Feb 5, 2010 07:40PM Suze wrote:
Hi Tabby - and sorry you're going through this.
Your story sounds exactly like mine: my impants never behaved from the get-go, and finally I had them explanted three weeks after the exchange surgery.
I never had a fever the whole time, either. And I had the same issues re the morning/night thing, esp if I flew. The redness and swelling took months to go away, even after the implants were removed and long after I was done with all those courses of abx.
I then spent 10 weeks under an infectious diseases physician trying every antibiotic on earth, but to no avail (I even had a PICC line for 6 weeks). They'd start out fine and within a few days things would be back to where they were. The swabs never grew anything, and the general consensus was that maybe it wasn't an infection after all but a massive inflammatory response (something to do with cytokines, I forget now).
I was very sick and off work for the whole time from December to April. Not nice.
I hate to say it, but I think you need to brace yourself for things not having a great outcome. Implant infections (if that is what it is) are notoriously hard to beat. Not impossibe, but from what I understand things go badly more times than not.
Re using your own fat and tissue: you know, your infection risk may not be any higher (I don't know for sure, but you should investigate) because you're not putting a foreign object into your body.
I haven't been able to wear contact lenses since then (my eyes now basically reject them) and have had all sorts of minor but weird allergic reactions, as well as bad patches with asthma. I wonder if what I had was an allergic thing of some kind. Probably will never know.
How horrible for you to go through this twice.
PBM w immediate implant recon Sept 08; infection 10 days following exchange; delayed SIEA April 2010Dx 9/1/2008, LCIS, Stage 0, Grade 1, 0/2 nodes