Hi,
My mom was dxed 3 yrs ago and am trying to connect with anyone in my area. Feeling very scared. Thanks,
Giulia
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pinkmama Joined: May 2009 Posts: 49 |
May 22, 2009 04:18 pm
pinkmama wrote:
I am!!! Dx 3/12/2009, IDC, 1cm, Stage IIa, Grade 3, 6/8 nodes, ER+, HER2+ |
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marie111 Joined: May 2009 Posts: 41 |
May 23, 2009 09:20 pm, edited May 24, 2009 01:30 PM
by marie111
marie111 wrote:
I'm also from Montreal. Just diagnosed on May 7th. Having surgery on Monday. I'm kind of nervous but also anxious to get this started. Where are you guys being treated ? Stay stong !! Marie |
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Cinderblock
Joined: Oct 2005 Posts: 12 |
May 26, 2009 02:03 pm
Cinderblock wrote:
I'm from Montreal, first diagnosed in 94 w/DCIS, have had other occurrences since then and I'm having recontruction this summer, have had 2 mastectomies. My doctor is Dr. Dionisopoulos from the Jewish, great guy. How is your mom? Cindy |
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ChrisBern Joined: Dec 2008 Posts: 30 |
May 28, 2009 12:25 pm
ChrisBern wrote:
Je suis également de Montréal. I'm a male of 31 years old diagnosed in November 2008. Finished chemo two months ago at St-Mary's hospital and since I'm BRCA2, had last wek a BM.My doctor is Dr. Keyserlingk from the Ville-Marie Breast Centre. He's wonderful. Chris Dx 11/13/2008, IDC, <1cm, Stage Ib, Grade 3, 0/3 nodes, ER+/PR+, HER2- |
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pinkmama Joined: May 2009 Posts: 49 |
May 28, 2009 04:39 pm, edited May 28, 2009 04:50 PM
by pinkmama
pinkmama wrote:
Hi Montreal Gang, I heard the news today about faulty pathology reports concerning Her2+ and hormone receptor results. I am about to start chemo in the next few weeks. Anyone else concerned???? Chris: I going for genetic testing to see if I am BRCA2 positive. What criteria required you to have the genetic test? Giulia: How is your mom? I have 2 daughters and one of them is 22 years old. I am sure she is as worried about me as you are about your mother. Marie I was also diagnosed in March and I've had my surgery. How are you doing? Hope the surgery went well. Cinder: I am being seen at the Jewish also. I am very satisfied with the care I have rec'd so far. How about you? Dx 3/12/2009, IDC, 1cm, Stage IIa, Grade 3, 6/8 nodes, ER+, HER2+ |
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marie111 Joined: May 2009 Posts: 41 |
May 28, 2009 08:03 pm
marie111 wrote:
Hi everyone ! I'm also being treated at the Ville-Marie Breast Clinic.My surgeon is Dr. Otaki. Had a lumpectomy and sentinol nodes done on Monday and I feel great. I hated coming out of the anathesia but other then that I have been great, did not even take tylenol yet. I see him agin on June 9th for the pathology report. If it's not good I will most likely need a mastectomy. I am more nervous about that then anything else so far. I guess now it is starting to fell real. Had to tell my kids today (8 and 10 years old) that I have cancer , that was really tough for me but they seemed to take it OK, we'll see what the next few days bring. Chris: Is Dr. Keyserlingk a surgeon or oncologist. I would like to see him, I hear great things about him (he treated my grandmother for BC 25 years ago). DSr. Otaki is only a surgeon so I guess he will refer me to an oncologist from Ville Marie next. Not sure how that works yet.... Marie |
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pinkmama Joined: May 2009 Posts: 49 |
May 28, 2009 09:25 pm
pinkmama wrote:
Marie: Your surgery sounds just like mine. I too felt fine and didn't have to take tylenol or anything. I did have problems with cords in my arms though. I hope all margins are clear. I have 2 girls my youngest is 9. She is doing ok. My friend was diagnosed last year so she already has seen someone go through it. I know what you mean Marie about it not sinking in. It all happens so fast that you don't have time to let it register. I will be starting my Chemo soon and I'm feeling nervous....don't know what to expect. Dx 3/12/2009, IDC, 1cm, Stage IIa, Grade 3, 6/8 nodes, ER+, HER2+ |
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Cinderblock
Joined: Oct 2005 Posts: 12 |
May 29, 2009 08:58 am
Cinderblock wrote:
Hi Pink Mama, I am very satisfied with the care I've received at the Jewish, my oncologist is Dr. Margolese, Dr. Dionisopoulos is my plastic surgeon. I've never had chemo, have a friend who's going through it now, but everyone is different I guess, hope it's not too hard on you. I wish you the best. |
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marie111 Joined: May 2009 Posts: 41 |
May 29, 2009 09:30 am
marie111 wrote:
Hey guys ! How about those pathology reports, very concerning. In my case my tumor is being analyzed now since it was taken out on Monday. I think I will call the doctor to make sure they analyze it at maybe two different labs. Do you know if that is possible ? Pinkmama: Good luck with the chemo, stay stong and positive and you'll get thru it. It's just another hop we need to get thru to make it to the other side !! Marie Dx 5/7/2009, IDC, 1cm, Stage I, Grade 2, / nodes |
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ChrisBern Joined: Dec 2008 Posts: 30 |
May 29, 2009 11:35 am
ChrisBern wrote:
Hi everyone, Pinkmama: See the link below for the eligibility criteria : http://www.cdc.gov/genomics/training/perspectives/factshts/breastcancer.htm In my case, my mom and grand mother died of BC at very young age. marie111: Dr. Keyserlingk is a surgeon. My oncologist is Dr. Dalfen of the St.-Mary's hospital. He's OK. Regarding the faulty pathology reports, you should be very concerned. In my case, I ordered the Oncotype DX test in the US to make sure chemo was the right treatment for me. Also, Oncotype gave me scores on HER2, estrogen and progesterone. My first test at the Jewish here in Montréal said that I was in the equivocal range (gray zone) regarding HER2 and that they don't know if Herceptin was good for me! It was another reason for me to order Oncotype DX test. According to the Oncotype results, my HER2 was definitely negative and based on that, my oncologist decided that Herceptin was not good for me. Wish to all of you a nice weekend! Chris Dx 11/13/2008, IDC, <1cm, Stage Ib, Grade 3, 0/3 nodes, ER+/PR+, HER2- |
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Newbie21 Joined: Dec 2005 Posts: 119 |
May 31, 2009 06:50 pm, edited May 31, 2009 06:55 PM
by Newbie21
Newbie21 wrote:
Hi Pinkmama: I am 32 and my mom is now 69. She is 3.5 yrs out and doing ok. I worry constantly that she will gets mets any day now. But she is a strong lady and I am sure your kids worry about you too, it is only normal. The key is not to get too worked up because that will help no one. Talk to your kids and hug them. Together you will get thought this! Good luck with your upcoming chemo. My mom did well through out it, but everyone is different. Her onc is from the Montreal General Hospital. To the Montreal Gang: Hang in there and Bless all of you! Giulia |
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dmk123 Joined: Jan 2003 Posts: 212 |
Jun 2, 2009 11:19 am
dmk123 wrote:
I am a 6 year survivor of BC. I had my surgery done by Dr. Fleiszer at the Royal Vic. I go to the Cedar's Breast cancer clinic to have my mammo done. What i like about that is that you get your results before you leave. If any other testing needs to be done, it is done right away...no waiting. My oncologist is Dr. Cohen at the Jewish general Hospital. I am wondering how you all might be feeling about the news of the faulty BC pathologies. It is kind of scary |
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marie111 Joined: May 2009 Posts: 41 |
Jun 2, 2009 12:15 pm
marie111 wrote:
6 year survivor WOW, that gives me hope as a newly dx person. I can't wait to say I survived breast cancer !!! How come you had surgery at the Vic and your oncologist is at the jewish ? Is this commun to have doctors at different institutions. I'm asking because I am currently seeing a surgeon at the Ville Marie Clinic but am wondering what I should do for my oncologist. Should I stay at Ville Marie or switch to let say the Jewish. I am new at this, I was dx on May 7th and had a lumpectomy ans SNB done on the 25th and am unsure what my next step should be. I don't want to make any mistakes ... Also was anybody else really tired after their surgery. I feel good physically but 1 week out and I am really really tired. Could it be stress, the surgery or something else? I went back to work on Monday (I am a preschool teacher- work only 4 hours a day) did anyone else go back to work 1 week after surgery ? Good day to all ! Marie Dx 5/7/2009, IDC, 1cm, Stage I, Grade 2, / nodes |
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dmk123 Joined: Jan 2003 Posts: 212 |
Jun 2, 2009 08:20 pm
dmk123 wrote:
marie111 I understand how you feel about not making mistakes. I felt the same way. The surgeon I wanted at the Jewish was on vacation. After checking around, I was directed to Dr. Fleiszer who I think is fabulous. However, I wanted to have my treatment at the Jewish and be followed there. Why? because it has an excellent reputation and its proximity to my home. I am glad that you had a SNB done. It is quite a differnce from taking a grouping of lymph nodes. I know , the difference in pain because, unfortunately ,I had both done. I think it is normal to feel weak because of the stress, anxiety and the operation itself. What kind or treatment will you have? |
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pinkmama Joined: May 2009 Posts: 49 |
Jun 2, 2009 09:40 pm
pinkmama wrote:
DMK123: So nice of you to share, this gives us all hope!!!! As far as the recent news about the pathology reports, I still have not started Chemo, so I will have time to ask my Oncologist about it before my treatment begins, but I feel so bad for those who have already had their treatment and must be feeling so worried and frightened. I hope this gets sorted out really soon and that such a situation never happens again. Marie: After my surgery I didn't work for 2 weeks and I was wiped out. It's from the affects of the Anesthesia. You will start to feel better and less tired as time goes on. You maybe could have used another week, especially working with little ones. I was exhausted after surgery so I took it slow. Newbie: So happy it's all behind you now and that your mom is doing well. Thanks for updating us. Dx 3/12/2009, IDC, 1cm, Stage IIa, Grade 3, 6/8 nodes, ER+, HER2+ |
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Mamita49 Joined: Feb 2009 Posts: 170 |
Jun 5, 2009 11:47 pm
Mamita49 wrote:
Salut, I am from the West-Island. I get treated at the Lakeshore Hospital, and I must say the Onc, and nurses are super great. Best wishes Carol Carol
Dx 12/15/2008, IDC, 3cm, Stage IIb, Grade 3, 2/2 nodes, ER+/PR+, HER2- |
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Mamita49 Joined: Feb 2009 Posts: 170 |
Jun 5, 2009 11:50 pm
Mamita49 wrote:
dmk123, My surgeron is Dr. Megeditchen at the Royal Vic. My Onc and treatment is at Lakeshore. Carol
Dx 12/15/2008, IDC, 3cm, Stage IIb, Grade 3, 2/2 nodes, ER+/PR+, HER2- |
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marie111 Joined: May 2009 Posts: 41 |
Jun 6, 2009 12:02 pm
marie111 wrote:
I am also from the West Island !! My surgeon is Dr. Otaki from Ville Marie and I have not yet seen an oncologist. I had surgery on May 25th and see the surgeon agin on tuesday. When do you see the oncologist, when does that come into play? Will I be refered by my surgeon and I guess I shop around for an oncologist. Still new at this, not sure what to expect. I guess I'll find out more on tuesday. Have a great weekend ! Marie Dx 5/7/2009, IDC, 1cm, Stage I, Grade 2, / nodes |
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Mamita49 Joined: Feb 2009 Posts: 170 |
Jun 6, 2009 03:14 pm
Mamita49 wrote:
You will have to wait for the path report. I was told first only 1cm, turned out 3 cm. I was told no nodes, turned out 2 nodes. You see, it depends on the path report. You will be referred to an onc., BUT if you dont like him/her, go and seek 2 opinion. PM me if you have questions. Carol Carol
Dx 12/15/2008, IDC, 3cm, Stage IIb, Grade 3, 2/2 nodes, ER+/PR+, HER2- |
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Mamita49 Joined: Feb 2009 Posts: 170 |
Jun 6, 2009 03:18 pm
Mamita49 wrote:
By the way, Marie, I have my own Preschool in Pointe Claire. ( 22 KIds, 4 hours Mon-Thursday.) I hope I can start back again in Sept. since I had to hire 2 replacement teachers. Funny, you are a Preschool teacher as well. Have a great week-end Carol
Dx 12/15/2008, IDC, 3cm, Stage IIb, Grade 3, 2/2 nodes, ER+/PR+, HER2- |
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my560sel Joined: Feb 2009 Posts: 435 |
Sep 27, 2009 03:57 pm
my560sel wrote:
Hi everyone, I'm from just outside Montreal - St Lazare. I was diagnosed in Jan/09. I had a lumpectomy in Feb and then a revision for margins in Apr. I was due to have radiation but decided that I was going to have Bi-lat MX with immediate recon instead. I'm a worrier and just couldn't stand not knowing when the other shoe was going to drop. I'm almost dome with my expansion process and hopefully will have my implants by Xmas. My hospital is the Jewish General Segal Cancer Center. I love the Dr's and nurses there and feel blessed to be under their care. Terri DX Jan15/09, ILC, <1cm, Stage Ib, Grade 2, 0/3 nodes, ER/PR+, HER2-, Oncotype score 9, Lumpectomy 2/24/09, Bi-Lat MX & TE's 6/30/09, Tamox 8/22/09
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YoYo44 Joined: Jul 2009 Posts: 81 |
Sep 29, 2009 11:17 am
YoYo44 wrote:
Hello Terri, I was just diagnosed mid July and also go to the Jewish. I have not had any surgery yet but am on week 9 of weekly Taxol so far. I live in Blainville so it is a bit of a trek to go to the Jewish but I am also very happy with the docs and nurses. I am thinking of a bilat MMX also, hopefully with immediate reconstruction but am not sure of what is next and when and what the doc thinks. I am also ILC so he has said he thinks it will be a MMX instead of lumpectomy, I am still debating dble vs single-don't want to do this again! I am wondering who was your surgeon and plastic surgeon. You can PM me if you prefer. Great hearing from you. Thanks for your input. Have a great day! Yo Diagnosis: 7/16/2009, ILC, 4cm, Grade 1, ER+/PR+, HER2- |
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