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Topic: after effects and healing time of port

Forum: Help Me Get Through Treatment — Medications and other treatments, medical benefits, and managing side effects.

Posted on: Jun 19, 2011 08:39AM

rabbit wrote:

I had the power port put in 2 days ago, I am quite stiff especially after waking up in the morning and I am a DD so my breast seems to tug on it a bit when I first stand up. The dressing is still over it and I was told to leave it on for 7-10 days if possible, but the area is warm to the touch and pretty red, is that normal 2 days later? I don't see the dr. til Wed. to check on it...should I worry or is that pretty typical for a port? I just don't want an infection right next to my heart....

thanks in advance :) 

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Posts 1 - 19 (19 total)

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Jun 19, 2011 08:47AM hrf wrote:

When I had mine, I don't recall it being red or warm. Best to be safe - call the doctor

BRCA2+ first dx in Oct. 2004 2nd dx Feb. 2009 a new primary

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Jun 19, 2011 09:12AM Texas357 wrote:

Yes, I agree that you should call your doctor. It will feel stiff and strange for a while until you get used to it. But I don't recall any redness either.

DX 9/08, ILC, Stage 3A, ER+/PR+, HER2-, 7/13 pos nodes. Mastectomy & six months chemo & 32 rads.Prophy mx 8/09. Implant only on proph side; LD flap on rad side. 13 surgeries since diagnosis.

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Jun 19, 2011 10:42AM 208sandy wrote:

Yup, call the doctor - it may be nothing but with ports being safe is better.  I do remember mine being "uncomfortable" for a day or so but certainly not red or hot.  I have had mine in for three plus years and it has been a God send (it's coming out on July 14th).

Hugs, Sandy

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Jun 19, 2011 10:49AM calevorse wrote:

Mine was very uncomfortable.  Actually, I've had mine in for a few months now and I'm still not used to it.  My doctor said depending on the placement some women have no problem and other women always feel it.  Mine, however, has never been red or warm.  Did you have chemo right after?  I had chemo the next day after getting the port put in.  There was redness then, but it only lasted an hour and then it turned more into a bruise.  I'd call the doctor.  Good Luck!  Smile
Dx 4/1/2011, IDC, 3cm, Stage II, Grade 3, 0/3 nodes, ER-/PR-
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Jun 19, 2011 12:41PM Leah_S wrote:

Rabbit, it would be a good idea to call the doc. Red and warm doesn't sound like it's what should be.

Best of luck.

Leah

Dx 11/3/2008, IDC, 1cm, Stage IV, Grade 3, 6/17 nodes, ER+/PR+, HER2-
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Jun 19, 2011 12:54PM marial wrote:

My port was extremely painful when it was put in..my shoulder and neck were killing me..I went into the er the day after it was installed because it was so painful and ended up on antibiotics..it was red from the top incision through the port area..the dr outlines it and it looked like a vase..it took forcer go get thAt ink off me!

Diagnosis 12/15/2010 IDC 3cm 0/6 nodes stage IIa,grade 3' Triple Negative

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Jun 20, 2011 11:26AM rabbit wrote:

thanks everyone...I did call the Dr. yesterday, 2 days after it was put in. She said it was normal for the redness for several days, the redness is more than 50% gone now. 

Marial, I think I am one of those like you, I feel the catheter in my neck, my left side is stiff, the right side of my neck is uncomfortable...I have always been so intune with my body and any foreign object like this is not going over well, but it's getting better.

Thanks everyone, I am so happy I found this forum, it's the nuts as we say in poker! LOL 

Ellen DOB: 9/7/1965

Dx 6/6/2011, IDC, 4cm, Stage IIb, Grade 3, 1/2 nodes, ER+, HER2-Chemotherapy 06/29/2011 Cytoxan, Ellence, fluorouracil, Taxol, TaxotereSurgery 01/05/2012 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Hormonal Therapy 01/17/2012 TamoxifenSurgery 01/31/2012 Prophylactic Ovary Removal (Both)Radiation Therapy 03/10/2012 External
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Jun 20, 2011 11:42AM 208sandy wrote:

Glad things are working out for you - and also glad you called the doctor - it's never a bad idea.  Hopefully things will settle down port-wise for you in a short time - mine was placed perfectly but so many of them aren't and I am like you very sensitive to anything going on in my body.  That said I am glad to be finally getting mine out - three years is a long time.

Sandy

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Jun 20, 2011 04:35PM rabbit wrote:

hi Sandy can I ask why you had the port in for so long? 

I am very happy for you getting it out in a few weeks, that's great.  

Ellen DOB: 9/7/1965

Dx 6/6/2011, IDC, 4cm, Stage IIb, Grade 3, 1/2 nodes, ER+, HER2-Chemotherapy 06/29/2011 Cytoxan, Ellence, fluorouracil, Taxol, TaxotereSurgery 01/05/2012 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Hormonal Therapy 01/17/2012 TamoxifenSurgery 01/31/2012 Prophylactic Ovary Removal (Both)Radiation Therapy 03/10/2012 External
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Jun 20, 2011 05:11PM 208sandy wrote:

Hi Rabbit:

I think it's because I had two different oncs in two different countries and also because I couldn't stay on AI's because of se's so they were both pessimistic about my chances of non-recurrence but now that three years are up my onc is feeling more optimistic but always says "we can always put another port in if we have to" gotta love the attitude.  Honestly ports probably shouldn't be in for a very long time - my nurse friends and my PCP wanted it out two years ago but like I said I haven't had any problems with it at all.

Sandy

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Jun 21, 2011 01:02AM rabbit wrote:

Which other country did you live in? I lived in Australia for 8 years.

one of the things that bothers me is having to take warfarin, I started it today. 

Ellen DOB: 9/7/1965

Dx 6/6/2011, IDC, 4cm, Stage IIb, Grade 3, 1/2 nodes, ER+, HER2-Chemotherapy 06/29/2011 Cytoxan, Ellence, fluorouracil, Taxol, TaxotereSurgery 01/05/2012 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Hormonal Therapy 01/17/2012 TamoxifenSurgery 01/31/2012 Prophylactic Ovary Removal (Both)Radiation Therapy 03/10/2012 External
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Jun 25, 2011 10:47AM rabbit wrote:

The port is finally healing nicely, I guess eventually I'll get used to feeling every bit of it, I can feel where the catheter is every time I cough, turn my neck or lay a certain way in bed. It's annoying....

Ellen DOB: 9/7/1965

Dx 6/6/2011, IDC, 4cm, Stage IIb, Grade 3, 1/2 nodes, ER+, HER2-Chemotherapy 06/29/2011 Cytoxan, Ellence, fluorouracil, Taxol, TaxotereSurgery 01/05/2012 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Hormonal Therapy 01/17/2012 TamoxifenSurgery 01/31/2012 Prophylactic Ovary Removal (Both)Radiation Therapy 03/10/2012 External
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Jul 4, 2011 12:11PM rabbit wrote:

I just wanted to post an update here, the port is finally not really bothering me. I can sleep on either side now with no major issues. I can almost never feel the catheter (or whatever you call it) anymore, just once in a great while, and I'm really not sore on the left side anymore. 

Ellen DOB: 9/7/1965

Dx 6/6/2011, IDC, 4cm, Stage IIb, Grade 3, 1/2 nodes, ER+, HER2-Chemotherapy 06/29/2011 Cytoxan, Ellence, fluorouracil, Taxol, TaxotereSurgery 01/05/2012 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Hormonal Therapy 01/17/2012 TamoxifenSurgery 01/31/2012 Prophylactic Ovary Removal (Both)Radiation Therapy 03/10/2012 External
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Jul 26, 2011 07:39PM ellenquilt wrote:

I emphathize.  I had my port put in last week and I'm always aware of it.  It does feel a bit like something pulling at my neck and I think I tense my neck up in response to that, so I give myself a tension headache.  Have to work on that.

12 Weeks Taxol (switched week to Abraxane)+Herceptin, 5xweek for 5 weeks radiation after and then herceptin every 3 weeks for the rest of the year. Then the obligatory 5 years of Tamoxifen. Oy Vey!

Dx 5/20/2011, IDC, <1cm, Stage Ib, 0/1 nodes, ER+/PR-, HER2+
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Jul 26, 2011 10:26PM rabbit wrote:

hi Ellen, I'm Ellen too ;) 6 weeks or so now for me and it's fine...I do still feel it off and on in the right side of my neck, almost like it's irritating my throat on the right side. It was sore for a good week for me, mine is on the left side a few inches below my collarbone, so the left side was tender, tender..when I woke up, and stood up for the first time in the morning, it felt like a weight there that was tugging on me in the port spot and it ached for minutes after first rising. I don't miss that feeling at all, but now, it's not a big deal. You pretty much forget about it after time. That may be the reason for a lot of my headaches around that time too, hope yours heals quick :) 

xoxo 

Ellen DOB: 9/7/1965

Dx 6/6/2011, IDC, 4cm, Stage IIb, Grade 3, 1/2 nodes, ER+, HER2-Chemotherapy 06/29/2011 Cytoxan, Ellence, fluorouracil, Taxol, TaxotereSurgery 01/05/2012 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Hormonal Therapy 01/17/2012 TamoxifenSurgery 01/31/2012 Prophylactic Ovary Removal (Both)Radiation Therapy 03/10/2012 External
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Jul 26, 2011 11:35PM Trisha-Anne wrote:

Rabbit - you've lost your hair!?  How are the treatments going?

I had a port put in last November.  I don't even know it's there anymore.  It was fairly tender for a couple of weeks after being put in, and yes - had that pulling feeling at my neck too.  Hang in there - you won't notice it after a while.

Trish

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe

Dx 9/17/2010, ILC, <1cm, Grade 1, ER+/PR+, HER2-Dx 9/17/2010, IDC, 2cm, Stage IIa, Grade 3, 1/6 nodes, ER+/PR+, HER2+
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Jul 27, 2011 08:04AM rabbit wrote:

hi Trish

I shaved my head to like 1/2 inch or so on day 15 of first chemo...I woke up and it was shedding like a dog, the next day it was still shedding tiny little prickly hairs LOL so I had a friend with a close electric razor shave the rest of it, down to baldie. I notice now (day 8 of round 2) that some of it is trying to grow back, very short stubbles, but my temple area and right around the hair line, is completely bald like a baby butt.  

Ellen DOB: 9/7/1965

Dx 6/6/2011, IDC, 4cm, Stage IIb, Grade 3, 1/2 nodes, ER+, HER2-Chemotherapy 06/29/2011 Cytoxan, Ellence, fluorouracil, Taxol, TaxotereSurgery 01/05/2012 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Hormonal Therapy 01/17/2012 TamoxifenSurgery 01/31/2012 Prophylactic Ovary Removal (Both)Radiation Therapy 03/10/2012 External
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Jul 27, 2011 09:18AM ellenquilt wrote:

Hi Rabbit,

Glad to meet another Ellen.  Smile

Thanks for the boost -- I'm hoping the annoying sensation starts to go away. The tenderness at the back of my neck (stress tension) is starting to get better so I'm somewhat optimistic.

Next I have to decide when to get my hair buzzed off. It hasn't started coming out yet, only one chemo so far, but it's Taxol and Herceptin, so I expect after the second chemo it will be hair today gone tomorrow.  I'm inclined to want to get it all buzzed off next week and be done with it.  Too hot for hair these days anyways. 

12 Weeks Taxol (switched week to Abraxane)+Herceptin, 5xweek for 5 weeks radiation after and then herceptin every 3 weeks for the rest of the year. Then the obligatory 5 years of Tamoxifen. Oy Vey!

Dx 5/20/2011, IDC, <1cm, Stage Ib, 0/1 nodes, ER+/PR-, HER2+
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Jul 27, 2011 09:20AM rabbit wrote:

yep, my hair was to my waist most of my life, but to be honest, the bald head doesn't freak me out like I thought it may...it's never really bothered me much. 

Ellen DOB: 9/7/1965

Dx 6/6/2011, IDC, 4cm, Stage IIb, Grade 3, 1/2 nodes, ER+, HER2-Chemotherapy 06/29/2011 Cytoxan, Ellence, fluorouracil, Taxol, TaxotereSurgery 01/05/2012 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Hormonal Therapy 01/17/2012 TamoxifenSurgery 01/31/2012 Prophylactic Ovary Removal (Both)Radiation Therapy 03/10/2012 External