Trying to decide on single or dbl mastectomy.
If I have a single, it seems as if I'll have to get a lift/reduction on the healthy side. As I understand it, this involves cutting and relocating the nipple/areola. What does that do to sensation? Is it the same as the sensation lost from mastectomy?
I guess what I'm trying to figure out is - I'm trying to avoid a double mast so I can still have sensation. Am I trying to save something I'll lose in the lift anyway?
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Lilah Joined: Jul 2009 Posts: 89 |
Oct 23, 2009 01:10 am
Lilah wrote:
My understanding is that you don't lose much feeling... women have breast reduction all the time (who don't have BC). It is not the same as mastectomy. Best person to ask is your PS. Cheers, Lilah Diagnosis: 6/2/2009, IDC, 1cm, Stage IIa, Grade 3, 1/17 nodes, ER-/PR-, HER2+ |
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tkone Joined: Jul 2008 Posts: 293 |
Oct 23, 2009 01:14 am
tkone wrote:
I had a lift and reduction on both sides after completing a lumpectomy on my left side. I do have nipple sensation. They don't completely remove it anymore. They kind of leave it "tethered" and then just move it to where it belongs. Gross, I know and I am certainly glad that I didn't have to see it in the surgery room, but it looks great now and I had sensation the next day. Tracy http://tracy-breastcancerandme.blogspot.com/
Diagnosis: 5/7/2008, IDC, 2cm, Stage II, Grade 3, 0/4 nodes, ER+/PR+, HER2- |
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nancy258 Joined: Jul 2008 Posts: 121 |
Oct 23, 2009 01:50 pm
nancy258 wrote:
Something I am also worried about. After lumpectomy the second PS I saw (and like a lot) suggested I have a lift to the good side for symmetry. I still have most of the sensation in my bad left breast but it's not the same erogenous sensation I still have in my right nipple. Am I going to lose that in my good right side with a lift? Diagnosis: 6/18/2008, DCIS, Stage 0, Grade 3, 0/1 nodes, ER+/PR-, HER2+ |
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orange1 Joined: Oct 2008 Posts: 512 |
Oct 24, 2009 01:16 am
orange1 wrote:
I had a lift on my non cancer side and did loose some sensation. I still have some, but it is about 50% of what I used to have. My nips were too sensitive before, so this worked out well for me. But if not loosing any sensation is important to you, you should express your concerns very clearly to your PS so you don't end up with a result you are unhappy with. Good luck. Diagnosis: 8/2007, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR-, HER2+ |
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Faith316 Joined: Jul 2009 Posts: 153 |
Oct 24, 2009 01:41 pm
Faith316 wrote:
I also am considering having a lift on my good side when I do a unilateral mastectomy in the coming months. I would like to hear from more women who had a lift as to how it affected their nipple sensation after the lift. If anybody else can respond to this post with their experience, it will be appreciated. |
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marie317 Joined: Aug 2009 Posts: 99 |
Oct 24, 2009 01:49 pm
marie317 wrote:
whoa... wait, they move the nipple on the good breast??? seriously? if so, i'm glad i read this. i meet with my plastic surgeon on Monday. guess i need to discuss this one with him! THE DEFINITION OF INSANITY IS DOING THE SAME THING OVER AND OVER AND EXPECTING DIFFERENT RESULTS - BENJAMIN FRANKLIN
Diagnosis: 6/2/2009, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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Nedeza Joined: Oct 2009 Posts: 87 |
Oct 24, 2009 11:05 pm
Nedeza wrote:
Very interesting topic! My PS is suggesting a lift on my healthy breast for symmetry as well for now. My MX breast has become "huge" with the TE in place. Eventually after the exchange on my MX breast she will place an implant in my healthy breast to match the fullness. I, too, am concerned about the possible loss of sensation in my nipple....one of the reasons I did not want to go bilateral...I did not want to lose that erogenous feeling. My dx did not warrant having a bilat. since the healthy breast was healthy. My PS said it is only a very small chance of losing sensation...if it even occurs. She gave me a pamphlet and I did not realize how extensive this surgery is also...moving the nipple???? No wonder there are some concerns! Diagnosis: 7/20/2009, DCIS, Stage 0, Grade 1, 0/0 nodes, ER+/PR- |
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Katey Joined: Oct 2009 Posts: 9 |
Oct 25, 2009 10:19 am
Katey wrote:
I had mastectomy with reconstruction in 1990, in 2000 implant had to be removed and replaced and at same time I had other breast lifted. I was told and it is true that a lift sags after awhile, especially if you're premenopause. Did not lose any sensation in lifted breast. Scar is vertical from bottom center of breast to nipple and around nipple. thought the lift operation was harder than expected, maybe because I had implant replaced on other side at same time, or maybe because I always expect to bounce right back! If my memory is right I healed in a week or 2. Tho sagging again wasn't sure if I wanted to go thru a lift again, just yanked the shoulder strap up on my bra! Unfortunately my mamo in August showed DCIS in the lifted breast, I opted for a 2nd mastectomy and am starting over with old implant removed and tissue expanders in both breasts. My vertical scar in lifted breast is pretty "spread", I hope PS will be able to take care of that in final implant exchange. I found that silicone circle around nipple helped with redness of scar, I can actually see where the silicone stopped. Best to you "sweatyspice" in making this tough decision! (I've got to come up with a fun name for myself |
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likes2draw Joined: Oct 2009 Posts: 6 |
Oct 26, 2009 10:52 pm
likes2draw wrote:
I am facing the same dilemma: exchange surgery in two weeks and proposed lift on the healthy breast. I'm 57 so I'm already droopy on the healthy side. So ... if I don't have the lift, then I live with pretty extreme asymmetry. If I have the lift I risk some sensation loss, and get a new set of scars. In the future, should I need mastectomy in the lifted breast, I end up with the lift scars AND the mastectomy scars. Unlike all the previous decisions related to bc, this one is totally up to me -- totally a cosmetic choice. So it's really a tough one! And then there's the decision about type of implant. But I'm leaning toward traditional silicone, not gummy. |
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3boys4me Joined: Mar 2007 Posts: 300 |
Oct 26, 2009 11:09 pm
3boys4me wrote:
I had a unilateral mastectomy followed up by DIEP reconstruction a year later, then revisions (lift and reduction) on the "good" side. I'm very happy with the results. I still have sensation in that nipple, but it's not quite the same as before ;-( but better than no sensation ;-) The only noticeable scar runs from the bottom of the nipple down to the mammary fold. Am hoping it will fade in time, but considering everything else, it's all good!! Lisa ** Live Well * Laugh Often * Love Much **
Diagnosis: 2/2007, IDC, 5cm, Stage IIb, Grade 2, 6/14 nodes, ER+/PR+, HER2- |
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likes2draw Joined: Oct 2009 Posts: 6 |
Oct 27, 2009 10:17 am
likes2draw wrote:
Did you (and/or others on this thread) have the lift and reduction done at the same time as the work on the reconstruction side? I am torn between getting it over with in one surgery or having the implant inserted now and waiting to see the extent of the asymmetry before doing the lift. |
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kmmd Joined: Dec 2008 Posts: 1,100 |
Oct 27, 2009 10:30 am
kmmd wrote:
Katey, I hadn't thought of the issue of expansion with old scars, thanks for sharing that experience. I didn't get the lift, my PS really wanted it but I hated putting scars on the other side and was scared of nipple sensation loss. When I'm naked and looking in a mirror I wish I had had the lift. When dressed they look fine. My PS would still like to do the lift, I'm still undecided. |
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aprilgirl1 Joined: Dec 2008 Posts: 512 |
Oct 27, 2009 10:42 am
aprilgirl1 wrote:
I had a bilateral reduction with a 2nd lumpectomy (so not a mastectomy). I am chiming in to say that I was happily surprised to not lose nipple sensation. They do move the nipple up (the lifting part) but they move it up and poke it thru a new "hole" of your skin - that is how my PS explained it. Sensation loss is something they do warn you about, but it did not happen to me, or a few others women I know who had reductions (not cancer related). As a previous poster said, some are less sensitive after, but for me it is the same. Feel free to PM me if you have any specific questions! Diagnosis: 11/7/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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Nedeza Joined: Oct 2009 Posts: 87 |
Oct 27, 2009 11:50 am
Nedeza wrote:
likes2draw: Hi...saw your post. My PS is recommending to do the lift on my healthy breast now (pending in a month?) to actually make my breasts more symmetrical while waiting for my exchange in the months to come. I just finished my last expansion last week. Obviously, my breasts look very uneven since my MX appears HUGE with the TE. After the exchange, she will wait a little longer to place an implant in the healthy breast. She wants the MX to "settle" after the placement of the perm. implant....sounds like a long drawn out process I know but it makes sense to me. So, I guess you can say I am looking at possibly 3 more surgeries. Everyone's situation is different. I hope all goes well with you! NAE Diagnosis: 7/20/2009, DCIS, Stage 0, Grade 1, 0/0 nodes, ER+/PR- |
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Lilah Joined: Jul 2009 Posts: 89 |
Oct 27, 2009 05:12 pm
Lilah wrote:
Likes2draw -- my PS says she likes to wait until the implant has healed and "fluffed" (though she didn't use that word -- that's a bco word :) She says to wait to do the reduction/lift you get a better chance of more symmetry... which makes sense to me. The implant (post exchange) needs time to settle and there is swelling that takes a few months to go down (at least 3 as I understand it)... so I'm going to wait and put up with being lopsided for however long it takes. I think I will have a better chance of a good match. Your mileage may vary :) I can totally hear you, though, on the notion of just getting it all done at once (and lots of PS's do it that way). Cheers, Lilah Diagnosis: 6/2/2009, IDC, 1cm, Stage IIa, Grade 3, 1/17 nodes, ER-/PR-, HER2+ |
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jancie Joined: Jan 2009 Posts: 663 |
Oct 27, 2009 05:31 pm
jancie wrote:
I am going to hop into this thread with another scenario - one that has been on my mind for awhile now but I can't do any surgery until the end of March next year. I had a lumpectomy. Has anyone done implants and lift after a lumpectomy? I would love for my breasts to be bigger and of course point north again. Chemo, Surgery and Radiation completed!
Diagnosis: 12/30/2008, IDC, 4cm, Stage IIa, Grade 1, 0/5 nodes, ER+/PR+, HER2- |
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Lilah Joined: Jul 2009 Posts: 89 |
Oct 27, 2009 07:20 pm, edited Oct 27, 2009 07:26 PM
by Lilah
Lilah wrote:
Jancie -- This was posted on the "Invasive Ductal Carcinoma and DCIS in Same Breast" thread I've been watching... similar idea (though it involves breast reduction after / as part of lumpectomy rather than an implant)... you should consult a PS with your question as well as your oncologist. London-Virginia wrote: <<If one has a lumpectomy and breast reduction (both sides) as I have, then the DCIS would/could be picked up too. But this is no negative comment on anyone else's circumstance because we are all very different. This op works well with larger breasted girls who are therefore likely to be lucky with clean margins. It isn't available everywhere. It is more commonplace in the UK than the USA, as far as I know. Don't know about other countries. It has been a good op for me, but there is quite a lot of healing to be done which is quite slow. When having reduction or lift, to begin with you are very numb. Then the nerves come back to life. (I have not had implants - mine is reduction and lift). No effect on arm muscles or anywhere. I could start weight lifting again really and probably ought to! Does this info help at all? feel free to ask more. My path shows that I started with DCIS which became IDC. Which is commonplace. >> Cheers, Lilah Diagnosis: 6/2/2009, IDC, 1cm, Stage IIa, Grade 3, 1/17 nodes, ER-/PR-, HER2+ |
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unklezwifeo
Joined: Aug 2009 Posts: 965 |
Oct 27, 2009 07:24 pm
unklezwifeonty wrote:
You will not lose much sensation in a lift/reduction. In a mastectomy the loss of sensation is almost total. Onty
Diagnosis: 7/31/2009, IDC, 3cm, Stage IIb, Grade 3, 1/9 nodes, ER-/PR-, HER2- |
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cookiegal Joined: Sep 2009 Posts: 326 |
Oct 27, 2009 07:30 pm
cookiegal wrote:
I had bi lat reduction with lump about two weeks ago. PS said you can lose, maintain, or gain sensation. I am very happy with the shape and size. It is a lot of incisions and stitches and I have had more than the usual amount of pain. |
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London-Virg
Joined: May 2009 Posts: 827 |
Oct 27, 2009 07:30 pm
London-Virginia wrote:
RE : nipple sensation: I didn't lose any. I had lumpectomy (left breast) and breast reduction on both breasts in the same operation. The shape is great. I was 34 H, and I reckon I am probably about 34 D or E presently. But they may settle down a bit more so I may go smaller. The ledt (lumpectomy) side has been left slightly bigger as it may shrink a bit during rads. I did NOT have an implant or increase in size. I would recommend this procedure butbe aware, there is a lot of healing afterwards. best wishes to all xxxxx Straight lumpectomy with simultaneous reduction : Mastopexy. Virginia.
Diagnosis: 5/9/2009, IDC, 2cm, Stage IIb, Grade 3, 1/2 nodes, ER+/PR+, HER2- |
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LT1203 Joined: Oct 2009 Posts: 6 |
Oct 29, 2009 05:40 pm
LT1203 wrote:
I'm scheduled for reduction on my good side on Nov. 23, 2009. The idea is to reduce the good side to match my DIEP-reconstructed post-MX side. Can anyone give me a sense of what recovery time there will be? Diagnosis: 10/31/2008, IDC, 3cm, Stage IIb, Grade 2, 3/20 nodes, ER+/PR-, HER2- |
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LT1203 Joined: Oct 2009 Posts: 6 |
Oct 29, 2009 05:45 pm
LT1203 wrote:
To respond to the original poster, I chose single mastectomy because the other breast was healthy. I understand that there is a risk of nipple sensitivity loss, but I am still happy with my choice to only have the single-side mastectomy. My belief is that I will be happier with one reduced, natural breast (w/o nipple sensitivity) and one DIEP-reconstructed one, than I would have been with two reconstructed ones, but that is my own personal feelings. For people who are not BRCA positive, I don't think a dbl mastectomy is warranted, but I understand the fear. I just don't think for me that it would have been worth it to remove something that might never get cancer. Diagnosis: 10/31/2008, IDC, 3cm, Stage IIb, Grade 2, 3/20 nodes, ER+/PR-, HER2- |
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sweatyspice
Joined: Sep 2009 Posts: 95 |
Oct 29, 2009 10:37 pm
sweatyspice wrote:
Thanks, everyone - this is very helpful! Diagnosis: 8/2009, DCIS, Stage 0, Grade 3, ER+/PR+ |
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Lilah Joined: Jul 2009 Posts: 89 |
Oct 29, 2009 11:03 pm
Lilah wrote:
Hi LT -- I don't know abou the recovery (I haven't gotten there yet) but I did want to comment that from what I've been told by doctors and by people who have had reduction surgery, you don't necessarily lose all nipple sensitivity. It varies from person to person, but it seems that most have some or even most of their sensitivity still, when all is said and done. Cheers, Lilah Diagnosis: 6/2/2009, IDC, 1cm, Stage IIa, Grade 3, 1/17 nodes, ER-/PR-, HER2+ |
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Nedeza Joined: Oct 2009 Posts: 87 |
Oct 30, 2009 12:32 am, edited Oct 30, 2009 12:33 AM
by Nedeza
Nedeza wrote:
Hi Lt1203: Thanks for that post regarding your choice to have only a single MX. I know there are ladies out there who have chosen to have a bilat. for their peace of mind but as my doctors indicated to me and assured me my other breast is healthy. There was no reason for to remove it other than for personal choice. If anything I am now considered at risk so I will be monitored more closely. My decision could have been different if there were any questions regarding my healthy breast but fortunately tthere were none. Diagnosis: 7/20/2009, DCIS, Stage 0, Grade 1, 0/0 nodes, ER+/PR- |
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London-Virg
Joined: May 2009 Posts: 827 |
Nov 7, 2009 08:15 am
London-Virginia wrote:
Linda- good luck for your op on Nov. 23rd. Healing time etc : well, different people have different experiences. Also, healing tends to be slower if you are doing chemo, which I don't think you are. REmember that quite a lot of flesh gets moved around, so you will find that you are numb for some time, then the nerves start coming back and can be a bit painful, with weird little explosion-feelings! It is a good idea to ask the surgeon, or onc or whoever how you might avoid too much scar tisue and whether you migh do some massage to help. The op incision is roughly one inch upwards from where the breast attaches to the chest wall and I expect you will have the anchor type incision. I had little bruising visible, but it feels sore and I used Arnica cream in case there was sort of dee pbruising. I was sore in the "tail" area, which is between the breast and under your arms (this is muscles I think, not related to nodes). I had no problems moving my arms abou t very wuickly, though you won't want to reach too high. I could drive within a couple of weeks but it did hurt going over speed humps! Enquire about getting suitable dressings to reduce scarring. You won't want them to begin with, but they do work very well later. I have full nipple sensation and actually my surgeon said she doesn't have much trouble with saving nipples. It is apparently all a bit random because whilst I assumed that most people's breasts are of a similar design, it turns out that nerves etc etc just exist where they feel like it!! There is quite a bit of swelling initially, so don't worry about size to start with as things will settle down. The numbness starts wearing off in different bits of the breast so that's quite random too. Good luck with everything - Virginia.
Diagnosis: 5/9/2009, IDC, 2cm, Stage IIb, Grade 3, 1/2 nodes, ER+/PR+, HER2- |
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