It was around this date last year that I learned I had breast cancer (I can't remember the exact date; I think my mind blew a few circuits that day!). I asked my oncologist once what to consider my "anniversary": the date of my diagnosis, surgery, end of treatment, etc.? She felt late February/early March, which is between my diagnosis and the beginning of treatment. That's nice...I would be one year out now. But before I built myself a chateau in Fool's Paradise, I did some research. The folks at Johns Hopkins feel that, for stage III, your anniversary countdown begins at the end of active treatment. I've seen a whole spectrum of opinions. What have you been told?
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KerryMac Joined: Jan 2009 Posts: 1,699 |
Feb 12, 2009 11:06 am
KerryMac wrote:
Yeah, it was fast, but I was glad I didn't need to wait any longer. I had enough time to cook a few things for the freezer, so nobody starved! My hair took two weeks to start falling out, and didn't get too bad until after treatment #2, so you aren't in too much of a rush.The Cancer Society also gives out free wigs and headcovers - people make hats and donate them, which is lovely. You will probably find Volunteers at the Cancer Centre. The wigs I saw were all short curly ones, but I did get some scarves and hats from them. The whole schedule of Chemo differs from person to person and also country to country. In Canada they use FEC-T more, in the US most people seem to be doing some version of ACT. I am doing 6 cycles in total, 3 of FEC then switch drugs and do 3 T. I go in every 3 weeks. I have found the first week to be the hardest, the last two weeks after treatment I have felt relatively normal. It usually takes the whole morning - you need to get your blood checked first, to make sure your white blood count is OK. That takes about an hour. My husband and I normally go and get breakfast then, just so we are not sitting around in the waiting area more than we have to! Once you go into the Chemo Clinic they give you an IV, they usually start me off with saline for a while while they get the drugs ready. Then the drugs take about an hour, then they finish me off with more saline. They can also give you anti nausea drugs through the IV. So it is really just a lot of sitting around. We take movies and a laptop - I can't concentrate on reading really, but people do. Anyhow, it isn't really all that bad, I feel sorry for myself on occasion, and I hate that we are losing a year out of our lives. But I do know that this is my best shot at stopping it coming back, and we are really lucky we have these drugs available for us. There is no choice but to go through it! Kerry
Dx 11/2008, IDC, 6cm+, Stage IIIa, Grade 3, 6/11 nodes, ER+/PR+, HER2- |
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Brenda_R Joined: Dec 2006 Posts: 555 |
Feb 12, 2009 11:58 am, edited Feb 12, 2009 12:00 PM
by Brenda_R
Brenda_R wrote:
Ok, I went back and found my post on the "ask the experts" forum at John's Hopkins website. According to them Herceptin is considered active treatment. Q: <td> </td> Dear Lillie, I just read in another post about starting the ''2 year time out countdown'' after the completion of herceptin. Can you give a little more detail why? I also was StageIII, and received chemo, rads, and 1 year herceptin, and have been counting my ''time out'' from my surgery. I will be 2 years out from surgery this Dec, but am only 6 months out from completing Herceptin. Thanks Lillie. <td> </td> <td> </td> A: <td> </td> Herceptin is still considered ACTIVE TREATMENT and for women with locally advanced disease, stage 3, it is usually recommended to start the counting after ACTIVE TREATMENT (excluding hormonal therapy) has been completed. LS Sorry I can't delete the tags for some reason. ------------ Don't let the fear of cancer and dying, steal the rest of your life ---------
Dx 12/12/2006, IDC, 3cm, Stage IIIb, Grade 3, 1/17 nodes, ER-/PR-, HER2+ |
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lexislove Joined: Sep 2007 Posts: 1,942 |
Feb 12, 2009 01:03 pm
lexislove wrote:
ok.....I've been thinking about this since yesterday..lol What diff does a persons stage make? And Herceptin, as we know is NOT a chemo it's like a maintenance drug like others have stated. I mean * heck* then whats Tamoxifen or an AI? To me that is maintenance too. So then we should ALL start really counting from the day that we finish up with our Tamox ect..... I fyou see woman who have metastized, and their "timelines" from diagnosis to mets.....most , NOT ALL, have recurred within 2 years from their date of diagnosis. that is just something that I am starting to see. I personally have many dates....but really, I started to kill this "beast" with chemo Sep 17 2007, and had my surgery March 27 2007. That day in March it was out...gone...history...see ya. I like Lillie and all her advise she gives to woman but I think she honestly for herself and BOTH of her diagnosis of BC has probably started her "clock" from the day of diagnosis....despite her stage.... * sigh* LOL! Dx 9/14/2007, IDC, 6cm+, Stage IIb, Grade 3, 0/6 nodes, ER+/PR+, HER2+ |
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Celtic_Spir
Joined: Oct 2008 Posts: 366 |
Feb 12, 2009 01:20 pm
Celtic_Spirit wrote:
I've decided to set my anniversary as March 25, the day I had my bilateral mastectomy last year. That's the day the source of the problem left my body. What came after--chemo and rads--cleaned up any errant cells left behind. Kind of like takiing out the trash and then sweeping up a few coffee grinds and crumbs that fell outside the can! Dx 2/8/2008, IDC, , Stage IIIa, / nodes, ER+/PR+, HER2- |
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lexislove Joined: Sep 2007 Posts: 1,942 |
Feb 12, 2009 01:21 pm
lexislove wrote:
Exaaaaaaaaactly....![]() Dx 9/14/2007, IDC, 6cm+, Stage IIb, Grade 3, 0/6 nodes, ER+/PR+, HER2+ |
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everyminute
Joined: Aug 2008 Posts: 1,029 |
Feb 12, 2009 01:22 pm, edited Feb 12, 2009 01:30 PM
by everyminute
everyminute wrote:
I am just going to use the year - as in 2008 sucked. I had cancer in 2008, my brother in law died in 2008, my dog died in 2008, my father moved into an assisted living facility in 2008. Moving on to better years! |
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lexislove Joined: Sep 2007 Posts: 1,942 |
Feb 12, 2009 01:31 pm
lexislove wrote:
There ya go......lol Dx 9/14/2007, IDC, 6cm+, Stage IIb, Grade 3, 0/6 nodes, ER+/PR+, HER2+ |
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Brenda_R Joined: Dec 2006 Posts: 555 |
Feb 12, 2009 02:16 pm
Brenda_R wrote:
Lol, well one thing I have learned is if you ask 5 different people you will probably get 5 different answers. ------------ Don't let the fear of cancer and dying, steal the rest of your life ---------
Dx 12/12/2006, IDC, 3cm, Stage IIIb, Grade 3, 1/17 nodes, ER-/PR-, HER2+ |
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