I had a first lumpectomy and radiation in 1996. 15 lymph nodes removed also.
Now in 2009, 13 years later, same thing, same breast. Just like the first one, but a little higher. I recognized it at once. Very small bump, just under the skin. Like a tiny BB under the skin above the nipple.
I had the tumor removed a few weeks ago, and have been advised that for a second lump, the only alternative is a mastectomy. My path report is pretty good, .9 cm, invasive ductal carcinoma, differentiated 6/9, and not particularly agressive.
I do not want to rush into this, and frankly December would be a much better time than now to have major surgery.
Does anyone know anything about the risk factor after what is basically a second lumpectomy? Lots of people delay radiation, so what is the big deal about delaying mastectomy? Frankly, I am not convinced my risk is all that great, but I cannot find any statistics of course, because everyone does the safe thing and gets a mastectomy. I am willing to do the surgery, but does anyone know anything about the risk of rouge cancer cells spreading through the bloodstream?
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hope123108 Joined: Jul 2009 Posts: 14 |
Oct 31, 2009 11:14 am
hope123108 wrote:
Annl, We all know the decision is yours and only yours. I had a very aggresstive breast cancer that extensively went through the blood stream, per my patholgy report. Although i had neg. nodes. It got out through vascular invasion. I had a dbl. mast. however my Mom also died of bc some years ago and that scares me. Now i know mast. won't save me once it gets out, i did not realize all this when i choose my mast. Kinda had to figure out my pathology on my own. Dr. was not very informative. Would do things different if i could. Take your time in making YOUR decision. Once they are gone that's it. Hope all works out for you!! |
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London-Virg
Joined: May 2009 Posts: 827 |
Oct 31, 2009 11:46 am
London-Virginia wrote:
So sorry you are in this position. I think you are quite right to pause and consider. I wonder if the MX is predicated on not being able to have rads to the same place twice, except it is a long time since your last rads treatment. Sorry I don't have the info to hand, but maybe have a look on www.cancermath.net Is chemo an option? Very best wishes to you - xxxxxxxxx Virginia.
Diagnosis: 5/9/2009, IDC, 2cm, Stage IIb, Grade 3, 1/2 nodes, ER+/PR+, HER2- |
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Tirlie Joined: Apr 2008 Posts: 43 |
Oct 31, 2009 12:03 pm
Tirlie wrote:
Get the Mx! - you will sleep better and have nothing to regret. Your health comes first and all other things second. |
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SoCalLisa Joined: Jan 2006 Posts: 3,146 |
Oct 31, 2009 12:20 pm
SoCalLisa wrote:
I had a second lump also....my surgeon told me she could do a second lumpectomy, but that she recommended a mastectomy..I did have it rather quickly..and I am glad I did.. DX 2000-IDC- 2B..POS NODE--ER+. PR+, HER2 NEG
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Leah_S Joined: Apr 2009 Posts: 667 |
Oct 31, 2009 01:23 pm
Leah_S wrote:
It might be a good idea to consult a rad onc. You never know. Also, delaying the mx until Dec if you decide to do it probably isn't dangerous if, as you say, it's not a particularly aggresive cancer. Best of luck. Leah Diagnosis: 11/3/2008, IDC, 1cm, Stage IIb, Grade 3, 6/17 nodes, ER+/PR+, HER2- |
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unklezwifeo
Joined: Aug 2009 Posts: 968 |
Oct 31, 2009 01:38 pm
unklezwifeonty wrote:
Dear AnnL, A lot of women wait 4-10 weeks after diagnosis for surgery for a variety of reasons. If it were me, I would be screaming to get the earliest surgery date but I had 9/9 aggressive cancer. Do what you think is right for you. It is ok to wait an extra week or two for radiation after lumpectomy because radiation is going after residual cancer cells whereas you are going after a tumor. They are different things. If you decide on waiting, get an appointment for the first week in December right away and in the meantime get a second oncologist and a second surgical opinion. Onty
Diagnosis: 7/31/2009, IDC, 3cm, Stage IIb, Grade 3, 1/9 nodes, ER-/PR-, HER2- |
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otter Joined: Jan 2008 Posts: 3,952 |
Oct 31, 2009 02:54 pm
otter wrote:
AnnL said her new tumor has already been removed: "I had the tumor removed a few weeks ago." That means the purpose of the mastectomy she is contemplating would be to remove the adjacent breast tissue that might contain residual tumor cells. It's not to take out the main tumor. In her case, the mastectomy would serve the same function as the irradiation served in the treatment of her first cancer. There are some things we don't know, though. We don't know how long "a few weeks" are; we don't know what the tumor margins were; and we don't know if there was any evidence of lymphovascular invasion in the tumor. Also, it's impossible to know whether cells from this new tumor had already spread beyond the breast, because the axillary nodes were removed during her first cancer treatment 14 years ago. (That's my impression, anyway.) As I see it, her post contains 3 main questions. 1) Is a mastectomy really necessary, or would just a lumpectomy suffice? In other words, what added benefit could a mastectomy provide, beyond the removal of the lump a few weeks ago? I don't have numbers to support this answer; but I suspect the risk of local (in-breast) recurrence of this 2nd tumor would be similar to that of the first one, 14 years ago. There is plenty of evidence that lumpectomy alone is not adequate for protecting against local recurrence of invasive BC. So I guess I'm suggesting that if radiation was needed after her lumpectomy last time, a local treatment in addition to lumpectomy is needed this time, too. 2) Is it okay to have radiation twice in the same breast? From what I've read, the general answer is "No." Prior irradiation to the chest is one of the absolute contraindications to breast-conserving therapy (lumpectomy + radiation). The key variables are, how much irradiation was given the first time; and is this new tumor (the tumor cavity) within the same "field" that was irradiated last time? This BCO site advises that those questions can only be answered by a radiation oncologist, who would be able to determine the dosage of radiation given and the field that was treated. Look at "Can radiation therapy be repeated to the same area again?", on this page: http://www.breastcancer.org/treatment/radiation/when_appropriate.jsp 3) How long is it safe to wait between lumpectomy and follow-up treatment, whether that's irradiation or mastectomy? According to that same BCO link above, women who do not need chemotherapy generally start radiation treatment 3 to 6 weeks after surgery if they're getting external beam irradiation. If it's more focal treatment (partial-breast irradiation or intra-op), the radiation is started much sooner, if not during surgery. The reason for the wait is to allow the tissue to heal from the surgery. If the woman is getting chemo, radiation is usually delayed until 2 to 4 weeks after the chemo is finished (according to the BCO page). AnnL said her lump was removed "a few weeks ago," so I'm going to speculate that it has already been 2 or 3 weeks since her surgery. Postponing radiation therapy until December would be adding -- I'm guessing here -- another 4 or 5 weeks, at least, to the interval. Is it safe to wait more than 2 months between lumpectomy and follow-up treatment? I just don't know, but it would scare me to wait that long. otter Diagnosis: 1/14/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR-, HER2- |
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LindaLou53 Joined: Jan 2006 Posts: 520 |
Oct 31, 2009 03:19 pm
LindaLou53 wrote:
Hi Annl, Sorry to hear about your recurrence and having to face hard decisions. I found a very recent study that addresses the issues of treating a new primary or recurrence in an already treated breast. While mastectomy is still the standard there appears to be some conservative approaches being looked at for very specific presentations of a new cancer. While this may not apply directly to your situation I found it a very interesting topic. There may be alternative treatments offered at some point for a second cancer if it meets the specified criteria. Managing a Small Recurrence in the Previously Irradiated BreastLife is not measured by how many breaths we take...but by the moments that take our breath away!
Diagnosis: 11/21/2005, ILC, 5cm, Stage IIIc, Grade 1, 23/23 nodes, ER+/PR-, HER2- |
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otter Joined: Jan 2008 Posts: 3,952 |
Oct 31, 2009 04:20 pm
otter wrote:
LindaLou, that's a great article -- thanks! otter Diagnosis: 1/14/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR-, HER2- |
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London-Virg
Joined: May 2009 Posts: 827 |
Oct 31, 2009 04:59 pm
London-Virginia wrote:
Yes indeed - that is very interesting reading. Ann - may I ask, have you re-commenced any hormonal therapy you may have been taking? Tamox or similar? For myself, because I had a nasty post surgery infection and had to wait for chemo, I started Femara as an interim protective measure. Have you had something similar suggested to you? best wishes Virginia.
Diagnosis: 5/9/2009, IDC, 2cm, Stage IIb, Grade 3, 1/2 nodes, ER+/PR+, HER2- |
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AnnL Joined: Oct 2009 Posts: 4 |
Nov 1, 2009 05:10 am, edited Nov 1, 2009 05:38 AM
by AnnL
AnnL wrote:
Excellent replies, and thank you so much for the articles. Just exactly what I was looking for. I am in Austin, Texas, there are plently of hospitals and cancer centers here. I am looking for a doctor that will give me something other than the automatic "get a mastectomy" response. I may end up getting one, but it annoys me that for a recurrence after 13 years, my surgeon is not displaying a little more imagination and curiosity about treatment options. The surgeon that removed the recent tumor seems more interested in frightening me into immediate mastectomy than in considering my individual case. I am getting a second opinion and have an appointment this week. One of the articles above explains my situation exactly. Apparently, an important factor is whether the tumor is a "new primary" or a true local recurrence. Here are my 2009 pathology results: invasive ductal carcinmona, 0.9 cm, moderately differentiated 6/9; ER/PR pos, Ki-67 pos, HER-2/NEU status neg. Because so many lymph nodes were removed back in 1996 (negative for metastatic carcinoma in 1996), I am told that lymph node metastatis is not an issue). The path report says positive margins, but apparently that is because the lump was just under the skin. I did not have any treatment other than radiation in 1996 (tamoxifen was not used then like it is now), and apparently, because of my pathology, chemical treatment is not appropriate in my case now. |
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London-Virg
Joined: May 2009 Posts: 827 |
Nov 1, 2009 05:23 am
London-Virginia wrote:
Hello Ann, from a rainy London. I have been to Austin which I liked very much, and then had a beautiful drive down to Hill Country. Then I stayed on Padre Island. A doctor with a bit of go ought to see your case as rather stimulating I think. I wonder if sort of working backwards from an Onc to the surgeon might not stimulate a bit more activity of the imagination? Though not similar, I have in the last week had a rather good result by that tactic. anyway, best wishes to you - xxxxxxxx Virginia.
Diagnosis: 5/9/2009, IDC, 2cm, Stage IIb, Grade 3, 1/2 nodes, ER+/PR+, HER2- |
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unklezwifeo
Joined: Aug 2009 Posts: 968 |
Nov 1, 2009 08:48 am
unklezwifeonty wrote:
Dear Otter, I re-read Ann's original post. I am not sure whether she is talking about a second remaining lump in the same breast after the recent lumpectomy or mastectomy as an alternative to radiation. It may be ok to wait for a few weeks depending upon the situation. Onty
Diagnosis: 7/31/2009, IDC, 3cm, Stage IIb, Grade 3, 1/9 nodes, ER-/PR-, HER2- |
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kime Joined: Sep 2009 Posts: 92 |
Nov 1, 2009 10:17 am
kime wrote:
Lindalou - thanks for posting that article! Diagnosis: 8/13/2009, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes |
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AnnL Joined: Oct 2009 Posts: 4 |
Nov 1, 2009 10:43 am, edited Nov 1, 2009 10:45 AM
by AnnL
AnnL wrote:
Thank you so much everyone. What a smart, and at the same time, sensitive, group. You have given me the same sort of thoughtfulness that I am seeking from a doctor. I think there is a real problem because everyone is directing me to a surgeon for a second opinion, and what I really need is a breast cancer expert that is not so blindly focused on surgery. I am thinking about starting a new post, maybe "Tumor recurrence after 13 years -- is mastectomy only option?". The article Lindalou posted suggests that a second post-lumpectomy radiation is an alternative in my case. The article also indicates that statistics are better with a mastectomy, so I will probably do a mastectomy, but I do not wanted to make this decision by being treated like an child/idiot by the doctors. PS to unklezwife, I had a first lumpectomy/radiation in 1996. In 2009, I had a second tumor, which has been removed by lumpectomy. Now I am being told my only option is a mastectomy. Diagnosis: 9/15/2009, IDC, <1cm, Grade 1, 0/15 nodes, HER2- |
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hrf Joined: Nov 2004 Posts: 887 |
Nov 1, 2009 11:18 am
hrf wrote:
I also had a second bc. I was told that radiation can not be given to the same site 2 times which is why they may be recommending mx. I didn't want a 3rd occurrence which was just a matter of time so this time I did bmx. BRCA2+ first dx in Oct. 2004 2nd dx Feb. 2009 a new primary
Diagnosis: 2/6/2009, ILC, 2cm, Stage II, Grade 1, 4/6 nodes, ER+/PR+, HER2- |
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