Topic: Biopsy sent to Vanderbilt?

Thanks Leaf, your right I dont want any mistakes made. And Ive read on here that Vanderbilt has a great pathology department so that makes me feel better.

Thanks Lisa, was called back today and told now it will be tues or wed of this week before I hear. UGGGHHH this waiting game sucks! Its been a week since the biopsy and my nerves are shot. Trying to work and take care of DH who now has the flu is about more then I can deal with. I will post as soon as I hear the report.

I still havent heard anything. Vanderbilts breast pathology website said they get results out in 2-4 days. Well if it was recieved last week so its been longer than that now. The care navigator said it would be today and I have called twice, she never returned either call. I am losing trust in this clinic they keep telling me days that the results will be in only to not have them and not return calls. I think if they wouldnt have told me 5 different days the results would be in I wouldnt be a complete wreck. Trying to concentrate on my job while waiting for the calls is not going so well. Nobody wants a hairdresser who crys while she does your hair.

Dear momoftwo71, I am so sorry for the waiting that you have had to endure!  The waiting is just excruciating!  I read on another board that because the results were B9 that the doctor didn't think that there was any rush to call the patient!  I found the exact opposite in my case---I had an MRI guided biopsy back on Sept. 29th, and on Oct. 1st (first thing in the morning----it hadn't even been a total of 48 hours since my biopsy) I received a call from my doctor telling me that all was B9.  I wouldn't hesitate to get on the phone first thing tomorrow morning to demand some answers.  If they don't have the report yet, then they can at the very least explain why such a LONG delay!  Good luck to you, and I'll be praying for some good news for you very soon.....Lisa

momoftwo71, I think as I was writing my last posting that you must have gotten your long-awaited call!  I'm really glad that they were finally in touch with you.  Great idea to get a copy of the report from your dr.  I can understand how your trust in the clinic is damaged.  I guess that you'll need to decide for your mammo & mri in 6 months if you want to return to them, or have your records sent somewhere else.  I am so sorry that the medical community specializing in breast health treated you the way that they did----I think that it's inexcusable for them not to be in touch to at least explain the delay.  My pathology showed a fibroadenoma also.  Best Wishes for healthy days ahead!....Lisa

Well my GYN got her copy of pathology in Friday and wants me to see a surgeon. She said she wasnt comfortable with my family history and the other nodules to wait 6 months. So I have an appointment tommorow at 1:30.  I dont have any idea what he will decide to do and that makes me nervous. 

 My sister was full of nodules and had multiple biopsys before she finally had a double mastectomy this year that showed she already had breast cancer. She was tested last year and found to have Cowdens syndrome and they told her her chances of getting breast cancer were high.

You may want to (eventually) consider getting genetic counseling.  When I had genetic counseling (in 2006), I was told I might have Cowden's syndrome (I had enough physical history to qualify if you consider my LCIS as breast cancer), but when it went before a panel, they said 'it would be a stretch' and was 'not medically necessary'.  I opted to not get tested (it would be out of pocket), and I already am at risk for bc (having LCIS).

http://www2.mdanderson.org/app/pe/index.cfm?pageName=opendoc&docid=2190

Of course, I am not a genetics expert, or a breast surgeon, and I was seen several years ago. Things may have changed a lot.

Please know we are thinking of you.

Hi Kim,

I have ALH.

In doing my research, I came upon this article...

no increase risk of bc when alh is found within fibroadenoma

http://www3.interscience.wiley.com/journal/84503951/abstract?CRETRY=1&SRETRY=0

good luck

tree

Tree after the sono and diagnostic I was called in for a consultation, she told me that I was full of what they were sure were fibrodenomas. But that 8 showed up with irregular borders and blood flow. Here is a copy of my ultrasound report.

Asymptomatic 38-year-old, first-order family history of premenopausal breast cancer. The screening examination of Sept 2 raised concern regarding a nodular-like density in the retroareolar mid one-third of right breast and additional imaging was advised. Targeted digitally aquaired radiographs and bilateral ultrasound are obtained today.

In the diagnostic radiographs, the shadow does not reproduce as a geographic findings of suspicious character. In the ultrasound examination, however, there are multiple bilateral findings of concern. In the 8 0'clock position, there are two hypoechoic subcentimeter nonshadowing nodules, the larger of which are about 0.92cm. They are not particularly sharply defined. There is no evidence of posterior shadowing.

In the 10 o'clock position peripherally, a similar attenuation 1-cm nodule, non-shadowing. It shows some internal vasculature, but no posterior acoustic shadowing.

Conclusion: Bilateral Birads Category :0 need additional imaging evaluation. Although the radiographic finding of concern is not reproduced, we sonographically demonstrate bilateral shadows of concern which are subradiographic. While these could be part of a background pattern of fybrocystic change and possible fibrodenomas, with her stron family history, we cannot exclude neoplasm. I would strongly advise breast MRI.

I had two nodules that enhanced on the MRI. The radiologist said that there were 8 with irregular borders but that these two enhanced so they would be the ones they biopsied. I do not have a copy of my MRI yet.

Here is the pathology report they gave me

Department of Pathology, 225 E.Jackson, Jonesboro, AR 72401

Tel:870-972-4508

Patient name: XXXXXXX, Kimberly XXXX

Collected 10/19/2009

Received:10/19/2009

Specimens received A: ultrasound biospy right breast B: Ultrasound biopsy left breast, Clinical history Right and Left breast masses

A. Ultrasound biospy of right breast: Atypical Lobular Hyperplasia involving a fibrodenoma

B:Ultrasound biopsy left breast: Fibrodenoma, biopsy, histologically benign

Comment These two specimens from this case were sent to Dr. David L Page at Vanderbilt Medical Center . mw/ 10/28/2009 diagnosis preformed by: D.B.Vollman, Jr. M.D. Gross Description. Ultrasound biopsy right breast: Received is a container of formalin labled, Kimberly XXX XXXXXX, right breast 4. Received in the container are multiple tan needle core biopsies ranging from 0.3 to 1.7 cm in length with diameters from 0.2 to 0.4 cm. No x-ray accompanies specimen. B:Ultrasound Biopsy left breast: Received is a container of formalin labled, 3KImberly XXXXXX XXXXX, left breast4. Received in the container are multiple tan needle core biopssies ranging from 0.2 to 1.7cm in length with diameters from 0.1 to 0.4 cm. No x-ray accompanies specimen.

Microscopic description A: This is a fibrodenoma which contains atypical lobular hyperplasia involving fibrodenoma B: This shows a cellular fibrodenoma. No atypical hyperplaisa is seen in the specimen. D: DBV 10/28/09 oc pl (Not available)

sorry this is son long, and I dont really understand any of what either says. Just that the surgeon wants to go in on the right breast and take 2-3cm more to make sure there was nothing left. And he wants me to have genetic counseling/testing.

PS

get genetic testing, it may help, since there is history of premenopausal cancer

Thanks Tree, my sister has 2 children and she is going to have them tested. Her genetics Dr. said he would like to test our parents and me and my brother also. The problem is the expense of the tests.

I asked the surgeon what was to be done about the other 6 and he said he wanted the gentics test done before we decide what to do about them. I have been looking at everything I can find about this online. I emailed my sisters Dr. and he said I at least needed to come in and have a cancer evaulation in the genetics clinic.