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Mar 16, 2007 06:11 PM phillygirl wrote:
Thanks so much Binney and Bad Boob (lol). I'm really having a hard time right now. I ignored the condition all winter because for some reason when it's cold, the swelling isn't so bad. I'm just afraid that I've let it go too long and it's just not responding as quickly as it usually does. I have been doing my exercises and massage and wearing the sleeves, but the day sleeve I can only tolerate so long. I put it on in the morning and by 2:00 or 3:00 I tear it off. I sometimes manage to keep in on until I get home from work, then I take it off, have dinner, do the exercise/massage thing and put it back on. I'm even considering putting on the bandages tonight instead of the night sleeve because for some blasted reason they seem to work better.
I heard on another site a couple years ago that they do have medications for LE that break down the proteins. Also, while pumps aren't always the best thing, I was working with this outfit that had this machine they said was not a pump, and worked on the arm and the chest wall. But the insurance companies won't pay for it and I can't afford $10,000.
I am also a recovering alcoholic, five years now (it took me six years to get that first year, tho). That's how I found my cancer. AA tells you to go to the doctor when you quit drinking just to get an idea of what condition you're in, and that's when they found the lump. Now, if I can beat the booze, why can't I deal with this?
If I could get ongoing therapy, I think I could handle it better. But when they approve therapy, it's only for 6-8 weeks. Why aren't there programs where you could go once a week after an initial 6-8 week treatment?
Anyway, I will check out the Lebed thing (I know a gynie here in Philly named Lebed - any connection?)
You know, when we bought this house, my mom kept saying "don't buy an old house, you'll regret it, it will need so much work." Well it did need a lot of work, plus we had a fire, but it's gorgeous now. Anyway, when I got the cancer, her tone changed -- "God had a reason for leading you to a house in Fox Chase Cancer Center's backyard." lol
Anything you guys want to send me would be great. If it needs to be mailed, let me know in an email, and I will give you my address. My email is firstname.lastname@example.org.
Thanks again. I do feel a bit better. Pray that my arm starts to go down this weekend or I will get really discouraged again.