivor. I was diagnosed in Feb 2012. I have completed all treatments, chemo and radiation. I had bilateral mastectomy, and now between reconstruction.

I am 38 years old with two boys ages 18 & 21.  

Log in to post a reply

Mar 19, 2013 11:13PM meni33 wrote:

Hello ladies

I am 34 years old and was diagnosed in Jan 2013. It was very scary and overwhelming. 2 weeks ago I had a lumpectomy and will be starting chemo soon.

I will be getting AC and Taxol and then radiation and tamoxifen. If any of you have had this treatment please let me know how it was? I'm very scared to go through it but I know it has to be done.

I have a 16 month old son who is very energetic but I am lucky to have my mom here to help me. Good luck to all of you on this journey.

Dx 1/15/2013, IDC, 1cm, Stage II, Grade 1, 1/2 nodes, ER+/PR+Hormonal Therapy TamoxifenChemotherapy Adriamycin, Cytoxan, TaxolRadiation Therapy ExternalSurgery 03/04/2013 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)
Log in to post a reply

Mar 24, 2013 11:07AM Lomesh wrote:

My wife age 38 dignosed in Feb13
Due for 2 nd chemo on 25th march
FEC
Feeling fine
Only nausea and burning sensation for couple of days.
All the best to you !

Dx 2/7/2013, IDC, 2cm, Grade 2, 21/40 nodes, ER+/PR+, HER2-
Log in to post a reply

Mar 25, 2013 05:08PM Los1975angeles wrote:

Hello All!,
I just joined this site today and what a great thread i found! I was diagnosed at age 35 back in the fall of 2011. It felt like my world crumbled when I got the call. I have 3 kids (at the time they were 4, 6, and 15).
The most difficult part physically was the fatigue. My husband is a firefighter who works 48 hour shifts so I relied on my teenage daughter for help with the younger ones when my Mom wasn't able to help. For me radiation was worse than chemo, the fatigue was intense and a few times it felt as though I would simply collapse.
Mentally the worst part has been the loss of my breasts. I chose not to have reconstruction and it's very hard to look at myself daily. For me it's a constant reminder of the ordeal that I went through. Docs have told me I did the right thing by not having reconstruction right away because of the possible damage from radiation. But no matter what any doc says I still feel awful every time I see a woman on tv and her large breasts are hanging out of her shirt. I literally cringe.
Lately I have been considering reconstruction. But not sure what it involves. I had a very invasive mastectomy right down to my chestbone. I shudder to think what reconstruction might involve with so much tissue missing. Or even how many surgeries it would take to look the way I want. I wear prostethics.
The one thing I would love is to bond with other young survivors. The group here in town is chock full of women in their 50's and 60's. I feel sort of like an outsider being so young.

Dx 9/21/2011, DCIS, 6cm+, Stage IIIa, 3/15 nodes, mets, ER+/PR+, HER2+Surgery 10/04/2011 Mastectomy (Both)Chemotherapy 11/25/2011 Adriamycin, Cytoxan, TaxolRadiation Therapy 06/01/2012 ExternalSurgery 08/10/2012 Prophylactic Ovary Removal (Both)

Page 1 of 2 (37 results)