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Topic: How long for oncotype DX?

Forum: Help Me Get Through Treatment — Medications and other treatments, medical benefits, and managing side effects.

Posted on: Aug 18, 2008 06:13PM

oldlady wrote:

How long did it take for your oncotype DX test results?  I had lumpectomy on 7/22 and re-excision on 8/8.  The oDX test is still not back yet so I'm getting a bit frustrated as the results will determine the next step of treatment ie chemo immediately followed by radiation vs. just radiation.

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Posts 1 - 13 (13 total)

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Aug 18, 2008 08:18PM BustersMom wrote:

Hi,

I had my surgery (bi-lat mast) on 7/7. My oncotype came back on 7/22....  so it does take some time.  My BS originally thought we wouldn't know until 7/28.   Said it often takes 3 weeks.

Can't hurt to call the doc & see how much longer you should expect to wait.  The waiting stinks, doesn't it?

Sending you good vibes for a low score!! 

Hugs, Julie

BMX 7/7/08 (R was prophy), SNB, immed recon. 1st exchange surgery 10/31/08; revision on 2/6/09; Tamoxifen 9/08. Local Recur DX 12/09. Excision and Oophorectomy 2/1/2010. Rads done 4/2010.

Dx 5/19/2008, IDC, 1cm, Stage I, Grade 1, 0/4 nodes, ER+/PR+, HER2-
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Aug 18, 2008 08:23PM CatFromFL wrote:

My OncotypDx score took 3 weeks, but I think 2 weeks is more common now. I sure hope you get a low score. Like me, my recurrence score was a "0". It was my Oncologists and my surgeons first "0".  In fact I am on the Genomic Health website. best of luck to you.

Cat

Cat First Diagnosis Apri 24, 2006 IDC Stage 2A, 0/2 nodes OncotypeDx 0 Lx/Rads/Tam

Dx 3/12/2012, IDC, 2cm, Stage IIa, Grade 2, 0/0 nodes, ER+/PR+, HER2-Surgery 05/25/2006 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Hormonal Therapy 08/20/2006 TamoxifenSurgery 04/18/2012 Lumpectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection (Left)
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Aug 18, 2008 10:37PM otter wrote:

oldlady,

The lab that does the Oncotype testing says to expect a 2-week wait for results.  That's how long it can take after they get the samples from your doc or the pathologist.

In my case, it took 8 weeks to get the Oncotype results.  The first 2 weeks were spent waiting for my first oncologist to decide whether or not to do an Oncotype test.  (I had requested it.)  The next 2 weeks were spent waiting for the pathology lab to prepare the samples after the oncologist requested them.  During the third 2 weeks, the lab at Genomic Health determined that the samples were "inadequate" (they didn't contain enough tumor tissue), and sent a FAX to my first onco's office... where it sat for 5 days while his nurse was on vacation.

Once I raised a ruckus about all that, it took 2 additional weeks to prepare some new samples, send them to Genomic Health, have them tested, and receive the results.

I know how you feel.  The waiting is terrible.

otter 

Dx IDC, Stage I, Grade 2, 0/3 nodes, ER+/PR-, HER2-
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Aug 31, 2008 05:06PM carrolmcc wrote:

My onc felt that I didn't need an oncotype because my prognosis was so good."  Doe that sound right?  Should I assk for one anyway?

dx 12/20/07 IDC, no node involvement, her2 neg.

Dx 12/20/2007, IDC, <1cm, Stage I, Grade 1, 0/4 nodes, ER+/PR+, HER2-
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Aug 31, 2008 05:14PM dalycity wrote:

Hi, Carrol: 

My surgeon also did not recommend an Oncotype because he felt my BC was not in the gray area.  A second opinion at UCSF also did not suggest an Oncotype. 

There had been suggestions on this forum that I should ask for one anyway; however, Oncotype is expensive and I feel that if 2 opinions did not recommend it, then it's okay by me not to have it done.

Best wishes, 

dalycity

Dx 11/30/2006, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Aug 31, 2008 05:30PM mzmiller99 wrote:

 Dalycity,

  I'm so glad to hear your experience.  I've been concerned that my docs haven't jumped on the oncotype for me and I see that our numbers are similar.  I guess I'll go along with their recommendations.

Susan

Susan IMRT 09/08, Oncotype DX 15, Aromasin 03/09

Dx 6/16/2008, IDC, <1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2-
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Aug 31, 2008 05:36PM, edited Aug 31, 2008 05:51PM by dalycity

Hi, Susan: 

I was also told that for those NOT in the gray area, regardless of what the Oncotype score is, treatment would still be based on our pathology reports. One doc told me that you cannot 'hang your hat' on the score.  Seems to me, when it comes to cancer, there's nothing one can 'hang your hat' on.

Best wishes, 

dalycity

Dx 11/30/2006, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Aug 31, 2008 09:21PM mzmiller99 wrote:

Hi,
Well said!! An educated crapshoot, at best, I think.

My thoughts are that there is no real "cure". That the cancer can pop up anytime, anywhere, in anyone. It just got me sooner than some, and is going to lurk around in my dark recesses until it comes back again or I die of something else.

Maybe I'm just going through a negative stage, but I'm beginning to realize that this is for life, and even after the rads and/or chemo, and everything else they throw at it, I'm pretty sure it'll return.

Hopefully, this is just my total lack of hormones and sleep deprivation talking.

Susan

Susan IMRT 09/08, Oncotype DX 15, Aromasin 03/09

Dx 6/16/2008, IDC, <1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2-
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Sep 3, 2008 12:59PM Kleenex wrote:

Hi - I had a lumpectomy and SNB on 8/20, and I just spoke with someone at Genomics today. She was calling to give me the "your insurance may or may not cover this - do you want to proceed?" spiel. I DO want the test, because the oncologist I initially spoke with (prior to surgery) seemed inclined to be planning to base my need for chemo solely on size of tumor and spread to lymph nodes. I have heard that ILC, especially low-grade like mine, with very high estrogen and progesterone receptors, can often best be treated with systemic hormonal treatments, and that chemo isn't always effective. So I like the idea of someone looking at my TYPE of cancer and not just the SIZE. Customer service said they received the request on the 28th, and that they got my sample yesterday, so I should expect results in 10 to 14 days, barring any problems with the sample. My surgeon and the lab she works with routinely send samples for this test, so hopefully all will go well.

In any case, oldlady, you could call Genomics and ask customer service to tell you what the status of your sample is. I was surprised that mine had just gotten there - tomorrow is two weeks since my surgery. But it's good to know they have it...

Susan - I agree with you - all of this is an educated crapshoot. I have been forced to face the fact that I will die some day - I still don't have a clue when, but I may now know what will get me. Is this better or worse than being hit by a drunk driver and dying immediately? Who knows. For whatever reason, I got breast cancer when I had about a 1% chance of that happening. (Personally, I believe that there are many specific things that cause this that just haven't been identified.) In the meantime, in the midst of all of this bizarre uncertainty, all I can do is just try to find ways to identify what I think is the best path for me, and then just go with it and hope for the best. I try to be thankful that I found this when I did - hiding there outside the field of mammography - and pursued it and got it out. It's the freakiest, scariest thing I've ever dealt with, and it sucks, but there it is. What can you do?

Coleen 

Dx 6/19/2008, ILC, 2cm, Grade 1, 0/2 nodes, ER+/PR+, HER2-
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Sep 3, 2008 01:11PM Kleenex wrote:

Ooops - found another thread and realized that although responses to this one were recent, oldlady (and probably others) already have their Oncotype DX scores. Sorry!

Dx 6/19/2008, ILC, 2cm, Grade 1, 0/2 nodes, ER+/PR+, HER2-
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Sep 3, 2008 01:30PM LisaF wrote:

Hi Kleenex,

Wow, that lady at Genomics must have been busy, as she called me yesterday also.  I got the same spiel, mentioning that insurance will only pay 80%, and I'll probably have to pay $700 or so.  Told her to go ahead with the test, as I'm sure I've already have reached my $3,000 ded. anyway.  (or least I'm close to it.)  My surgery was on the same day as yours.  However, they didn't order the test until my one week follow up.  The standard protocal is for me to have chemo, due to the 2.3 cm size (IDC) and grade two.  However, if I come in the gray area for this test, I may be part of that TailorX clinical trial.  

Hey, it would be great if some of the posters let us know how their scores came out!

Lisa  

Lisa

Dx 6/10/2008, IDC, 2cm, Stage IIa, Grade 2, 0/7 nodes, ER+/PR+, HER2-
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Sep 8, 2008 08:48PM, edited Sep 8, 2008 08:49PM by MOOSAN19

Lisa F

Im waiting for my results too- and Im doing the TailorX trial--  

I had surgery (bilat mast) on 7/29 

I'm really bothered by the possibility that I may have chemo-- I REALLY wanted to avoid it if possible-- my oncologist said that my chances of survival if I do chemo and hormones improve by 6% or so (compared to no treatment)--- I feel like a shmoe even considering NOT doing the chemo but I truly dread it.

I guess I wait for the Onc result and see wher they put me in the trial-- decision made for me    

Dx 6/16/2008, IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
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Sep 9, 2008 05:59PM LisaF wrote:

Hi Moosan,

I'm visiting the oncologist tomrrow.  Hopefully I will find out more then!!  Good luck to you.

Also, Cat, congratulations on a score of ZERO!!!

Lisa

Dx 6/10/2008, IDC, 2cm, Stage IIa, Grade 2, 0/7 nodes, ER+/PR+, HER2-