Hi All, I'm in shock. Went for mamo/US today. They did an immediate biopsy. Said definitely cancer....won't know type until results come back tomorrow. At least stage 3, won't know if stage 4 until more tests are done. I'm devastated. I was convinced I felt way to good to have cancer before going to appointment. I wondering because its so advanced how much the decreases prognosis of survival for very long. Also wondering if any of you know about what cases they usually require different types of chemo....i'm really hoping its the one that doesn't result in hair loss....i know its stupid...but i have really long thick itialian pretty hair and it will just be so much even more devastating to loose that and a masectomy. I'm just in shock. No history in my family. Just shock!
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1Cathi Joined: Jul 2007 Posts: 1,385 |
May 7, 2009 02:06 pm
1Cathi wrote:
Oh Ameron so sorry to hear this for you -shocking I am quite sure to say the least, I know it's easier said then done, but take a deep breath, there are so many unknowns for you right now (stage, grade, type etc) that to know what coarse of treatment the DR's will recommed is near impossible. Like you I also had no family history of BC (other CA however), it really slaps yeah in the face when you hear those words. Praying for you!!!!! xoxoxoxoxo "Sexy is Defined by Attitude" - "Not Bra Size!" **** Bilat Mastectomy 10/17/08 No Recon
Dx 6/25/2006, ILC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+ |
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Texas357 Joined: Oct 2008 Posts: 758 |
May 7, 2009 02:57 pm
Texas357 wrote:
Like Cathi said, deep breath! It's easy to become overwhelmed right now. First get all of the diagnostics out of the way so that you've got a better idea of what you're dealing with. Then you can start considering your next steps. Otherwise the "what ifs" will drive you crazy. Like you, I felt on top of the word physically and emotionally just before I was diagnosed. I felt like I was in tip top shape, ate well, was a good weight, had no family history, got annual mammograms and then -- how the heck did Stage 3 sneak up on me? Try not to look at statistics or the prognosis, because those numbers are based on what medical science did for women 5-10 or more years ago. Today you get the benefit of the newest treatments, which promise even better outcomes. Sorry you had to join us on this journey, but it IS do-able. My advice is to create a support group. Friends and family, as well as a medical team you trust, will be your biggest asset. DX 9/08, ILC, Stage 3A, ER+/PR+, HER2-, 7/13 positive lymph nodes
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DaffyB Joined: Jan 2009 Posts: 7 |
May 7, 2009 03:26 pm
DaffyB wrote:
Hi Ameron. It is a shock when you hear it. I was dignosed with Stage 3 in January. It took me several weeks just to process the idea. My health otherwise is great. It is so hard to believe that there is something seriously wrong. I've been in Chemo since mid-January, and if it helps, I still feel fine. They've come a long way in controlling side effects. I took other's advice and cut my hair short before chemo started. It made it easier for me when it started falling out. I think that's a very personal choice. I wasn't blessed with long thick hair, so the choice for me wasn't so tough. I can say this, finding wigs is really fun. The women at the shops are wonderful and very good at selecting wigs that suit you. I have fun with scarves, but especially love hunting down different hats in boutiques. I try not to look at the statistics. They are only numbers and can never tell you where you fall. And, as Texas357 says, it is very Do-able. |
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Sharon51 Joined: Jan 2007 Posts: 9,381 |
May 7, 2009 03:45 pm
Sharon51 wrote:
Ameron, so sorry you've had to join the club that nobody wants to belong to. But you've found a wonderful source of support and information on this site. Yes, do try to take some deep breaths. You will get through this one step at a time. Start making a list of all your questions...........take them with you to your next appt. And if possible, don't go alone..........it's good to have someone else take notes of the answers. Gentlest of hugs. |
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Jeansbeans Joined: Jul 2008 Posts: 168 |
May 7, 2009 04:14 pm
Jeansbeans wrote:
Hi Ameron, I am so sorry to hear your news and wish you didn't belong to this "CLUB" but you do now and you couldn't be with more wonderful, supportive, encouraging and BRAVE women! You need to sit down and just relax and clear your foggy mind. Take each day as it comes, educate yourself as much as you can once you get all your results back and you know what you are dealing with. Do you have a strong and supportive family? You will need them to help you on this long journey. Let us know what your plans are so we can prepare you and guide you. God Bless you, you need to stay strong. Gentle Hugs, Jeanie Dx 5/12/2008, IDC, 1cm, Stage I, Grade 1, 0/4 nodes, ER+/PR+, HER2- |
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1Cathi Joined: Jul 2007 Posts: 1,385 |
May 7, 2009 07:43 pm
1Cathi wrote:
Hi Ameron, hope your still reading this post - I wanted to tell you that Susan Cheek has a great support group/s and counselor . Right directly across the hall if you go in there you will get some very good assistance. Again please PM me if I can help in anyway, I am a work from home gal come and go as I please, we are neighbors and I am only about 15 minutes from Powell,I would be VERY HAPPY to help in anyway I can. BEST WISHES. XOXOXOXOXOXOXO "Sexy is Defined by Attitude" - "Not Bra Size!" **** Bilat Mastectomy 10/17/08 No Recon
Dx 6/25/2006, ILC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+ |
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ameron Joined: Apr 2009 Posts: 49 |
May 7, 2009 10:40 pm
ameron wrote:
All...thanks so much for the kind words and support! This is just so surreal.....I'm sure I'll post tomorrow after I get my biopsy results. Thanks again. |
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apple Joined: Dec 2008 Posts: 1,207 |
Jun 2, 2009 10:47 pm, edited Jun 3, 2009 09:09 AM
by apple
apple wrote:
i was wear you.. - what a sudden shock. it's so devastating at first.. to cry and cry.. and worry.. gosh. I'm in my second round of chemo.. and have just a bit of soft sparse hair. I am at the place tho, where i can feel really beautiful with different makeup.. people stare.. but not because i have hair, because if have eyes from outer space. (liquid eyeliner) Treatments have come a long way... i expect to last. It's been a year since my diagnosis and I'm happy... pretty much the same person i was before except i think about cancer all the time. Dx 5/10/2008, IDC, 5cm, Stage IIIc, Grade 3, 4/9 nodes, ER+ |
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SusieMTN Joined: Jan 2009 Posts: 137 |
Jun 3, 2009 04:32 pm
SusieMTN wrote:
ameron wrote: Just wanted to share how I got thru my diagnosis, I cried when I needed to but did not let it take over, I knew if I did I would never stop. Then I focused on my treatment instead of the horribleness of having cancer, I didn't think I would ever have cancer either, my focus was kind of like OK, this is my first treatment good done with that, whats next..... thru every step of treatment It helped me keep my attention on where I was going. I also made a game out of seeing if I could make my Nurse's laugh, laughter is good for all of us, that kept my attention outward and not stuck on me. I don't know if this makes sense to you or if this would work for you but this is how I dealt with it. The whole hair thing I chose to buzz my hair as it made me feel like I was getting rid of it rather than Chemo taking it, believe it or not it was somehow liberating! I grew to love my bald head. I loved my long hair too but just felt losing it was a "step" and it meant the Chemo was working. I got into beautiful scarves and hats, didn't want to wear someone elses hair, so no wigs for me, but that is just me. Best of luck to you and please PM if you like. We are here to support each other! When I grow up I want to be an old woman.......
Dx 7/22/2008, ILC, 6cm+, Stage IIIb, Grade 3, 2/3 nodes, ER+/PR+, HER2+ |
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DancingDeb8
Joined: Jun 2009 Posts: 5 |
Jun 7, 2009 10:45 pm
DancingDeb81 wrote:
I'm still numb. diagnosed 5/29 biopsy report said "infiltrating carcinoma w/ lobular and ductal features, grade 2/3 no definate in-situ components seen. Went to see surgeon, had MRI friday...waiting for results. I have oncologist appointment next Monday. My surgeon said that I would have surgery by the end of this month. As the days go on, I seem to be getting more scared then the day before. If I have mastectomy how do I know reconstruction is right for me? Everyone keeps telling me that I'm too young not to. |
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Emily2008 Joined: May 2008 Posts: 401 |
Jun 10, 2009 09:11 pm
Emily2008 wrote:
Aw, Deb, I'm so sorry for your diagnosis :( As far as recon, only you can know what the right thing is for you. Many women decide based on their age (as in, "I'm only "X" years old, I want to have breasts.") Others choose not to recon b/c of the pain and difficulty of surgery. In my case, when I understood how much was involved with recon, at first I thought there was no way I could do it. But, I'm 36, and love having breasts! To me, they help define me as a woman. It was a hard decision, especially as I have three kids and was afraid of the down time surgery would bring, not to mention, risks. But in the end, I decided that being as whole as possible to me meant having recon. I'm very glad I did it. As you know, there are many women who don't. You should read their thoughts, too, on the Breast Prosthese and Reconstruction Alternatives board. Good luck with this very personal decision. BRCA 2 pos.
Dx 5/14/2008, IDC, , Stage I, Grade 1, 0/5 nodes, ER+/PR+, HER2- |
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TexasKaren Joined: Sep 2007 Posts: 251 |
Aug 4, 2009 10:17 am
TexasKaren wrote:
Ameron: I am two years out from the same diagnosis as you, with no hint of trouble or family history. I got lucky; the tumor, although large and in 14 of 22 nodes, was contained, and I only had a lumpectomy, chemo and radiation. I am doing absolutely fine now, my hair has grown back more thick and luxurious than I've ever had hair before (I agree with Susie above; bald is very liberating and can be fun actually!), and all the terror, pain, and disbelief are gone. We are like marines, honey; women are so very much stronger than we are given credit for. We adapt, we improvise, and we overcome (there's a fourth one there, but I forget what it is..) We all here are SURVIVORS, and you can do it too. I pray for all my BC sisters every day, and you are added to the list. Texas Karen
Dx 8/21/2007, IDC, 1cm, Stage II, Grade 2, 8/14 nodes, ER-, HER2- |
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deborye Joined: Aug 2007 Posts: 1,281 |
Aug 7, 2009 09:59 pm
deborye wrote:
DancingDeb81, You last posted on June 7, how are you doing??? PM me if you want. Debbie NEVER GIVE UP/NEVER SURRENDER
Dx 3/23/2007, IDC, <1cm, Stage Ib, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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lonestar Joined: Jul 2009 Posts: 1 |
Aug 25, 2009 11:47 am
lonestar wrote:
Hello Everyone. I am new here. Personally I wished I wasnt here at all but I bet everyone wishes that. I just hope I can find my way back here. My life has been insane and more insane to say the least.. Between my ex husband taking my child and not bringing him back,being layed off my job, and this breast cancer, I am on pins and needles and do not know which one to fight first... Realistically speaking I have to fight the breast cancer first and the ex all at the same time..I am so overwhelmed and then they tell me I am that Herp 2 positive with very aggressive stage 111 breastcancer. Am I going to make it through this? I am not even sure anymore... One blessing in all this is I am going through MD Anderson and thats the only blessing in this....My treatments begin in three days. They tell me we will begin the iv injection with chemo and Herceptin given once a week for 12 weeks, after the 12 weeks then I get the three chemos IV injection once every three weeks for another 12 weeks, then after that surgery,then after that radiation. They said this one is absolutely necessary with a 90 percent survival rate. I am so overwhelmed. I am remarried but we really need both incomes and I cant even function well enough to figure out how to do this. When I apply for jobs they dont want me because of the cancer.Its more like well contact us when your better,right now we need someone who can be here all the time without the risk of lost time. So I have been having alot of ups and downs with this and treatments has not even started yet. They say the key is to stay positive but its hard when you have to fight your ex just to get your child back when he is like a rabid pit bull fighting at the end of the chain and a lost job...So what do you do... It's like Breathe,step,breathe,step,breathe,step, all the while the ex is hoping you'll die just to get his way.. It's no fun...Well now I stepped in to here and welcome any advice.... |
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rreynolds1 Joined: May 2009 Posts: 162 |
Aug 31, 2009 04:24 pm
rreynolds1 wrote:
Hi Lonestar, Please find peace in your life. Meditate, go for a walk, be with friends, watch a funny movie. Give your body live signals. The doctors will take care of you medically, but you need to take care of your spirit. You CAN get through this but you may need to add positive things and people to your life. Don't isolate and stew on what you cannot change. If your feeling depressed, talk to your doctor and he/she may prescribe something to help you. This is tough and we all need help from time to time. Congratulations for reaching out. Roseann |
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LizzyGirl15
Joined: May 2009 Posts: 21 |
Sep 4, 2009 12:46 am
LizzyGirl15 wrote:
Lonestar: When I was dx with stage 3 triple negative VERY aggresive cancer, I was unemployed. I was lucky that I was paying for health insurance so that was taken care of but like all of us, we need money to survive! I spent a lot of time researching and planning and this is what I put together. The first thing I had to digest was that this was going to be the BIGGEST battle of my life. And this battle takes time (plan on 2 years). And it takes strength and focus. So I decided not to work. I reviewed all my finances and eliminated/reduced expenses. And I filed for Social Security Disability Insurance. It takes time and maybe in your case, you will want to hire a lawyer (there are many that will work your case and when you receive the back pay check, they take a percentage). In most cancer cases, they get approved and if you work fast and hard on your case, you will have that income. You can also apply for SSI which is based upon your financials and may give you a check earlier than SSDI. You are legally allowed to make $900 a month at a job and not be penalized. I would also apply for foodstamps and medicaid if you do not have health insurance. In regards to your child...can you find an advocate in your family to help you be your voice to fight and get him back? I would think that if a judge knew of your situation, they would reconsider custody and give you 50/50. Make sure that you get your medical records for both SSDI and for your custody case. They will be your proof that you deserve both in your life! I know that things can feel SO overwhelming and you don't even know where to begin. And when you look at the whole picture, you can feel both emotionally and physically exhausted. And all of this just plain sucks. But I promise you that if you fill your life with love, future plans, and stay in the moment, you will find your path that will bring you to the other side. LizzyGirl15 Lizzy Girl
Dx 4/1/2009, IDC, 6cm+, Stage IIIc, Grade 3, / nodes, ER-/PR-, HER2- |
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moonbuddy Joined: Sep 2009 Posts: 42 |
Sep 7, 2009 11:19 pm, edited Sep 7, 2009 11:21 PM
by moonbuddy
moonbuddy wrote:
I just wanted to add something that a lot of people don't know about. My own terror i will post at a later date. This is just something i know because i've been in social work all my life. If you are on SSDI then (even if you don't normally meet the limits) you can BUY medicade to be your medicare back up insurance through the Working Healthy Program in your state. This is country wide. Go to whatever your welfare office is called and ask to speak to someone about Working while on Disability and specifically ask about the Working Healthy Program. It's run out of the University of Kansas, for statistics and such. It's proven that people will pay for medicade and try to better themselves, so it's unlikely to be cut as it helps pay for itself. You must work at least enough to have FICA taken out of your check. Thats not much, really. Yes you can make up to 940 or 980 this year, can't remember. What you pay, is based on your and spouses income. I am divorced and live alone so i pay at different times 55$ a month and others $83 dollars a month. Not bad for getting your prescriptions pd. for and picks up what medicare doesn't. After getting SSDI you have to wait two years from your first check to get medicare. In the meantime, you may qualify for medicaid on it's own. Just some information. Working has saved my sanity and the Working Healthy has saved my pride! |
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