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Topic: I think I'm driving my hubby crazy!

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  • Posted on: Jun 30, 2009 07:38 pm
Las Vegas, NV
Joined: Mar 2009
Posts: 365
kittycat wrote:

I was just dx 2 weeks ago.  I'm going through all these appts and tests.  I should get my gene test results this week.  My pathology came back as inconclusive on hormone receptors because the tissue they took on the biopsy was too small.  Then, I looked into sick leave for work and was disappointed to hear I'm 3 months shy of my 10 year with the company, so I can only take one week off (before using vacation or short term disability).  The PS is on vacation, so I am going for a consult with another PS that a friend used and highly recommended.  I just want to know the facts. 

My god-daughter was supposed to come stay with us for a month starting next week.  I had to make a decision to have her out here or not.  She is 17 yrs old, so she's not a young child.  However, I didn't want the extra responsibility of someone else to take care of.  My husband wasn't happy with the decision, but I think he's understanding why. 

I broke down yesterday because all of this is becoming overwhelming.  Only a couple people at work know, so it's hard.  I feel like I can't make any future appointments.  Everything is tentative. I have so many demands at work.  I feel exhausted.  I tried to tell my hubby this.  He wants to "fix it" like men tend to do.  I just want him to listen.  I'm trying to stay positive, but I am scared. 

I'm glad I found this site.  Everyone here has been so kind!  :)

DX with DCIS on 6/17/09
Posts 1 - 17 (17 total)
lindasa
Joined: Aug 2008
Posts: 1,496
Jun 30, 2009 07:59 pm lindasa wrote:

Oh Kittycat, you're at the most frustrating and scary stage of this whole bc "trip"!  Of course you broke down -- who among us here hasn't??!  And you're right -- men do want to "fix" things and make the problem go away, but they too feel frustrated because they can't.

I'm hoping you and your dh are habitually open and honest with each other about your feelings, because now is the time you really need to talk freely with one another.  And please don't feel you have to "stay positive" -- goodness, that's just a whole lot of added stress that you don't need.

We're all here for you, and we DO understand!

Hugs, Linda


Dx 1/10/2008, ILC, 1cm, Stage I, Grade 3, 0/4 nodes, ER+/PR-, HER2-
kittycat
Las Vegas, NV
Joined: Mar 2009
Posts: 365
Jun 30, 2009 08:07 pm kittycat wrote:

Thanks Linda for the kind words.  Yeah, I've had a rough couple years.  My dad passed away suddenly early last year and my sister was dx with BC in October.  I would have never imagined I'd be going through this at 39.  Thankfully because of my sister, my surgeon kept putting me through tests! 

My hubby and I are very honest with each other.  He's scared like I am.  I like how you said I don't have to "stay positive"!  I feel like I'm putting on a smiley face all the time.  Most of the time I know in my heart I will get through this.  However, I wake up every day like it's Ground Hog Day and the BC is still there!!! 

DX with DCIS on 6/17/09
pshelton
Bel Air, MD
Joined: Apr 2009
Posts: 137
Jun 30, 2009 08:35 pm pshelton wrote:

Hi Kittycat,

You are where I was just a short time ago.  I cried all the time, it would just come out of nowhere and hit me sometimes.  It still does once a day at least.  My boyfriend has been incredibly supportive and is taking wonderful care of me and I can't believe I haven't run him off yet.  He has a very positive attitude about this whole thing, I'm the one who thinks worst case scenario all the time.  I was glad to have my job which is also very demanding, I didn't have time to think about this while I was working as I'm a critical care nurse.  Always have someone go with you to your appointments and have them keep notes, your husband, a friend, etc.  Don't be afraid or feel guilty for breaking down, this is all scary stuff and its normal to do it.  There's tons of wonderful support here, I come here everyday, you'll make lots of friends here and there is always someone just one step ahead of you to share what they went through.  Hugs, Paula 

Paula S.
Dx 2/26/2009, IDC, 2cm, Stage IIa, Grade 1, 0/3 nodes, ER+/PR+, HER2-
kittycat
Las Vegas, NV
Joined: Mar 2009
Posts: 365
Jun 30, 2009 09:07 pm kittycat wrote:

Thanks Paula!  Yes, having a demanding job is good sometimes.  Unfortunately, I have to work from home sometimes.  Then, I start thinking about this stuff.  I know I'm lucky that they found it very early.  I really do remain positive most of the time.  I'm starting to lean towards getting a lumpectomy to get the nodule out and deal with the pathology results.  I hate this waiting game.  Not only do I feel like I'm driving my hubby crazy, I feel like a nuisance to my doctor! 

I had a chance to go out with a girlfriend that I've never done anything with before (her boyfriend is a good friend of my husband's).  We had a nice girl's night last night.  We talked about some medical stuff she's been going through recently.  It was nice to just talk. 

It's good to read other people stories and understand this process.  Good luck to you.  I'm glad you have a wonderful boyfriend!

DX with DCIS on 6/17/09
pk0199
Calgary, AB
Joined: Oct 2008
Posts: 443
Jun 30, 2009 09:23 pm pk0199 wrote:

Well Kittycat, I hate to say but you are normal! None of this is easy to go through. Yes, you have the "good" kind of breast ca, yes your prognosis is very good, yes everything is going to be fine, blah blah blah... I don't care what kind of breast ca you have, it takes a toll on each individual. There are so many emotions you are going to go through and your husband too. Be true to yourself, allow yourself to have these emotions and break downs because trust me, holding them in and being "brave" only makes it worse. Tackle each day as it comes and lean on only those who deserve to be on your support team (not everyone who wants to be on your team will be good for you, only keep those who are).

I wish you all the best and keep posting and getting support from the ladies here, they are truely wonderful.

PS don't forget medicinal chocolate on those down days!

Penny


Dx 9/23/2008, DCIS, 2cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+
kittycat
Las Vegas, NV
Joined: Mar 2009
Posts: 365
Jun 30, 2009 09:34 pm kittycat wrote:

Thanks Penny!  I know what you mean about people being on your team.  Some people just can't comprehend this stuff or they want to live in La La Land.  I'm pretty realistic, so those folks drive me nuts!  :-)

I love the chocolate, but love the wine even more!  LOL!!!

DX with DCIS on 6/17/09
pk0199
Calgary, AB
Joined: Oct 2008
Posts: 443
Jul 1, 2009 08:45 pm pk0199 wrote:

Chocolate and wine, now we are talking!


Dx 9/23/2008, DCIS, 2cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+
simmonba
Toronto, ON
Joined: Jun 2009
Posts: 41
Jul 2, 2009 01:43 pm simmonba wrote:

Hi Kittycat - been there too and still am some days.  Partner, kids all terrific.  But it's always hard to ask for help. From my own experience, I woudl encourage you to let people at work know what's going on.  This is an awesome extra group of supporters and sometimes it's easier for people to help you when they know you professionally - there's a bit of detachment.  Plus they all know someone who's been there and they can give you good stories, and cook food, and help with the family when you need it. 

Hang in there and hugs.


Dx 4/17/2009, IDC, 1cm, Stage IIa, Grade 2, 0/4 nodes, ER+/PR+
spar2
OK
Joined: Jan 2004
Posts: 5,958
Jul 2, 2009 05:38 pm spar2 wrote:

Kittycat, glad to meet you.  The beginning is the hardest part.  the husband may end up surprising you with his strength during the long haul.  I just found out last night after 5 years (he didn't tell me, he told a life support group) that he prayed and prayed that he needed me more than God did right now to please let him keep me.  I had no idea because he never said anything.  Men handle things so differently than women.  You will find strength that you never knew you had.  Always be willing to ask your family and friends for help.  they do want to help but most don't know what to do.  I am praying for you and wishing you the very best.  Keep driving him nuts and tell him you just want him to listen and hear what you are saying.

All of my friends are right inside my heart
kittycat
Las Vegas, NV
Joined: Mar 2009
Posts: 365
Jul 7, 2009 07:13 pm kittycat wrote:

Thanks for the kind words.  My manager has been extremely helpful!  I'm getting more questions answered and I'm trying to navigate this whole process.  My husband has been a big help, too. 

DX with DCIS on 6/17/09
kittycat
Las Vegas, NV
Joined: Mar 2009
Posts: 365
Jul 7, 2009 07:15 pm kittycat wrote:

My husband has been trying to understand that sometimes I just need him to listen.  He's been really great and encouraging me.  He's very scared, too.  We went to another doctor's appt yesterday.  We had to end our vacation a little early to go (left at 5 am and made it on time).  It was great to have him there.  :)

DX with DCIS on 6/17/09
glanter
Mount Pleasant, SC
Joined: Sep 2005
Posts: 31
Jul 7, 2009 07:20 pm glanter wrote:

I saw in a earlier post that you said your PS is on vacation.  Remember you are in charge of your care.  If there is another PS in your area that you can consult with just to get information or get the ball rolling...you should.  Please take your hubby with you, also a note pad and pen, that extra set of ears is invaluable.  Then sit back and really think about what you want...how you want things to turn out...and make your decisions from there.  Or you may decide to wait, whatever you choose is perfectly fine.  It's alot of information to process, just make sure you are an informed consumer....you get all of your options and YOU make the choices. 

kittycat
Las Vegas, NV
Joined: Mar 2009
Posts: 365
Jul 9, 2009 04:21 pm kittycat wrote:

Glanter, funny you should mention that.  I did take matters in my own hands.  I went and met with a PS that my husband's coworker recommended.  He fixed some issues she had with her bilat + recon.  She had a staph infection and so many complications with another PS.  She ended up seeing this PS and loved him!  So, we met with this PS on Monday (that the appt we went to).  My husband and I both really liked him, too.  He answered a lot of my questions.  I have a lot of understanding over this stuff because I've had breast aug and my sister just finished recon.  The only problem is this PS is not contracted at the same hospitals as my BS.  So, I'm getting another consult with another BS that he highly recommends.  I felt kind of strange doing that, but this is my body!!!  I should have some answers by next week.

My hubby has been so helpful.  It's been great to have him on dr appts with me because he asks some tough questions.  Plus, after 10 years of marraige, he knows what matters to me!  :-)

DX with DCIS on 6/17/09
glanter
Mount Pleasant, SC
Joined: Sep 2005
Posts: 31
Jul 10, 2009 05:52 pm glanter wrote:

Hooray!  I'm so glad you found a PS you are comfortable with and have such a supportive spouse.  Changing BS is definately your decision and it's a great idea to make sure both of them can work together to perform immediate reconstruction.  You're making great decisions and having your sister to help answer recon questions will be valuable as welll.  Keep us all posted!!)

kittycat
Las Vegas, NV
Joined: Mar 2009
Posts: 365
Jul 14, 2009 01:19 am kittycat wrote:

Got my gene test results today.  I tested positive for BRCA 1 gene mutation.  I visited with another surgeon today.  He was much more informative than my current breast surgeon.  One of the things he brought to my attention was the dense tissue they found in my left breast.  My BS never looked into that.  Nothing showed up on the MRI, but still it's a concern.  He works with the plastic surgeon I liked.  I meet with the other PS on Wednesday.  I'm definitely having a bilat mast.  I'll make my decision on who I choose and dates hopefully by end of this week. 

DX with DCIS on 6/17/09
bluemo_mo
Joined: Jul 2009
Posts: 1
Jul 14, 2009 01:42 am bluemo_mo wrote:

I am glad you found someone that you like and can trust. i just signed up today this is all new to me and im still freaking out not knowing, playing the waiting game.

kittycat
Las Vegas, NV
Joined: Mar 2009
Posts: 365
Jul 14, 2009 09:01 pm kittycat wrote:

I visited my OBGYN today.  I'm sure the entire medical community thinks I'm nuts.  My hubby said I obsess.  I told him that he looks stuff up over and over again on the internet, so I don't want to hear it!  We're both a little OCD!

My OBGYN said that other patients have complained about the breast surgeon I've been seeing, saying she doesn't have the best bedside manner.  I'm really leaning toward this other doctor.  He seemed to fit my needs better.  I'm still going to see the other plastic surgeon, just to get his opnion.  I'm very glad I have a PPO! 

DX with DCIS on 6/17/09

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