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All TopicsForum: Waiting for Test Results → Topic: Crying from Dr.

Topic: Crying from Dr.

Forum: Waiting for Test Results — Biopsy, mammogram, CAT scan, PET scan, ultrasound, or other tests.

Posted on: Apr 10, 2012 03:55 PM

luvhummingbirds wrote:

So went to my Dr. Still no biopsy results...read from the diagnostic mammogram only. Is booking me for a surgeon. The photo copy I asked for says BIRDS 4A. I just don't understand any of this. 

They gave me photo copies of everything he's done and apparently there is things that he has not told me. Apparently on top of my blobs I have mild SI Joint Degeneration. Also after having an ultra sound a year ago of my ovaries which I was told I still had after a hysterectomy this paper says I don't.

I'm just so scared and confused with all this.

I requested an MRI or CT for the burning in my shoulder blade and armpit pain and he told me "no not right now". Omg if I die because of this asset I told my daughters to sue him :( :( 

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Apr 10, 2012 04:11 PM marie5890 wrote:

Luvhummingbirds,

Can you post exactly, word for word, what your reports say? Im thinking the confusion you are having may be due to not understanding the medical-ese of the reports.

Having a BIRADS 4A is a very good thing.  

Nov. '10 Mammo,U/S, MRI showed suspicious 9mm x15mm mass . Jan '11 Biopsy Dx-ed a PASH tumor (rare, but benign tumor)....All I ask is for peace and serenity to the depths of my soul. Makes the rest of life more live-able.
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Apr 10, 2012 04:32 PM debbie6122 wrote:

Luvhummingbirds- If your pain in your shoulder is that painful i would either go to another Dr and have him/her send you in for a catscan or mri. or just go straight into the ER and have them do it there, it may cost extra money but right now for your peace of mind I think you should definitely just go in and have it done. Keeping fingers crossed for b9 results on your biopsy.

hugs

Debbie

masectomy, chemo, node positive
Diagnosis: 12/20/2009, IDC, ER+/PR-, HER2-
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Apr 10, 2012 06:16 PM changes wrote:

Luvhummingbirds,

BIRADs 4a is pretty good news - most of those are benign. Joint degeneration is normal as we age - most people past 40 have some degeneration of joints - nothing really to worry about. As far as the pain in your shoulder, there are LOTS of things that can be. A responsible doctor would NOT order a CT scan for every ache and pain we have - that would expose us to way too much radiation. You may want to ask him what he DOES recommend for checking that pain out.

IDC Stage 1, Grade 1
Diagnosis: 5/14/2010, IDC, 1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Apr 10, 2012 06:17 PM luvhummingbirds wrote:

Hi..

I did request from my Dr.  A CT or MRI and he told me "its not necessary right now" he then recommended massage therapy. :( 

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Apr 10, 2012 06:37 PM debbie6122 wrote:

Luvhummingbirds- Since your pain in your shoulder is VERY Painful as you stated then i would still ask for a dr to approve a catscan or mri. A good dr is one who will take you serious and try to rule out any thing serious.

masectomy, chemo, node positive
Diagnosis: 12/20/2009, IDC, ER+/PR-, HER2-
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Apr 10, 2012 06:42 PM Kicks wrote:

My thought would be that PT for the shoulder would do more massage alone. It can be vicious circle when something hurts we don't use/stretch it as much. So it gets sorer from no use so it hurts mor so it gets worked less and on and on. Happened to me a few months ago. In a scan a mucsle got pulled rather bad. Because my bone scan was only about 6 mths old and clean, they didn't want to do. - clean. Ortho Dr sent me to PT and got what to do at the base gym for stretching. He also slightly upped my Etodolac I take to keep arthritis under control. It worked great - pain gradually left and ROM came back. Y saw the Dr 2 mths after starting forcing exercise/movement and he doesn't want to see me again. So you might want to see a PT or just try GENTLY pushing yourself .


Diagnosis: 8/7/2009, IBC
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Apr 10, 2012 06:47 PM kayb wrote:

Can you see an orthopedist for your shoulder? I think your current doctor wants to see what your biopsy report says. Since you have a good chance of being benign with a Birads 4a, if you don't have cancer in your breast it's unlikely you have it in your shoulder. If the biopsy comes back positive, a CT would probably be part of your diagnostic testing and might be fully covered by your insurance.


Diagnosis: 5/20/2010, IDC, 2cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2+
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Apr 10, 2012 07:54 PM marie5890 wrote:

I second the idea of seeing a physical therapist for the shoulder pain. I had a bad, REALLY BAD, bout of shoulder pain a few years back and a physical therapist was able to help me with it. 

See what the biopsy results are. If, as with most BIRADS 4a, it does show you dont have cancer, serious look at getting some massage or physical therapy for the pain. I've had both done for my shoulder pain and it does work. 

Good Luck. Smile 

Nov. '10 Mammo,U/S, MRI showed suspicious 9mm x15mm mass . Jan '11 Biopsy Dx-ed a PASH tumor (rare, but benign tumor)....All I ask is for peace and serenity to the depths of my soul. Makes the rest of life more live-able.
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Apr 10, 2012 08:00 PM CoolBreeze wrote:

Every single person has joint degeneration as they age, my doctor told me.  It's normal.

As for your shoulder, is it possible you are getting frozen shoulder?  I got frozen shoulder in my right shoulder right after my exchange surgery.  It has been one of the most painful things I've dealt with.  That was 18 months ago and the pain is gone and most of my arm moves again but my functioning is back to only 80%.  Now, it has started up in the left shoulder too, I can't believe it.

Google frozen shoulder and see if that's what it sounds like.  It does go away on its own but a cortisone shot can help it so you might want an orthopedic consult.

An MRI is not a first choice test.  When I saw the orthopedist about my shoulder they did a simple x-ray.  Then they did a CT with flouroscope because I'm Stage IV and they wanted to rule out bone mets.  Then they FINALLY treated me with cortisone.    If your biopsy comes back cancer, then they'll do bone scan on you to see if you have it in your bones but you have to take it step-by-step.  Like everybody else told you, birads 4 is a good thing.  I have seen many thousands of woman on this forum post their birads 4 score and end up with negative results.

The birads system isn't diagnostic anyway, it is just a system to tell a doctor when to biopsy or not.  You barely made it into the biopsy category.

Good luck! 

Ann's cancer blog: www.butdoctorihatepink.com .....multicentric/multifocal IDC/ILC+DCIS/LCIS/ADH Official dx? "Your breast was a mess." ~UniMastectomy/Chemo/Herceptin/Tamoxifen/Recon Almost Done! Oh wait. mets to liver 5/21/11 Now Stage IV
Diagnosis: 8/17/2009, IDC, 4cm, Stage IIa, Grade 3, 0/3 nodes, ER+/PR-, HER2+
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Apr 10, 2012 08:37 PM luvhummingbirds wrote:

I'm still waiting for the biopsy results but am being booked to get a surgeon. 

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Apr 10, 2012 08:51 PM luvhummingbirds wrote:

Also several times I have told him about the nipple discharge. He ignores it. Never asks the color or if there is blood. He is sending me for blood work to see if I am lactating.  I'm 47 and my girls are 22 & 23......

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Apr 11, 2012 09:44 PM luvhummingbirds wrote:

Got my call today from the surgeon....booked with her on the 19th. Still no call on the biopsy results..going in blind I guess. 

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Apr 12, 2012 07:55 AM marie5890 wrote:

When did you have your biopsy?

Nov. '10 Mammo,U/S, MRI showed suspicious 9mm x15mm mass . Jan '11 Biopsy Dx-ed a PASH tumor (rare, but benign tumor)....All I ask is for peace and serenity to the depths of my soul. Makes the rest of life more live-able.
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Apr 12, 2012 05:42 PM luvhummingbirds wrote:

I had my biopsy two weeks ago. Called the surgeon to make sure she had the results as two days ago my GP had nothing. Surgeon does have them so I will have to wait until the 19th when I see her to find out what they say. In Canada they will not tell us over the phone. 

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Apr 12, 2012 05:45 PM sweetbean wrote:

Wow, I am really sorry it is taking you so long to find out.  That is awful.  Hoping that it is nothing!


Diagnosis: 11/18/2010, ILC, 5cm, Stage IIIa, Grade 2, 2/15 nodes, ER+/PR+, HER2+
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Apr 12, 2012 05:51 PM Makratz wrote:

So sorry this is taking so long.  It should not!  You need to find another Dr. who will listen to you.

Linda...♥♥♥ Never, never, never give up ~ Winston Churchill
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Apr 12, 2012 06:16 PM marie5890 wrote:

It is my understanding that the Canadian way of dealing with this is different then here. 

A week from today. Try you best to hang in there. I know that is kind of a weak comment after so much waiting already.

Waiting really is the hardest part.... 

Nov. '10 Mammo,U/S, MRI showed suspicious 9mm x15mm mass . Jan '11 Biopsy Dx-ed a PASH tumor (rare, but benign tumor)....All I ask is for peace and serenity to the depths of my soul. Makes the rest of life more live-able.
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Apr 12, 2012 06:18 PM BouncingBetties wrote:

As a stage IV metster, my take on the shoulder pain is different than others here. I have to say that I would not go for any massage or physical therapy until AFTER you know for certain what is going on. I do know that I was taking 1,100 mg of Naproxen twice a day (I have/had them for my migraines) and it did very little for the shoulder or other cancer related pain.


Diagnosis: 7/12/2011, 6cm+, Stage IV, mets, ER+, HER2-
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Apr 12, 2012 06:58 PM luvhummingbirds wrote:

I think what scares me is when I asked the results over the phone to the clerk she told me she could not deceiver them. I've been told this is a standard answer when the news is not good. Oh well here I go again with this awesome waiting game. 

Im scared now... 

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Apr 12, 2012 07:15 PM Infobabe wrote:

Frozen shoulder is what I first thought too. 

About 20 years agoI had it in my left shoulder.  I could not raise my arm or put my hand behind my back, but could carry, like a suitcase, any heavy thing.  I did not have PT and it took 4 years to go away.  Years later my right shoulder froze but this time I had PT and it was gone in 4 months.  It was unbearable pain to try to move that shoulder.  It is super painful, but not really serious.  It could well be this and the OP needs to assess what kind movements cause the pain. 

So sorry she is having so much trouble getting answers from her doctors.

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Apr 12, 2012 07:20 PM LittleMelons wrote:

luvhummingbirds - I really feel for you having to wait so long for the biopsy results and think that it is just not right that you should be kept waiting over 2 weeks.  I would get on the phone and start badgering both the surgeon and GPs office about the results.  If your GP doesn't have them, he/she should be able to get them faxed over to them quickly.  Here in Ontario, the College of Physicians and Surgeons has a stated policy that doctors are required to give results to patients in a timely fashion and to take into consideration the anxiety of the patient.  I would think that BC College of Physicians has a similar policy.   

I had a few scares along the way requiring scans and I have had to call numerous times to get the results each time.  In the end, I've always gotten them from the GP.  This may be a case of the secretary not getting to the paperwork, but will find them if you pressure them. Our GP is our primary care provider and should be willing to give out timely results in consideration of the patients' level of anxiety.  Say you are too anxious to wait over the weeknd. Two weeks from the biopsy and still no results is just not acceptable.  Results are done within a week or earlier.

All the best to you.     


Diagnosis: 8/18/2010, IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
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Apr 15, 2012 11:05 AM luvhummingbirds wrote:

I have to say..this is the longest weekend for me yet. Thursday just cant come fast enough. I must say I wish you all lived close and we could get together. Support from you all is awesome. Thank you. 

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Apr 15, 2012 11:21 AM bdavis wrote:

I had shoulder pain a couple fo years ago... couldn't raise my arm etc.. I went to an orthopedic who said it was inpingement (sloppy shoulder rolling around in the socket, comes with age) so he gave me a cortisone shot and I went to PT.. The two did the trick... It took a couple of months of therapy, but in the end, all is good.

I think it is really really easy to let your mind play tricks on you and let you imagine the worst... I am sure your shoulder and degen. bone issues are just aging issues (sorry) and your birad 4 is just a crap shoot... another way to look at this is, if it were bad, they would probably have moved your appt up to get you in sooner... Even some benign things need to come out, so don't assume that just cause you are having surgery that it is cancer.

Betsy...Lumpectomy 12/8/10, 1.9cm tumor, micromet in SN, ER/PR+ 98%, Chemo Jan 18-May 10, 2011, 6x TC, Bilat MX and Hip Flaps - NOLA 7/21, DIEP flap 8/23 to fix right breast; stage II 11/14
Diagnosis: 11/12/2010, IDC, 1cm, Stage IIa, Grade 2, 1/2 nodes, ER+/PR+, HER2-
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Apr 15, 2012 11:29 AM luvhummingbirds wrote:

Thank you :)

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Apr 15, 2012 12:40 PM Shayne wrote:

Im a massage therapist.....and i too suffered with frozen shoulder, most likely brought on by an injury i incurred at the gym that resulted in a bulging disc in my neck.  I did a lot of physical therapy......and then when my therapist moved away after about 2 mos - I just did the exercises on my own at home.  Every day.  I also got a small 3 lb hand weight and would swing my arm with it while going on walks or just standing around, letting the weight of it pull my arm at the shoulder.  There are a myriad of exercises.....I can pm you if you cant find them on google.  Anyway, within a few months of me doing these on my own, one day it was gone.  Total time was about 2 1/2 yrs since the onset - but I bet if I had started with the exercises it would have gone quicker. Good luck..

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Apr 17, 2012 06:12 PM luvhummingbirds wrote:

Hmmm. Hot and very painful today. Can't wait too see what the surgeon says on Thursday. It's been a very long wait for me 

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Apr 17, 2012 06:17 PM marie5890 wrote:

We will be waiting with you, LuvHummingbirds. It has been a long wait. It's the worse part

Nov. '10 Mammo,U/S, MRI showed suspicious 9mm x15mm mass . Jan '11 Biopsy Dx-ed a PASH tumor (rare, but benign tumor)....All I ask is for peace and serenity to the depths of my soul. Makes the rest of life more live-able.
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Apr 18, 2012 12:08 PM LittleMelons wrote:

Hi LuvHummingbirds - Thiinking of you and wishing you the best tomorrow at the docs.  I think it is awful that you had to wait so long and think the doctors should have been more thoughtful and let you know earlier.  I am going to step out on a limb here and say that, in my experience, long waits for results have meant good news.  I hope that is the case for you.  I have received bad results very quickly.

 Keeping my fingers crossed for you!


Diagnosis: 8/18/2010, IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
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Apr 18, 2012 12:16 PM Sommer43 wrote:

Good luck luvhummingbirds, haven't got much to offer in the way of support, have been following your story and sending you hugs and some kind wishes.

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Apr 18, 2012 12:25 PM luvhummingbirds wrote:

Considering I'm all alone your support and words mean SO very much to me. Thank you so very much.

As for the waiting game I know it's only because my GP dropped the ball. :(.   I'm actually OK with whatever they say. My life is now with 5htp and Valerian Root to help me stay calm :) 

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