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Topic: November 2009 Reconstruction

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  • Posted on: Sep 30, 2009 08:02 pm
New City, NY
Joined: Feb 2008
Posts: 2,195
NancyD wrote:

I didn't see a thread for reconstruction in November, so I'm starting one!

I'm so excited! I got my tentative date today--November 16th. If the final $$ works out with my insurer, I will be on my way to new breasts.

I'm having a delayed bilat DIEP. My original surgery was in July 2008, and I've been exploring recon methods since then. I had both neoadjuvant and adjuvant chemo, followed by rads, so my active treatment took precedent over aesthetics. Now that I've been NED for over a year, I'm moving forward with the recon of my choice.

I have the paperwork for my preop tests, but still no estimate from the PS's office. We've been playing phone tag. But you know, they say there is a silver lining in every cloud. Four days after I had my consult with the PS, my dear father died. That's the cloud part. The silver lining is that my share of his estate will more than cover any expenses that my insurance won't. So, it's almost a moot point getting the price from them, but I still want to know.

Anyone else have a November recon planned?

I'm not a complete idiot. Some parts are missing.
Diagnosis: 2/28/2008, IDC, Stage IIIa, Grade 2, 4/10 nodes, ER+/PR+, HER2-

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Makraz
MA
Joined: Sep 2008
Posts: 4,014
Sep 30, 2009 08:18 pm Makraz wrote:

No, but you go girl.  I'm so glad things worked out for you Nancy!!  Best of luck!

Linda Thanks to all my sistahs for helping me get through this hell. started Tamox 10-08
Diagnosis: 6/3/2008, IDC, <1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
mychoice
oh
Joined: Aug 2009
Posts: 12
Sep 30, 2009 08:54 pm mychoice wrote:

Hope to join you soon!!

Cheri
geneskirt
Joined: Jun 2009
Posts: 73
Sep 30, 2009 09:05 pm geneskirt wrote: PS office just told me today, exchange to implants Noveber 24th ! Yeah!  B/L Mx Nov /08. Delayed Reconstruction with expanders put in place August 5/09!  Time to Christmas Shop now! Smile

Diagnosis: 9/29/2008, ILC, 5cm, Stage II, Grade 1, 0/3 nodes, ER+
aabinion
Cincinnati, OH
Joined: May 2009
Posts: 13
Sep 30, 2009 09:08 pm aabinion wrote:

I finally got my surgery date too!!! It is also November 16th. I am having a LD Flap on one side and an implant on the other. Have to have the flap because I was radiated on that side. Wish I had done all of this in the beginning but it was too overwhelming then. I am on the right track now though!! Good luck to everyone !

 Amy

Stage I IDC er/pr+ her2-
heatherbles…
Chesapeake, VA
Joined: Nov 2008
Posts: 30
Sep 30, 2009 11:51 pm heatherbless wrote:

nancyd- are you going to NOLA also?  best wishes/  heather

Be faithful in small things because it is in them that your strength lies. Mother Teresa
Diagnosis: 10/1/2008, IDC, 3cm, Stage IIb, Grade 3, ER+/PR+, HER2-
Dejaboo
Joined: Mar 2008
Posts: 2,109
Oct 1, 2009 08:03 am Dejaboo wrote:

Id like to Join!

I had my BLM May of 08.  Exchanged to Implants Sept of 08. 

 I had Symmastia at 6 weeks (a Uniboob)

I am Having an SGAP in NOLA on Nov 5th.

Pam

Dx 3/7/2008,DCIS, IDC-1.2mm, Stage I, Grade 1, 0/1 nodes, ER+/PR-,HER2+,Lump/SNB-4/1/08, Bilat 5/22/08, EX 9/22/08, PFO & ASA heart Closure 12-29-08, July 09-RAVH, Nov 09-NOLA-SGAP-to fix PS Mess Up-Symmastia!
AnneW
Boulder, CO
Joined: Oct 2002
Posts: 3,009
Oct 1, 2009 08:45 am AnneW wrote:

I'm having my Stage 2 SGAP in Charleston on Nov 16.

Anne

2002 IDC stage 1, grade 1, rads & AI
Diagnosis: 9/18/2007, ILC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
NancyD
New City, NY
Joined: Feb 2008
Posts: 2,195
Oct 1, 2009 08:55 am NancyD wrote:

heatherbless...no I decided not to travel. I'm having it in NYC. Mark Smith will be the PS.

I'm not a complete idiot. Some parts are missing.
Diagnosis: 2/28/2008, IDC, Stage IIIa, Grade 2, 4/10 nodes, ER+/PR+, HER2-
Fire44fly
Quispamsis, NB
Joined: Feb 2009
Posts: 26
Oct 1, 2009 12:10 pm Fire44fly wrote:

Hey girls... I'm hoping that I will be joining you in November... Waiting for confirmation date from my PS.  I will be having a double LDF.  I had Mx Jan08 then chemo, Rads, Mx Mar 09.  So I'm hoping for the best.  I think I'm ready for all of this!  Good Luck girls getting your new Foobies!

Nancy B

Nancy
Diagnosis: 11/21/2008, IDC, 2cm, Stage IIIa, Grade 3, 3/24 nodes, ER-/PR-, HER2-
NancyD
New City, NY
Joined: Feb 2008
Posts: 2,195
Oct 1, 2009 02:08 pm NancyD wrote:

I'm dealing with my insurance company and reconstruction costs now. I am trying to find out what they will pay, but even with the procedure code, they are giving me double-talk ("can't apply the modifier"). Shoot, they can't even tell me if the figure they gave me is for a single or double DIEP. 

Anyone else dealing with this kind of problem?  What do I do?  Call back and hope I get a different operator?

I'm not a complete idiot. Some parts are missing.
Diagnosis: 2/28/2008, IDC, Stage IIIa, Grade 2, 4/10 nodes, ER+/PR+, HER2-
Dejaboo
Joined: Mar 2008
Posts: 2,109
Oct 2, 2009 03:54 pm Dejaboo wrote:

Fire44fly Hope you get to join us!

Pam

Dx 3/7/2008,DCIS, IDC-1.2mm, Stage I, Grade 1, 0/1 nodes, ER+/PR-,HER2+,Lump/SNB-4/1/08, Bilat 5/22/08, EX 9/22/08, PFO & ASA heart Closure 12-29-08, July 09-RAVH, Nov 09-NOLA-SGAP-to fix PS Mess Up-Symmastia!
glanter
Mount Pleasant, SC
Joined: Sep 2005
Posts: 31
Oct 5, 2009 09:12 am glanter wrote:

I have some claims data from some of the larger insurers in the US.  What insurance company is it and I will be happy to see if I have info to share if not I can try to help you navigate.  

NancyD
New City, NY
Joined: Feb 2008
Posts: 2,195
Oct 5, 2009 09:18 am, edited Oct 8, 2009 12:03 PM by NancyD NancyD wrote:
This Post was deleted by NancyD.
glanter
Mount Pleasant, SC
Joined: Sep 2005
Posts: 31
Oct 5, 2009 09:47 am glanter wrote:

Good for you for doing research to find the in-network surgeon.  On the plus side waiting until the beginning of your deductible year may be a good thing.  That way you can have all stages of your surgery  within that year and only worry about the in network deductible and out of pocket one time. 

don23
Joined: Apr 2009
Posts: 111
Oct 5, 2009 01:34 pm don23 wrote:

I am scheduled for my exchange on November 4th. I can't wait!! I currently have TE's that are filled to 600cc right now. I will be getting one more fill this Thursday and then will have to sit tight. I am getting so anxious!


Diagnosis: 4/10/2009, IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
TOB
WA
Joined: Aug 2009
Posts: 37
Oct 5, 2009 06:11 pm, edited Oct 5, 2009 06:15 PM by TOB TOB wrote:

I'm set for a left mastectomy/SNB with immediate DIEP on November 19 for residual DCIS after 2 lumpectomies with dirty margins.  I've never had a major surgery and have always been self-sufficient and the one who did things for everybody else, so I'm dreading being dependent.  (I'm left handed, so expect to have some limitations for a while.)

The good news is that I will have no bad hair days during recovery.  My husband knows that looking good makes me feel better when I'm ill, so he took it upon himself to learn how to dry and style my hair with a curling iron.  I think that is very impressive for a masculine, professional guy who has ridden motorcycles for 35 years and knows absolutely nothing about hair!  He promises to take good care of me, so his only real concern is how soon will I be able to ride with him again.  I was back on our 'Wing 3 weeks post lumpectomy, but this time I think I'll leave it up to my belly and suspect that it will say no for several months!   
NancyD
New City, NY
Joined: Feb 2008
Posts: 2,195
Oct 6, 2009 06:15 am, edited Oct 8, 2009 12:04 PM by NancyD NancyD wrote:

Well, after much soul-searching, I've decided to put my recon off until my father's estate is settled. Things are just too uncertain, both with my insurance company and how much I will have to pay myself, and how much I will have in the end from my inheritence. I also don't want to go into major surgery with an already depressed emotional state.

I'm not a complete idiot. Some parts are missing.
Diagnosis: 2/28/2008, IDC, Stage IIIa, Grade 2, 4/10 nodes, ER+/PR+, HER2-
don23
Joined: Apr 2009
Posts: 111
Oct 6, 2009 09:46 am don23 wrote:

TOB - how lucky to have such a great husband. I definitely couldn't see my husband trying to do that. I am lucky that my daughter is a hairdresser and she helped with that.  I, too, am like you in being self-sufficient. It was very hard for me to sit and have people wait on me (only for a few days) - but just sit back and let them. You deserve to be waited on!


Diagnosis: 4/10/2009, IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
ebann
Glendale, AZ
Joined: Sep 2008
Posts: 281
Oct 7, 2009 01:15 am ebann wrote:

I am having the DIEP surgery done on Nov 16th. Looking forward to it. Have waited a year now to have reconstruction. Thanks for starting this forum. I was looking for Novembers and could not find one.

Hugs Elizabeth

Elizabeth (EB Ann)
Diagnosis: 4/10/2008, IBC, 6cm+, Stage IIIb, Grade 3, 3/16 nodes, ER-/PR-, HER2-
ebann
Glendale, AZ
Joined: Sep 2008
Posts: 281
Oct 8, 2009 10:32 pm ebann wrote:

NED, NED, NED 6 MONTHS CANCER FREE!

Elizabeth (EB Ann)
Diagnosis: 4/10/2008, IBC, 6cm+, Stage IIIb, Grade 3, 3/16 nodes, ER-/PR-, HER2-
AnneW
Boulder, CO
Joined: Oct 2002
Posts: 3,009
Oct 8, 2009 11:09 pm AnneW wrote:

Where are you ahving your surgery done, Elizabeth? I'm having my Stage 2 done that same day!

Anne

2002 IDC stage 1, grade 1, rads & AI
Diagnosis: 9/18/2007, ILC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
don23
Joined: Apr 2009
Posts: 111
Oct 9, 2009 09:49 am don23 wrote:

Elizabeth - WOO HOO!!!! That's great news! NED has got to be one of our favorite words.


Diagnosis: 4/10/2009, IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
ebann
Glendale, AZ
Joined: Sep 2008
Posts: 281
Oct 10, 2009 10:20 pm ebann wrote:

Anne I am having it done at the Mayo Clinic in Phx AZ on the 101/56th St. Dr. William Casey. Are you pleased with your results so far? 

Done23: Thank you they are words to my heart. Such a relief. Thanks for the kudo's.

Excited and getting Anxious too!

Hugs Elizabeth

Elizabeth (EB Ann)
Diagnosis: 4/10/2008, IBC, 6cm+, Stage IIIb, Grade 3, 3/16 nodes, ER-/PR-, HER2-
DianneMS
MI
Joined: Oct 2007
Posts: 79
Oct 12, 2009 11:26 am DianneMS wrote:

I am hoping to have stage 2 done the 20th.  I will have a better idea about that after my appointment on Friday.  Best to all the waiting is always the hardest.


Diagnosis: 8/13/2008, DCIS, 1cm, Stage I, Grade 3, 0/0 nodes, ER-/PR-, HER2+
NancyD
New City, NY
Joined: Feb 2008
Posts: 2,195
Oct 22, 2009 06:49 pm NancyD wrote:

bump.

Didn't want you ladies to lose this thread.

I'm not a complete idiot. Some parts are missing.
Diagnosis: 2/28/2008, IDC, Stage IIIa, Grade 2, 4/10 nodes, ER+/PR+, HER2-
nancy258
Glenmoore, PA
Joined: Jul 2008
Posts: 121
Oct 23, 2009 01:57 pm nancy258 wrote:

Hi NancyD.  We were almost together again!  Best to do it when it feels right.  I just scheduled surgery for November 23 to fix the lumpectomy defect in my left breast.  The PS wants to lift both at the same time for symmetry.  He said I probably woundn't be happy with just fixing the bad left breast as they wouldn't match.  So I'm excited to get going on this.  My left cancer breast also ended up bigger after radiation, the tissue expanded and firmed up so he'll reduce that to match the other one.


Diagnosis: 6/18/2008, DCIS, Stage 0, Grade 3, 0/1 nodes, ER+/PR-, HER2+
Linda54
MS
Joined: May 2008
Posts: 1,757
Oct 23, 2009 10:00 pm Linda54 wrote:

nancy258

I just read your statement about your radiated breast got bigger.  I have never heard of that happening.  Mine got smaller...I had to buy a silicone insert to wear on that side to fill out my B cup bras.  It had to be from the rads because the lumpectomy did not leave me disfigured.  I also had DCIS my 2nd DX.  Ended up doing a bi-lat MX with LD flap recon.  Sounds like your doc has a good plan for you.  Take care

Don't deny the diagnosis, but defy the verdict.........
Diagnosis: 3/7/2008, DCIS, Stage 0, Grade 1, 0/0 nodes, ER+/PR+
gigigigi
Joined: Apr 2009
Posts: 22
Oct 24, 2009 05:13 pm gigigigi wrote:

I am scheduled for tram flap on Nov 3.  Best wishes to you all ...

Springtime
NC
Joined: Aug 2008
Posts: 2,581
Oct 24, 2009 06:27 pm Springtime wrote:

Linda, same here. Rads is making my side smaller and tighter...

Psalm 91: 14-16 "Because she loves me," says the LORD, "I will rescue her; I will protect her, for she acknowledges my name. She will call upon me, and I will answer her; I will be with her in trouble, I will deliver her and honor her. W long life...
Diagnosis: 7/10/2008, IDC, Stage II, Grade 2, 0/3 nodes, ER+/PR+, HER2-
mbtlcsw01
Lutz, FL
Joined: Feb 2009
Posts: 30
Oct 24, 2009 09:41 pm mbtlcsw01 wrote:

I can't wait.  I'm having my exchange on 11/30/09 @ Moffitt Cancer center here in Tampa.  My expander journey has not been bad and I'm @920 cc's in each.  I'm also having an oopherectomy done on the same day.  Should be out of work for about 2 weeks.  My husband and I are going to Sanibel Island for several nights on the last week I'm off to celebrate.  God has been so good to me.

Mary
Diagnosis: 10/14/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR-, HER2-

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