Hi, I will be having a mastectomy and would like some ideas of items that will help my recovery go easier for me and my family?
Any ideas would be greatly appreciated.
Thanks for your time.
xox
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chainsawz Joined: Sep 2008 Posts: 258 |
Nov 3, 2009 05:33 pm
chainsawz wrote:
I just read a great thread called Shopping/packing/to-do list for surgery + recovery.... on the forum: Surgery - before, during and after : Here's the link: http://community.breastcancer.org/forum/91/topic/699896 This has great tips that will help you get ready for this. Best to you!!! lisa Lisa -mets to lungs & brain.....the weakest step toward the top of the hill, toward sunrise, toward hope, is stronger than the fiercest storm.
Diagnosis: 7/21/2008, IDC, 3cm, Stage IV, Grade 3, 0/2 nodes, mets, ER-/PR-, HER2+ |
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CoolBreeze Joined: Aug 2009 Posts: 448 |
Nov 3, 2009 05:38 pm
CoolBreeze wrote:
I had mastectomy with TE and here is what I needed: Extra pillows. You'll need propping everywhere. Get one of those neck, donut shaped travel pillows too. You'll have to sleep sitting up at first and that will help a LOT. Have some meals pre-made. You won't be able to lift anything for a while, even a casserole dish. At last, I can't. If your husband isn't a cook, he can just pop one in the oven. Baggy button up tops that will hide drains, and sweat pants you can slip on. Men's wifebeater shirts in a large size so you can put them on from bottom up - you can pin drains to them. You won't be moving a lot at first, so books, DVDs, magazines, whatever sedentary thing you like to do. I had a right mastectomy so I am sleeping so that my left arm can reach my bed stand. I pulled it out so I can reach it and I have water, pain meds, chapstick, iPhone and kindle reader there so everything is handy. Sleeping sitting up isn't the easiest thiing so you'll want stuff by your side - again, at last I did. Ann's cancer blog. http://butdoctorihatepink.blogspot.com/
Diagnosis: 8/17/2009, IDC, 4cm, Grade 3, 0/3 nodes, ER+/PR-, HER2+ |
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leftyAKAnan
Joined: May 2008 Posts: 2,871 |
Nov 3, 2009 05:46 pm
leftyAKAnancy wrote:
A recliner may work good for sleeping with a tv tray next to it with the essentials. A night light in the bathroom so you do not have to reach for the switch. Diagnosis: 5/2/2008, IDC, 6cm+, Stage IIa, Grade 3, 0/3 nodes, ER-/PR-, HER2+ |
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mejustme09 Joined: Oct 2009 Posts: 36 |
Nov 3, 2009 05:55 pm, edited Nov 3, 2009 05:56 PM
by mejustme09
mejustme09 wrote:
Thanks ladies. I am starting my list. All my best to you! xo |
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dmorgan2 Joined: Oct 2009 Posts: 27 |
Nov 4, 2009 04:17 pm
dmorgan2 wrote:
Good info! I'm having my MX 2 weeks from today!! nervous.... Mejustme09, what date is yours? Diagnosis: 8/21/2009, DCIS, 1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR- |
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dmorgan2 Joined: Oct 2009 Posts: 27 |
Nov 4, 2009 04:19 pm
dmorgan2 wrote:
CoolBreeze, are you glad you had the TE put in? I'm scheduled for that, but not sure about it. :-0 Diagnosis: 8/21/2009, DCIS, 1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR- |
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mejustme09 Joined: Oct 2009 Posts: 36 |
Nov 4, 2009 05:20 pm
mejustme09 wrote:
I have no idea! I have been waiting a week for the Oncologist to call me and set up an appointment!! If he doesn't call by 12 tomorrow I am finding another one! Dmorgan, take care and I pray everything goes well for you! xo ~Longing~
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CoolBreeze Joined: Aug 2009 Posts: 448 |
Nov 4, 2009 11:14 pm
CoolBreeze wrote:
dmorgan, I don't know about being glad I had the expander put in - it's not exactly comfortable. But, I definitely wanted reconstruction and because of my body style, it's the only kind I could have. Recovery would be easier without it, I think. For me, not having some sort of reconstructed breast just isn't an option so I will live with the discomfort. Ann's cancer blog. http://butdoctorihatepink.blogspot.com/
Diagnosis: 8/17/2009, IDC, 4cm, Grade 3, 0/3 nodes, ER+/PR-, HER2+ |
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Stonebrook1
Joined: Dec 2008 Posts: 131 |
Nov 4, 2009 11:27 pm, edited Nov 4, 2009 11:28 PM
by Stonebrook108
Stonebrook108 wrote:
Before my BM I bought a bra that you can attach "pockets" to that will hold that drains. You can attach up to 4 pockets. I wore it over the surgeical vest that I was in after my surgery and sent home in. It worked great. Kept the drains and the tubes from touching my skin. After the drains were removed you can take the pockets off and you have a nice bra. My ins. paid for the bra because my PS gave me a prescription for it. |
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shannie604 Joined: Sep 2009 Posts: 5 |
Nov 4, 2009 11:42 pm
shannie604 wrote:
Large sweaters. I was healing very well and had plenty of energy to return to work and my regular busy schedule but the drain that I had to cover for almost three weeks required borrowing large sweaters. |
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dmorgan2 Joined: Oct 2009 Posts: 27 |
Nov 4, 2009 11:51 pm
dmorgan2 wrote:
Shannie604, Did you have reconstruction too? Mejustme09, Let me know when your date's set, ok? Diagnosis: 8/21/2009, DCIS, 1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR- |
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mejustme09 Joined: Oct 2009 Posts: 36 |
Nov 5, 2009 04:18 pm
mejustme09 wrote:
Did anyone buy a mastectomy camisole and was it worth it?? Dmorgan-I will let you know the date. Please keep me informed about your recovery! ~Longing~
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lvtwoqlt Joined: May 2007 Posts: 4,533 |
Nov 5, 2009 04:26 pm
lvtwoqlt wrote:
I had bilat surgery June 2007 with expanders into perm implant reconstruction. I didn't buy a mastectomy camisole, two were given to me by the cancer facilitator at the hospital. I did use mine and even wore them after I got rid of the drains. I have posted several good ideas on the surgery before and after thread. One thing I needed was non-child-proof caps on my meds. I didn't have the arm strength to open up the child-proof caps after my SNB surgery and had to send my hubby back to the pharmacy for easy open bottles. Also see if your surgeon will give you the prescriptions before you go to the hospital so you can have the meds at your house ready when you get home. It will save a stop after you are discharged. Sheila We are like tea bags, we don't know how strong we are until we were thrown into hot water. Eleanore Roosevelt
Diagnosis: 4/27/2007, DCIS, Stage 0, Grade 1, 0/7 nodes |
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Raye99 Joined: Sep 2006 Posts: 1,331 |
Nov 5, 2009 04:35 pm
Raye99 wrote:
Yes, all great things to have. I just want to add that a fanny pack is handy to put your drains in - hides the drains nicely if you have visitors or go out and about before the drains have been removed. Best wishes with your surgery. Mine was not as bad as I had expected. Sheila, I LOVE your new avatar! Raye Diagnosis: 7/14/2006, IDC, 5cm, Stage IIb, Grade 3, 3/9 nodes, ER-/PR-, HER2- |
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MaineCoonKi
Joined: Apr 2009 Posts: 77 |
Nov 5, 2009 04:51 pm
MaineCoonKitty wrote:
One of the most considerate things my husband did for me was to rent me an electric hospital bed and having it waiting for me when I got home. It's very difficult to pull yourself up from a regular bed, even with a lot of pillows, but that bed made it very easy to get up to a sitting position and then pull myself up with the hand rails. I could also elevate my feet and sit up comfortably for hours.I liked ti so much that we bought it and now it's in a spare room and used by my 87 yr old mother-in-law when she stays overnight with us. She loves it because it's much easier for her to get up from it too with her arthritis. Diagnosis: 4/27/2009, 6cm+, Grade 3, 0/0 nodes, ER-/PR-, HER2- |
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chainsawz Joined: Sep 2008 Posts: 258 |
Nov 5, 2009 05:23 pm
chainsawz wrote:
I was going to buy a mastectomy camisole, but found that I felt better with a little more pressure on my chest, so I used a very large ace bandage around my chest and just tucked my drains up in there and pinned them so they would stay while I slept. For showers, I pinned the drains to a string around my neck. MaineCoonKitty - your husband is awesome!! That was the worst part of the surgery...having someone pull me up out of bed. Not fun. I had my drains in for over 4 weeks, so that would have really made my life easier! We have a loan chest here for medical supplies, so in the future I will rent one of those beds. Thanks!! lisa Lisa -mets to lungs & brain.....the weakest step toward the top of the hill, toward sunrise, toward hope, is stronger than the fiercest storm.
Diagnosis: 7/21/2008, IDC, 3cm, Stage IV, Grade 3, 0/2 nodes, mets, ER-/PR-, HER2+ |
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mejustme09 Joined: Oct 2009 Posts: 36 |
Nov 6, 2009 04:42 pm, edited Nov 6, 2009 04:42 PM
by mejustme09
mejustme09 wrote:
dmorgan2- Finally saw Oncologist this morning. (had Blood taken for gene test) Ultrasound on Lymph Nodes, Chest X-ray on Monday. Appointment in 2 weeks with Oncologist to discuss surgery. Surgery in 2 1/2 weeks. Will know exact date on Monday when I talk to my surgeon. Hope all of you ladies are doing well!! xo ~Longing~
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jenn3 Joined: Jul 2009 Posts: 362 |
Nov 6, 2009 05:47 pm
jenn3 wrote:
A thick hair ribbon to hang the drains from in the shower. Tie it around your neck and pin them to you in the shower - it really helps to give you more movement. I also got a body pillow to put between my DH and myself so that he wouldn't bump me in his sleep. Also, my nurse at the hospital gave me small disposable measuring cups to measure the liquid in the drains with - it was so much easier and felt more sanitary. Good luck...... Diagnosis: 6/19/2009, IDC, 1cm, Stage IIIa, Grade 3, 4/15 nodes, mets, ER-/PR-, HER2- |
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CoolBreeze Joined: Aug 2009 Posts: 448 |
Nov 6, 2009 05:52 pm
CoolBreeze wrote:
I wasn't allowed to take a shower with drains in - my doctor believed it risked infection. So, if your doctor is the same you'll want to get some baby wipes. I was given mastectomy camisoles. I didn't wear them after surgery because I was wrapped in compression bandages for two weeks but I'm wearing one now, only because I had a single mx and need to pad the right side. I don't have any way of doing that yet - the mastectomy camisoles come with adjustable padding. I'll probably go get some "Brallalulah" by the company Spanx. (I'm sure I'm spelling that wrong) They are soft bras that you can step into and they will hold my padding. I've worn them in the past and they also will provide support for the other side without digging in. Ann's cancer blog. http://butdoctorihatepink.blogspot.com/
Diagnosis: 8/17/2009, IDC, 4cm, Grade 3, 0/3 nodes, ER+/PR-, HER2+ |
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Gillkath Joined: Sep 2007 Posts: 127 |
Nov 7, 2009 07:40 am
Gillkath wrote:
I purchased a few of the mastectomy camisoles, and I absolutely think they were worth the cost. I wore them for a long time after surgery. Here is the link to the camisoles I purchased: www.softeeusa.com/home/st1/page_268 This camisole has little pockets for the drains, which is so handy. When I left the hospital after my mastectomy, the hospital had given me pins to pin the drains to my shirt ... not very comfortable. You can also pull the camisoles down over your hips to take them off, so no lifting over your head when you are so sore.......if you decide to purchase some from this company, order them a little larger, as I thought they ran really small. Good luck to you. Diagnosis: 6/25/2007, IDC, 1cm, Stage I, Grade 2, 0/7 nodes, ER+/PR+, HER2- |
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mejustme09 Joined: Oct 2009 Posts: 36 |
Nov 8, 2009 10:19 am
mejustme09 wrote:
Gillkath- Thanks for the link. xo ~Longing~
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EdithMerced
Joined: Nov 2009 Posts: 5 |
Nov 11, 2009 05:15 pm
EdithMercedes wrote:
hi ladies, i have a question, im having the mastectomy done soon, but i dont have a surgery date yet. Right after breast reconstruction, all the same day. I want to know the process of going into surgery and how do you wake up after the anesthisia? how does ur chest feel? thanks -Edith Diagnosis: 10/9/2009, 1cm, Stage I, Grade 1 |
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mejustme09 Joined: Oct 2009 Posts: 36 |
Nov 16, 2009 05:00 pm
mejustme09 wrote:
Hi Ladies, Hope your have a good day today, I guess that is all we can hope for each day...a good day. I have read on here about lotions that should be used after surgery and radiation. I can't find them again. What had worked for all of you to minimize scaring and help easy the radiation effects. Thanks for all your help!~ ALSO: I found this product that works good for those of us who can't rent a hospital bed. http://www.contourliving.com/p-19-mattress-genie-adjustable-bed-wedge.aspx http://www.amazon.com/gp/product/B001JK68UG/ref=ox_ya_oh_product Take care xoxo ~Longing~
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