Here is my attempt at starting this thread - please add and I will do my best to udate frequently so that we get everyone on here! As of today (June 21) NOLA's website is referring to the GAP that incorporates the love handle area as the Posterior Hip Flap - thus I am changing it for all of us who are set to have it!
July 27 - Juniper DIEP and reduction
July 28 - GalleryGirl nipples/tattoo (I know it is July, but we can add you here too!)
July 29 - phoffa stage 1 SGAP or IGAP, Dr. Massey, S. Carolina
August (mid) - Janely Exchange surgery...
August - patsfan undecided
August 1 - Eternaloptimism B mastectomy
August 3 - PlainJane64 Consult NOLA
August 3 - dietcokemom Nipple/areola reconstruction
August 5 - sarabhealed NOLA Stage 1 GAP
August 5 - Linda54 nipple/areola
August 5 - mychoice expander placement
August 6 - Chinablue mastectomy w/flap reconstruction, Sloan Kettering NYC
August 7 - ktm expander exchange
August 10 - Ruthy reconstruction of reconstruction!
August 10 - DENRulzBC Exchange surgery
August 11 - KirstifromSanDiego mx and B expander placement
August 12 - strngwmn39 B mastectomy w/immediate reconstruction w/expanders/alloderm
August 12 - kittycat B mastectomy w/immediate reconstruction w/expanders
August 12 - StilPolly B mastectomy w/DIEP reconstruction, PRMA
August 14 - LorenaB Stage 2 DIEP Boston
August 14 - Sharon67 removal and replacement of implants
August 17 - lifegoeson Exchange surgery
August 17 - Angel10 Exchange surgery
August 17 - Kookiesmom Exchange surgery
August 18 - Anniese NOLA Stage 1 Posterior Hip Flaps
August 18 - DoubleMammyWhammy Stage 3 DIEP (Nipple/areola reconstruction)
August 20 - Nordy NOLA Bilateral delayed, Stage 1 Posterior Hip Flaps
August 20 - Abbadoodles Free Latissimus Dorsi Flap
August 20 - Alo123 Exchange surgery
August 21 - SQL TRAM
August 21 - Deirdre Implant replacement and R revisions
August 24 - tchmuzik DIEP Atlanta
August 24 - Traci 126 Exchange surgery
August 25 - saintmelissa Exchange surgery
August 25 - jujubee BMX w/TRAM
August 26 - swest Exchange surgery
August 26 - Believe1 Exchange surgery
August 28 - Omahagirl BMX w/DIEP @ Omega Hospital, New Orleans (cancelled?)
August 28 - happy29 TUG New Orleans, Omega Hospital
August 31 - sftfemme65 Exchange surgery
September 3 - Springtime Stacked DIEP/Lumbar NOLA
September 3 - transplante (unsure what kind of surgery!)
September 4 - Warrior517 stacked GAP/DIEP NOLA
September 8 - karmi2az B DIEP Mayo clinic AZ
September 9 - JanMarch Exchange surgery
September 11 - halsnj BMX w/LD Flap reconstruction
September 16 - melaniew1 DIEP stage 1 NOLA
September 16 - mradf Exchange surgery
September 22 - LeeMcC BMX w/DIEP Charleston
enjoylife - nipple reconstruction, unsure of date
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anniese Joined: Feb 2008 Posts: 99 |
Jun 17, 2009 05:19 pm
anniese wrote:
Hey Nordy - please add me for August 18th at NOLA. Stage 1 - most likely a GAP using hip/love handle area but not 100% sure yet. Thanks, again, for starting this! Dx 1/4/2008, IDC, 5cm, Stage IIIa, Grade 3, 0/3 nodes, ER+/PR-, HER2- |
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Nordy Joined: May 2009 Posts: 405 |
Jun 17, 2009 05:35 pm
Nordy wrote:
Wooo hooo for no more prosthetics!!! I AGREE 100%! My kids will love it so much when they no longer have to worry about whether or not it is mommy's old boobs or new boobs that they are carrying around and playing with! (they are obsessed w/them!) I don't know how many posts I have done today, so I will try to update the list above right now, but if I can't I will do it tomorrow! Woooo hoooo... look forward to meeting you in August! (I fly in on the 18th, but have appts on the 19th and surgery the 20th - looks like we will have some hospital time together!)Dx 4/21/2005, IDC, 3cm, Stage IIb, Grade 3, 0/12 nodes, ER-/PR-, HER2- |
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Linda54 Joined: May 2008 Posts: 1,757 |
Jun 17, 2009 07:04 pm
Linda54 wrote:
Hey, what happened to July? LOL I will be having reconstructed nipples/areolas in August. No date yet but hopefully the first part of the month..... Thanks Nordy Don't deny the diagnosis, but defy the verdict.........
Dx 3/7/2008, DCIS, <1cm, Stage 0, Grade 1, 0/0 nodes |
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gallerygirl
Joined: May 2009 Posts: 27 |
Jun 17, 2009 09:56 pm
gallerygirl wrote:
Linda, I don't think there is a July site for upcoming surgeries. I am supposed to have my tatoo and nipples on 7/28 if this fluid goes away from my left breast. Still waiting to see what happens. New to this site, but happy to start a July list and answer any questions I know, not much like you all. This site has helped so much, just wish I had found it earlier. Dx 10/31/2008, DCIS, 1cm, Stage 0, Grade 2, 0/1 nodes, ER+, HER2+ |
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sarabhealed
Joined: Aug 2008 Posts: 98 |
Jun 17, 2009 10:03 pm
sarabhealed wrote:
I'm going to NOLA for GAP with Massey and Sullivan--Stage 1 August 5th--wish me luck, and the same to all of you! Sara |
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anniese Joined: Feb 2008 Posts: 99 |
Jun 18, 2009 12:08 pm
anniese wrote:
Nordy - I should be recuperating in a room on the 19th when you go in for your pre-op. Probably not a pretty sight.....LOL! We'll have to figure out a way to connect between my surgery and yours - or after yours before I get released. What city are you flying in from? Do you know where you'll be staying yet? Every morning when I put the prosthesis on I think about my cancer - and I abhor the weight of it (both the prosthesis and the reminder). I'm hoping once I get the surgery done that I'll be able to have days when cancer doesn't come into my mind first thing in the morning. Sara - good luck with your surgery on the 5th. Great to see more joining the August Recon list. Linda - love your Tshirt!! Gallerygirl - I hope the fluid goes away quickly!!! |
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Nordy Joined: May 2009 Posts: 405 |
Jun 18, 2009 02:13 pm
Nordy wrote:
anniese - I am coming from Seattle that day (but normally from Portland - just have to drop the kiddies at my in-laws first) We can figure something out as it gets closer. Hurray for everyone joining - I can't wait to see how long this list gets! Dx 4/21/2005, IDC, 3cm, Stage IIb, Grade 3, 0/12 nodes, ER-/PR-, HER2- |
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anniese Joined: Feb 2008 Posts: 99 |
Jun 18, 2009 02:18 pm
anniese wrote:
Nordy - I lived in Vancouver WA for about 10 years - went to high school down at the beach....small world! Dx 1/4/2008, IDC, 5cm, Stage IIIa, Grade 3, 0/3 nodes, ER+/PR-, HER2- |
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strngwmn39 Joined: May 2009 Posts: 74 |
Jun 18, 2009 06:45 pm
strngwmn39 wrote:
Hello Everyone, I am 39 and am having a double mastectomy with immediate reconstruction on August 12 (expanders with alloderm). I finish chemotherapy on June 26th (can't wait!!) and I turn 40 in July. Michelle Dx 2/27/2008, IDC, , Stage IIb, Grade 3, / nodes, ER-/PR-, HER2- |
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Nordy Joined: May 2009 Posts: 405 |
Jun 19, 2009 01:27 pm
Nordy wrote:
Anniese - Which high school is at the beach? I am trying to figure out which is there... the closest I think is Hudson's Bay, but certainly not at the beach... Did you go to a private school? You are in CO now? We just had some friends move there... but it is a big state, I know! Dx 4/21/2005, IDC, 3cm, Stage IIb, Grade 3, 0/12 nodes, ER-/PR-, HER2- |
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anniese Joined: Feb 2008 Posts: 99 |
Jun 19, 2009 01:42 pm
anniese wrote:
Nordy - lived at the beach (WA peninsula) during high school (public) then moved to Vancouver and was there for 10 years before moving out of state. Strngwmn39 - congrats on getting to the end of your Chemo (today?)!!!!! And, Happy Birthday, in advance. Although finishing cancer treatment is not what you expected for your 40th birthday it's great that you finish chemo in June and then get your recon in August! I was diagnosed and treated (chemo, mx, rads) at 43 and will be getting recon right before I turn 45......most times I feel too young to be dealing with this, but if I've learned anything it's that age has nothing to do with this terrible diagnosis! Sending happy thoughts to you today! Dx 1/4/2008, IDC, 5cm, Stage IIIa, Grade 3, 0/3 nodes, ER+/PR-, HER2- |
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strngwmn39 Joined: May 2009 Posts: 74 |
Jun 19, 2009 05:24 pm
strngwmn39 wrote:
Anniese, Thanks Anniese, this time NEXT week, I'll be done with chemo, and not a moment too soon. I'm freaking out trying to plan for surgery, but I'm also planning a huge 40th birthday party, showing cancer who's boss... Michelle Dx 2/27/2008, IDC, , Stage IIb, Grade 3, / nodes, ER-/PR-, HER2- |
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Nordy Joined: May 2009 Posts: 405 |
Jun 20, 2009 08:05 pm
Nordy wrote:
Just bumping this thread back to the top so that we don't miss anyone that might need to add on... since August is so far away - I guess you can expect this annoying behavior from me quite frequently!![]() Dx 4/21/2005, IDC, 3cm, Stage IIb, Grade 3, 0/12 nodes, ER-/PR-, HER2- |
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Nordy Joined: May 2009 Posts: 405 |
Jun 21, 2009 04:50 pm
Nordy wrote:
NOLA changed their website and the GAP flap that is the hip/higher than the SGAP is being referred to as the posterior hip GAP - I am changing it above again!!! Dx 4/21/2005, IDC, 3cm, Stage IIb, Grade 3, 0/12 nodes, ER-/PR-, HER2- |
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anniese Joined: Feb 2008 Posts: 99 |
Jun 23, 2009 01:14 pm, edited Jun 23, 2009 03:49 PM
by anniese
anniese wrote:
Hi Nordy - please bump away!!! I was looking for it this morning and couldn't find it (didn't get to the 2nd page).... |
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SQL Joined: Aug 2008 Posts: 13 |
Jun 24, 2009 12:32 am
SQL wrote:
Hi everyone, I am having reconstruction on August 21st....tummy tuck and then tummy moved to my breast. My onc wanted me to wait until I finished my Herceptin...last one July 16th .... yahoo! What will happen when I'm hungry will my left breast have hunger pains...i know but you have to have some humour, right? Quick question,,,,what tests has anyone had after they finished treatment before reconstruction....bone scan, MRI, ultrasound....just wondering. Dx 3/28/2008, IDC, , Stage IIIa, Grade 3, 5/5 nodes, ER-/PR-, HER2+ |
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Nordy Joined: May 2009 Posts: 405 |
Jun 24, 2009 03:19 am
Nordy wrote:
SQL - Do you know if you will be having a TRAM flap (or one of its variations) or DIEP? If you know, it will just let me clarify a little better on the post! And Welcome! As far as tests after treatment and prior to reconstruction - I am a few years out from treatment, so really cannot answer that question, but maybe someone else here (Michelle maybe?) could let you know what kinds of tests they may have recommended for her. Dx 4/21/2005, IDC, 3cm, Stage IIb, Grade 3, 0/12 nodes, ER-/PR-, HER2- |
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strngwmn39 Joined: May 2009 Posts: 74 |
Jun 24, 2009 04:47 pm
strngwmn39 wrote:
SQL, I understand some breast surgeons like to do an MRI to see about the response to treatment. In my case, I won't be getting an MRI, because they can feel that I've responded very well (you can no longer feel my tumors) and that's good enough information. The rest of the information they will need is from the pathologist, who will examine the breast and lymph node tissue for remaining cancer cells. I don't think an ultrasound would tell them much and a bone scan wouldn't be necessary. Just an MRI if there was any question about response. If they know you've responded and don't want to do a test, I wouldn't consider that unusual. Michelle Dx 2/27/2008, IDC, , Stage IIb, Grade 3, / nodes, ER-/PR-, HER2- |
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abbadoodles
Joined: Jun 2007 Posts: 2,601 |
Jun 24, 2009 04:54 pm
abbadoodles wrote:
Is that posterior hip flap what my surgeons refer to as the Rubens flap? They said that was love handles. Tina......Sometimes you feel like a nut, sometimes you don't.
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SQL Joined: Aug 2008 Posts: 13 |
Jun 24, 2009 05:21 pm
SQL wrote:
TRAM Flap...it sounds a bit like a pancake doesn't it. Yes anything that anyone can tell me to help prepare and about recovery would be great...it sounds like we have a great group. Sue Dx 3/28/2008, IDC, , Stage IIIa, Grade 3, 5/5 nodes, ER-/PR-, HER2+ |
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juniper Joined: Mar 2008 Posts: 64 |
Jun 24, 2009 05:37 pm
juniper wrote:
I am having a DIEP and reduction on July 27th. Dx 7/31/2007, IDC, two nonpalpable tumors, 5cm and 6cm, Stage IV (mets to mediastinal nodes), Grade 3, 18/18nodes, ER+/PR+, HER2+
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Nordy Joined: May 2009 Posts: 405 |
Jun 24, 2009 11:16 pm
Nordy wrote:
Abbadoodles - I have never heard of it called the Ruben flap - but nothing would surprise me and yes it is from the love handle area! Not quite the low back, but higher than the SGAP. (At least that is my understanding!) Dx 4/21/2005, IDC, 3cm, Stage IIb, Grade 3, 0/12 nodes, ER-/PR-, HER2- |
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abbadoodles
Joined: Jun 2007 Posts: 2,601 |
Jun 25, 2009 08:30 am
abbadoodles wrote:
Well, I suppose I may be having yet another recon in late August. I'm in the surgical schedule, anyway. There are still a lot of if's, though. Tomorrow I am going for another consult in Beantown to see if the docs there can offer me any better alternative to what my local docs can do. I'll let you know how it all goes. In any event, I will probably be having some sort of surger in August. Wonderful! LOL Only the fifth, not counting the mx, within 2.5 years. Tina......Sometimes you feel like a nut, sometimes you don't.
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Nordy Joined: May 2009 Posts: 405 |
Jun 25, 2009 07:37 pm
Nordy wrote:
Bump Dx 4/21/2005, IDC, 3cm, Stage IIb, Grade 3, 0/12 nodes, ER-/PR-, HER2- |
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Nordy Joined: May 2009 Posts: 405 |
Jun 26, 2009 02:27 pm
Nordy wrote:
Bump bump bump... did you ever ride a wump? (More to come w/the next bump... LOL) Dx 4/21/2005, IDC, 3cm, Stage IIb, Grade 3, 0/12 nodes, ER-/PR-, HER2- |
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Nordy Joined: May 2009 Posts: 405 |
Jun 28, 2009 06:33 pm
Nordy wrote:
... We have wump w/just one hump... Dx 4/21/2005, IDC, 3cm, Stage IIb, Grade 3, 0/12 nodes, ER-/PR-, HER2- |
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phoffa Joined: Apr 2009 Posts: 14 |
Jun 29, 2009 12:12 pm
phoffa wrote:
Nordy, Please add me for July 29th, S-GAP or I-GAP with Dr. Massey in South Carolina. This is my last try, after over a dozen attempts at some kind of reconstruction. Thanks much! Patti Dx 1/14/1999, IDC, 5cm, Stage IIIb, 7/10 nodes, ER+/PR-, HER2- |
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LorenaB Joined: Feb 2008 Posts: 924 |
Jun 29, 2009 12:42 pm
LorenaB wrote:
Add me to the list: Stage 2 DIEP on August 14th. I had a reduction at the same time as my right mastectomy in June '08, then did rads. I had a unilateral DIEP on March 31st (in Boston, and I'm very happy with my ps!). My main goal for Stage 2 is to make me even - reduced breast is slightly larger than the flap side. Good luck to all! Lauren Dx 12/20/2007, IDC, 1cm, Stage II, Grade 3, 1/11 nodes, ER+/PR+, HER2- |
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Nordy Joined: May 2009 Posts: 405 |
Jun 29, 2009 06:29 pm
Nordy wrote:
Woooo hooo for a growing list!!! Thanks everyone and let us all know how you are doing as the date gets close! Dx 4/21/2005, IDC, 3cm, Stage IIb, Grade 3, 0/12 nodes, ER-/PR-, HER2- |
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plainjane64
Joined: Jan 2009 Posts: 435 |
Jun 30, 2009 07:36 am
plainjane64 wrote:
I am probably doing recon Gap at Nola in sept BUT...I'm going for consult at Nola august 3rd and the wkend before For me...I need to go, meet people, feel comfortable and get bearings for all this....if anyone is going to be there it might be nice to hook up/meet. Initially I was going to bring a friend( I'm single but my extended family thinks my plans are 'extreme'..so I'm not telling them until I'm done and recovered....fortunately I have a LOT of awesome friends/co workers, etc...). At any rate. Most of my friends are more excited about all this than me and while I love them.......I need my own peace/space about this. These friends will be very much needed during sept/ or postop period....so I'm saving them and making this consult eval trip solo, independent and able to hear my own thoughts...I'm way ok traveling alone BUT...I hate eating dinner alone! Dx 10/18/2008, IDC, <1cm, Stage I, Grade 1, 0/4 nodes, ER+/PR+, HER2- |
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