Lobular Carcinoma, is what the doctor said. She said it's one of the 2 most common types. She said my next step is to call my primary DR (which we did... still waiting) and get a referral for a breast MRI and to see a breast surgeon to find out what treatment will be best for me. I am also going to request to see a doctor at CoH.
It's late... so I probably won't get referral until tomorrow morning.... but if anyone can help, explain... or just advise... anything... is lobular bad? I have looked on internet, and from what my doctor said, I am assuming its non-invasive... because they did not see lymp involved??
I am sorry if I make no sense.... my head is pounding... mind is still reeling...
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CoolBreeze Joined: Aug 2009 Posts: 458 |
Nov 4, 2009 11:05 pm
CoolBreeze wrote:
Is it Lobular Carcinoma in Situ? If so, you don't have cancer, LCIS is a tumor marker. It means you would have a 10 to 20% lifetime chance of developing cancer in the future. If it's Invasive Lobular Carcinoma than you have the second most common form of cancer after Invasive Ductal Carcinoma. I begins in the lobules and spreads out through the breast tissue. It has a very favoriable outcome. The first thing you should do is get a copy of your pathology report. Your doctor can fax it to you or mail it - it's your right to have it. Then you can ask any questions here and we can answer them. There will be some information in your path report that will give you clues as to what treatment you will receive. Good luck! You'll get through it, just as we all have.. Lots to learn! Ann's cancer blog. http://butdoctorihatepink.blogspot.com/
Diagnosis: 8/17/2009, IDC, 4cm, Grade 3, 0/3 nodes, ER+/PR-, HER2+ |
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green22 Joined: Nov 2009 Posts: 3 |
Nov 4, 2009 11:19 pm
green22 wrote:
She didn't say anything about Situ... and I didn't know to ask. Is that something they would know already... or is that what the MRI is for... |
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CoolBreeze Joined: Aug 2009 Posts: 458 |
Nov 5, 2009 12:20 am
CoolBreeze wrote:
She would know on biopsy. I'm guessing, since she said it was one of the 2 most common types, that you probably have invasive lobular carcinoma. I hope she wouldn't scare you this bad for LCIS! Invasive is the name of the cancer - it means it has spread outside of the area it started,, which in your case would be the lobules. It does NOT mean it has spread throughout your body or to your lymph nodes.. Until you have a sentinal node biopsy or axillary dissection, they can't know if it's spread or not. Treatment will depend on whether it did get to your lymph nodes and how large the tumor is. You may be able to have lumpectomy and radiation. You might have to have mastectomy, with or without chemo. You might need hormonal treatment if it's ER+.. There are a lot of things your patholgy report can tell you, so call the doctor in the morning and ask for it. If you have LCIS, you'll want to do some research before you do treatment. Many women do mastectomies for that, even though it's not cancer. Many doctors now believe that is over-treating for the condition, and watching it and hormonal treatment may be enough. Some women can't live with the fear though, even though there is a small chance of it becoming invasive, and choose to remove their breaasts. More research needs to be done on LCIS to give women better information so they can make good choices. Try to get some sleep. I know you are scared and freaked, but it'll be okay! :) You'll feel better when you have the proper information, so start with your pathology report. Ann's cancer blog. http://butdoctorihatepink.blogspot.com/
Diagnosis: 8/17/2009, IDC, 4cm, Grade 3, 0/3 nodes, ER+/PR-, HER2+ |
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green22 Joined: Nov 2009 Posts: 3 |
Nov 5, 2009 11:49 am
green22 wrote:
Primary dr wants to see me this morning... I guess to discuss results and explain referrals?? I have never been so scared about anything in my life. |
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Jeannettes9… Joined: Nov 2009 Posts: 24 |
Nov 5, 2009 06:09 pm
Jeannettes9565 wrote:
Honey, don't be afraid.....there are sooooo many of us here that have been afraid! Just find out all you can, & just know that all of us will help you through this "journey!" Keep reading the posts & the different "threads" on this site, & it will comfort you! I am going for my biopsy this Monday, & just dread the results, because the radiologist already said it looked like breast cancer. So I found this site, & I'm feeling so much support from all these women! & I'm looking at all my options, just in CASE it is news like yours! We can all come through this together! Don't worry sweetie...You are in our thoughts! |
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keno41 Joined: Aug 2009 Posts: 34 |
Nov 5, 2009 06:18 pm
keno41 wrote:
Not knowing has to be the hardest part. I didn't sleep for 3 days waiting for my appointment with the surgeon. Your mind goes crazy thinking the worst. I actually felt relief finally knowing what was ahead and how it would be dealt with. If it is ILC, there are many stages it could be so you won't know until you see the report. It is invasive, but that doesn't mean it has spread to other parts of your body. I had ILC with no lymph nodes but opted for a bilateral mx. My OncotypeDX was 15, so I opted out of chemo and am on Tamoxifen. So there are so many options that you may have. Try not to let your mind think the worst, although that's easier said than done. Good luck and keep us posted. Diagnosis: 7/2/2009, ILC, 3cm, Stage IIa, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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hlya Joined: Apr 2009 Posts: 204 |
Nov 6, 2009 02:32 am
hlya wrote:
green22: There is also an "ILC" forum on this website with all the ladies got the same type of BC as yours there, and they share more information over there. http://community.breastcancer.org/forum/71 The most popular BC is Ductal (IDC) which is about 80% of BC(breast cancer), the 2nd popular BC is Lobular which is 15%, and the rest types are only 5%. I found this website and that ILC forum is the most helpful resource for you to understand this type of BC. I can understand your fear, we all went through the same thing as you...but once you finish your surgery and get your treatment plan you will feel much better. The ladies on this website are very helpful! Whenever you have any questions, just ask. |
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hlya Joined: Apr 2009 Posts: 204 |
Nov 6, 2009 02:36 am
hlya wrote:
keno41: How long have you been on Tamoxifen and did you get lots of SEs? |
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Lovegolf Joined: Apr 2009 Posts: 164 |
Nov 6, 2009 10:55 am
Lovegolf wrote:
Green There are great women here.....breathe. Write down all you questions. Talk to Drs., talk to friends, talk to people in your town who have been there, talk here. Than come up with you "fight plan." I was lucky that I found this board and have great friends(two who I have known since childhood) They were great letting me talk my way through it all. you will feel better when you have all the info and a plan. Then get ready to fight...!!!!You will find you are stronger than you ever knew. In the fighting part I found it helpful to see the fight..I would send in white light to eat up the cancer. I am also older enough to remember the game Pac-Man & Ms. Pac-Man....so in my head I made up Ms. Cancer eating Pac-Man. I know may sound odd, but just how my mind worked. During the MRI I played golf in my head..walked every course I ever saw . Friend of mine said she sang X-mas carols. Oh BTW after MRI I got wicked head ache..I think normal from the dye/contrast but no one told me Diagnosis: 4/20/2009, DCIS, 2cm, Grade 2, 0/2 nodes, ER+/PR- |
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lemonjello Joined: Feb 2009 Posts: 68 |
Nov 6, 2009 05:29 pm
lemonjello wrote:
I remember the phone call at 3 pm and the stunning news. It was especially hard because i was alone at home and unprepared, the doctor had told my husband post op that he didn't think it was malignant. But i heard the word "cancer" in the breast surgeon's conversation and then he hit me with a second surgery option for clearer margins and told me to call his assistant to schedule the second lumpectomy. He did tell me i would be alright. "Oh sure" he replied. Then the click and the dead silence in the living room and my knees were shaking as i walked to the bedroom to lie down and cry, but ended up in the bathroom. Hours later i found this website and began reading all the info i could. Some of it enlightening, comforting, and then some of it scary. That was January 22, 2009. I had found the lump in November 2008. So much time had passed till the lumpectomy, i worried about delays. Then i had a journey of surgery, chemo and rads and tests. Today my problem is i am trying to keep from baking chocolate chip cookies. I need to diet. My mammogram is Nov 20, my PET scan was normal, and my blood clot is still in my left breast but shrinking. My skin is healing from the radiation and i worry every day now about other stuff. I joke every 22nd of the month, i am a breast cancer survivor of so many months. My hair is about an inch long now and my eyebrows grew back beautifully. I am comfortable in my skin now, far more spiritually sound, and thankful for all the prayers and support i received. My big decision at this point, should i cook a whole turkey or a fresh turkey breast for Thanksgiving or go to my brother's for dinner? Normalcy. AHHHHH. It was a long year and it was difficult. The chemo scared me to death, i couldn't eat that morning and i was under instruction to have a good wholesome breakfast. When i can't eat, that's big news. The chemo was doable and what a godsend the chemo board on this website was!!! The radiation for me, harder. I have heart disease, diabetes, and i am 66 years old. But i made it. I loved the people that treated me. You will get thru this and normalcy will return. No, your life will never be the same, but you will make it thru the tunnel and out into the light. Trust us. Best of Luck to you! Diagnosis: 1/22/2009, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2- |
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