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Topic: Bone Scan for Breast Cancer Patients

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  • Posted on: Sep 12, 2009 03:48 pm
Joined: Oct 2008
Posts: 22
angelcakes wrote:

When you were first diagnosed with breast cancer, did your doctors recommend for you to have a bone scan as well to make sure that the cancer did not spread to your bones?  I just wanted to know does doctors make all people who have been newly diagnosed with breast cancer to have a bone scan as well just to be on the safe side to make sure that the cancer did not spread to the bones?

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Posts 31 - 43 (43 total)
SherriG
America
Joined: Jan 2005
Posts: 5,292
Sep 17, 2009 06:25 pm SherriG wrote:
I guess what we can take away from this thread is all of our docs have their own ideas about what should be recommended and what should not.  My onc is one in a practice of 8 oncs.  His speciality is breast cancer.  For him, the standard of care is to get baseline scans for all bc patients.  I personally am very thankful for that.
Angelcakes, don't be alarmed at your onc requesting this scan.  It is very common with breast cancer patients.  Hang in there.
Diagnosed 11/05/04 Stage 3 ILC "Lump is a four letter word!" Sherri
Liane
Georgetown, TX
Joined: Aug 2009
Posts: 118
Sep 17, 2009 06:52 pm, edited Sep 17, 2009 07:36 PM by Liane Liane wrote:

I just finished up several days at MD Anderson (#1 Cancer Center in US according to US News&World). Maybe their practices has some bearing on this discussion. I can only speak for my situation.  They ordered a bone scan as part of my workup.  They told me during registration that a schedule of tests had already been set up for me but that I should not make plans based on the tests as the Dr. may add or remove tests once he reviewed all my tests and info from the original diagnosing center. I'm going to side with believing there is value in this test.  He did not schedule a breast MRI which surprised me as so many of you seem to have had that as a matter of course.  So I am fairly confident that the tests chosen were made partly as standard practice but with the understanding that the Dr. would have the last word on what tests he wanted.


Diagnosis: 9/1/2009, IDC, 2cm, ER+/PR+
QueenK
Joined: Jun 2008
Posts: 218
Sep 18, 2009 02:18 pm QueenK wrote:

Dawnn, I have a feeling that I agree with you.I think we should all really go with what our doctors suggest. I really think it is kind of a put down when someone says "I know I did everything I could".Every case is individual and if your oncologist sent you for scans,fine.If someone elses did not, maybe there was a reason.

These blankets statements do not help anyone.We are all doing the best we can with the guidance from our practitioners.

I did not have scans either.My oncologists take is that it opens up a huge can of worms.Such as seeing things like scarring that are not related to breast cancer.

Anyway

Marybe
Cincinnati, OH
Joined: Apr 2009
Posts: 536
Sep 18, 2009 08:41 pm Marybe wrote:

    After my initial diagnosis I had a mastectomy and they removed 19 lymph nodes, all negative.My tumor was very small .9 cm.   I had a bone scan two years after that which was negative.  I later stupidly switched oncologists because I thought it would be nice to go for dr's appts with my mother.  This one did not do bone scans and when I asked why she said because it was so small and that I had no lymph node involvement.  She still did not do a bone scan when I started complaining about pain in my chest and it wasn't until two years later when I was still complaining and told her she had to do something that she ordered one.....a little too late because by then it was very advanced in my sternum and the CT scan that came after that showed cancer in my left lung as well as a spot on my liver.  I then switched oncologists and thanks to that move and still alive 11 years later and I am very thankful for that.  I think if the other onco had done scans earlier the cancer would have been discovered sooner and would not have gone on to my lung and liver...don't know that for sure, but as they say early detection is best. Looking back and thinking what if does no good I know and I am just thankful to still be here, but I think it is good oncos look for things before waiting for symptoms.     

Marybe
Diagnosis: 4/1998, IDC, Stage IV, 0/19 nodes, mets, ER+/PR+, HER2-
swimangel72…
NY
Joined: Feb 2008
Posts: 1,759
Sep 18, 2009 11:26 pm swimangel72 wrote:

Marybe - thank you for sharing your story. I'm so happy your third oncologist has been so helpful for you.

The new mantra for many doctors is "evidenced based medicine". - here's a link describing EBM in detail:

http://en.wikipedia.org/wiki/Evidence-based_medicine

I believe new studies will add to the growing knowledge base (for EBM) and will prove that scans and early detection of mets will help women with BC live longer and healthier lives...............in the words of Dr. McCoy (Bones) from Star Trek, spoken as he scanned a patient with his tricorder reader,  "Jim, I'm a doctor, not a butcher!" Yes Dawn, I'm also a Star-Trek fan. Wink

"Beam me up Scotty - there's no intelligent life down here!"

3/3/08 Right-side mastectomy with immediate muscle-sparing free tram; 3/9/08 Developed abdominal MRSA staph infection and hernia;Completed 4 months Navelbine and 1 year Herceptin; Arimidex - 4 more years! Diagnosed at age 53
Diagnosis: 2/5/2008, IDC, <1cm, Stage Ib, Grade 1, 0/7 nodes, ER+/PR+, HER2+
SoCalLisa
San Diego, CA
Joined: Jan 2006
Posts: 3,433
Sep 18, 2009 11:37 pm SoCalLisa wrote:

speaking of evidence based medicine check out this site

http://breastcancer.evidencewatch.com/  

Life may not be the party we hoped for, but while we are here we might as well dance
swimangel72…
NY
Joined: Feb 2008
Posts: 1,759
Sep 19, 2009 12:02 am swimangel72 wrote: Wow Lisa - that's a ton of info - will make good bed-time reading to help me fall asleep! Thanks for posting the link! Smile
3/3/08 Right-side mastectomy with immediate muscle-sparing free tram; 3/9/08 Developed abdominal MRSA staph infection and hernia;Completed 4 months Navelbine and 1 year Herceptin; Arimidex - 4 more years! Diagnosed at age 53
Diagnosis: 2/5/2008, IDC, <1cm, Stage Ib, Grade 1, 0/7 nodes, ER+/PR+, HER2+
Marybe
Cincinnati, OH
Joined: Apr 2009
Posts: 536
Sep 19, 2009 09:51 am Marybe wrote:

  For all you trekkies.....did you ever see that card where there was this little Scotty dog standing in front of a window and I foget if it was a cat or a dog looking up at the window and the caption....guess?....Beam me up Scotty.   I thought it was so cute. 

Marybe
Diagnosis: 4/1998, IDC, Stage IV, 0/19 nodes, mets, ER+/PR+, HER2-
swimangel72…
NY
Joined: Feb 2008
Posts: 1,759
Sep 19, 2009 12:52 pm swimangel72 wrote:

Hi Marybe - I Googled all over but couldn't find that photo - too bad - it does sound cute!

I like to think that SOMEDAY the big expensive scan equipment we use today will be hand-held like Dr. McCoy's tricorder......

3/3/08 Right-side mastectomy with immediate muscle-sparing free tram; 3/9/08 Developed abdominal MRSA staph infection and hernia;Completed 4 months Navelbine and 1 year Herceptin; Arimidex - 4 more years! Diagnosed at age 53
Diagnosis: 2/5/2008, IDC, <1cm, Stage Ib, Grade 1, 0/7 nodes, ER+/PR+, HER2+
swimangel72…
NY
Joined: Feb 2008
Posts: 1,759
Sep 19, 2009 01:13 pm swimangel72 wrote:

Dawnn.........wow, it sounds like Deja Vu - all over again! Lol - maybe that is why your photo is printing twice? Ooh - watch out - might mean something is wrong within the MATRIX! I'm also a huge fan of all the Matrix movies, lol!

 

3/3/08 Right-side mastectomy with immediate muscle-sparing free tram; 3/9/08 Developed abdominal MRSA staph infection and hernia;Completed 4 months Navelbine and 1 year Herceptin; Arimidex - 4 more years! Diagnosed at age 53
Diagnosis: 2/5/2008, IDC, <1cm, Stage Ib, Grade 1, 0/7 nodes, ER+/PR+, HER2+
swimangel72…
NY
Joined: Feb 2008
Posts: 1,759
Sep 19, 2009 06:00 pm, edited Sep 19, 2009 06:03 PM by swimangel72 swimangel72 wrote:

Dawnn...........PERFECT photo to go with your post! I'm happy you were able to laugh............it's really the best medicine! I'm thinking about switching onc's soon too..........I need to do some research first - I'm getting the feeling that my onc has me coming in once-a-month for blood work just to keep himself in business. I finished all my chemo and Herceptin in April 2009........I need to find out if this once-a-month visit is really necessary. When I complain about other issues (like my cough that won't go away) he does nothing. He even promised me to find a "thinking orthopedic" to talk to me about non-surgical treatments for my hip.......you guessed it.......Nada. The onc I'm thinking of switching to is part of the same medical group as my PCP and ob/gyn........it'd make it so much easier for all my doctors to access my records since this group puts everything in electronic format. Anyway - these thoughts probably need a new thread.......I do ramble on and on, sorry!

3/3/08 Right-side mastectomy with immediate muscle-sparing free tram; 3/9/08 Developed abdominal MRSA staph infection and hernia;Completed 4 months Navelbine and 1 year Herceptin; Arimidex - 4 more years! Diagnosed at age 53
Diagnosis: 2/5/2008, IDC, <1cm, Stage Ib, Grade 1, 0/7 nodes, ER+/PR+, HER2+
Marybe
Cincinnati, OH
Joined: Apr 2009
Posts: 536
Sep 19, 2009 08:36 pm Marybe wrote:

    I used to always have halloween parties and did a theme.....like one year it was MardiGras, another cartoon characters, another time Woodstock.  I think with the hair I have now some sort of a space theme would be great....I don't really have the thighs for those lycra pants, but if I make my pointed collar big enough maybe people won't look down and notice them. Or maybe I could go for the Yoda look. 

Swimangel,  Ramble on....rambling is good. 

Marybe
Diagnosis: 4/1998, IDC, Stage IV, 0/19 nodes, mets, ER+/PR+, HER2-
vikinyc
NY
Joined: Sep 2009
Posts: 5
Sep 25, 2009 08:50 pm vikinyc wrote:

My surgeon had me get a Bone Scan and  CT scan w/contrast of the abdomen and pelvis.

I got these tests after biopsy and before surgery.  He said he wanted to see if everything was clean (it was) and to use it as a baseline.

Cool

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