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All TopicsForum: Just Diagnosed → Topic: Timeline from Mammo to Surgery

Topic: Timeline from Mammo to Surgery

Forum: Just Diagnosed — Discuss next steps, options, and resources.

Posted on: Aug 5, 2007 09:07AM

trigeek wrote:

Hi,

This is my first posting. I have had an abnormal mammogram on the 25th of July showing a 2.1 cm lesion and got a core biopsy on the 1st which showed infiltrating lobular carcinoma. The surgeon thinks it is stage 1 or early stage 2 but will not know more before the surgery.

I am trying to work my way through the medical maze as quickly as possible trying to find onc, surgeon... you know how that goes. and with every ticking of the clock I am panicking.

They have scheduled me for MRI and meet an oncologist that will take another week, then the surgeon wants to see me again( has not scheduled surgery yet and it will be 3 weeks since the mammo ). Is this system moving too slow or is it me ? As I know the beast is certainly not taking time off in the meantime.

Thanks in advance, I am soo happy that I found this board. Log in to post a reply

Posts 1 - 14 (14 total)

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Aug 5, 2007 09:19AM sahalie wrote:

From what I've read on the boards, we all have different time lines.
I found the lump February 10, 2006
Bilateral Mastectomy April 10, 2006
Major interruption due to dental work during the summer between chemo rx's. (I believe chemo brings out all the things that can go wrong due to our immune system being bombarded)
One side effect was a gland on my thryoid became enlarged and shot my calcium levels to the moon so I had to have the gland removed in March of this year.

In my own personal situation as soon as I found the lump it was a weekly straight road to each specialist and surgery.

Be your own best advocate and call your doctors with any and all questions and concerns.

I wish you all the best and speedy surgery to recovery.
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Aug 5, 2007 09:52AM Mom42July2007 wrote:

As Cheryl says, everyone is differnt! From timelines to actual procedures performed. I'm new to this also, Dx on July 18th. These threads have been a life saver...read through them and educate yourself. On your visit with either surgeon or onc, ask for a copy of the Path report...I was given this advise and it's great to have. Also, check out this guide to path report...it's great!http://www.herceptin.com/herceptin/docs/pathology_report.pdf

In my situtation everything has moved very quickly, but that was on my request...so I knew my path forward before my kids go back to school in early September.

I started a personal BLOG of this new journey
http://me-myjourney.blogspot.com/
I have my timeline so far....did this to help stop all the phone calls!

Again, important thing is to educate yourself on BC and speak up with all your wishes to both surgeon and onc team!!!

Best of Luck and keep us updated with your journey!!
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Aug 5, 2007 05:53PM MargaretB wrote:

I went in for my oroginal mammogram on December 16, 2004; was called back on Dec. 21 and December 23, 2004 received my results. Met with the tumor board on January 7, 2005, and had my bilateral on March 10, 2005. Everyone told me that by the time the tumor is discovered, it's usually been in your body for 8 - 10 years.

Good luck with your journey.

Margaret

Dx 12/23/04, Bilateral w/tram 3/10/05, DD chemo 5/12/05, finished 6/26/05

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Aug 5, 2007 06:16PM NicRic wrote:

I had the 'bad' mammogram on 6/30, the biopsy on 7/6, received the diagnosis of bc on 7/10. I would have had surgery on 7/31 but I am a candidate for mammocite and my surgeon was leaving on vacation on 8/1 and would not be there to do the follow-up procedures needed for the mammocite. So I'm scheduled for 8/14. Basically, 6 weeks from mammogram to surgery. I'm really ready to get the surgery over with. I'm also very curious at how this timeline works for Canadian women. I'm a Canadian citizen and an American permanent resident. I had only marginal health insurance (I call it catastrophic insurance and I'm not sure at all at how well they would have paid) prior to getting married in June. Having good health insurance is what prompted me to have a mammogram after 3 years. Like I said, I'm really curious as to how the timeline progresses for Canadians.

Nicole

Dx 7/7/2007, IDC, <1cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Aug 5, 2007 06:30PM Stack wrote:

my family doc found mine on aug 24th then ordered a mammo a week later, then ordered a ultrasound for the next week when she seen the mammo. the following week after all tests were back, i was sent to a surgeon for the core biopsy. that was on the 19 of sept. i finally had a lumpectomy on sept 23 and a mast on oct 5th. so in my case it was approx 4 weeks for them to get all the info gathered to determine what treatment i would need

Dx 2005, 3cm & 1.5cm IDC w/DCIS, Stage II Grade III, 0/5 Nodes, ER+,PR-,HER2-

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Aug 6, 2007 04:11AM TerryNY wrote:

trigeek, I found out I had cancer on Feb 13th of this year and had my lumpectomy on March 29th. Discovered the lump myself on 2/4, had an appt with my gyn on the 8th...had my mammo that same day with an US too.
While I understand the reasoning of not wanting to wait too long, I just wanted to get the damn thing out!, I also wanted the surgeon in my area who was considered the best at what he does. His first available appt was March 29th so I waited for him.
TAke this time to educate yourself on all the options and find the best drs you feel comfortable with. That lump isn't going anywhere, unfortunately, but it isn't (most likely) not growing by leaps and bounds either.
Good luck with all the decisions and check back in often...this site is a wonderful place for information or just venting.

Terry

Dx 2/13/2007, IDC, 1cm, Stage I, Grade 3, 0/7 nodes, ER-/PR+, HER2-
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Aug 6, 2007 07:32AM kathy8429 wrote:

trigeek, I am in the same boat as you are. I feel like this is taking forever. The doctor found the lump the middle of May. The original mammogram and U/S didn't show anything. I went to a Breast Centr for a second opinion on July 5. Biopsy results July 18 and they still have not scheduled the surgery. I meet with a plastic surgeon today and hope to have a date before I leave the office...we'll see

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Aug 6, 2007 12:58PM Shirlann wrote:

Remember gals, when breast cancer is large enough to be found by ANY MEANS, it is 8 to 12 years old. So with a very few exceptions, a few weeks is not that important. It is more important that you educate yourself, make sure you are making informed decisions, and calmly plan treatment.

IT took my group 3 months to diagnose me and then they thought I had Lymphoma. They sent my slides to White Plains, NY to a specialist and I had/have a sub-type of breast cancer called Medullary. Less than 5% are like this.

So don't rush, don't panic, get Dr. Susan Love's Breast Book, read only as far as you need to (the later chapters can scare you). Take a tape recorder with you to all appts. and get copies of your path reports. Start a file.

This gives you more control and a feeling of participation in the decision making.

Gentle hugs, Shirlann
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Aug 6, 2007 01:06PM Chattypatti wrote:

I agree with Shirlann. A few weeks is not that long of a timeline in the scheme of things here. My cancer was years old before I found it. I found a lump in December and had my mastectomy surgery in March, so my timeline was 3 months. However a lot happened in between with several doctor appointments, a biopsy, lumpectomy, etc. Don't panic! It just seems like time is standing still while the cancer is not. Hang in there.
Patti
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Aug 6, 2007 01:20PM dkmaustx wrote:

I had my regular Mammogram on Dec 5, 2006. when they found something "suspicious" that couldn't be seen on the previous year's, and I started through this process. I had a Breast ultra sound on Dec. 12; the mass was still "suspicious", and I had a needle Biopsy with my Surgeon on Dec 19. After he told me the results of the Biopsy on Dec 22, we scheduled my lumpectomy on Jan 4, 2007.

Things were really moving fast for me during that month. January was another blur month except for the 4 days we had an ice storm and stayed in the house the whole time. I picked an oncologist and luckily the center where he worked is the closest one to my house. By the end of January I had had the port installed and started Chemo.

Debbie M

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Aug 7, 2007 12:19AM mtlion322 wrote:

I agree a couple of weeks either way, won't matter! I had a ckup 11-06 nothing! In 06-07, I started having breast pains! The mammo and u/s did not show anything, I actually had to feel around were the pain was and show them! I have lobular cancer and the lump is so deep inside it does not like to rear its ugly head! I just had a bil masectomey 07-07. I went from 1 cm to 2.1 cm after surgery and that is when they found cancerous cells in my other breast!

I just try to tell everyone, do bse, but dig, I know mine was small, but it is very scary and I have no ideal how long it was there, but it sure did not happen overnight!

My prayers to all of you girls!

Cindy McLean

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Aug 7, 2007 06:09PM geebung wrote:

Shirlann, you really taught me something in your post - about the age of a breast cancer when it is first diagnosed. 8 - 12 years! That means I could have been in my late 30s when my DCIS first started to grow? Scary! Makes me wonder what's happening in my other breast.

Dx 2/26/2007, DCIS, 6cm+, Stage 0, Grade 3, 0/2 nodes, ER+/PR+
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Aug 8, 2007 10:24AM Shirlann wrote:

Oh honey, just keep going in for your mammo's and try not to let this thing run your life.

It is hard the first couple of years, you have lost all confidence in your body, and it takes months to get over that. The dang thing let you down big time and you just don't trust it any more. We all feel this way.

So hang in there, don't jump ahead to things that most likely will never happen. It is amazing to me after 8+ years on this board at how few women have anything happen in the other breast. But that is good news for you.

Gentle hugs, Shirlann
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Aug 8, 2007 05:28PM geebung wrote:

Thanks Shirlann for those comforting words. Most of the time I don't think much about a recurrence in my other breast (maybe I do subconsciously as I dreamt the other night that I put on my new mastectomy swimming costume and it didn't cover my scar!) but you are right, I am unlikely to get it again with my history. I think I am still just trying to process what happened earlier this year. But thanks for giving me a gentle tap on the shoulder. Things could be so much worse and I am grateful to get off as lightly as I have.

Dx 2/26/2007, DCIS, 6cm+, Stage 0, Grade 3, 0/2 nodes, ER+/PR+