I'll start w/some background history. When my Mom was 50 she was diagnosed with Breast Cancer and had a mastectomy. In August my 1 sister was diagnosed w/Invasive Lobular Cancer and had a bilateral surgery. All types of cancer runs in my family. Father died of Brain Cancer, his father died of stomach cancer, then Mom had it, eldest sister has skin cancer (and never laid out in the sun a day in her life), and now my 1 sister has breast cancer. Leaving my brother and I the only ones w/out cancer. I also should have mentioned that my Sister and my Mom were tested and they have BRCA 1 and 2. So my geneticist decided that at this point it was unnecessary to test me.
Well 5mths ago, I started have a pain on the right side of my right breast and towards my armpit. I could feel a lump. So after my sister was diagnosed w/breast cancer and went to an oncologist ASAP. They sent me ASAP to a Mamo, ultrasound then biospy all w/in a time span of 3 days. It turned out to be a fibroadenoma. Great news. However, the pain is still there at the site of the fibroadenoma and it has gotten a lot worse. So painful to the touch and now the surrounding area is also getting very sore and painful. My oncologist sent me back in for another ultrasound yesterday and the radiologist said he didn't see anything abnormal and that he still only saw the fibroadenoma and nothing else odd. However, while doing the ultrasound he quickly found out just how painful it really is to me! As he was scanning the area, I just about jumped off the table in pain. He was very surprised to see how really painful this was causing me and was unable to give me any insight as to why it would be so painful. He said it doesn't make sense to him but the would sent the report onto my oncologist and let her make the decision. He said that the pain would probably just resolve itself. Which doesn't make ANY sense to me since the pain just continues to get worse!
I can't lay on my right side anymore, I can hardly wash that area b/c it hurts so much. When the pain started out 5mths ago it was just a little discomfort, nothing really unless and really pushed hard on the nodule and even then it was just at a level of discomfort, not pain. Over the mths is has really progressed into horrible pain that is 24/7. Carrying groceries and even my purse hurts.
I don't know what to think anymore. I'm scared that there might be an underlying breast issue other than this Fibroadenoma. Or might it just be that the Fibroadenoma itself is causing all this pain? Does anyone have suggestions for me? Or what this might be? Thank you so much.
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awb Joined: Aug 2005 Posts: 2,764 |
Oct 29, 2009 12:28 pm
awb wrote:
Considering your family history and that your mom and sister are BRCA positive, I would insist on removal of the fibroadenoma, just to make absolutely sure there is nothing more serious going on in there along with it. I would also insist on genetic testing to find out your status. (you could still be negative even though your mom and sister are positive). Knowing your status would probably help you to make decisions in the future. Anne "I don't know what the future holds, but I know who holds the future"
Diagnosis: 9/5/2003, LCIS, Stage 0, 0/0 nodes |
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Estepp Joined: Jun 2008 Posts: 3,796 |
Oct 29, 2009 12:41 pm
Estepp wrote:
I can tell you that I had a Fibroadenma. Had it biopsied at age 26-28... and that darn thing hurt like heck until my mast. NO JOKE. It really hurt as my period came close. I was told , a long time ago.. they could take it out for me and that would rid the pain... but if I just left it in there it would stop hurting on its own as my body stopped producing estrogen. Estrogen spikes is what makes them hurt. I remember if I would have three glasses of wine at a party.. WOW.. hurt hurt hurt... now I know alcohol spike estrogen... Well.. YEAR later I got BC... and I had them take the healthy breast too.. the one with the fibro... so.. no more pain for me... I did not have hormone positive BC either.. I was 100% Her2. Anyway... I hope I helped.. I just had surgery yesterday.. so I am a little "off" do to demerol...LOL... PM me anytime if you wanna chat about the Fibro stuff.... Laura We are the Ta Ta Sisterhood! Her2+ BC is what I had.... and yes sisters.. I had lymph node involvment... DX 6/25/08 www.estepps.blogspot.com
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kibbles Joined: Mar 2009 Posts: 94 |
Nov 2, 2009 01:27 pm
kibbles wrote:
I have/had 6 fibroadenomas (two were removed; we're monitoring the others right now). I am in my early 30's. One of the fibros that was removed hurt severely. The pain would be associated with my fibrocystic pain with my cycle, and would be aggravated by the usual fibrocystic triggers. But this fibro ached and felt heavy. It felt like a burning, aching pain. I couldn't touch it and wearing a bra around the area hurt. It was like this for 5 months, and then the pain went away. A few months later I had it removed because it grew in size slightly. Turned out to be a benign fibroadenoma. Another fibro was very tender but did not have the kind of pain this one did. Now my remaining 4 don't hurt at all. I have found immense reduction of my breast pain by cutting out all caffeine and eating very little dairy products. Dairy products are a huge breast pain trigger for me. Dairy affected my fibros too. |
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momof1 Joined: Nov 2009 Posts: 4 |
Nov 13, 2009 03:26 pm
momof1 wrote:
I just had a biopsy 2 weeks ago. Benign. I haven't gotten the copy of pathology yet (hopefully next week) but I think mine was either a fibroadenoma or a pappilloma (sp?) However, whichever one it was, it was extremely painful. I can't tell you if the removal helped because I'm still fairly swollen and the excision sight is still very tender. As with Kibbles, mine also fluctuated with my menstrual cycle. I'm a high risk so I chose to have it removed just to be positive. My theory is that if it's not suppose to be in there then why leave it? |
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