Topic: Night sleeves.
- Posted on: Oct 29, 2009 08:07 am
Joined: Jan 2007
Posts: 9,508
I am researching night sleeves and would appreciate any previous posts being bumped up or anyone commenting with personal experience. Particularly the Reid sleeve. I found out (from sending away for a pink LE band) that our provincial health insurance will now cover a portion of the cost. I would love to get away from the wraps if I could. After over a year of wrapping every three days........I'm growing tired of it and still cannot do it by myself.
Thank you and gentle hugs.
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kira Joined: May 2008 Posts: 755 |
Oct 29, 2009 09:40 am
kira wrote:
Sharon, I have no experience with the Reid sleeve--my fitter was telling me that they're effective, but cumbersome--they don't bend once they're on, they come with velcro straps so you can adjust the fit. Personally, I have used Solaris/Tribute and jovipak--I like the jovipak better because the sewing is more detailed and the chips are smaller. Both are good garments though, IMO. My LMT firmly believes that wrapping is best, but it is a CHORE, and the chipped foam can move fluid in a way that sometimes wrapping can not. I know that the retail price is a 100% mark up on the wholesale (I got a wholesale pricing list from one manufacturer.) And, now they sell the ready made Solaris on Lyphedema Products and the jovipack on Bandagesplus--for closer to the wholesale price. Kira Diagnosis: 5/10/2008, IDC, 1cm, Stage Ib, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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kira Joined: May 2008 Posts: 755 |
Oct 29, 2009 09:40 am
kira wrote:
Sharon, I have no experience with the Reid sleeve--my fitter was telling me that they're effective, but cumbersome--they don't bend once they're on, they come with velcro straps so you can adjust the fit. Personally, I have used Solaris/Tribute and jovipak--I like the jovipak better because the sewing is more detailed and the chips are smaller. Both are good garments though, IMO. My LMT firmly believes that wrapping is best, but it is a CHORE, and the chipped foam can move fluid in a way that sometimes wrapping can not. I know that the retail price is a 100% mark up on the wholesale (I got a wholesale pricing list from one manufacturer.) And, now they sell the ready made Solaris on Lyphedema Products and the jovipack on Bandagesplus--for closer to the wholesale price. Kira Diagnosis: 5/10/2008, IDC, 1cm, Stage Ib, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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kira Joined: May 2008 Posts: 755 |
Oct 29, 2009 09:41 am
kira wrote:
Sharon, I have no experience with the Reid sleeve--my fitter was telling me that they're effective, but cumbersome--they don't bend once they're on, they come with velcro straps so you can adjust the fit. Personally, I have used Solaris/Tribute and jovipak--I like the jovipak better because the sewing is more detailed and the chips are smaller. Both are good garments though, IMO. My LMT firmly believes that wrapping is best, but it is a CHORE, and the chipped foam can move fluid in a way that sometimes wrapping can not. I know that the retail price is a 100% mark up on the wholesale (I got a wholesale pricing list from one manufacturer.) And, now they sell the ready made Solaris on Lyphedema Products and the jovipack on Bandagesplus--for closer to the wholesale price. Kira Diagnosis: 5/10/2008, IDC, 1cm, Stage Ib, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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lisa-e Joined: Jun 2008 Posts: 443 |
Oct 29, 2009 09:50 am, edited Oct 29, 2009 10:00 AM
by lisa-e
lisa-e wrote:
I wear a jovipak mastecomy pad (custom made) and jovipak sleeves at night. They are bulky, but work well for me.
Initial BC dx with dcis & idc after lumpectomy & snb in 6/08. in 8/08 dx with multicentric bc (idc) after mri. had bilat mastecomy in 9/08 w/o reconstruction
Diagnosis: 2008, IDC, 1cm, Stage I, Grade 1, 0/19 nodes, ER+/PR+, HER2- |
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revkat Joined: Apr 2008 Posts: 406 |
Oct 29, 2009 10:46 am
revkat wrote:
I love my jovi pak. It does bend at the elbow some, which I find really helpful in getting to sleep. I have a feeling you will like ANY night sleeve after a year of wrapping! I don't think the jovi pak does as good a job at moving the fluid from smaller spaces (like between fingers and around wrist) but the ease of use makes up for that imho, because I will actually wear it regularly without cussing and I can wrap when there is something specific that needs more attendion. Diagnosis: 1/28/2008, IDC, 2cm, Stage II, Grade 2, 1/20 nodes, ER+, HER2- |
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Bahons2 Joined: Mar 2008 Posts: 89 |
Oct 29, 2009 10:57 am
Bahons2 wrote:
Hi all I'm sure Binney posted a link a year or so back to some new night sleeves which zipped up - or am I mistaken? If someone remembers this, or has the link, can they repost? Thanks so much. X S |
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bingbing Joined: Jun 2006 Posts: 64 |
Oct 29, 2009 12:01 pm
bingbing wrote:
I have used the Solaris tribute for about 3 years now and I would never go back to wrapping unless it was ABSOLUTELY necessary. Insurance always paid for it, but now I am on medicare and they will not. I am waiting to see if my suppliment ( bcbs) will pay for my sleeves and the tribute. My supplier says they have to by law ( womens cancer act) I personally don't think they will as long as medicare does not, but I will see. Even if I have to pay for it myself ( and its $ 800 plus, I will still do it. it is so much easier than wrapping and is doing the job.So much more comfortable and always the same. Sometimes when I wrapped it was too tight and I had to remove it in the middle of the night, wake up my husband to help put it back on. :Very frustrating. I was a little nervous at first, wondering if it would do the job that wrapping did, but it worked out fine. Like I said I love it. Sharon |
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Binney4 Joined: Aug 2004 Posts: 4,617 |
Oct 29, 2009 01:32 pm
Binney4 wrote:
Sharon, please-oh-please consider appealing Medicare to pay for your night garments. You still have to pay up-front, but you may eventually be reimbursed. Besides putting the money back in your pocket, here's why that's so important: Lymphedema advocates are trying to get enough garments reimbursed after appeal to challenge the policy and reverse it. If enough Medicare judges grant the appeals, Congress will have no option but to approve payment for lymphedema garments. It's a tough case to make, and the advocates need our help to make it. The entire process can take up to two years, so it takes determination, but it's definitely doable. Bob Weiss, the legislative advocate for the National Lymphedema Network will personally help you (or any other Medicare lympher) though all the steps of your appeal. All you have to do to get started is to contact him by email: LymphActivist AT aol.com And here's the StepUp-SpeakOut page about Medicare appeals: http://www.stepup-speakout.org/AppealingForCare.htm#medicare%20appeals Go for it, please! We'll stand by and cheer you on if you'd like. I'm sorry this is such a grind, but together we can make a difference. Be well! |
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Sharon51 Joined: Jan 2007 Posts: 9,508 |
Oct 29, 2009 02:03 pm
Sharon51 wrote:
I am reading these posts with great interest and I thank you all for your input. Binney, I'm not sure what portion OHIP covers. They do not cover my compression sleeves 100% so I suspect the same holds true for a night sleeve but I have not spoken to my fitter yet so I cannot say for certain. This whole business does get tiresome. I'm not sure how much 'fight' is in me. Gentle hugs. |
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Binney4 Joined: Aug 2004 Posts: 4,617 |
Oct 29, 2009 03:09 pm
Binney4 wrote:
Sharon, good friend, I hear you on the amount of fight any of us have left for these idiot issues. We can each only do what we can. If it feels empowering to go after the slugs who won't pay for the things we need, then that's the thing to do. But if it takes energy we just can't spare, that's something every one of us here can understand. Hugs to you! Actually, my insurance currently pays 100% for all garments. But once I hit Medicare it'll be zero. Be well! |
