Jan 27, 2009 12:30PM, edited Jan 27, 2009 12:44PM by leaf
Hi there. I don't have ADH, but I have LCIS and ALH. I do have ductal hyperplasia, but its not atypical.
There is no one path that is right for everyone. We are all individuals.
Some women with ADH do like to get their slides re-read (if they weren't read at a Major Institution) because ADH can be confused with DCIS, and they are treated differently.
Have you been excised? I think they normally like to do that. (It is optional for ALH and LCIS in some circumstances.) They often like to excise becase sometimes they find something worse in the area.
Yes, tamoxifen can have side effects. But do realize there are VERY FEW medications where EVERYONE has a certain side effect. (I'm a pharmacist.) I am not saying that tamoxifen is for everyone.
Different studies will have different numbers. I am not sure if you are worried about the most severe side effects,the possible stroke and endometrial carcinoma issues.
Here's what the Mayo clinic says about tamoxifen http://www.mayoclinic.com/health/drug-information/DR601293
It is an individual choice. Part of it is emotional. We do not know what the possibility of breast cancer means to you emotionally, and what the possibility of blood clots or endometrial cancer mean to you. We don't know your family history, or your other personal risk factors for each condition. They may influence your decision.
My oncologist says that cancer is like looking for something with a flashlight in a room with no light. You can see part of the picture, but not the whole picture. You are often given choices because there are unknowns.
You do have the option of taking tamoxifen for a while, and if you don't like it, you can stop. Some people like that. But others choose not to go on tamoxifen, or choose tamoxifen no matter what. There is NO CORRECT choice - there is only the choice that is right for YOU - that only you can decide.
If you look at the antihormonal forum, you may get a distorted view - many people post when they do have problems with a medication, but are much less motivated to post when they have no problems with a medication.
I'm sure this chart won't come out properly,but it is from the Nolvadex package insert p 14 It is comparing the women who took tamoxifen in high risk situations vs the women who took placebo. There's more to this, but its really hard to post.
If you're going through hell, keep going-Winston ChurchillDx 12/8/2005, LCIS, Stage 0, ER+/PR-Hormonal Therapy 07/15/2006 Tamoxifen