Dear Ladies
Please join me in this forum if you are having reconstruction in June.
We can hold hands together and give each other support. I know I need all the support I can get. I have had breast cancer 3 times. Once in 1999, twice in 2007. It is now time to put me back together again.
After much research and much thought I am going to NOLA for delayed Bi-lateral reconstruction on June 4th. Since I am a candidate for both the Diep and the Gap they will decide at my pre-op appointment which end they want to use.
I know I won't be a 10 like some of the ladies who had immediate reconstruction. I will have a few more scars on my beauties. But I really am looking forward to having a prostheses burning party.
I went out and bought all these neat PJ's and robes for the hospital. Will I be able to wear them or should I save them for the hotel?
Sassie62
Xspectmiracles May 28th Exchange
Reni June 1st BM Diep NY
Sharkee99 June 2nd Exchange
Grace4me June 2nd Exchange
Frywoman June 2nd BM TE
TXBadboob June 2 Exchange/ Nip recon
Choward183 June 3rd Exchange
Stef58 June 3 Mastectomy/Expanders
KLE June 4th Exchange
Sassie 62 June 4th NOLA Diep/Gap
ci1326 June 4th Exchange
Emily2008 June 4th Exchange
Kimberley30 June 5th Surgery BC
cejjimom June 5th BM
SueUK June 9th LD
Ginamaria June 9th LD
2new1s June 11th TE
cookymkr June 11th TE
MonkeyD Kime 12th Exchange
YasminV1 June 15th TE
Alli62 June 15th Diep
Jan27 June 15th delayed recon mx 2004 mx2009
CaseyDoodle June 15th Exchange Silcone Implants
Sam1991 June 17th Revision implants
Jaimieh June 17th Exchange
Anglav70 June 17th TE
lene17 June 17th TE
cnemeth June 17th MX TE
Ally2 June 17th TE
Kam54 June 18th NOLA Diep or GAP
Momsdaughters June 18th NOLA Revision
Jondy Diep April 21 Will be in our cheering section loaded with info
Sammyjo June19th Implants healing issues with expander in Jan
Sandy's Friend June 19th NOLA Fix up Stage 1 Recon done elsewhere
Northstar June 19th Exchange to Silicone Gel Implants
pkb143 June 16th Mastectomy/Reconstruction/TE
Libby June 22nd TE Placed after bilateral mastectomy
Dottie123 June 22nd Revision Stage 2 Diep
Msdicken June 22nd Stage 2 Diep
JoniSeattle June 22nd mx2006 mx2008 Surgery for encapsulation
Nerak50 June 23rd BM
libby June 23rd TE
O2bhealthy June 23rd
Sailorgirl1 June 24 BM Skin sparing TE
Spinmaker June 24th MX + TE
Lene17 June 26th Revision Tram Flap
Casseddy June 26th Exchange + fat injections
Sorchaj June 26th right mx Tram Flap Recon
Mrsb45 June 26th BMX Diep Recon
Golfingle June 29 Exchange 410 Gummy Bears
JustSaying June 29th Exchange
Robyn33 June 29th Exchange + Lat Flap + implant
My560sel June 30th BM + Recon
lisahugs1 June 30th Expanders
Spdnyc June 30th Exchange
Southern Girl Date? Revis of Diep/ add implant on radiated side
02bhealthy Date? BM Reconstruction
Jellydonut July BM Delayed Implants
Trishia August Stage 2 Diep NOLA
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sassie62 Joined: Jul 2008 Posts: 188 |
May 20, 2009 10:05 am
sassie62 wrote:
Ginamaria and Sue UK you are buddies on that day of June 9th for surgery. SueUK how are you doing? I haven't heard from you in a while. I hope everything is going well? Sassie Dx 11/2007, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
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sassie62 Joined: Jul 2008 Posts: 188 |
May 20, 2009 10:17 am
sassie62 wrote:
MomsDaughter Thanks so much for sharing. I so wish I could have gone to the Force Conference. God willing I will definitely be there next year. I know how you felt when they put the before up on the screen. When Dr. D. took front and back pictures of me I was mordified. I said, that can't be me! Cameras are not kind to naked bodies. Just remember we all can't be a size 6. But I think you look great. I am looking forward to that transcript. Do share. You are a busy beaver these days. I am glad that your business is doing so well. Here in MI all I wait for is the other shoe to fall. My husband took the buy out from GM 2 years ago when I had my second bout with Cancer. If he looses some of his pension or health insurance I don't know what that will mean for us. Thanks for sharing about the gummy bears. Sassie Dx 11/2007, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
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yasminv1 Joined: Apr 2009 Posts: 209 |
May 20, 2009 10:27 am
yasminv1 wrote:
Good Morning Ladies, Wishing all of you tons of luck with your surgeries and wishing you all have a smooth and quick recovery. I am scheduled June 15th for TE Placement after bilateral mastectomy. I am in good spirits but I am sure I will be getting nervous as the date gets closer. I am hoping for minimal pain during my expander fills. Take Care, Yasmin Dx 4/8/2009, DCIS, 4cm |
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sassie62 Joined: Jul 2008 Posts: 188 |
May 20, 2009 10:29 am
sassie62 wrote:
It is count down time Xspectmiracles is first on the board 8 more days. Ci132, Emily2008, and myself is next on the list - 15 days till surgery. I am reaching out and holding hands with everyone. I can't tell you ladies how much this forum means to me. I can't even reach out to my husband and share my thoughts like I can share with all of you. It is a sisterhood that unless you have gone through it - you can't really get it. Thanks for being there for all of us. Hugs Sassie Dx 11/2007, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
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sassie62 Joined: Jul 2008 Posts: 188 |
May 20, 2009 10:39 am, edited May 20, 2009 10:43 AM
by sassie62
sassie62 wrote:
Welcome JasminV1 Is that picture of your dog? We had a dog Brandy that looked like her. She was a schanuzer and a poodle. A schnoodle. She didn't know she wasn't human. Sassie Dx 11/2007, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
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yasminv1 Joined: Apr 2009 Posts: 209 |
May 20, 2009 01:18 pm
yasminv1 wrote:
sassie62: Yes, that's my little man Biggie Smalls. He is a Yorkie. Sounds like your Brandy was gorgeous. Schnauzers and poodles are amazing. Dx 4/8/2009, DCIS, 4cm |
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2new1s Joined: Nov 2008 Posts: 1,890 |
May 20, 2009 03:51 pm
2new1s wrote:
Hi ladies ~ thanks for the warm welcome! I too am dreading the thought of yet another surgery! Yet getting the TE finally replaced will be awesome. Right now I have the left TE and it is filled to 700cc's. So obviously there is a BIG difference when looking at my chest. Now that the weather is getting nicer it is harder to camouflage my uneven chest. By the way, if you are thinking - 700cc's oh my gosh - on my frame it looks just about right where I was prior to BM! I am getting two more fills that should put me at 800cc's. Before the BM - I was a 38C. I am hoping to be able to be a 38D when the implants are finally placed. I am 37 and have many, many years to be proud of my "2new1s"!!!!!!!!!!!!!!!!!!! My avatar picture is a shirt that I purchased on line. It says "CONSTRUCTION ZONE" in pink rhinestones & also has a BC ribbon also in pink rhinestones. It is so cute! |
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sassie62 Joined: Jul 2008 Posts: 188 |
May 21, 2009 12:14 pm
sassie62 wrote:
2newls do you remember the site where you got your shirt. It sounds adorable. Sassie Dx 11/2007, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
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2new1s Joined: Nov 2008 Posts: 1,890 |
May 21, 2009 12:36 pm
2new1s wrote:
sassie62 ~ The site is custom-crystals.com. I found out after I purchased the shirt that the company's owner is one of our fellow BC sisters and she is a member is this site too!!!!!!!! Small world. |
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tracy72361 Joined: May 2009 Posts: 2 |
May 21, 2009 12:45 pm
tracy72361 wrote:
I love that shirt!!! wonder if they ship to the UK? xx Dx 8/1/2007, IDC, 6cm+, Stage IIIb, Grade 3, 7/10 nodes, ER+/PR+, HER2+ |
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2new1s Joined: Nov 2008 Posts: 1,890 |
May 21, 2009 01:23 pm
2new1s wrote:
tracy72361 ~ It is a pretty big website. Go on there & check it out. Not sure where they ship, but the ladies that work there are awesome! |
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msdicken Joined: Jan 2009 Posts: 43 |
May 21, 2009 04:41 pm
msdicken wrote:
June 22 DIEP Phase II |
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anglav70 Joined: Nov 2008 Posts: 1 |
May 21, 2009 05:06 pm
anglav70 wrote:
I am having my surgery on June 17th. They will be putting in my expanders for my implants. Dx 10/28/2008, IDC, 1cm, Stage Ia, Grade 3, 0/14 nodes, ER+/PR+, HER2+ |
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sassie62 Joined: Jul 2008 Posts: 188 |
May 21, 2009 05:23 pm
sassie62 wrote:
2newls Thanks for giving me the site of the shirts. They are really cute. Just have to wait until I know what type of recon I will have. How did you think the sizes ran? Did you buy a little larger or true to size? Sassie Dx 11/2007, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
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sassie62 Joined: Jul 2008 Posts: 188 |
May 21, 2009 05:27 pm, edited May 21, 2009 05:31 PM
by sassie62
sassie62 wrote:
Welcome msdicken If you don't mind sharing where did you have your reconstruction done? How long ago did you have stage 1. Are you happy with your results? Would love to hear about your experience if you wouldn't mind sharing. I am very interested of course since I am going for stage 1 possibly or Gap stage 1. Sassie Dx 11/2007, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
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sassie62 Joined: Jul 2008 Posts: 188 |
May 21, 2009 05:37 pm, edited May 21, 2009 05:38 PM
by sassie62
sassie62 wrote:
Welcome Angelav70 We are here to listen or support or give advice. If you would like to share your stats thats great. I see you're HR2+ . Are you taking Herceptin? Sassie Dx 11/2007, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
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Northstar Joined: Aug 2008 Posts: 86 |
May 21, 2009 05:39 pm
Northstar wrote:
I'm having my exchange to silicone gel implants on June 19. I've had the expanders since my bilateral mastectomy on Sept. 5 and am more than ready to be done with them. My PS says I just like all of them in his office (well, this is true) and want to keep on coming (not). I plan to rest after the exchange and then he can work on the nipples in the fall or whenever. I've got 400 cc. in each and will be getting Mentor High Profile probably 300 to 350 cc. DX 8/15/08, ILC, 5.1 cm, Stage IIb, Grade 1, 0/2 nodes, ER+/PR+, HER2-, Oncotype DX 11.
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sassie62 Joined: Jul 2008 Posts: 188 |
May 21, 2009 05:45 pm
sassie62 wrote:
Welcome Northstar Thanks for joining us and thank you for elaborating on your stats. It is always helpful when other gals are going through the same surgery and they have questions. How does Mentor High Profile gels compare to the others that they are using? Sassie Dx 11/2007, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
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Northstar Joined: Aug 2008 Posts: 86 |
May 21, 2009 05:59 pm
Northstar wrote:
Sassie, my understanding is that people with rather narrow chests/rib cages who want the most possible projection would get the High Profile ones. Their moderate profile and another one (can't remember the name of it) are flatter and wider. I also told him I didn't want "droop" and he said they try to get droop (for those who want a more natural look) and almost never can, so I shouldn't worry about that. He is quite funny and very approachable. DX 8/15/08, ILC, 5.1 cm, Stage IIb, Grade 1, 0/2 nodes, ER+/PR+, HER2-, Oncotype DX 11.
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xpectmiracl
Joined: Dec 2008 Posts: 388 |
May 21, 2009 10:47 pm
xpectmiracles wrote:
Hey girls! Seven days and counting until my exchange!!! Cheryl
Dx 10/2008, IDC, <1cm, Stage I, Grade 2, 0/7 nodes, ER+/PR+, HER2- |
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sassie62 Joined: Jul 2008 Posts: 188 |
May 22, 2009 12:01 am
sassie62 wrote:
Northstar it sounds like that will be my problem with the reconstruction - narrow chest. Thanks for the info even though I am having the Diep/Gap I always want to understand about how women pick which implant they want. I have the rib cage of a 12 year old. In fact I told Dr. D. that I didn't want the flap to end up under my arm. He said it was going to be a challenge since I had such a narrow chest area and it curves. Well lets hope all of my cleavage doesn't end up in my armpit. Ha Ha. Xpectmiracles we're all counting with you. Please keep us updated before and after. This weekend will be busy with Memorial Weekend. Happy Holiday to everyone. Sassie Dx 11/2007, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
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msdicken Joined: Jan 2009 Posts: 43 |
May 22, 2009 07:57 am
msdicken wrote:
Sassie62 I had a uni-lateral MX with immediate DIEP reconstruction on 3/23/09 at Johns Hopkins. I am very lucky to live in Baltimore so I did not need to go far. My PS is Michelle Manahan. Yes it is a big surgery, but with proper rest afterwards (I took 6 weeks off from work) and physical therapy (I graduated yesterday) it is amazing how well I feel today. I am very happy with the results thus far. I even started swimming again and my new foob looks just just fine in a suit. At stage II my Dr. is doing some minimal tweaking on my reconstructed breast and reducing the other. My days of being "I-lean" are coming to an end! I am not English - but a former Michigander so have a great week-end "up-north" Molly |
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ginamaria Joined: Apr 2009 Posts: 107 |
May 22, 2009 08:03 am
ginamaria wrote:
just got off of the picture forum and can't thank you ladies enough. You all look so wonderful and I have high hopes for myself now. I've seen pics on ps sights and at my doctors but somehow these are more meaningful. I will say it once more, this is the best site I've been on! I'm going to have a great day today thanks to all of you. Gina most folks are about as happy as they make up their minds to be-Abe Lincoln
Dx 1/26/1999, ILC, 3cm, Stage IIa, Grade 1, 2/18 nodes, ER+/PR+, HER2- |
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sassie62 Joined: Jul 2008 Posts: 188 |
May 22, 2009 09:52 am
sassie62 wrote:
Msdickens Thanks for sharing. I am glad that everything went so well for you. Did you have any trouble with the swelling of the abdomen or seromas? What type of physical therapy did you do? For what area - abdomen or breast or arms? Interested in what you did to have a good recovery. That is great that you were given the go ahead to go swimming 2 months post op. I was wondering how far out I would be able to do water aerobics? Sassie Dx 11/2007, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
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sassie62 Joined: Jul 2008 Posts: 188 |
May 22, 2009 09:54 am, edited May 22, 2009 10:07 AM
by sassie62
sassie62 wrote:
Ginamaria: I agree this site makes me feel connected to all of you. What site did you go on to see the pictures? Tim Tam has a site but I never was able to get on it. She sent me the information and I tried to get on about a year ago. I have since lost all the needed info and I wrote her again but I didn't get a response.??? Looks like you have similar stats in November 1999 I was diagnosed with invasive lobular but mine was 5cm. No lymph nodes involved. Didn't have reconstruction and have been dealing with a prosthesis since 1999. Had a recurrence in 2007 and a new cancer in the other side. So I have not been as lucky as you. I am done with the big C. So now I am putting the new me back together. Guess I am going in 5 days before you. Sassie Dx 11/2007, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
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2new1s Joined: Nov 2008 Posts: 1,890 |
May 22, 2009 10:45 am
2new1s wrote:
sassie62 ~ The shirt is very nice soft cotton & runs true to size. |
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ginamaria Joined: Apr 2009 Posts: 107 |
May 22, 2009 11:47 am
ginamaria wrote:
Hopefully in a couple of weeks we will both be wondering what we waited so long for!!!!!!!!!!! I think I was waiting for the other shoe(boob) to drop and for the bc to come back. I don't know about you but my other boob has grown to try and compensate for the one I lost. I was a c-cup before bc and am now a D or DD(depends on the bra). My prosthesis is a big pain in my a#@ and I can't wait to give it away. I'll be sending all my positive thoughts your way. Gina most folks are about as happy as they make up their minds to be-Abe Lincoln
Dx 1/26/1999, ILC, 3cm, Stage IIa, Grade 1, 2/18 nodes, ER+/PR+, HER2- |
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msdicken Joined: Jan 2009 Posts: 43 |
May 22, 2009 01:33 pm
msdicken wrote:
Sassie62: Prior to entering this world of BC, I swam 4-5x a week for exercise (I would not call myself an athlete, I just like to swim) and I really felt that being in shape helped a lot with my recovery. I had a swelling issue 2 days post-op, my PS's concern was for the viability of the flap, so I did go back into surgery. It was not a hematoma, just fluid. After that scare, any swelling I experienced was related to the associated incisions from surgery and it was not that bad. Per my PS instructions I could not ice or heat it so I just needed to be patient. I started PT after my last drain came out (@ 3weeks) and the focus was getting a range of motion back in my upper body using stretching and band resistance and core strength in my abdomen. I went 2x a week for 6 weeks and I did the exercises at home too. As I felt better, it gave me something to do to keep getting better and at my 6 week follow-up my PS ok'ed light swimming. Now I just want to push myself (within reason) to be in the best shape I can be for round two. |
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my560sel Joined: Feb 2009 Posts: 462 |
May 22, 2009 09:04 pm
my560sel wrote:
Not sure about the date yet but was told mid June for my BM with TE's. Went through a lumpectomy and revision and decided that I just can't live with the constant worrying, mammo's and countless other tests ahead of me so I've decided to have a bi-lat MX. Although the Dr's have said my prognosis is very good, they agree that it's my choice and respect my decision. Convincing the family and friends was another thing though...but all in all, I'm convinced I'm doing the right thing! Terri DX Jan15/09, ILC, <1cm>
Dx 1/15/2009, ILC, <1cm, Stage Ib, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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2new1s Joined: Nov 2008 Posts: 1,890 |
May 23, 2009 12:27 am
2new1s wrote:
my560sel ~ Ultimately the decision is only yours to make! So we are all here for you 100%! I have three a-hole sisters who have not been here for me what-so-ever during this entire process. Sometimes the loves who love us the most - just don't get it. No matter what - it is your body and you get to decide! Please let me or us know if you have any questions. I have already had my BM back in Feb 09. I would be happy to answer questions for you! Gentle hugs! |
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