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Topic: H1N1 vaccine

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  • Posted on: Sep 1, 2009 02:20 pm
Cody, Wy
Joined: Feb 2009
Posts: 29
KDG wrote:

I am not going to take this vaccine.  I'm wondering what your thoughts are on this.  Are you planning on receiving it?

KDG
Dx 10/10/2008, LCIS, 2cm, Stage II, Grade 2, 0/4 nodes, ER+/PR+, HER2-

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ninel
Land O Lakes, FL
Joined: Jun 2008
Posts: 153
Nov 2, 2009 04:11 pm ninel wrote:

I am done with chemo and I am now cancer free. I am healthy. Am I considered high risk because I had cancer and my immune system was compromised by chemo even though that was over a year ago?


Diagnosis: 6/27/2008, IDC, 1cm, Stage IIb, Grade 3, 1/13 nodes, ER-/PR-, HER2-
bluedasher
CA
Joined: Aug 2008
Posts: 1,024
Nov 2, 2009 11:53 pm bluedasher wrote:

Ninel, I finished chemo almost 9 months ago. My onc said that since I was done with chemo, I'm no longer high risk and I should follow my PCPs advice on whether to get a flu shot.

The whole world is a narrow bridge and the main thing is to not fear.
Diagnosis: 9/2008, IDC, <1cm, Stage Ib, Grade 2, 0/5 nodes, ER-/PR-, HER2+
mumayan
Toronto area
Joined: May 2008
Posts: 1,304
Nov 3, 2009 08:17 am mumayan wrote:

But isn't cancer considered a cronic illness?


Diagnosis: 4/23/2008, IDC, 5cm, Stage IIb, Grade 3, 2/15 nodes, ER+/PR-, HER2-
AnneW
Boulder, CO
Joined: Oct 2002
Posts: 3,009
Nov 3, 2009 08:30 am AnneW wrote:

I know we consider cancer to be a chronic illness, but that's in terms of how it's managed, much like high blood pressure. When we're NED, we are as much (or as little) risk for illness as the general population.

With asthma and diabetes, though, (and other chronic illnesses that require immunosuppressant meds) someone who gets sick is way more at risk for a bad outcome. People with asthma are at risk because of the rampant pulmonary complications of H1N1. People with diabetes are at risk because any kind of infection can through off their sugars dramatically. It's all about the cascade of subsequent illnesses that can follow an influenza infection.

Finding a vaccine for cancer is far more complex than isolating a flu virus. It's not really fair to compare apples and oranges. But I understand the skepticism surrounding the H1N1 vaccine process. I just think it's misplaced. Had it been realized a few months earlier that a vaccine was required, it would have been put into this year's seasonal flu vaccine. And I doubt that we would even be having this debate.

I'm really annoyed that my clinic hasn't gotten its promised shipment yet. We're way behind in CO. I want my shot!

Anne

2002 IDC stage 1, grade 1, rads & AI
Diagnosis: 9/18/2007, ILC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
ShirleyHugh…
Wilmington, NC
Joined: Jul 2005
Posts: 4,289
Nov 3, 2009 12:26 pm ShirleyHughes wrote:

We do not have the H1N! shot available here either...not even at Duke and that's a huge hospital.  My friend who has RA was told my her Rheumy (at Duke) that her immune system is compromised and she needs the vaccine.  She's on meds that probably really compromise her system.

Yes, I know those with underlying medical problems are at more risk than healthy people.  As I posted, my grandchildren got the mist.  How in the world their pediatrician got the stuff is amazing.  But it sure wasn't a plentiful supply because my dd had to call the office often and run right over there as soon as she found out they had it.  I guess they got the flu anyway because the vaccine had not been in their system long enough.  They are fine now.

By the time they get the vaccines delivered that flu should be over.  Gosh, it's been going on for months now.  Oh, and even the seasonal flu shot is in shortage.  I was lucky to get my while I was at Duke for my onc's visit.

God, grant me the serenity to accept the things I cannot change; the courage to change the things I can; and the wisdom to know the difference
rguynes63
Joined: Sep 2009
Posts: 1
Nov 3, 2009 02:42 pm rguynes63 wrote:

I have debated over this for some time myself.  My Onc wanted me to take the regular flu shot and the H1N1 which I did take the regular one but I am reluctant to take something that was developed in such a short time.  Alot of my concern is that I really do not know that much about it.  I doubt that I will get the H1N1.  I try very hard to stay clear of sick ones and I disinfect all the time.  I also have heard it is hitting the younger ones more so than my age group (40ish) 


Diagnosis: 10/23/2008, IDC, 2cm, Stage IIIa, Grade 3, 4/40 nodes, ER-, HER2-
Colette37
Olympia, WA
Joined: Apr 2009
Posts: 148
Nov 3, 2009 07:45 pm Colette37 wrote:

Tirlie...How does "The clue: high knowledge helps to make the decision." have anything to do with if a person should get the vaccine or not?

Many Dr. here who have done the research are not getting the vaccine.  Does that make them not have "high knowledge?"

Colette
Diagnosis: 3/17/2009, IDC, 6cm+, Grade 3, 0/10 nodes, ER+/PR-, HER2+
KarenVW
Cincinnati, OH
Joined: Jul 2009
Posts: 76
Nov 3, 2009 11:26 pm KarenVW wrote:

For those anxiously waiting for the H1N1 vaccine and for those who never want to get the vaccine, I received a tip for what you can do to try to prevent getting the flu.  Gargle twice a day with warm salt water and swab your nostrils with warm salt water.  Your nose and mouth are the biggest intakers of germs, etc.


Diagnosis: 5/5/2009, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2-
AnneW
Boulder, CO
Joined: Oct 2002
Posts: 3,009
Nov 4, 2009 08:33 am AnneW wrote:

Got my H1N1 yesterday. Our first lot came in, finally. 100 doses for a campus of 6000. Now comes the fun part--screening for high risk students.

Anne

2002 IDC stage 1, grade 1, rads & AI
Diagnosis: 9/18/2007, ILC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
Tirlie
Joined: Apr 2008
Posts: 43
Nov 4, 2009 11:15 am Tirlie wrote:

I work in a occupational health unit- totally 80 emplyees, 20 MDs. All my colleguaes, all very well informed took both seasonal and swine flu vaccines. RN were very eager to have both shots. Other personnel, secretaries, nurse aids etc were not that interested.

No one of us got any sort of complications. Our vaccines came from a Swiss manufacturer, so they are not the same kind as in the States

otter
AL
Joined: Jan 2008
Posts: 3,952
Nov 4, 2009 11:23 am, edited Nov 4, 2009 11:30 AM by otter otter wrote:

Hi, all--

I saw my med onco this week for a routine going-over. One of the questions she asked was whether I'd had my flu shot. I told her I'd had a seasonal flu shot in October; and was ready and willing to get an H1N1 shot but hadn't been able to find one (yet).  She seemed pleased that I was not on the side of the nay-sayers.

She did point out that, being in my mid-50's and healthy (early-stage BC, on a "maintenance" drug [Arimidex] and NED), I am not in a high-risk group. She said it sounded as if there wouldn't be enough H1N1 vaccine for general use until late in the year or even early 2010. 

Most of the K-12 school systems in this state haven't even received any H1N1 vaccine yet.  Some of the colleges have received small shipments, but only enough to vaccinate a few hundred people at a time and it's all been the nasal spray, not the injectable form. Most of the shipments have been going directly to county public health departments, who've been sponsoring vaccination clinics for the high-risk folks.  Other people who show up at those clinics are being turned away.

The good news is that, according to my onco, the worst of the H1N1 epidemic here in Alabama may be over. It hit the schools really, really hard in September & October, with lots of kids and teachers out and some people getting very sick. There are still deaths being reported every week, but not so many new illnesses.  All of it (when tested) has been categorized as H1N1, or at least Type A ("presumed to be H1N1").

There hasn't been an outbreak of seasonal flu yet, at least in this region.  So I guess that's the bad news--the seasonal flu is still coming.  It tends to arrive later in the year or even after January, so the fact that it isn't here yet is nothing new.

My problem is that H1N1 is still raging in the parts of the country dh and I will be visiting for the holidays in December.  I have some cousins in their 40's and 50's who've missed as much as 2 weeks of work and are still sick. My dad (in his mid-80's) was just dx'd with pneumonia this week.  It's not H1N1-related, but it puts him at huge risk if he does contract the flu.  He can't get an H1N1 shot, of course, especially now that he's sick.  But he wouldn't have been able to get one anyway, because he's in a low-risk group.

Maybe things will have calmed down by this time next month... I sure hope so.

otter 

[Edited to add:  One of my relatives is an ER nurse. She had a seasonal flu shot > 6 weeks ago, and got an H1N1 shot last month.  She said the ER staff were in the highest-priority group and got their shots during the first round.] 


Diagnosis: 1/14/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR-, HER2-
Luah
Toronto
Joined: Sep 2009
Posts: 126
Nov 4, 2009 11:28 am Luah wrote:

Got my shot yesterday, waited 2 hours in Toronto. In Ontario, clinics are open for priority groups this week, and that includes cancer patients.  I would think it applies to those in active treatment - but to be honest, there was no close screening like that. Really, it's more of an honour system, asking people to be responsible/respectful and let those most at risk get it first.

The nurse did warn me that it hurts more than a usual flu shot, which I barely notice afterward. Last night and today, my arm is sore if I move it certain ways - like it's been punched. No other SEs for me.   


Diagnosis: 9/14/2009, IDC, 2cm
kim40
Halifax, NS
Joined: Dec 2008
Posts: 445
Nov 4, 2009 11:41 am kim40 wrote:

I called Health Canada about the H1N1 to double check if I am in the 'high risk group".  My last chemo was mid-June and presently take Femara. Health Canada told me that because I am taking Femara, I am considered high risk!  The vaccine is not available to me yet, there is a shortage right now in my province so I have to wait until the lift the restrictions.

Kim "I Live to Run" - Melissa Ethridge
Diagnosis: 1/6/2009, IDC, 5cm, Stage IIIa, Grade 3, 14/19 nodes, ER+/PR+, HER2+
PurpleMe
Georgetown, ON
Joined: Dec 2008
Posts: 153
Nov 4, 2009 11:49 am PurpleMe wrote:

I have never gotten the flu shot in the past and do not plan to start now.  

My life is an unfinished canvas waiting for the next brush stroke.
Diagnosis: 10/2008, IDC, 1cm, Stage IIa, Grade 2, 2/10 nodes, ER+/PR+, HER2-
lindasa
Joined: Aug 2008
Posts: 1,551
Nov 4, 2009 12:32 pm lindasa wrote:

If we are on an AI, I cannot see how that makes us high-risk.  I have great faith in HealthCanada but I think they got this one wrong, probably because whoever Kim talked to just assumed that if it's considered an anti-cancer drug, it automatically puts us at high-risk.  Just MHO, but I'm going with Otter's onc on this one!!

The H1N1 vaccine available in Canada is made by Glaxo in Canada, and I have not heard of anyone suffering ill effects, other than a sore arm.  Neither dh nor I have had the shot, so we can't speak from experience, though.....  Anyone else???

"Hope has 2 beautiful daughters -- anger and courage. Anger at the way things are, and courage to see that they do not remain the way they are." Augustine
Diagnosis: 1/10/2008, ILC, 1cm, Stage I, Grade 3, 0/4 nodes, ER+/PR-, HER2-
BonnieK
OR
Joined: Nov 2008
Posts: 300
Nov 4, 2009 12:53 pm BonnieK wrote:

I got a seasonal flu shot, but doubt that I will get the H1N1 vaccine.  There is very little vaccine available here, and it is being given to high risk groups only at this time (pregnant women, small children and health care workers). 

A graduate student at the college where I work died in the hospital last weekend after developing respiratory complications from H1N1. So sad!


Diagnosis: 9/2008, IDC, 5cm, Stage IIIa, Grade 2, 1/11 nodes, ER+/PR+, HER2-
AnneW
Boulder, CO
Joined: Oct 2002
Posts: 3,009
Nov 4, 2009 10:17 pm AnneW wrote:

My H1N1 shot didn't hurt one bit! Last year's seasonal flu was pretty bad. This year's not so much.

We thought we'd seen the peak at our college, but got a new wave today. I'm afraid that as people travel over the holidays, we'll see another spike in numbers. With this one, you're contagious before you're symptomatic!

Anne

2002 IDC stage 1, grade 1, rads & AI
Diagnosis: 9/18/2007, ILC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
Colette37
Olympia, WA
Joined: Apr 2009
Posts: 148
Nov 5, 2009 03:01 pm Colette37 wrote: http://www.youtube.com/user/322skull#p/f/18/giavJC7Q-TM

This is a link to the person (micro biologist) who had information about how the swine vaccine was contaminated. Amazing how he was extrodited to Israel before he could testify in the US about what Baxter was doing, along with the fact that the media was spinning him into one thing and then got rid of him the next.

Too many unanswered questions and the fact that the vaccine for the swine flu is being made in none other than China does not make me trust it any more than I do right now.

Colette
Diagnosis: 3/17/2009, IDC, 6cm+, Grade 3, 0/10 nodes, ER+/PR-, HER2+
lindasa
Joined: Aug 2008
Posts: 1,551
Nov 5, 2009 03:14 pm lindasa wrote:

Just want to remind any Canadian sisters that our H1N1 vaccine is made in Canada.  I didn't read anywhere that the U.S. vaccine is made in China.  Collette, wondering where you heard/read that?

"Hope has 2 beautiful daughters -- anger and courage. Anger at the way things are, and courage to see that they do not remain the way they are." Augustine
Diagnosis: 1/10/2008, ILC, 1cm, Stage I, Grade 3, 0/4 nodes, ER+/PR-, HER2-
Mantra
ON
Joined: Aug 2009
Posts: 226
Nov 5, 2009 04:16 pm Mantra wrote:

I just called my doctor's office. They haven't received the vaccine yet (Barrie ON). They told me I am considered in the high risk group and will be able to receive the vaccine once they receive it. Yesterday I spent the day at Mount Sinai and Toronto General Hospital and even though I cleansed my hands obsessively while there, I'm definitely coming down with something. Freezing, sore throat, headache. YUCK. I'm taking Airborne today hoping it is just a common cold.


Diagnosis: 7/10/2009, DCIS, <1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR-
sftfemme65
Wichita, KS
Joined: Jan 2008
Posts: 648
Nov 5, 2009 04:55 pm sftfemme65 wrote:

Hi.  Ok I have an appt next week...the whole family does to get this vaccine.  I want it but it looks like we will be getting the mist .... except for the 3 yr old who I think will get the shot.  Anyways, I would like to hear from those of you that HAVE gotten the mist.  Any info would be welcomed.  I am 44yrs old

Thanks,

Teresa


Diagnosis: 11/28/2007, IDC, 2cm, Stage IIb, Grade 2, 3/20 nodes, ER-/PR-, HER2-
kerkle
Montreal, QC
Joined: Jul 2009
Posts: 82
Nov 5, 2009 05:10 pm kerkle wrote:

I had the vaccine in Florida, it is not made in China - this batch was made in Pennsylvania (I asked because someone on this site had mentioned they were made in China and the nurse thought that was absurd!). I am from Canada and the Canadian vaccine is made in Canada. Both countries are saying that the H1N1 vaccine is the same as the reglar flu shot, but with the dead H1N1 virus in it. No different. And, I was also told there are risks from everything we do and take (shots, pills, radiation, chemo...etc) but the benefits far outweigh the risks in this Swine flu epidemic. At this time alone, my friend was told my a Dr., there are 40 adults, in only one of our Montreal hospitals, hooked up to ventilators because of the H1N1 virus. Our city has many othert hospitals we dont know about and I was told that in the month of October alone, more children died of H1N1, than in the whole season of flu last year. Good luck and be brave! We have already been so brave with BC, what's a little flu shot?!!


Diagnosis: 4/16/2009, DCIS, 6cm+, Stage 0, Grade 3, 0/1 nodes, ER+/PR+, HER2-
KEW
Portland, OR
Joined: Dec 2008
Posts: 564
Nov 5, 2009 05:20 pm KEW wrote:

Hi,

I just decided this morning to get the shot.  I work at a medical school and they have set aside vaccinations for people who are considered compromised.  Although I don't like thinking of myself that way, my body has been through a great deal this year, I didn't have chemo.  My onc and PCP both want me to get it.  I still didn't want to get it, but I just spoke with one of our grad students who got the illness and he said it was pretty bad.  I generally don't like putting anything in my body, but can't afford to get sick, don't have enough leave after the last year.  It also hit home for me today when I found out that a student teacher at my son's high school died from it in the last day or two--big healthy football playing guy--gone.  I've also had pneumonia several times, so I don't want to take the chance.  I just hope we don't find out some horrible thing about the vaccine in a few years!

Best,

KarenW 

Age DX: 48. Dx Oct 2008, IDC, 2.6cm, Stage IIa, Grade 2, 0/10 nodes, MIB low, 100%ER+/Pr+, HER2-, Oncotype Score 15. Nipple sparing BLM with reconstruction Nov 2008. Exchange to Mentor HP 800cc, hyster/ooph May 2009. Tamoxifen.
123Donna
Joined: Oct 2009
Posts: 15
Nov 5, 2009 05:41 pm 123Donna wrote:

Does anyone know if you are exposed to someone that had the flumist, can you get the N1H1 from that person?  The reason I'm asking is my nephews are getting the N1H1 Flumist this week and we're supposed to go over to their house for a birthday party.  I've recently finished chemo and worried that I might be get N1H1 from them since the Flumist is a live virus.

 Donna

Dx 6/09, IDC TNBC, 1.4cm, Stage 1, Grade 3, 0/5 Nodes, ER-, PR-, HR-, BRCA -, Bilateral, Chemo T/C X 4.
bluedasher
CA
Joined: Aug 2008
Posts: 1,024
Nov 5, 2009 08:26 pm bluedasher wrote:

Donna, in theory that can happen, but it is a weakened (attenuated) form of the virus so it isn't terribly likely - that's why your nephews won't get full blown H1N1. Since you are done with chemo, I don't think that you need to worry about it.

Linda, I read that there was a version of the H1N1 vaccine being manufactured in China and that they were exporting it to Korea and Mexico who had approved its use. I haven't seen any indication that it is being imported by the US. There are plenty of US makers of the vaccine though apparently it hasn't been growing as robustly in the eggs as they would like which is why there is such a shortage for the time being.

It seems like there are anti-vaccine folks who will generate any bit of FUD they can to convince others to not get vaccinated. It doesn't need to be true - it just needs to be anti-vaccine.

The whole world is a narrow bridge and the main thing is to not fear.
Diagnosis: 9/2008, IDC, <1cm, Stage Ib, Grade 2, 0/5 nodes, ER-/PR-, HER2+
snuziq
McKinney, TX
Joined: Jul 2009
Posts: 45
Nov 5, 2009 08:38 pm snuziq wrote:

I am in the middle of chemo (treatment 3 of 6 is next week) so I asked my oncologist about the H1N1.  They are leaving it up to the primary but told me if I was going to get the shot to take it closer to my next treatment so my white counts would be back up.

My allergist wants me to take the shot because I am a severe asthmatic, but they wanted me to clear it with the oncologist first.  I get my shot tomorrow.

Be yourself. Who else is better qualified?
Diagnosis: 7/16/2009, IDC, 2cm, Stage IIa, Grade 3, 0/8 nodes, ER-/PR-, HER2-
sftfemme65
Wichita, KS
Joined: Jan 2008
Posts: 648
Nov 6, 2009 01:25 am sftfemme65 wrote:

Well shit.  Im so confused over this whole thing.  My family doctor says Im not compromised since Im done with chemo so I can do the mist, my onc office said NO take the shot or nothing.  What the hell. 

I want the shot but how am I going to force them to give it to me?

Teresa


Diagnosis: 11/28/2007, IDC, 2cm, Stage IIb, Grade 2, 3/20 nodes, ER-/PR-, HER2-
Tirlie
Joined: Apr 2008
Posts: 43
Nov 7, 2009 03:18 am Tirlie wrote:

My onc took both shots herself- how about that?

crazydaisy
On
Joined: Jan 2008
Posts: 1,422
Nov 7, 2009 03:59 am crazydaisy wrote:

http://www.theflucase.com/index.php?option=com_content&view=article&id=1419:alert-canadians-toxic-ingredients-in-the-arepanrix-h1n1-vaccine-harm-your-health&catid=41:highlighted-news&Itemid=105&lang=enhttp://www.theflucase.com/index.php?option=com_content&view=article&id=1419:alert-canadians-toxic-ingredients-in-the-arepanrix-h1n1-vaccine-harm-your-health&catid=41:highlighted-news&Itemid=105&lang=enhttp://www.theflucase.com/index.php?option=com_content&view=article&id=1419:alert-canadians-toxic-ingredients-in-the-arepanrix-h1n1-vaccine-harm-your-health&catid=41:highlighted-news&Itemid=105&lang=en

some interesting reading regarding the ingredients of the H1N1 flu vaccine. I'm not getting this vaccine. Hope this link works.

Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Diagnosis: 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR-
crazydaisy
On
Joined: Jan 2008
Posts: 1,422
Nov 7, 2009 04:09 am crazydaisy wrote:

http://eldib.wordpress.com/2009/07/25/list-of-components-of-glaxo-h1n1-vaccine/

another interesting read

Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Diagnosis: 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR-

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