I was wondering if anyone has swelling in the palm of their hand? I have mild lymphedema and I've been seeing a therapist / doing MLD / experimenting with glove, sleeve etc for a few months now. Initially, the top of my hand, wrist, forearm had swelling but its much better now. In fact, I went to therapist today thinking I was much better! Only now my index finger, thumb and palm have some swelling. My therapist seems to think that the swelling of my palm is unusual and is not entirely sure the best way to treat. We're trying kinsieo (sp?) tape today and seeing how that goes. I also have Raynouds - and wondering if anyone out there has Raynouds and LE? Thanks!
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kira Joined: May 2008 Posts: 1,017 |
Feb 5, 2010 12:31 pm, edited Feb 5, 2010 12:33 PM
by kira
kira wrote:
Rosered, The top of my palm swells, and my swelling is in my hand and fingers, primarily. I don't think palm swelling is that unusual, or they wouldn't sell palm spots from Solaris--most gloves do not provide good compression for the palm, they are tight over the top of the hand, and kind of lift on the palm and people do swell there. The palm drainage is interesting: the top third drains to the front of the hand, and the bottom drains to the forearm. The middle finger drains to the forearm--at least in the Foeldi Clinic book I have. Consider a palm spot--either make one out of foam or look into Solaris palm spots. Sometimes they will drive fluid up to the hand, but you have that under great control. http://shopsolarismed.com/magento/lymphedema/edemapads/palmer-swell-spot.html You can buy them direct from Solaris (I use the small ones) or bandagesplus or lymphedema products. The Raynaud's is tricky, because you have very sensitive blood vessels, and compression makes the tips of my fingers purple, and with you--cold will do that. The medicine for Raynaud's, calcium channel blockers, are bad for lymphedema--Stanley Rockson (Stanford) informed me that they interfere with nitrous oxide and the lymphatic vessels and are contraindicated in lymphedema. But people with significant Raynaud's need them. Hope this helps. Kira Diagnosis: 5/10/2008, IDC, 1cm, Stage Ib, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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caearl Joined: May 2009 Posts: 33 |
Feb 5, 2010 12:45 pm, edited Feb 5, 2010 01:00 PM
by caearl
caearl wrote:
Rosered, In you hand your lymph nodes are located in the palm. When my mother has hand swelling the palm is alway swollen. I would question your therapist...is she certified? I also recommend having a LE therapist teach you to do a massage yourself..this is a great way to help. There are gloves available, and if your fingers are not too swollen I would recommend a gauntlet by Farrow Wrap. They have added a pocket on the inside that you can insert a cushion and that seems to help with the palm swelling. Your LE Therapist should be able to measure you and advise. I would guess that when your hand is swollen the Raynouds flares up too. Stress can be a trigger for the lymphedema. What type of Raynouds do you have? Primary, or secondary? Do you know the cause? My Mother does not have Raynouds, but she does have Radiation Induced Brachial Plexopathy and her Lymphema arm is totally paralyzed. We have fashiponed some fleece mittens for her to put over her hand to help keep it warm...The cold makes her hand hurt These extra-ordinary things certainly do Terri Connie
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rosered Joined: Sep 2009 Posts: 23 |
Feb 5, 2010 12:45 pm
rosered wrote:
Thanks Kira! Diagnosis: 6/23/2009, IDC, 2cm, Stage II, Grade 1, 1/16 nodes, ER+/PR+, HER2- |
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Binney4 Joined: Aug 2004 Posts: 4,897 |
Feb 5, 2010 12:57 pm
Binney4 wrote:
Rosered, hello, I have palm swelling, but no problem on the top of my hand. My therapist says it's unusual (she told me jokingly that my lymph system must have been installed upside down!), but it's certainly not unheard of. I do find the Solaris Palmar Spots really helpful, inside my wraps or inside my gloves. The worst thing for making my palms swell is leaning on my arms -- as in riding a bike or just standing next to a table and leaning on it with my arm straight, or kneeling on the floor and supporting myself on one arm while I clean up a spill. Even resting my elbow on my desk and then resting my head in my hand. Boom! Practically instant palm swelling -- <sigh!> The MLD massage for palm swelling adds another step. Because the top of the palm drains to the back of the hand, take the fingers of your opposite hand and gently run them up your palm and between the fingers of your affected hand. Do that several times before clearing the back of your hand and hopefully you'll see some reduction. Another idea besides the Palmar Spot is, when you are ready to order gloves, it helps if the person fitting you adds a bit of "give" to the measurement around the palm. Otherwise, the way our hands are made, too tight compression pulls the sides of your hand inward and the fabric doesn't even touch your palm when your hand is at rest. If the measurement there is a bit looser it results in greater compression in the palm area. Hope that makes sense -- works for me so I usually don't have to use Palmar Spots, which make my hands sweat in the summer. The Palmer Spot is used for back-of-the-hand swelling too, by the way, because it tightens the fabric across the back of the hand as well. Hope I didn't just make this more confusing! Be well! |
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rosered Joined: Sep 2009 Posts: 23 |
Feb 5, 2010 02:07 pm
rosered wrote:
Thanks all! Binney, Great suggestion about the glove fit too. The glove I have now is super tight - and I'm just noticing that it doesn't even touch my palm at all! I wanted to order another glove anyway so this information is very helpful.. Terri, my therapist is certified and has provided instructions on self massage too. She doesn't recommend a gauntlet for me as she feels it pushes fluid into fingers. I am considering another opinion at another clinic nearby though. Thanks again! :) Diagnosis: 6/23/2009, IDC, 2cm, Stage II, Grade 1, 1/16 nodes, ER+/PR+, HER2- |
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kira Joined: May 2008 Posts: 1,017 |
Feb 5, 2010 02:18 pm, edited Feb 5, 2010 02:29 PM
by kira
kira wrote:
Rosered, I hope we didn't make you doubt your therapist--my LE therapist was kind of horrified about the palm swelling because she treated a pediatric dentist whose hand swelling was so hard to control, she had to retire. So, I think it upset her. My palm swelling is mostly at the base of my index finger, and it seems like gloves trap it, and then it goes down. RE: Solaris night garment--they are chipped foam, which, again, my LE therapist considers a bit aggressive, and apply about a 20-30 mm compression. I have one, and use it intermittantly (mostly I wrap--although recently I needed a remedial wrap session, because I was wrapping too tightly and causing problems)--your therapist is correct in her concern that over-compression can cause rebound swelling. I wonder if there's some way you could try one for a couple of hours and see how it impacted you. As JoAnn Rovig--maker of competing night garments JoviPak, says on her blog: You only need night garments if 1) you swell at night and/or 2) you have fibrosis. Have you ever wrapped at night? Do you need to? If your fingers swell, the gauntlet is not a good choice, you need a glove with fingers. Watch out for the super tight glove--gloves can trap fluid, and too much compression can cause swelling. I have a custom glove, but I also use medi 95 off the shelf gloves, and I'm between a size 2 or 3 (they have 7 sizes) and I was able to try both, and the 2 was just too tight. To massage the palm, I massage up on the upper part, through the fingers to the top of the hand, and down on the lower part to the wrist and forearm, and since the middle finger is weird, I bring that area down as well. I have a good diagram of the palm, I'll have figure out how to upload it. Kira Here's the JoAnn Rovig blog--she's a character, and if you read more, you'll find out she refused chemo despite positive nodes and just detoxed... But she makes these products and puts out good self care videos, so take it with a grain of salt A DME had ordered two JoViPak arm sleeves for a patient who had had a lumpectomy many years ago and a recent mastectomy on the other side. We received a call at JoViPak saying the patient can't wear her new JoViPaks. Because - when she lays down at night her hands and wrists begin to throb. After several conversations with JoViPak Customer Service and the DME, the patient was turned over to me. . . . . . and that is what I am here for! I love talking to patients, and as you may have guessed, we always end up talking about nutrition- particularly if they are a cancer survivor. The most important question I had for her, however, was how well did she tolerate bandaging. Well, she didn't! and that is a question that should have been asked before the order was ever sent in. The next most important question for her was "Do you swell at night?" and she didn't think so! (For her own peace of mind, she needs to know that.) It's not unusual for a patient to find a product on the internet and decide it has to be "the magic bullet." What I want to make perfectly clear to anyone considering a night-time garment is this: A foam-filled padded night-time garment serves two functions: 1) contains night swelling and 2) softens fibrosis. If a lymphedema patient has neither, a JoViPak serves no purpose.
Diagnosis: 5/10/2008, IDC, 1cm, Stage Ib, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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caearl Joined: May 2009 Posts: 33 |
Feb 5, 2010 05:03 pm
caearl wrote:
Rosered, I too hope that you didn't think we were doubting your therapist. Of all the things I have learned from this sight and my mother's LE therapist, is that there is an inconsistency in the level of training of LE therapists. Never be afraid to ask questions or get another opinion. Even with the lymphatics we are all plumbed differently. So what works for one person, may not work for another. If you are open to alternatives, another option you might consider is, working out in a pool. I had been a deep water aerobics instructor and before the RIBP set in, Mom would work out with me in the pool on a regular basis. Really kept her LE in check. If you have a facility nearby, that has a warm therapy pool (especially with the raynouds) I would recommend getting in and do some water walking at least chest deep. The pool is a fantastic environment for your circulation and lymphatic system too. Your therapist should be able to give you some exercises to do. Sending healing thoughts your way. Terri Connie
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Binney4 Joined: Aug 2004 Posts: 4,897 |
Feb 5, 2010 05:26 pm, edited Feb 5, 2010 05:27 PM
by Binney4
Binney4 wrote:
Terri, no kidding, you're a water aerobics instructor?! What a great thing that is! Hugs, and hi to Connie, |
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rosered Joined: Sep 2009 Posts: 23 |
Feb 5, 2010 09:40 pm
rosered wrote:
Hi ladies - Oh, I'm fine with my therapist I'm not doubting my therapist - I actually like the fact that she's trying different approaches versus just telling me to wrap! I do appreciate the advise of you all - it really helps to talk to women going throught this same thing. I don't feel like I swell at night. I seem to have moments during the day (and not every day) where I feel my hand swell. And just recently, I have swelling in my index finger. Its not so bad, really- noone would ever even notice but I know its not "normal". I think I need to try another glove - Kira, your recommendation about a looser fit sounds good. Terri, unfortunately, I don't have access to a pool. I do run daily - have been working my way back to previous fitness level and I take yoga once a week - and I don't feel any pain or discomfort doing either. In fact, I feel better after I run, thankfully. I feel like I could live with the slight swelling but I know that I need to take care of things now before it gets worse. Have you had any luck with kinseo tape? Diagnosis: 6/23/2009, IDC, 2cm, Stage II, Grade 1, 1/16 nodes, ER+/PR+, HER2- |
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Binney4 Joined: Aug 2004 Posts: 4,897 |
Feb 5, 2010 10:04 pm, edited Feb 5, 2010 10:05 PM
by Binney4
Binney4 wrote:
Rose, I can't use Kinesio tape because I'm allergic to adhesive, but therapists who have been trained in its use can get good results. She can teach you to apply it yourself, too. Here's a page about it: http://www.stepup-speakout.org/kinsiotaping_for_lymphedema.htm Hope it works well for you -- do let us know how it goes. Be well, |
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caearl Joined: May 2009 Posts: 33 |
Feb 6, 2010 03:18 pm
caearl wrote:
Rosered, Mom has tried Kinesio tape, and it did help. Keep in mind her arm is paralyzed so she doesn't have the muscle to help pump out the lymphatic fluid..All in all, we have found that the manual massage works the best. I am glad to hear that you are exercising. Any type is a great stress reliever. No wonder you feel better afterwards. Keep it up as long as you can. We also just learned that Mom's hand swelling is dependent edema. The more she can keep her arm from dangling the easier it is on her hand. Right now her hand looks great, as does her arm. Her joy is that they are all wrinkly. LOL the only 76 year old who gets ecstatic when she sees wrinkles!! Unfortunately Binney, she can't work out in the pool anymore...With her sublexation and possible infection, the LE therapist thought it would be best to stop. Too risky for shoulder injury. She would have to put a weight on her wrist to keep the arm submerged. We would work out in the diving pool and once she accidentally dropped the weight into the pool. Fun diving down to retrieve it..... In the class we had both men and women and a variety of problems, knee and hip replacements,heart surgery, hip and shoulder bursitis, fibromyalgia, MS, Cerebral Palsy, and neuropathy. But I think Mom was the only one with LE. I have discussed setting up a program with our LE Therapist, and specializing in Hydro Lymphedema Therapy, still a possibility, sometime down the road. Her plan is to become certified to train therapists and wants me to become a LE Therapist myself. That is certainly something to think about. BTW Mom is doing very well. She has finished her third week of chemo and except for a bout of cellulitis and low white blood count..everything is looking good, and as of today under control. PLUS The lesions are on the retreat!! Thank you!!!!! Enjoy the rest of your weekends Terri Connie
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Binney4 Joined: Aug 2004 Posts: 4,897 |
Feb 6, 2010 06:34 pm
Binney4 wrote:
Hooray on routing the lesions so quickly! Terri, I sure hope you do it! You'd be wonderful as a LE therapist, and we need ya'. Lots to look forward to, both of you, and I'm looking forward with you! Hugs, prayers, |
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