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Topic: Nurses with Breast Cancer

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  • Posted on: Sep 16, 2008 09:53 am
Owings Mills, MD
Joined: Sep 2008
Posts: 241
Jo_Ann_K wrote:

I'm newly diagnosed, but I have noticed in all my readings and on various bulletin boards that there are a lot of nurses, including myself, who have breast cancer.  It may be nice for all of us to have our own space.  After all, because we are health care workers, people think we don't need as much information or need the same TLC as non-health care workers.

Thanks!


Dx 9/5/2008, DCIS, <1cm, Stage 0, Grade 1, / nodes, ER+/PR+

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cwrightrn
Spokane, Wa
Joined: Jul 2009
Posts: 48
Jul 19, 2009 07:30 pm cwrightrn wrote:

Hello everyone...I'm new to the website and so glad I found this leg of the forum!!  I have been an RN for 18 years....med surg for a few years, oncology for 4 years then telemetry, dabbled in IV therapy and recovery room and have been in the Cardiac Intensive Care unit for the last 5 working full time nocs, 12 hour shifts. I had been doing charge nursing and working on the rapid response team and had 2 sentinel events in December (prior to diagnosis) caused by the same CRNA that I had to go to tons of meetings for....nothing like a little stress, right?  And YES, night shift was my risk factor for breast cancer- ugh!!  (I had an aunt who had bc but a different type and my BRCA was negative). My manager has been very supportive and I took short term disability at diagnosis...being superwoman I thought I could work but when everyone was crying, including some of the Dr's I knew I couldn't do it.  In fact, now that I'm done with mastectomy and facing more chemo with rads the Dr said I could go back BUT I work in a cesspool of germs and have opted to shift to long term disability (I don't need ssdi yet).  My hospital will hold a job in house til July of next year so I have time....and my manager has assured me a job on my floor (thankfully).  I haven't read all the pages of this forum but was wondering if any of you went back to full time nocs?  I'm hoping to go back after the first of the year.  My unit will allow me to work 4 hour shifts to start and work my way back....just not sure what to do.  I have inflammatory breast cancer and the risk of recurrence in the first few years is very high and working full time would help my family in case I need to go on SSDI.  I have a friend on my unit that battled bc and is 5 years out and she is glad she came back to our floor, despite the stress because of the great patient care.  She thought I would be frustrated if I went to a less stressful but higher acuity area say like tele.  So that's my scoop....thanks for listening and for your thoughts...

Carole 

We are a family of FAITH, HOPE and LOVE!
Dx 2/11/2009, IBC, 5cm, Stage IIIb, Grade 3, 6/15 nodes, ER-/PR-, HER2-
cwrightrn
Spokane, Wa
Joined: Jul 2009
Posts: 48
Jul 19, 2009 07:46 pm cwrightrn wrote:

PS...my best friend from work was an oncology asst manager for years and had never heard of inflammatory breast cancer--who would think something could pop up overnight but it did (and was bad!). So we don't know everything....she has been a godsend to me though with all my appts and helping me with info, being another set of ears when I couldn't hear at the beginning of diagnosis). AND, one of my good friends that I graduated nursing school with was diagnosed a few months after me--YIKES!!

We are a family of FAITH, HOPE and LOVE!
Dx 2/11/2009, IBC, 5cm, Stage IIIb, Grade 3, 6/15 nodes, ER-/PR-, HER2-
anne26
Joined: Jun 2009
Posts: 31
Jul 20, 2009 02:18 pm anne26 wrote:

I know what you are going through. For I work with only breast cancer patients. I am stuggling to return to work with is population. How are you coping. I found is difficult to llive this everyday and never get a break. any suggestions.  I am here if you need someone who understands  keep strong anne

peg119
Joined: Jun 2009
Posts: 53
Jul 20, 2009 02:38 pm peg119 wrote:

I am a Public Health Nurse and was diagnosed with DCIS in May 2009.  I have had two lumpectomies (lat one July 8) because my mammogram still showed calcifications.  I had never heard of DCIS before diagnosis.  The plan is for radiation once I have a clear mammogram.  It is confusing because my path. reports from the two lumpectomies were negative even though they had calcifications in them.  The surgeon is sure he got them all this time but that is what he thought the first time so it is wait and see.  I have to heal some before I have another mammogram.  I will also be starting on Tamoxofen although if this continues to be postponed I may be post menopausal and be able to go on something else.  I have been almost 5 months without a period.  I feel like am handling things okay but all support is appreciated.  I have also joined the Michigan Survivors group. 

lorijo1993
Elkmont , AL
Joined: May 2009
Posts: 40
Aug 16, 2009 12:00 am lorijo1993 wrote:

Hi, I have been posting primarily on the July Chemo group had looked on this thread but did not see any updated post, but I need to talk to nurses, you all know what I am going through, I am a CCU RN x12 years before that I was med/surg and at one time even gave chemo, I have been an RN for 24 years, I was dx with IDC with a 8mm tumor, in April;l, I had a lumpectomy and SNB, then all hell broke loose....one node positive, because the cancer looked aggressive my ONC insisted on bilat mastectomy, my PS refused to do tissue expanders unless he knew my breasts were cancer neg and no one could believe a 8mm tumor would shoot of to a node so I next i had a right radical node dissection and SNB on the Left side. then a week later bilat mastectomy with tissue expanders. I am now on chemo, taxotere and Cytoxan, round 2 of 4. I have been out of work for over 2 months when my manager said I would loose my position if I stayed out threw out the course and i was running out of FMLA days, so, I went back to work. I have worked 4-12 hour shifts so far and it hasn't been that bad, but I am now being pushed to work a schedule ( I had been calling and telling them when I feel like working) Chemo knocks me out for over a week. then I try to work at least 2 day the other weeks


Dx 4/4/2009, IDC, <1cm, Stage IIa, 1/2 nodes, mets, ER+/PR+, HER2+
mbarnes
Joined: Sep 2008
Posts: 6
Aug 16, 2009 09:12 am mbarnes wrote:
This Post has been removed by the Community.
susanb2
Joined: Jul 2009
Posts: 79
Aug 16, 2009 05:17 pm susanb2 wrote:

Hi lorijo,

It's too bad they want you to commit to a schedule when you are dealing with the chemo. If your place is like my place, they can use help most any day you are available. Can you have your chemo scheduled in advance then work your schedule around that? Maybe you could commit to a day or two, then work in other days when you feel better.

  Is there another area at your hospital that may be more understanding of how you feel with the chemo that would be more flexible?

Good luck with the schedule.

2Hands4me
Ca
Joined: Jan 2009
Posts: 168
Aug 16, 2009 08:02 pm 2Hands4me wrote:

Hi lorijo - so sorry to hear you need to work so many 12 hour shifts. I could barely make it through 8 hrs when I went back 2 months after a right mastec. But my surgeon thought I should have been able to go back to work after 2 weeks! We're all different and you need to take care of yourself during this stressful time, physically and emotionally. Hopefully your manager will understand - or can you trade days with co-workers if they are more understanding? I would encourage you to be persistent to get a schedule you can work with. I'll be thinking of you!

I can do all things through Christ which strengtheneth me. Philippians 4:13 His Hands hold me up!
Dx 1/8/2009, IDC, <1cm, Stage I, Grade 3, 0/5 nodes, ER-/PR-
lorijo1993
Elkmont , AL
Joined: May 2009
Posts: 40
Aug 16, 2009 09:57 pm lorijo1993 wrote:

thank you foor your concern, the group I work with is wonderful and very helpful, but management  is only for the money, I only have 2 more treatments and the side effects haven't been that bad, I just have a extreem malaise for about a week after chemo. I love being a CCU nurse but it is a  hard job.


Dx 4/4/2009, IDC, <1cm, Stage IIa, 1/2 nodes, mets, ER+/PR+, HER2+
anne26
Joined: Jun 2009
Posts: 31
Aug 18, 2009 03:44 pm anne26 wrote:

Be kind to yourself, I am a breast cancer nurse and I returned to work with a limited schedule. You may find it is harder to work post treatment, take your time and make sure you have a lot of support. Nurses think they are superwomen, be kind to you, work will wait. I feel for you. think positive, anne26

billiegirl
Born & Bred in Seattle; lived in Boise since 2006, Id
Joined: Jul 2006
Posts: 68
Aug 18, 2009 04:21 pm, edited Aug 18, 2009 04:23 PM by billiegirl billiegirl wrote:

I read a book a while back...Women of Silence:The Emotional Healing of Breast Cancer

I did not necessairly agree with everything the author suggested but did find it very interesting and  many descriptions of the typical Breast Cancer woman sure hit the nail on the head as far as my life and personality were concerned. Just one of many non-medical concepts out there. Interesting correlations between the high rate of breast cancer in women who are the fixing, caring, nurturing type and those that tend to take on the emotional pain and stress of others: ie nurses etc. There have also been ongoing studies/correlation between those who work the grave yard shift and their melatonon levels. Most night jobs for women are in nursing.

Billiegirl
LISAMG
NY
Joined: Jul 2009
Posts: 158
Aug 22, 2009 10:05 pm, edited Aug 22, 2009 10:20 PM by LISAMG LISAMG wrote:

Hello Friends,

How wonderful to find a forum just for nurses! I am fairly new here to the site and perhaps, a bit of an outsider as well. A former long time critical care nurse, I currently work in a pre-surgical ambulatory unit. I am a seasoned R.N. with 25 yrs. in the profession and I do not have breast cancer...yet, anyways. Rather, I am a Previvor who has a predisposition to hereditary breast/ovarian cancers. Having multiple cases of pre/post menopausal BC/OVCA on both sides of my family, I tested Un-informative Negative for the BRCA genes about 3 years ago. Since then, 2 affected family members also tested negative. Clearly, the genetic cause and/or gene is out there somewhere...over the rainbow, but not identified, or so I am told. I have a personal history of multiple breast biopsies, all benign thus far. I am currently contemplating a BSO to reduce my risk for both cancers.

If anyone here thinks they may also have a hereditary predisposition to breast and/or ovarian cancers, I encourage you to visit www.facingourrisk.org for support and/or to seek further information. We are an amazing community that has 24/7 access to hotlines, message boards, newsletters, & local outreach support groups all over the country. I am also the Outreach Coordinator for Long Island. If I can assist anyone at all for available resources in the LI/NYC areas, please do not hesitate to contact me. Any woman under the age of 50 with a BC diagnosis with a weak/strong family history may also have a hereditary pre-disposition, especially if you are triple negative and/or have an aggressive tumor. OVCA at any age may also be a red flag for genetic origin as well. So, I am glad to be here among peers who have walked the path and/or had difficult journeys. You are all heros and I deeply admire your determination, strength & courage.

Thanks,

Lisag@facingourrisk.org

cwrightrn
Spokane, Wa
Joined: Jul 2009
Posts: 48
Aug 28, 2009 01:23 am cwrightrn wrote:

Lorijo--I was shocked to read you would lose your job.  Don't you have medical/personal leaves of absences?  I can be off for up to a year without losing my job--but I work in a huge facility.  I too am a CCU RN.  I have a friend at work who took a year off for breast cancer treatment and has successfully returned to work but has reminded me NOT to work night shift and watch the stress level...especially in CCU.  My only risk factors for breast cancer were 18 years of night shift and working in a stressful environment! Hang in there!

We are a family of FAITH, HOPE and LOVE!
Dx 2/11/2009, IBC, 5cm, Stage IIIb, Grade 3, 6/15 nodes, ER-/PR-, HER2-
DebZaz
Mesa, Az
Joined: May 2009
Posts: 18
Aug 28, 2009 01:32 am DebZaz wrote:

I am not a nurse but my sister was and she passed away in 2/08 from mets to the bone.  Now I have mets to bone, liver and a mass in my chest.  I would just like to say that I think Lynn (my wonderful sister) felt that she had to be stronger because she was in the field.  I wish so badly that she had been more open about what she needed.  I always felt somewhat helpless because she just dealt with it.  I tried to see what she might need and I think sometimes I got it right but please remember that your family and friends do want to help and reach out to them.  I miss her every single day and wish I could have done more.

Hugs and prayers to all.

Debbie

Debbie from AZ
Dx 12/24/2008, , Stage IV, 4/14 nodes, ER+, HER2-
susanb2
Joined: Jul 2009
Posts: 79
Aug 28, 2009 09:11 pm susanb2 wrote:

Debbie,

Sorry to hear about your sister and about your mets also. As nurses we are so used to taking care of everybody else, it is hard to ask for help. Thanks for encouraging us to reach out. I'm sure your sister appreciated you looking to see what she needed. You probably got it right more often than you know.

Good luck to you.

dreaming
Joined: Apr 2007
Posts: 126
Aug 29, 2009 03:48 pm dreaming wrote:

There is one for people that work on the medical field. Not many posting .


Dx 7/7/1995, ILC, 1cm, Stage I, Grade 1, 0/18 nodes, ER+/PR+, HER2-
OmahaGirl
Long Island, NY
Joined: Jul 2008
Posts: 348
Aug 29, 2009 11:36 pm OmahaGirl wrote:

I haven't posted on this thread for a while, but as a BC patient I found it extremely comforting that my Dr. is a cancer survivor and so is his nurse, she has has a bilateral mx. and so has my Radiologist!

I felt their compassion and I felt like they would make better choices for me because we had this disease in common. Now if that is true or not I don't know but that is how I felt. I had to tell them to talk to me as if i wasn't a nurse because I was totally in the dark about BC. Just wanted to share that with those wondering about returning to oncology, I can't say what it will be like for you or if it will be like living CA, all the time, but I think it will be a comforting fact to your patients. Just my 2 cents.

Linda ( add pleomorphic LCIS bilateral to my diagnosis)
Dx 5/30/2008, IDC, <1cm, Stage Ia, Grade 1, 0/4 nodes, ER+/PR-, HER2-
2Hands4me
Ca
Joined: Jan 2009
Posts: 168
Nov 2, 2009 05:17 pm 2Hands4me wrote:

My left mastectomy is scheduled for 11/10 - only a week from tomorrow. So many last things to do this week! This is the path God has for me right now, and He provides the peace I need to keep moving forward without too much stress. I'm thankful for the friends and family support I have also! Hope everyone else is doing well.

I can do all things through Christ which strengtheneth me. Philippians 4:13 His Hands hold me up!
Diagnosis: 1/8/2009, IDC, <1cm, Stage I, Grade 3, 0/5 nodes, ER-/PR-
Che54
San Antonio, TX
Joined: Jun 2009
Posts: 16
Nov 2, 2009 05:29 pm Che54 wrote:

Wonderful...a place just for us! I'm retired now, but back when the world was young I was Chief Flight Nurse for a Helicopter Trauma Program in Texas and Nurse Manager of the Trauma Center.

Like many, I started out with a dx of DCIS this past May but surgical pathology showed microinvasion so I'm now officially IDC (or, according to some, DCIS with microinvasion!). I had L mx with immediate MS2 free Tram Reconstruction. I'm now scheduled Nov. 25th for my 2nd phase surgery. Happy Thanksgiving....and I do mean that seriously! I just hope I can get checked out Thanksgiving morning and back home for the football game....and being fairly concious would be a plus!

Does anyone here have any experience with Phase 2? I'm having lipo on my hips, dog ear revision, lipo on the new breast for shaping and an implant on the right for symmetry. Any info would be greatly appreciated!


Diagnosis: 4/22/2009, IDC, <1cm, Stage I, Grade 3, 0/5 nodes, ER+/PR+, HER2-
2Hands4me
Ca
Joined: Jan 2009
Posts: 168
Nov 3, 2009 07:38 pm 2Hands4me wrote:

Che 53 - I can't speak for the reconstruction and this forum hasn't been especially active. If we keep posting, it stays on the active list where more will find it but.... You might want to go to the "Reconstruction" forum and ask there. I know there's one for November Surgeries there also. Hope you get some answers!

I can do all things through Christ which strengtheneth me. Philippians 4:13 His Hands hold me up!
Diagnosis: 1/8/2009, IDC, <1cm, Stage I, Grade 3, 0/5 nodes, ER-/PR-
Che54
San Antonio, TX
Joined: Jun 2009
Posts: 16
Nov 3, 2009 07:44 pm Che54 wrote:

Thanks, 2Hands4me....I've posted there and am awaiting the words of wisdom:-)


Diagnosis: 4/22/2009, IDC, <1cm, Stage I, Grade 3, 0/5 nodes, ER+/PR+, HER2-
iodine
TN
Joined: Oct 2002
Posts: 7,682
Nov 10, 2009 12:44 am iodine wrote:

Hi, new here, but not the boards.  Retired, graduated 1964, del. rm., med. surg., trauma/ER, USAF flight nurse,pt. ed, discharge planner(one of first nurses in US), independent case manager/rehab nurse/consultant.

About lipo: hurts like hell.  Just saying, you may be too loopy from meds to watch the game. Be sure to WALK--watch for clots.  I had my abdomen done before BC , and after mast and 2 times reconstructed, the second PS did lipo on my back fat, and sides, plus provided inframammary fold under the mast side and balanced it on the good side.  That wasn't too bad, but the abdomen was tough.

Dotti---BE NOT AFRAID, Pope John Paul
mimi1964
Cullman, AL
Joined: Oct 2009
Posts: 62
Nov 10, 2009 05:56 pm mimi1964 wrote:

Hi All I'm new here but not to the boards.  I have been on the board since early October.& I was dx on Oct. 22, 2009 and had surgery on 10/29/09.  I had a right breast lumpectomy and sentinel node biopsy.& I have been off work for almost 2 weeks recovering.  I have been an LPN for 27 yrs.& I am the Director of Nursing at an Assisted Living Community.  I spent 24 yrs in a Nursing Home environment and was a MDS Coordinator and Care Plan Coordinator.  I have never worked in a hospital setting.  I have been having to learn alot about breast cancer because there were many things I  didn't know.  I'm glad I found you all.

Renee
Diagnosis: 10/22/2009

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