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Dec 20, 2012 12:53PM cinvee wrote:
I posted this on another spot, but now think it is better suited here. I hope thats ok.
I had bilateral lumpectomies with wire localization for ALH yesterday and am very sore, but it's manageable. Because of the holidays my BS said it could be next Wednesday before we receive the results :(
Here is my story so far. I went for a mamogram on Oct 17th, my first as I am 41 with no family history at all, and received a call back the next day. Went in for a second look and they ordered ultrasound as it seems I have extremely dense fibrocystic breasts. Went for ultrasounds, bilateral, and they took over 300 images and said it was a new office record! (not sure I am proud of that) They then ordered biopsies for the following week.
The biopsies. wow, not fun for me. I ended up having a stereotactic biopsy, 3 ultrasound guided core needle biopsies and an aspiration in one visit. It took over 5 hours and was a very long stressful day. The radiologist and ultrasound tech were fantastic and so supportive that day. It really was the only thing that helped me get through so much in one day especially being "new" to the whole BC scare thing. I was mildly sore and extremely bruised for over two weeks. The results came back with:
a) ***STAT *** (Left) Flat Epithelial Atypia and Focal Atypical Lobular Hyperplasia in a background of Fibrocystic changes and Columnar Cell Change. Numerous foci of microcalcification present
b) Fibroadnoma (Left) (this is the good one!)
c) Mild Stromal Fibrosis and Focal Duct Ectasia (right)
d) Focal Atypical Lobular Hyperplasia in a background of fibrosystic change (right)
Yesterday I had the lumpectomies on A and D. My BS was able to get clear margins and I am feeling pretty good this morning. I have been told I will take Tamoxifen and I am not sure how I feel about that. I have also been told I will have an MRI in January, and will be on the 6 month alternating MRI/Mam ride.
My quesitons are what do you think? What has your expierence been with Tamoxifen? Anyone have a similar experince and find out they have LCIS? All I can think is going through this every 6 months? Heck no. My PCP said he does NOT want me going through this 2 times a year. If this all comes back fine next week, and they even hint at more biopsies etc next year I will absolutely look at more aggresive options. I am a single mom with a great, but demanding job. I am dreading going through the holidays without answers!!!!!
Thanks for your time :)
ALH/ADH bilateral, FEA left. In the last year: 4 core biopsies, 1 stereotactic biopsy, 2 lumpectomies, hysterectomy and right side oophorectomy. Tried tamoxifen, didn't go well. Close watch and prayers at this point