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All TopicsForum: Help Me Get Through Treatment → Topic: Cold Cap Users Past and Present, to Save Hair

Topic: Cold Cap Users Past and Present, to Save Hair

Forum: Help Me Get Through Treatment — Medications and other treatments, medical benefits, and managing side effects.

Posted on: Jun 14, 2009 07:04PM

Can-D wrote:

Hi all, I wanted to start a forum for all us that are using the cold caps to try to save our hair.  I am on FEC100 X3 followed by Taxotere X3.  My dosage unfortunately is not a guaranteed success.  I am 40 days out from my first treatment and will have my third June 17.  So far I have thinned but have not required a wig.  I have no bald spots; however, around my right ear is the thinnest..I think because the cap wasn't tight there.  All in all, I am pleased to still have a good covering.  If you are using or have used the Cold Caps, I would love to hear your experience.  Take care, Candy

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Sep 19, 2013 10:57PM Hortense wrote:

Lighthouse - Do your best to keep your fingers out of your hair, don't put it into a pony tail, and no clips. Do not put any stress on it that you can possibly avoid. It is VERY fragile at this point. The oldest hairs will shed and fall out as they are the weakest. You do not want to do anything to dislodge any of the other hairs. Pat diluted shampoo on and pat it through it gently, do not scrub or rub as you usually would do. Rinse gently. Use a satin pillow case. I would arrange my long hair going upward across the pillow when I went to sleep so that I would not be sleeping on it.

Shedding usually starts between the 18th and 21st days, according to my very experienced breast cancer center with about 50 cold cappers to its credit. Mine certainly did. My heaviest shedding occurred between my second and third treatments, or between 3 - 6 weeks after my first treatment. It let up after that, but did not stop. I shed fairly steadily throughout chemo. 

Cold Cap user - kept my hair

Dx 1/24/2012, IDC, 1cm, Stage II, Grade 2, 2/2 nodes, ER+/PR+, HER2-Surgery 02/29/2012 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Chemotherapy 05/08/2012 Cytoxan, TaxotereRadiation Therapy 08/24/2012 ExternalHormonal Therapy 10/16/2012 Arimidex
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Sep 19, 2013 11:01PM 4sewwhat wrote:

I concur! Shedding was up and down. Mine was worst between days 20-35. I was afraid to touch my hair because something always fell out and you cant feel it. Everyday was tense for a while. My treatments were Tuesdays and it seemed like the heaviest sheds were the following Sunday and Monday.

shipsgirl posted recently a very detailed description of her hair journey. She did ACT like you are and I think she is around 8 weeks PFC and said her hair is growing in quickly. Her post might be a good reference for you.

Back away from the ledge!!!!! Hang in there. You look like you have a ton of hair to start with. Praying and keeping good thoughts for you and your locks!

47 when diagnosed 15 months after I originally went to doc about lump I found :( oncotype 13. Cold capping pics on my blog LaughingThruBreastCancer.blogs...

Dx 5/20/2013, ILC, 6cm+, Stage IIIc, Grade 1, 22/32 nodes, ER+/PR+, HER2-Hormonal Therapy 04/11/2013 TamoxifenSurgery 05/20/2013 Mastectomy (Right); Lymph Node Removal: Axillary Lymph Node Dissection (Right); Reconstruction: Tissue expander placement (Right)Chemotherapy 06/14/2013 Cytoxan, TaxotereSurgery 09/18/2013 Prophylactic Mastectomy (Left); Reconstruction: Tissue expander placement (Left)Radiation Therapy 09/30/2013 ExternalHormonal Therapy 11/14/2013 TamoxifenSurgery 12/30/2013 Reconstruction: Breast implants (permanent) (Both)Surgery 02/15/2014 Reconstruction (Right)
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Sep 19, 2013 11:16PM lighthouselady wrote:

Thank you experienced cappers!!!  Smile

I do have a ton of hair, and it's all different layer-lengths and thick, so even with what I've lost so far, you can't tell at all.  I am just thinking of the fact that I've only done 2 treatments and still have 6 to go and think YIKES!  But I'm optimistic!  I just wasn't prepared for all of my hair to be so fragile, but now that I know, I will be extra careful.

I already was being easy with it.  I only wash 2x a week, and only pat the shampoo on, and not on my scalp.  I rinsed it with the handheld shower head with the water only turned on a small bit so it didn't come out hard.  I sleep with a satin pillowcase and with my crazy layers, a ponytail is out of the question anyway.  I try not to touch it, but every time I see a flyaway hair I go to push it back and out it comes.  Ugh.  Realistically I know I am going to lose some hair, and on ACT, probably a lot of hair... but I'm determined to hang on to as much as I can!  

I am so happy to be 3+ weeks into my chemo journey and still have a full head of hair.  My MO is very nonchalant (and knew nothing about cold caps) but he told me yesterday that he hopes I can "be his first endorser".  We shall see!

Michelle - - http://michellesneighborhood.blogspot.com/

Dx 8/1/2013, IDC, 4cm, Stage IIIa, Grade 3, 9/24 nodes, ER+/PR+, HER2-Chemotherapy 08/29/2013 Adriamycin, CytoxanChemotherapy 10/24/2013 TaxolSurgery 01/03/2014 Mastectomy (Left); Lymph Node Removal: Axillary Lymph Node Dissection (Left); Prophylactic Mastectomy (Right)Hormonal Therapy 02/10/2014 TamoxifenRadiation Therapy 03/20/2014 External
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Sep 19, 2013 11:24PM 4sewwhat wrote:

Lighthouse,
I can see your picture on the endorsement poster! At one point my scalp had icky build up. I actually found that if I could keep my scalp clean the shed was less. My hair is thinner and flatter now, not a lot of body or curl, but it is there! I think about 30% has shed. When I started capping I just figured the hair would stay. When it started shedding I started freaking! But I can tell by the ugly roots and my bangs, what stayed on my head grew the whole time and at 5 weeks pfc it is filling in already. Of course it is still shedding too.

47 when diagnosed 15 months after I originally went to doc about lump I found :( oncotype 13. Cold capping pics on my blog LaughingThruBreastCancer.blogs...

Dx 5/20/2013, ILC, 6cm+, Stage IIIc, Grade 1, 22/32 nodes, ER+/PR+, HER2-Hormonal Therapy 04/11/2013 TamoxifenSurgery 05/20/2013 Mastectomy (Right); Lymph Node Removal: Axillary Lymph Node Dissection (Right); Reconstruction: Tissue expander placement (Right)Chemotherapy 06/14/2013 Cytoxan, TaxotereSurgery 09/18/2013 Prophylactic Mastectomy (Left); Reconstruction: Tissue expander placement (Left)Radiation Therapy 09/30/2013 ExternalHormonal Therapy 11/14/2013 TamoxifenSurgery 12/30/2013 Reconstruction: Breast implants (permanent) (Both)Surgery 02/15/2014 Reconstruction (Right)
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Sep 19, 2013 11:27PM lighthouselady wrote:

How do you get your scalp clean if you can't really clean it?  LOL   I know we're not supposed to disturb the hair follicles, and no scrubbing, etc.  So what can I use to get my scalp clean?

Michelle - - http://michellesneighborhood.blogspot.com/

Dx 8/1/2013, IDC, 4cm, Stage IIIa, Grade 3, 9/24 nodes, ER+/PR+, HER2-Chemotherapy 08/29/2013 Adriamycin, CytoxanChemotherapy 10/24/2013 TaxolSurgery 01/03/2014 Mastectomy (Left); Lymph Node Removal: Axillary Lymph Node Dissection (Left); Prophylactic Mastectomy (Right)Hormonal Therapy 02/10/2014 TamoxifenRadiation Therapy 03/20/2014 External
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Sep 19, 2013 11:37PM 4sewwhat wrote:

Someone said to add cider vinegar to shampoo and I used organic shampoo with tea tree oil. Schoolmom said that might be an estrogen no no though. I haven't found anything about that yet, so I don't know but it works well. I also use a pick instead of comb. I switched because even the wide tooth comb seemed to be removing too much precious hair. I pat shampoo on from front towards the back because that was the natural way the hair seems to want to go. I very lightly run my fingertips through as close to perpendicular as I can get them so not to put too much drag on the hair. I have started using a neck pillow some too because between the heat in Atlanta and the mini flashes I get now my head always seems hot.

47 when diagnosed 15 months after I originally went to doc about lump I found :( oncotype 13. Cold capping pics on my blog LaughingThruBreastCancer.blogs...

Dx 5/20/2013, ILC, 6cm+, Stage IIIc, Grade 1, 22/32 nodes, ER+/PR+, HER2-Hormonal Therapy 04/11/2013 TamoxifenSurgery 05/20/2013 Mastectomy (Right); Lymph Node Removal: Axillary Lymph Node Dissection (Right); Reconstruction: Tissue expander placement (Right)Chemotherapy 06/14/2013 Cytoxan, TaxotereSurgery 09/18/2013 Prophylactic Mastectomy (Left); Reconstruction: Tissue expander placement (Left)Radiation Therapy 09/30/2013 ExternalHormonal Therapy 11/14/2013 TamoxifenSurgery 12/30/2013 Reconstruction: Breast implants (permanent) (Both)Surgery 02/15/2014 Reconstruction (Right)
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Sep 20, 2013 01:30AM shipsgirl wrote:

lighthouse - it seems like a lot, but you have so much more on your head.  Hang in there.

Cold Cap User - was so happy to keep my hair!

Surgery 03/11/2013 Lumpectomy (Left)Chemotherapy 04/18/2013 Adriamycin, Cytoxan, TaxolRadiation Therapy 08/26/2013 External
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Sep 20, 2013 08:59AM jc254 wrote:

Hi ladies, I wanted to chime in about hair washing.  I read this suggestion from someone on this board (maybe Hope?) and it worked well for me.  Get one of those plastic bottles with a pointed tip they use to apply hair color. I got mine at Sally's.  Put shampoo in the bottle, dilute with a little water and then shake the bottle. Use the pointed tip to apply the shampoo to your head.  It's much easier to apply the shampoo directly to your scalp and underneath your hair this way.  I felt like my hair was getting much cleaner using this method rather than just patting some shampoo on my head.   

I have three more radiation boosts and then I'm finished! I'm still shedding at 13 weeks PFC- it should stop soon right? 

successful cold cap user : )

Dx 9/24/2012, IDC, ER+/PR-, HER2-Surgery 02/14/2013 Lumpectomy (Right)Chemotherapy 04/18/2013 Cytoxan, TaxotereHormonal Therapy 07/18/2013 FemaraRadiation Therapy 08/26/2013 External
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Sep 20, 2013 11:07AM jc254 wrote:

I have a question for those that colored their hair a few months post chemo.  My hairdresser has been investigating different gentle hair dyes but they all need heat to work.  Even Clairol Beautiful that so many cappers have used needs heat to activate.  I'm more concerned about the heat than the dye itself.  So, what did you use to color, did you use heat, and did it work to cover the grays?  I don't care if it's long lasting as I'm willing to reapply a few times until I get to the six month mark. 

successful cold cap user : )

Dx 9/24/2012, IDC, ER+/PR-, HER2-Surgery 02/14/2013 Lumpectomy (Right)Chemotherapy 04/18/2013 Cytoxan, TaxotereHormonal Therapy 07/18/2013 FemaraRadiation Therapy 08/26/2013 External
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Sep 20, 2013 11:08AM, edited Sep 20, 2013 11:08AM by 4sewwhat

Jc245-- congrats on just 3 more! I got marked yesterday and can't wait till just 3 more! Yes shedding will stop soon for all of us!

I forgot about the squirt bottle. I picked some up at the grocery store in the BBQ section! It's a ketchup or mustard bottle, but whatever works, right?

47 when diagnosed 15 months after I originally went to doc about lump I found :( oncotype 13. Cold capping pics on my blog LaughingThruBreastCancer.blogs...

Dx 5/20/2013, ILC, 6cm+, Stage IIIc, Grade 1, 22/32 nodes, ER+/PR+, HER2-Hormonal Therapy 04/11/2013 TamoxifenSurgery 05/20/2013 Mastectomy (Right); Lymph Node Removal: Axillary Lymph Node Dissection (Right); Reconstruction: Tissue expander placement (Right)Chemotherapy 06/14/2013 Cytoxan, TaxotereSurgery 09/18/2013 Prophylactic Mastectomy (Left); Reconstruction: Tissue expander placement (Left)Radiation Therapy 09/30/2013 ExternalHormonal Therapy 11/14/2013 TamoxifenSurgery 12/30/2013 Reconstruction: Breast implants (permanent) (Both)Surgery 02/15/2014 Reconstruction (Right)
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Sep 20, 2013 11:11AM 4sewwhat wrote:

I should add too that when I said I used my fingertips, I don't pull them through but rather use like a light tickling motion and kind of walk them through.

47 when diagnosed 15 months after I originally went to doc about lump I found :( oncotype 13. Cold capping pics on my blog LaughingThruBreastCancer.blogs...

Dx 5/20/2013, ILC, 6cm+, Stage IIIc, Grade 1, 22/32 nodes, ER+/PR+, HER2-Hormonal Therapy 04/11/2013 TamoxifenSurgery 05/20/2013 Mastectomy (Right); Lymph Node Removal: Axillary Lymph Node Dissection (Right); Reconstruction: Tissue expander placement (Right)Chemotherapy 06/14/2013 Cytoxan, TaxotereSurgery 09/18/2013 Prophylactic Mastectomy (Left); Reconstruction: Tissue expander placement (Left)Radiation Therapy 09/30/2013 ExternalHormonal Therapy 11/14/2013 TamoxifenSurgery 12/30/2013 Reconstruction: Breast implants (permanent) (Both)Surgery 02/15/2014 Reconstruction (Right)
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Sep 20, 2013 12:28PM PatinMN wrote:

jc254 - I used Clairol Beautiful twice.  I had my regular color person apply it.  The first time I was afraid to use heat, so I just sat with it on for a while.  It covered the gray to some extent, but I still had two-tone hair (just light brown and dark brown, vs. gray and dark brown).  But the line of demarcation wasn't nearly as bad as it was before.  Tongue Out About 4 weeks later I used Clairol Beautiful again, with heat.  It worked much better.  Both times, however, when my head got hot I dripped brown sweat (like at the gym), and the color came off on my pillowcase.  Ruined a couple of t-shirts that way.  After that I went back to "regular" color - I figured it was OK because I had no shedding.  I will say that it's been very hard to get the color right on the 2"-3" of formerly gray growth.  It doesn't seem to soak into the hair like it used to do, and my hair has a slightly "frosted" look.  I'm 9 months PFC now, and used Clairol Beautiful for the first time at about the 7 week PFC mark.

Dx 7/13/2012, IDC, <1cm, Stage Ia, Grade 3, 0/2 nodes, ER+/PR-, HER2+Surgery 08/01/2012 Lumpectomy (Left)Chemotherapy 09/20/2012 TaxolTargeted Therapy 09/20/2012 HerceptinRadiation Therapy 01/08/2013 ExternalHormonal Therapy 04/01/2013 Tamoxifen
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Sep 20, 2013 12:54PM, edited Sep 20, 2013 01:00PM by Hortense

When I first went in to try to even out my color the salon staff discussed what might be best and gentlest and decided to just use a colored glaze. While it didn't cover everything perfectly, it evened up things enough that I felt remarkably better about my hair and left smiling. A month later we did it again. Six weeks after that we moved to real color. 

My avatar was taken about four weeks after my final chemo. My hair was dry and damaged. I have slowly  shortened it to shoulder length and it looks healthy and shiny again. It had always been straight, but now it has two gentle chemo waves. They may be growing out as they seem to be moving downward and the new hair above them appears to be straight. 

Cold Cap user - kept my hair

Dx 1/24/2012, IDC, 1cm, Stage II, Grade 2, 2/2 nodes, ER+/PR+, HER2-Surgery 02/29/2012 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Chemotherapy 05/08/2012 Cytoxan, TaxotereRadiation Therapy 08/24/2012 ExternalHormonal Therapy 10/16/2012 Arimidex
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Sep 20, 2013 06:54PM tmb173 wrote:

Hello ladies!

17/33 rad- halfway there!  So sick of going, of being sore and itchy, and extremely tired, but I feel like I can make it.  Hair is doig very well.  Actually looking forward to my salon appt- I know it is very unever in length so I need a good cut and style.  Baby hairs coming in all over my temples and forehead and my eyebrows are growing back!  Actually had to shave my legs this week- was never so happy to do that in my life!!

Dx 4/2013, IDC, 2cm, Stage IIa, Grade 3, 0/1 nodes, ER+/PR+, HER2-Surgery 04/04/2013 Lumpectomy (Left)Chemotherapy 06/05/2013 Cytoxan, TaxotereRadiation Therapy 08/28/2013 ExternalHormonal Therapy 10/30/2013 Tamoxifen
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Sep 20, 2013 08:12PM 4sewwhat wrote:

Tmb. Awesome news about the hair! You will be through rads in no time too. Have a great time at the salon :0)

47 when diagnosed 15 months after I originally went to doc about lump I found :( oncotype 13. Cold capping pics on my blog LaughingThruBreastCancer.blogs...

Dx 5/20/2013, ILC, 6cm+, Stage IIIc, Grade 1, 22/32 nodes, ER+/PR+, HER2-Hormonal Therapy 04/11/2013 TamoxifenSurgery 05/20/2013 Mastectomy (Right); Lymph Node Removal: Axillary Lymph Node Dissection (Right); Reconstruction: Tissue expander placement (Right)Chemotherapy 06/14/2013 Cytoxan, TaxotereSurgery 09/18/2013 Prophylactic Mastectomy (Left); Reconstruction: Tissue expander placement (Left)Radiation Therapy 09/30/2013 ExternalHormonal Therapy 11/14/2013 TamoxifenSurgery 12/30/2013 Reconstruction: Breast implants (permanent) (Both)Surgery 02/15/2014 Reconstruction (Right)
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Sep 21, 2013 04:05AM kaydeesmiles wrote:

Tmb- half way through! Hang in there. I start rads in a few days and am really nervous about it. Great news about your hair and brows!

4sew - so glad you made it through surgery and are on to the next phase. Feels good to move forward doesn't it?

Lighthouse - I had a lot of hair too. I lost a lot but kept enough to not wear a wig. I cut off the straggly ends and have been wearing a short bob with a scarf around the front to cover some extra thin areas. I'm about 7 weeks pfc and still have that scary steady shedding.

Portland good luck with your surgery - and mfm- I hope your chemo is all downhill from here. You'll get through it, hang on.

Dx 3/2013, ILC, 5cm, Stage IIIa, Grade 2, 4/12 nodes, ER+/PR+, HER2-Surgery Mastectomy (Right); Prophylactic Mastectomy (Left)Chemotherapy Cytoxan, Taxotere
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Sep 21, 2013 02:53PM hope49 wrote:

Hello cappers!  I have really missed a lot in the past couple of weeks, and I hope you are all doing well whatever stage of treatment you are in.  I just hit my 6 month pfc last week and have since gone back to my old hair routine - it is so nice to just wash my hair like normal in the shower and put it into my towel turban and blow dry again!  Shedding has stopped, just the normal level I'd had in the past, and lots of soft new hair that's about 2" long now coming in all over!  Those still capping, hang in there - you'll get to this point before you know it, I couldn't believe it had been 8 long months since I had been able to wash my hair in the shower.  I am planning to go for color and highlights in late Oct, figuring 8 months pfc all should go well.  Any advice?

p.s. shipsgirl, I have been taking Tamoxifen for about 3 months now and have had no issues.  I take it before bed as some others had recommended.  I hope you find it easy as well!

Dx 8/24/2012, ILC, 6cm+, Stage IIIa, Grade 1, 4/14 nodes, ER+/PR-, HER2-Surgery 11/02/2012 Mastectomy (Right); Lymph Node Removal: Axillary Lymph Node Dissection (Right); Prophylactic Mastectomy (Left); Reconstruction: Tissue expander placement (Both)Chemotherapy 01/10/2013 Cytoxan, TaxotereRadiation Therapy 04/17/2013 ExternalHormonal Therapy 06/09/2013 TamoxifenSurgery 07/31/2013 Reconstruction: Breast implants (permanent) (Both)Surgery 10/09/2013 Reconstruction: Nipple reconstruction (Both)
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Sep 21, 2013 03:21PM, edited Sep 21, 2013 06:53PM by mfm48

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Sep 21, 2013 07:39PM shipsgirl wrote:

hope - thanks for the encouragement.  It's makes me a little nervous to say the least.  It's great to hear from someone that isn't having problems.  Before bed is good to know.

Congratulations on getting back to hair-normal!  That is fabulous.  I'm washing in the shower because shedding stopped about 3 weeks PFC for me.  But I'm still treating it carefully and don't have enough regrowth to do much styling.  I bet none of us will ever take our hair for granted again... or lashes and brows.

Cold Cap User - was so happy to keep my hair!

Surgery 03/11/2013 Lumpectomy (Left)Chemotherapy 04/18/2013 Adriamycin, Cytoxan, TaxolRadiation Therapy 08/26/2013 External
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Sep 21, 2013 08:07PM, edited Sep 21, 2013 08:07PM by 4sewwhat

Hi all! Hope your weekend is wonderful :0)

Shipsgirl- tamoxifen is going to be a walk in the park compared to where you have been the past few months. I was on it before chemo and took mine around dinner time. They say it can make you tired so I think that's why they say before bed and not first thing in the morning.

Kaydee- heck yes it feels great to move on and tick one more thing off that kick it to the curb list! Our Dx are pretty similar and it looks like we are starting rads about the same time. I went for mapping Thursday and start 9/30.

Hope-- I can't wait for that first shower!

Portland --good,luck with surgery. I am laying here with these dreaded drains, but this too shall pass!

Tmb--rads will soon be a distance memory! Try cutting an old tshirt in aloe juice and drape it on. That way you don't have to rub. Just a thought?


Mfm-- you will be on the other side of chemo soon. Hope the tide turns soon.

47 when diagnosed 15 months after I originally went to doc about lump I found :( oncotype 13. Cold capping pics on my blog LaughingThruBreastCancer.blogs...

Dx 5/20/2013, ILC, 6cm+, Stage IIIc, Grade 1, 22/32 nodes, ER+/PR+, HER2-Hormonal Therapy 04/11/2013 TamoxifenSurgery 05/20/2013 Mastectomy (Right); Lymph Node Removal: Axillary Lymph Node Dissection (Right); Reconstruction: Tissue expander placement (Right)Chemotherapy 06/14/2013 Cytoxan, TaxotereSurgery 09/18/2013 Prophylactic Mastectomy (Left); Reconstruction: Tissue expander placement (Left)Radiation Therapy 09/30/2013 ExternalHormonal Therapy 11/14/2013 TamoxifenSurgery 12/30/2013 Reconstruction: Breast implants (permanent) (Both)Surgery 02/15/2014 Reconstruction (Right)
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Sep 21, 2013 08:08PM 4sewwhat wrote:

Hey ladies, we aren't easy to find on the active thread list anymore. Anyone think we should start bumping to keep the word out there?

47 when diagnosed 15 months after I originally went to doc about lump I found :( oncotype 13. Cold capping pics on my blog LaughingThruBreastCancer.blogs...

Dx 5/20/2013, ILC, 6cm+, Stage IIIc, Grade 1, 22/32 nodes, ER+/PR+, HER2-Hormonal Therapy 04/11/2013 TamoxifenSurgery 05/20/2013 Mastectomy (Right); Lymph Node Removal: Axillary Lymph Node Dissection (Right); Reconstruction: Tissue expander placement (Right)Chemotherapy 06/14/2013 Cytoxan, TaxotereSurgery 09/18/2013 Prophylactic Mastectomy (Left); Reconstruction: Tissue expander placement (Left)Radiation Therapy 09/30/2013 ExternalHormonal Therapy 11/14/2013 TamoxifenSurgery 12/30/2013 Reconstruction: Breast implants (permanent) (Both)Surgery 02/15/2014 Reconstruction (Right)
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Sep 21, 2013 08:29PM sdraugelis wrote:

I know this is crazy...but has anyone used Cold Caps after their first treatment has passed?  I just jumped into this whole chemo thing - it was too overwhelming to think about one more detail - and now that I've been through one round of TC, I'm wondering if I can just start using Cold Caps for treatments 2-4.  Anyone out there tried this?

Thanks...

Dx IDC, <1cm, Stage I, Grade 2, ER+/PR+, HER2-Surgery 07/06/2013 Mastectomy (Both); Reconstruction: Tissue expander placement (Both)Surgery 08/11/2013 Reconstruction: Breast implants (permanent) (Both)Chemotherapy 09/11/2013 Cytoxan, Taxotere
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Sep 21, 2013 08:47PM TFPMurphy wrote:

4sewwhat - congrats on the new hairs!

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Sep 21, 2013 08:49PM 4sewwhat wrote:

Sdraugelis,
I have heard of someone that started on her second treatment but I can't remember what her drugs were or where I saw her story. If memory serves, I think it turned out ok but she lost more than if she would have if she started in the beginning. I guess it will depend on how much you lose by your next treatment. I have also heard that capping during helps it grow back faster. I am 5 1/2 weeks post chemo and my hair grew throughout (dark roots!) and I have little baby wisps all over now where I shed.

I did TC and did not lose hair on arms, face, etc.. I did and still do have shedding with having used the cold caps. I still had to shave legs! Hopefully it won't hit your hair too hard yet and you can start capping. I also had very mild tolerable side effects, so hang in there. The first treatment was worst and it got better from there. Especially the mouth stuff.

Some of the old timers will probably have better info for you. Good luck!
Lynne

47 when diagnosed 15 months after I originally went to doc about lump I found :( oncotype 13. Cold capping pics on my blog LaughingThruBreastCancer.blogs...

Dx 5/20/2013, ILC, 6cm+, Stage IIIc, Grade 1, 22/32 nodes, ER+/PR+, HER2-Hormonal Therapy 04/11/2013 TamoxifenSurgery 05/20/2013 Mastectomy (Right); Lymph Node Removal: Axillary Lymph Node Dissection (Right); Reconstruction: Tissue expander placement (Right)Chemotherapy 06/14/2013 Cytoxan, TaxotereSurgery 09/18/2013 Prophylactic Mastectomy (Left); Reconstruction: Tissue expander placement (Left)Radiation Therapy 09/30/2013 ExternalHormonal Therapy 11/14/2013 TamoxifenSurgery 12/30/2013 Reconstruction: Breast implants (permanent) (Both)Surgery 02/15/2014 Reconstruction (Right)
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Sep 21, 2013 08:52PM 4sewwhat wrote:

Thanks Murphy! You and all the other current cappers will be there soon too!

47 when diagnosed 15 months after I originally went to doc about lump I found :( oncotype 13. Cold capping pics on my blog LaughingThruBreastCancer.blogs...

Dx 5/20/2013, ILC, 6cm+, Stage IIIc, Grade 1, 22/32 nodes, ER+/PR+, HER2-Hormonal Therapy 04/11/2013 TamoxifenSurgery 05/20/2013 Mastectomy (Right); Lymph Node Removal: Axillary Lymph Node Dissection (Right); Reconstruction: Tissue expander placement (Right)Chemotherapy 06/14/2013 Cytoxan, TaxotereSurgery 09/18/2013 Prophylactic Mastectomy (Left); Reconstruction: Tissue expander placement (Left)Radiation Therapy 09/30/2013 ExternalHormonal Therapy 11/14/2013 TamoxifenSurgery 12/30/2013 Reconstruction: Breast implants (permanent) (Both)Surgery 02/15/2014 Reconstruction (Right)
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Sep 21, 2013 10:29PM lighthouselady wrote:

Question for the experienced cappers.... now that I've started really shedding, my next chemo on Thursday scares the crap out of me!  I thought we were being pretty easy on my head/hair during cap changes, as we didn't get my hair caught in the velcro, etc.  But when I see how easily my hair is coming out now, the thought of doing the caps is stressing me out.  Is there any advice for making cap changes easier on my poor hair?  I don't want to lose any more than I have to, and I can just envision the chemo room floor being littered with my hair.  AGH!  

You can't tell that I have thinned at all, but I'm only 2 treatments in... if I keep losing as much hair as I have the last few days, my hair won't last through AC, let alone Taxol!  

Michelle - - http://michellesneighborhood.blogspot.com/

Dx 8/1/2013, IDC, 4cm, Stage IIIa, Grade 3, 9/24 nodes, ER+/PR+, HER2-Chemotherapy 08/29/2013 Adriamycin, CytoxanChemotherapy 10/24/2013 TaxolSurgery 01/03/2014 Mastectomy (Left); Lymph Node Removal: Axillary Lymph Node Dissection (Left); Prophylactic Mastectomy (Right)Hormonal Therapy 02/10/2014 TamoxifenRadiation Therapy 03/20/2014 External
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Sep 21, 2013 10:42PM 4sewwhat wrote:

Hi Michelle,
I used disposable shower caps for capping but I did EG caps, not PCC, so I don't know if you could do that but I really don't see why not. They don't insulate at all, they just made the cap slide on and off without putting any friction on my hair. I also wet my hair with watered down leave in conditioner and then put the liner on. It is a couple bucks for 12-15 caps at Sally's or any beauty supply place. I just got my hair wet and used a pick to smooth itmtowardsmthe back. Mthat way I didn't have to worry about changing my part line between cap changes either.

Good luck! It's going to hang on, you'll see :0). This should be the worst shedding and it should level off soon.

47 when diagnosed 15 months after I originally went to doc about lump I found :( oncotype 13. Cold capping pics on my blog LaughingThruBreastCancer.blogs...

Dx 5/20/2013, ILC, 6cm+, Stage IIIc, Grade 1, 22/32 nodes, ER+/PR+, HER2-Hormonal Therapy 04/11/2013 TamoxifenSurgery 05/20/2013 Mastectomy (Right); Lymph Node Removal: Axillary Lymph Node Dissection (Right); Reconstruction: Tissue expander placement (Right)Chemotherapy 06/14/2013 Cytoxan, TaxotereSurgery 09/18/2013 Prophylactic Mastectomy (Left); Reconstruction: Tissue expander placement (Left)Radiation Therapy 09/30/2013 ExternalHormonal Therapy 11/14/2013 TamoxifenSurgery 12/30/2013 Reconstruction: Breast implants (permanent) (Both)Surgery 02/15/2014 Reconstruction (Right)
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Sep 22, 2013 08:02AM schoolmom wrote:

When I got ready to have a cap change my helpers connected the velcro straps before putting it on my head. Then they tightened the straps once on. It helped keep my hair out of the Velcro and avoid pulling.

saved my hair with cold caps with oncotype 21

Dx 9/12/2012, IDC, 1cm, Stage Ib, Grade 3, 1/3 nodes, ER+/PR+, HER2-Surgery 09/28/2012 Lumpectomy (Left)Surgery 09/28/2012 Lymph Node Removal: Sentinel Lymph Node Dissection (Left)Chemotherapy 11/05/2012 Cytoxan, TaxotereChemotherapy 11/26/2012 Cytoxan, TaxotereChemotherapy 12/17/2012 Cytoxan, TaxotereRadiation Therapy 01/28/2013 External, 3-D conformal external beam radiationHormonal Therapy 03/21/2013 ArimidexChemotherapy 01/07/2014 Cytoxan, Taxotere
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Sep 22, 2013 10:13AM m1970 wrote:

We used felt to cover the Velcro until we were ready to connect it at the back of my head. Also we found that if I put my hair in a loose ponytail or pigtails when the cap went on, then also when the cap comes off, that it was less likely to get stuck in the Velcro. We took the pig/ponytail out when the brow band went on the nape of my neck so my neck wasn't bare or hair too thick in one spot.

First diagnosed at age 37. New primary in opposite breast found on MRI at age 43. Used cold caps for my second chemo and saved my hair.

Dx 2/2/2007, IDC, 3cm, Stage IIIb, Grade 2, 4/23 nodes, ER+/PR+, HER2-Dx 3/20/2013, IDC, <1cm, Stage I, ER-/PR-, HER2+Surgery 03/20/2007 Lumpectomy (Right); Lymph Node Removal: Axillary Lymph Node Dissection (Right)Chemotherapy 04/01/2007 Adriamycin, Cytoxan, TaxolRadiation Therapy 09/01/2007 ExternalHormonal Therapy 10/15/2007 TamoxifenSurgery 06/01/2008 Prophylactic Ovary Removal (Left)Hormonal Therapy 06/20/2008 ArimidexSurgery 05/08/2013 Mastectomy (Both); Reconstruction: DIEP flap (Both)Targeted Therapy 06/19/2013 HerceptinChemotherapy 07/10/2013 carboplatin, TaxotereSurgery 01/22/2014 Reconstruction: Nipple reconstruction (Both)
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Sep 22, 2013 01:24PM Laura5 wrote:

sdraugelis, I am afraid it may be too late to save your hair, but why don't you email your question to Penguin?

Dx 6/3/2011, IDC, 2cm, Stage I, Grade 3, ER-/PR-, HER2+Chemotherapy 08/25/2011 carboplatin, TaxotereTargeted Therapy 08/25/2011 Herceptin

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