Skip to content
Forum IndexForum: Breast Reconstruction → Topic: I didn’t know I could have recon w/lumpectomy
« Forum: Breast Reconstruction: Is it right for you? Discuss timing and various procedures and techniques.

Topic: I didn’t know I could have recon w/lumpectomy

Log in to post a reply
  • Posted on: Oct 21, 2009 08:21 pm
Eugene, OR
Joined: Sep 2008
Posts: 618
ReneeS wrote:

I got a pleasant surprise today when my radiologist met with me for my final follow up appointment.  She told me that based on my asymmetry I can have reconstruction.  It never crossed my chemo damaged brain that I could be a candidate after a lumpectomy.  (I call it a clumpectomy.)  I sat in her office and sobbed and proceeded to use up all her tissue.  I didn't even ask and I wasn't complaining about it.  I thought I was stuck with them the way they are. 

You mean I don't have to have cross eyed boobs any more?  Well, they look more like one has a lazy eye.  And.....I don't have to hide them from my husband.

I have to schedule this year due to having my deductible paid up already this year.  Any recommendations on research as to what to look for in a Dr.?  I have large, long boobs and I'm done with that I want small.  Does that mean I would be getting a lift?  Any suggestions.

Sorry for the ramble......I'm just in shock.

www.caringbridge.org/visit/reneeswartz
Diagnosis: 9/24/2008, IDC, 1cm, Stage II, Grade 2, 1/2 nodes, ER+/PR+, HER2-

Page 1 of 2 (52 results)

1 2
Posts 1 - 30 (52 total)
Meece
CA
Joined: Sep 2009
Posts: 254
Oct 21, 2009 08:32 pm, edited Oct 21, 2009 08:33 PM by Meece Meece wrote:

I found out that I was qualified about two years ago.  I went to the PS within my Oncologist's "circle" and he was totally for doing the Hollywood pair.  And after his staff thought about it for nearly two months they finally called me with a price of 8K...out of pocket.

I thought I would have to live with what I had left for the rest of my life.  My next visit with my Oncologist, I was in tears, and she gave me an unofficial recommendation to a PS who has a special gift for BC survivors.  I had my first surgery last December where he added about 100cc in an implant.  I still have the lazy eye, and large dent, so on November 19th I go in for stage two, Fat injections into the dent and work on bringing me front facing again.  My DH asked the PS how many surgeries will it be until I am "finished" and he said...until she's happy again.  

My total out of pocket for surgery #1 was less that $700.00.  That included the surgeon, the hospital, anesthesiologist...EVERYTHING!  This doctor does a lot of work with BC patients, and knows how to code them for insurance coverage.  It takes so much stress out of the picture!

I would PM you the name of mine, but since you are in Oregon, and I am in California, I don't think that would do.

 Look for a PS who does reconstructive work.  The office doesn't have to look like a Hollywood Salon, he or she just needs to be competent and understand the system.


Diagnosis: 11/2003, IDC, 1cm, Stage I, Grade 3, 0/16 nodes, ER-/PR-, HER2-
TammyMarie
Joined: Aug 2009
Posts: 32
Oct 21, 2009 11:25 pm TammyMarie wrote:

ReeneS

I  had a "chunkpectomy" on my left a "two lumpectomies" on my right side.  I look lopsided and I am only a B-cup. I was told the radiation may cause the remaining tissue to shrink.  By that time, I am probably down to two wrinkled prunes.  My PS told me I am eligible for reconstruction, just needed to wait six months from the end date of my radiation treatments.  I can understand how you feel about not wanting your husband to see you.  I feel the same way.  Good luck with your reconstruction. I hope it all works out for you.  It is all about feeling normal again.  It has nothing to do with vanity.  It is about your mental well being and how good you feel about yourself. 

Meece
CA
Joined: Sep 2009
Posts: 254
Oct 22, 2009 12:50 am Meece wrote:

You said t, TammyMarie!  It's bad enough when age, childbirth and gravity take their toll on our once perky breasts, but when you have a chunk of yourself removed, and radiation shrinks what's left, you have little to feel confident with.  I have spent many a session in my closet, trying everything in it on, so I could find something to wear that didn't emphasize the difference in size from left to right.  Then, ending up in tears because nothing seems to fit.  I still feel ugly in front of my husband, but I am slowly moving toward acceptance. 


Diagnosis: 11/2003, IDC, 1cm, Stage I, Grade 3, 0/16 nodes, ER-/PR-, HER2-
aprilgirl1
Joined: Dec 2008
Posts: 513
Oct 22, 2009 12:55 am aprilgirl1 wrote:

Renee - I had a bilateral reduction with a reexcision when the first lumpectomy did not get enough margin.  This was covered by insurance due to symmetry - after the 2nd lumpectomy it was necessary.  This included a lift too by the way - I was a DDD and will end up a D I think (I just finished radiation). 

You should not have a problem with your insurance - and the lift included - I consider this my silver lining.

Good luck!


Diagnosis: 11/7/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
unklezwifeo…
Union County, NJ
Joined: Aug 2009
Posts: 968
Oct 22, 2009 12:56 am unklezwifeonty wrote:

Oh yeah us gals with lumpectomy are eligible for reconstruction...... and we get time to choose the plastic surgeon and the best plastic procedure without being under the gun! We even get to choose - atleast some of us - to avoid radiation and go for mastectomy and reconstruction instead. And bilateral if that's what we want. So don't rush into mastectomy and immediate reconstruction out of fear,,,,,

Onty
Diagnosis: 7/31/2009, IDC, 3cm, Stage IIb, Grade 3, 1/9 nodes, ER-/PR-, HER2-
ReneeS
Eugene, OR
Joined: Sep 2008
Posts: 618
Oct 22, 2009 01:17 am ReneeS wrote:

Thanks ladies.  So true on the "silver lining."  I had requested a bi-lat-mast when I found out I had cancer but my Dr refused.  I wanted them gone thinking the chance of recurrence would go with them.  I'm so glad I didn't now; I would rather not have had implants.

If my radiologist hadn't mentioned it i never would have known I had the option.  I'm so happy.  On the other hand I thought I was finished and can finally move on with my life. 

Hugs everyone.

www.caringbridge.org/visit/reneeswartz
Diagnosis: 9/24/2008, IDC, 1cm, Stage II, Grade 2, 1/2 nodes, ER+/PR+, HER2-
jancie
Salt Lake City, UT
Joined: Jan 2009
Posts: 668
Oct 22, 2009 02:37 am jancie wrote:

I had a lumpectomy and am totally planning on a recon.  After the hell I have been through with chemo and rads, dangit - I want some perky boobies out of the deal.  So haven't decided yet to just do a lift or also do implants at the same time.  I have to wait 6 months since I just finished rads.  My boobs both look the same and my PS did an excellent job - he said that my lumpectomy side will not look any smaller than my other side and also waiting the 6 months, the nipples should align back up but there are ways for them to code the insurance.

Chemo, Surgery and Radiation completed!
Diagnosis: 12/30/2008, IDC, 4cm, Stage IIa, Grade 1, 0/5 nodes, ER+/PR+, HER2-
roseg
DC Area
Joined: Sep 2004
Posts: 8,487
Oct 22, 2009 12:30 pm roseg wrote:

The biggest issue I read about with lumpectomy reconstructions is infection. It seems to be a problem when working with radiated tissue.

 I would look for a PS who has experience working with radiated breasts and ask him what he does to reduce the risk of infection and what his failure rate is. Be watchful for slippery answers.

It's wonderful when it all works out, but the results of lumpectomy reconstruction complications take a long time to recover from. One gal I knew was going in for IV antibotics for weeks and three surgeries later ended up with a lat flap. Another gal ended up with a wound vac, which is not something that is any fun.

So take your time and find someone who acknowledges the risks and has a viable plan!

Rose
aprilgirl1
Joined: Dec 2008
Posts: 513
Oct 22, 2009 12:58 pm aprilgirl1 wrote:

Rose - that is true, although I have a friend here on BC.org that lives near me and had a bilateral reduction/lift a year after radiation and it went beautifully with no healing issues.  Renee, this is in Washington state so not that far from you.  I know she had to wait over 6 months from radiation for better healing.  For sure you should make sure the plastic surgeon has experience working with radiated skin etc.  PM me and I will give you her bc.org name so you can pm her.

I did mine prior to radiation - after chemo. so that was not an issue.

For me, I am way perkier - amazing to not have to wear a bra (while healing from radiation) and pass the pencil test. 

Renee, I too initially wanted a mastectomy and 2 surgeons I met with refused.  They both said it was unnecessary and my tumor was small and isolated - easy to take out with good margin. Had I tested positive for the brac1/2 they said they would rec. a mastectomy, but I was negative and none of my many female relatives have had any cancers.

Like Rose said, take your time - I don't believe there are any time limits on the insurance covering this.


Diagnosis: 11/7/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
debsie1
Joined: Oct 2009
Posts: 15
Oct 22, 2009 05:59 pm debsie1 wrote:

I had a lumpectomy over 3 years ago followed by 4 rounds of tac chemo and a month of radiation. At the time ,reconstruction never entered my mind. I was focused on beating this disease and trying to get my life back together.  Three years later everything is back to normal..I look almost like my old self (except for the left operated side) although to anyone else they would not notice a thing. Now I am ready for reconstruction.....I will be having silicone gel implants with a lift on the good side. Can you beleive that I always wished that I was bigger and actually considered breast augmentation before I got b.c. Well guess what girls............I am going to go bigger and really make something positive out of this dreadful situation...... I went to see a few P.S. and finally settled on the one that specializes in b.c. patients. I feel that he better underdstands the challenges we may be facing re the radiation. I have spoken to all my drs about this(oncologist, surgical oncologist) and they both said go for it. I do not have to be afraid that the implants will mask anything as I will have yearly MRI's.....I only hope that I do not have any capsular contraction or any other problems..........it's my time now and I want to be healthy, happy and enjoy a full B rack of perfectly alligned perky breasts......


Diagnosis: 8/21/2006, IDC, 2cm, Stage II, Grade 2, 2/9 nodes, ER+/PR+, HER2-
unklezwifeo…
Union County, NJ
Joined: Aug 2009
Posts: 968
Oct 22, 2009 10:35 pm unklezwifeonty wrote:

Thanks for sharing Debsie. Did you change your insurance in between? 

Onty
Diagnosis: 7/31/2009, IDC, 3cm, Stage IIb, Grade 3, 1/9 nodes, ER-/PR-, HER2-
ReneeS
Eugene, OR
Joined: Sep 2008
Posts: 618
Oct 22, 2009 11:29 pm ReneeS wrote:

Aprilgirl...you crack me up.  I haven't passed the pencil test since I was 20.

RoseG....excellent points.  I have appointments with 3 highly recommended surgeons next week and all of them can fit me in at the end of November.  That never crossed my mind to ask about the experience with radiated breasts.  This is why I lean on your girls.

I do need to slow down and consider all my options but I really need to fit this in this calendar year since I've already met my deductible.  I'm tired of being a drain on my family during a recession.

Unkelzwifeo.....what happens if you change insurance in between?

www.caringbridge.org/visit/reneeswartz
Diagnosis: 9/24/2008, IDC, 1cm, Stage II, Grade 2, 1/2 nodes, ER+/PR+, HER2-
unklezwifeo…
Union County, NJ
Joined: Aug 2009
Posts: 968
Oct 22, 2009 11:30 pm unklezwifeonty wrote:

Dear Renee,

That's what I want to know .... lol 

What is a pencil test?

Onty
Diagnosis: 7/31/2009, IDC, 3cm, Stage IIb, Grade 3, 1/9 nodes, ER-/PR-, HER2-
aprilgirl1
Joined: Dec 2008
Posts: 513
Oct 22, 2009 11:33 pm aprilgirl1 wrote:

HA!  Pencil test - trust me, haven't passed one since 20 at them most - and that is about when I heard about them.  At a DDD I could have smuggled a box of pencils...

Happy to hear that you have some appts lined up, and good idea to try and fit it in this year for the insurance deductible.

Go Ducks!

 April


Diagnosis: 11/7/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
unklezwifeo…
Union County, NJ
Joined: Aug 2009
Posts: 968
Oct 22, 2009 11:34 pm unklezwifeonty wrote:

Googled pencil test. you gals are disgusting..... lol

Onty
Diagnosis: 7/31/2009, IDC, 3cm, Stage IIb, Grade 3, 1/9 nodes, ER-/PR-, HER2-
aprilgirl1
Joined: Dec 2008
Posts: 513
Oct 22, 2009 11:36 pm aprilgirl1 wrote:

I swear I think Cosmopolitan magazine made it up....


Diagnosis: 11/7/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
ReneeS
Eugene, OR
Joined: Sep 2008
Posts: 618
Oct 22, 2009 11:46 pm ReneeS wrote:

You're killing me AprilgirlSmile

When I was young it was the hair brush test.  After nursing 3 babies it became the hair dryer test.  After weight gain from chemo I just tuck-um in my socks.

www.caringbridge.org/visit/reneeswartz
Diagnosis: 9/24/2008, IDC, 1cm, Stage II, Grade 2, 1/2 nodes, ER+/PR+, HER2-
ReneeS
Eugene, OR
Joined: Sep 2008
Posts: 618
Oct 22, 2009 11:47 pm ReneeS wrote:

Aprilgirl, are you a Duck fan or even a football fan?

www.caringbridge.org/visit/reneeswartz
Diagnosis: 9/24/2008, IDC, 1cm, Stage II, Grade 2, 1/2 nodes, ER+/PR+, HER2-
aprilgirl1
Joined: Dec 2008
Posts: 513
Oct 22, 2009 11:52 pm aprilgirl1 wrote:

I am a college football fan, but after living in Portland for 14 years many of our friends were Ducks - and a few Beavers too!  My kids elementary school had a huge civil war competition on the Friday prior to the game where the kids got either orange cupcakes or green.  I am a Cal Bear - so my kids said they were platypus's. We moved to Seattle in the fall of '06.

Y'all KILLED the bears a couple of weeks ago.  Tragic.


Diagnosis: 11/7/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
ReneeS
Eugene, OR
Joined: Sep 2008
Posts: 618
Oct 23, 2009 12:00 am ReneeS wrote:

My youngest daughter dates Ed Dickson (tight end).  No one else knows this but he's going to propose to her during the last home game on the field.  I'm so excited to have him as part of our family.  I'm trying to work my surgery around it and my family keeps asking why the last game is so important to me. 

Don't mention this online anywhere.  I hate to blow the surprise.

www.caringbridge.org/visit/reneeswartz
Diagnosis: 9/24/2008, IDC, 1cm, Stage II, Grade 2, 1/2 nodes, ER+/PR+, HER2-
aprilgirl1
Joined: Dec 2008
Posts: 513
Oct 23, 2009 12:03 am aprilgirl1 wrote:

I promise I will keep the secret - that is SO EXCITING!

Definitely schedule surgery around it.

Hair dryer test - you are too funny.


Diagnosis: 11/7/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
tkone
Seattle, WA
Joined: Jul 2008
Posts: 293
Oct 23, 2009 01:34 am tkone wrote:

Hi Renee,

Just a couple other things on here.  Make sure you get a Plastic Surgeon that has dealt with radiated tissue before.  I waited almost exactly 6 months after I finished radiation to have my reduction and lift and had no problems. 

Make sure you talk to your surgeon about any lymph nodes that you had removed as well-you don't want any additional complications due to surgery. 

I am symmetrical, and smaller (went from two letters waaaaay down the alphabet to a nice solid D).  I do not need to wear a bra since they actually sit on my chest instead of on my stomach.  My oncologist is insanely jealous and says it is one of the best reconstructions she has seen.  I am soooooo glad that I did it.

Tracy http://tracy-breastcancerandme.blogspot.com/
Diagnosis: 5/7/2008, IDC, 2cm, Stage II, Grade 3, 0/4 nodes, ER+/PR+, HER2-
ReneeS
Eugene, OR
Joined: Sep 2008
Posts: 618
Oct 23, 2009 01:39 am ReneeS wrote:

Thanks Tracy,  I'd love to speak with you.  I'll touch base with you when I get back.

www.caringbridge.org/visit/reneeswartz
Diagnosis: 9/24/2008, IDC, 1cm, Stage II, Grade 2, 1/2 nodes, ER+/PR+, HER2-
unklezwifeo…
Union County, NJ
Joined: Aug 2009
Posts: 968
Oct 23, 2009 09:57 am unklezwifeonty wrote:

I had lumpectomy in August and am undergoing chemo. I am considering whether to avoid radiation and get mastectomy/reconstruction instead. The affected breast was bigger than the other, it still it, but there is an indentation @ the 3 o clock position that is probably never gonna go on its own.

What do the gals here advice?

Onty
Diagnosis: 7/31/2009, IDC, 3cm, Stage IIb, Grade 3, 1/9 nodes, ER-/PR-, HER2-
aprilgirl1
Joined: Dec 2008
Posts: 513
Oct 23, 2009 11:28 am aprilgirl1 wrote:

Unklewifeonty - I would consult a plastic surgeon now and see what they advise.  I had a lumpectomy at 11'oclock with a fairly large scar.  Now, my lumpectomy scar is almost non existant as it was covered when they did the lift (hope that makes sense!).,  I also had an indent which is gone. (The plastic surgeon referred to the indent as a "defect" from the lumpectomy - nice!).

A plastic surgeon that does reconstruction has seen it all and will be able to tell you what their opinion is as well as show you some photos of patients.


Diagnosis: 11/7/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
nancy258
Glenmoore, PA
Joined: Jul 2008
Posts: 121
Oct 23, 2009 02:14 pm nancy258 wrote:

Great to hear the success stories as I have my surgery Nov 23.  My radiation oncologist recommended the PS and insisted I go with someone who specializes in breast reconstruction and cancer patients.  They have different techniques for different kinds of defects.  Since I'm larger breasted (C) he recommended the lift on both sides for symmetry.  Good luck.  He told me the entire thing will be covered by insurance.  I will have a co-pay though.


Diagnosis: 6/18/2008, DCIS, Stage 0, Grade 3, 0/1 nodes, ER+/PR-, HER2+
unklezwifeo…
Union County, NJ
Joined: Aug 2009
Posts: 968
Oct 23, 2009 03:49 pm unklezwifeonty wrote:

Thanks April....

Onty
Diagnosis: 7/31/2009, IDC, 3cm, Stage IIb, Grade 3, 1/9 nodes, ER-/PR-, HER2-
momand2kids…
Joined: Oct 2008
Posts: 138
Oct 25, 2009 08:48 am momand2kids wrote:

I am so glad to have found this thread-I had a lumpectomy on 11/25/08-no nodes, clear margins, had 4 rounds of chemo and radiation--- 

because my lump was at 5 o'clock- there is no visible scarring- and even the scar that is there is barely noticeable.  However, I am still a d cup and am thinking that my breasts are so dense that maybe a reduction (the right is a little smaller than the left, but it is hard to see unless you are me!) is in order.  Do they do that sort of thing?  Would I be able to get a breast reduction as part of this? any info would be helpful!


Diagnosis: 10/29/2008, ILC, 2cm, Stage II, Grade 2, 0/1 nodes, ER+/PR+, HER2-
VinRobMom
Sacramento, CA
Joined: Oct 2009
Posts: 33
Nov 4, 2009 03:40 pm, edited Nov 4, 2009 03:43 PM by VinRobMom VinRobMom wrote:

I agree that there is not much out there about recon after lumpectomy/radiation.  I will be having a lumpectomy and if my breasts are asymmetrical after radiation is done, I definitely want reconstruction.  Check out the bottom photo and description of this recon after lumpectomy

http://breastreconstruction.org/ReconstructionOverview/RadiationandReconstruction.html

This sounds like a good idea to do a flap procedure (minus the mx) combined with bilateral implants. 

kime
Southern Cal, CA
Joined: Sep 2009
Posts: 92
Nov 4, 2009 06:27 pm kime wrote:

Hi Ladies, I had my lumpectomy in Sept and am going thru rads right now, but I am very intersted in finding out more about lumpectomy reconstruction - from what you all are posting it looks like I will need to wait at least 6 months after rads. For those of you that have had the reconstruction and a lift - does a lift mean the nipple has to be moved? and if so does that mean you loose feeling there? Appreciate any info.

Anyone heard anything about the clinical trials being done where fat is removed from another part of your body, treated and then injected into the lumpectomy indentation. I have read trials are happining now and will be completed in March 2010.


Diagnosis: 8/13/2009, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER-/PR-

Page 1 of 2 (52 results)

1 2

© 2009 Breastcancer.org. All rights reserved.