Topic: The Canadian Connection...calling all Canadian women

Jul 4, 2012 09:01 AM borntosurvive wrote:

Cher: I am sorry that you're going through he**.  It does not sound great and 6 months is a long recovery time.  Could you still get a second opinion?  Maybe look into a naturalpath who might be able to shed some light on healing?  I wish I had the answer for you. 

Jil:  I had a double mastectomy (my choice) and needed chemo but not rads.  I was 33 when diagnosed so even before my surgery I was told I'd need chemo just because of my age.  But I was also told that I would likely need rads but when I met with the radiologist he said no.  I did get clear margins with my left side (cancer side) and they found nothing in the right side.  It's a hard choice forsure but for me I just wanted the cancer out and I knew the if I left a breast then I'd be worried sick.  It was the right choice for me.  

Jul 4, 2012 12:18 PM ro-berta wrote:

gumshoe good luck on thursday, will be sending pos. vibes girl! just wanted to send you my best.The nervies are the worst but once you get to the hospital I found i settled down and got in the " let,s get this done now" mode. Anyhow, good luck!!

Jul 4, 2012 01:26 PM, edited Jul 4, 2012 01:29 PM by lindsay72

Jul 4, 2012 02:42 PM gumshoe wrote:

Thanks everyone for the well wishes. I'm a ball of nerves but managing to keep my mind on work and laundry :)

ro-berta -- Good to see you on here. I hope yours went well!

lindsay72, I had a very long healing time after my last infection, and I still have a red patch of skin from an additional infection that won't completely heal. My breast is always sore and they chalk it up to scar tissue. But, if yours is red/hot, I would be asking too. Hopefully someone can offer you more info than I can! 

Jul 4, 2012 03:42 PM bestfriend05 wrote:

kathy and hrf, thank you very much for your suggestions..

kathy i had a look at the bclymph website, it really helps..looked in to some of the outlets they have sugeested and will be visiting some of them soon..

all the best to everyone here...

much love

xx

Jul 4, 2012 06:00 PM, edited Jul 4, 2012 06:02 PM by bwah

Hey girls,

 I have missed a lot on this feed.

Jil: I had two surgeries no clear margin. My surgeon said she had to take away my whole breast, since she could not remove a little and then wait for the result all the time, and my onc wanted to start my chemo. In the end, we found this is a good decison based on what the pathologist reported, a third time would most likely still not have the clear margins!

I had chemo but no rads.

Cher:I hope you have been seen and got some answers! 

all the best to everyone

Love you all!

Jul 4, 2012 07:41 PM schatzi14 wrote:

born...if you read Lindsay's post she mentioned taking Metformin.

Jul 4, 2012 08:05 PM, edited Jul 4, 2012 08:07 PM by Scottiee1

Hi all my fellow Canadians: sorry to meet like this but happy to be able to find you, even though the circumstances are horrible. I would love to join the get together in August, if that's possible. My problem is that I don't drive on the
Highway now, or least at the present time. I am near Broadview and Danforth, which is pretty close to the DVP. Would it be possible to hitch a ride with someone. I only have one F2F support friend (has been through a lot with BC) and feel the need to connect with others as right now my friends, who love me and try so hard to be there for me, can never GET THIS (thankfully) it's just that I'm feeling a little estranged from them at the moment....I do so need women who DO GET IT in my life just now. Hope to here from
Somebody, I hope. Thank you.

Jul 4, 2012 11:11 PM Ossa wrote:

born.. i am taking Metformin/placebo.. pretty sure I get Metformin as DH is type 2 diabetic an is on Metformin, he tasted on of my pills and said it has the same "fishy"taste... Make sure you take the pill with food,, makes it easier on the stomach.. Look at it this way... If you get stomach issues you are most likely getting the real thing =)

Gumshoe..Good luck tomorrow Will be thinking of you.. I was at PS today for my check up.. Asked it he could fix the funky shape my new foob as and if he could make it a little bigger.. He said the only way to make it bigger would be to take implant out, expander back in .. but said there was a lot of rad damage so my skin would most likely not stretch enough.. He is going to do some fat grafting to filll in my hollow area under my arm..and indent around top of Foob.. hope to get a nicer shape on my squishy...

Cath..Mine did the underarm thing too.. will most likely feel that way until your exchange.. Also some of my fills were very uncomfortable...some were only a little uncomfortable...

Jul 5, 2012 04:39 PM bestfriend05 wrote:

thank u shctazi for your kind words..

mum doing ok, just coping..

thanks for listening..all the best to u..

xx

Jul 5, 2012 07:20 PM Cher56 wrote:

hi all.. bc'ers.. hope your enjoying our long awaited sunshine! I'm enjoying hold up in my room with fans & such. 

well, no I don't get the VAC yet, due to the condition of the surrounding area (purple & red) they'll do reassement next week. but now I think i'm starting to have reaction to the Vanco antibiotics. i'll hang in there * keep watch. I've got the picc line but have to wait til monday or tuesday for getting on my own with it.

i'm still having lots of swelling where the tunnel/undermining is :( & it's still green. but having times where I'm feeling better. I heard from nurses my BS faxed back answers.. so yes there is a plastics in my future for grafts. sooner if the manual debriding & cleaning doesn't work. now I see her plan of trying to get it to heal this way..but if not she'll get plastics in for consult. I see her on monday. back to sleep for me. 

Jul 5, 2012 09:15 PM Ossa wrote:

Gumshoe... 400cc yikes.... I had 120cc for my initial fill.. Total 530cc...

Good to hear you finally got it done..Now rest take care of you

Cher... that sucks.. you should consider changing docs maybe you will have better luck.. Both Gumshoe and myself used a surgeon from surrey and PS right across street from Surrey Memorial.. (three PS's sharing office space)

Jul 6, 2012 02:20 AM Cher56 wrote:

oh lol babysammy... yes I meant I'll be at home with IV.. not on my own really.lol plus I have dressing changes everyday & blood tests, picc dressing changes.. etc..

yes am looking at new opinion from a PS, but got word today about the 'plan' my BS has.

it sounds like a logical plan. do all this, try to get it to heal this way.. but  ps will be getting involved soon.. something about a skin graft? i'll know more on monday.

all the best ladies.. sorry I'm just so tired... night night 

Jul 6, 2012 07:52 AM ro-berta wrote:

gumshoe glad to see you back! Lounging and leisure aren,t all us girls so special hahaha. I have already commited coffee and tim bits with the O.R. staff if I have to come back a 3rd time how stupid do drugs make you ahhaha. Anyhow take it easy in the heat everyone and find a fridge to sit in front of!

Jul 6, 2012 08:06 AM, edited Jul 6, 2012 08:08 AM by schatzi14

In Oakville we have had several hydro outs too...luckily just for a few seconds at a time...just enough to have to reset microwave and clocks etc. Sweltering here already and it's just 8 am. Supposed to be the hottest day yet!

Good day to just sit here and check out the puter (if the hydro holds)! My fish pond is evaporating so quickly...forever having to top it off. It's a wonder the fish aren't boiling in it. Lucky people with pools!