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Topic: OK LET'S VENT!!

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  • Posted on: Oct 31, 2009 12:17 pm, edited Nov 15, 2009 10:38 AM by Shanagirl
Monmouth County, NJ
Joined: Jan 2009
Posts: 271
Shanagirl wrote:
This Post was deleted by Shanagirl.
Posts 1 - 20 (20 total)
PureE
NC
Joined: Sep 2009
Posts: 387
Oct 31, 2009 02:36 pm PureE wrote:

When I first diagnosed I me a girl on facebook who was 5 years out and she had lots of nodes-diagnosed at 36, and it spread to her collar bone. When I asked her "why did she survive?" she said When they told me I was stage 3 I was happy I was not stage 4, When they told me I would be lucky to live 5 years-her thought was "good thing I am lucky."

I often think about that...How my siutation could be worse. I am thnkful I am stage 3 not 4. I am thankful I can still work. I am thankful I can afford my medical bills. I am thankful I don't have an untreatable cancer. I don't kow how i moved form anger to being thankful but gosh I have so so many blessings. I don't want nor need pity-this is stuff stuff but life is hard and I want my family and  friends (and especially my children) to see me handle this with grace and graitude. I had cancer. nothing can change that-but I can change how I veiw it and how I move forward.

JMV
Celtic_Spir…
San Diego, CA
Joined: Oct 2008
Posts: 366
Oct 31, 2009 02:51 pm Celtic_Spirit wrote:

It depends on who's asking. If it's a friend or one of the few coworkers that I told, I say, "I'm doing really well," because that's the truth. If it's one of my knuckle-dragging troglodyte coworkers or one of my boyfriend's absent family members, I say, "Why do you want to know?"


Diagnosis: 2/8/2008, IDC, Stage IIIa, Grade 3, 9/30 nodes, ER+/PR+, HER2-
KerryMac
North York, ON
Joined: Jan 2009
Posts: 1,699
Oct 31, 2009 03:14 pm KerryMac wrote:

I'm with you Jen - we can't control what happens to us, we can only control our response.

I too think I am doing really well. Thats what I say if anyone asks. I never even complain about lingering SE's, really, I am happy to be alive to be having them.

Yes, I am scared of what could happen, and angry that this happened to me and my family. But, again, it could have been so much worse. My friends mother had a Brain tumor when she was young, it took 9 months from diagnosis to death. If that was me, I would be dead now. Yep, it could have been a whole lot worse.

Kerry - Mx, Chemo, Rads, Ooph, Arimidex, Zometa
Diagnosis: 11/2008, IDC, 6cm+, Stage IIIa, Grade 3, 6/11 nodes, ER+/PR+, HER2-
apple
Shawnee, KS
Joined: Dec 2008
Posts: 1,304
Oct 31, 2009 06:25 pm, edited Oct 31, 2009 06:25 PM by apple apple wrote:

not too much to vent about.. buried my friend today who died of cancer after a difficult life.  Played at his funeral.. i'm happy to be here.  i wish my cancer journey was over, it would be nice to have all that behind me, but oh well.


Diagnosis: 5/10/2008, IDC, 5cm, Stage IIIc, Grade 3, 4/9 nodes, ER+
Bugs
MN
Joined: Jan 2006
Posts: 1,363
Nov 1, 2009 08:33 pm Bugs wrote:

Apple, I'm sorry about your friend.  :(


Diagnosis: 2/1/2006, IDC, 6cm+, Stage IIIa, Grade 3, 3/16 nodes, ER+/PR-, HER2-
PureE
NC
Joined: Sep 2009
Posts: 387
Nov 2, 2009 07:34 am PureE wrote:

Apple-Sorry to hear about your friend:)

JMV
jenn3
New Orleans, La
Joined: Jul 2009
Posts: 367
Nov 2, 2009 10:53 am jenn3 wrote:

Apple - I'm really sorry for your loss.


Diagnosis: 6/19/2009, IDC, 1cm, Stage IIIa, Grade 3, 4/15 nodes, mets, ER-/PR-, HER2-
hollyann
Alpharetta, Ga
Joined: Nov 2007
Posts: 2,391
Nov 2, 2009 10:58 am hollyann wrote:

Oh, Apple, I am so sorry for your loss, but so glad you are still here with us......I wish I could be there to wrap my arms around you and make you feel better......

Hugs and love, Lucy also dx with DCIS grade 2 er/pr + her2 neg
Diagnosis: 1/15/2007, IDC, 1cm, Stage Ib, Grade 1, 0/6 nodes, ER+/PR+, HER2-
Shanagirl
Monmouth County, NJ
Joined: Jan 2009
Posts: 271
Nov 2, 2009 11:18 am Shanagirl wrote:

<font>Apple  I'm so sorry you have lost your friend Feeling Blue Hang in there. 





</font>

Shanagirl
Diagnosis: 1/13/2009, IDC, 5cm, Stage IIIa, Grade 1, 2/18 nodes, ER+/PR+, HER2-
apple
Shawnee, KS
Joined: Dec 2008
Posts: 1,304
Nov 2, 2009 02:09 pm apple wrote:

this was supposed to be a venting thread..

thanks for the condolences

i do vent at my kids when they leave a mess  - which is ALWAYS.  i think that i would vent at them even if i didn't have cancer.....  

my neighbor says.. you don't have cancer - you're a survivor!!!! Laughing.. as if she's reciting some type of supperwarrior attitude mantra. .... that drives me bats, especially since she always give me  this big eyebrowed smile.. she's sharing it with me i guess.... heh


Diagnosis: 5/10/2008, IDC, 5cm, Stage IIIc, Grade 3, 4/9 nodes, ER+
PureE
NC
Joined: Sep 2009
Posts: 387
Nov 2, 2009 06:02 pm PureE wrote:

I actually find it hard being around anyone right now that is "normal" I find myself avoding people in general-they either say something that hurts my feelings or I just feel different from everyone. I hate it. I feel like I am the walking dead girl and they all get normal great lives. I am in a way jelaous but in another way I just don't feel like I fit in for some reason. Also, I am just tired of people talking about cancer.My mom is so concerened-says I am cutting people off-which I am  I guess but it's my way of coping. I was walking with a friend today who has all these heart issues and is ona slu of drugs, xanax, anti depressants, etc-she has daily migraines and is just a mess. I told her today I am so sorry you have to go through all of this and all these doctor visits. She said well it could be worse I could be you. WTF was all I could think....

JMV
americanpin…
Los Angeles
Joined: Feb 2009
Posts: 202
Nov 2, 2009 06:12 pm americanpinay wrote:

Apple...sorry for your loss...

PureE...yikes, forget about what your friend said...I've been following your posts and I truly believe that you are doing well and handling everything so well...BC treatments and pregnancy...you are one strong woman...

Be well ladies.

Lumpectomy 09/08, AC x 4 then Taxol x 12 10/08 through 03/09, Rads x 33 05/09 through 06/09 Tamoxifen beg 08/09
Diagnosis: 9/10/2008, IDC, 3cm, Stage IIIa, Grade 2, 4/6 nodes, ER+/PR+, HER2-
Shanagirl
Monmouth County, NJ
Joined: Jan 2009
Posts: 271
Nov 2, 2009 06:22 pm Shanagirl wrote:

PureE ~  You're right  WTF!!!  How insensitive was that?????

Apple  ~  Totally another thing that gets me going.  The "survivor" mantra everyone gives you for the superwarrior attitutde.  I read an exerpt from Barbara Ehrenriech that said:

  "that the mindless triumphalism of "survivorhood" denigrates the dead and the dying. Did we who live "fight" harder than those who've died? Can we claim to be "braver," better, people than the dead? And why is there no room in this cult for some gracious acceptance of death, when the time comes, which it surely will, through cancer or some other misfortune?

Shanagirl
Diagnosis: 1/13/2009, IDC, 5cm, Stage IIIa, Grade 1, 2/18 nodes, ER+/PR+, HER2-
apple
Shawnee, KS
Joined: Dec 2008
Posts: 1,304
Nov 2, 2009 09:56 pm apple wrote:

very interesting Shanagirl


Diagnosis: 5/10/2008, IDC, 5cm, Stage IIIc, Grade 3, 4/9 nodes, ER+
SherriG
Joined: Jan 2005
Posts: 4,861
Nov 2, 2009 10:18 pm SherriG wrote:
The word "survivor" bothers me.  It sounds like I am barely hanging in there.  It sounds like I'm barely surviving.  It doesn't sound like a strong word to me.  It sounds weak.  I like the word "thriver" much better.
I would rather say I'm a thriver instead of a survivor.
Diagnosed 11/05/04 Stage 3 ILC "Lump is a four letter word!" Sherri
KerryMac
North York, ON
Joined: Jan 2009
Posts: 1,699
Nov 3, 2009 07:46 am KerryMac wrote:

Yes, Thriver is much better word!

Jen - can't believe your friend said that to you....try and not let it bother you.

I had a friend call me last night just to tell me of a friend of a friend of hers who has just been diagnosed with bone and liver mets, and is not expected to last to Xmas. She went on and on about it, it was horrible. Why do people do that??

Kerry - Mx, Chemo, Rads, Ooph, Arimidex, Zometa
Diagnosis: 11/2008, IDC, 6cm+, Stage IIIa, Grade 3, 6/11 nodes, ER+/PR+, HER2-
BMac
Oakville, On
Joined: May 2008
Posts: 502
Nov 3, 2009 09:04 am BMac wrote:

Kerry, to make you feel better???  Didn't work, did it.  Insensitive!!!  Pure you hit a nerve.  I feel like I'm an outsider looking in, like I don't have a normal life.  Having cancer is such a profound experience in which you face your own mortatlity.  It changes you.

Pure I concur that you are one strong lady.  I hope that doesn't offend you.  When people would say that to me when I was in treatments I would say "What other choice do I have?".  I could either be strong or curl up in ball.

Anyway, what would I tell people right now?  For some reason I feel like crying, I'm tired from never getting a good night's sleep and I'm angry.  Arrrgh!  When does normal come back?

Barbara
Diagnosis: 10/23/2007, IDC, 2cm, Stage IIIc, Grade 3, 1/13 nodes, ER-/PR-, HER2+
jenn3
New Orleans, La
Joined: Jul 2009
Posts: 367
Nov 3, 2009 09:42 am jenn3 wrote:

I had a conversation yesterday too that was frustrating.............. I called to speak with my friend, but got her MIL instead and she carried on for over an hour about colon cancer in her family, her friends breast cancer and how much she suffered.  Then she went on to ask point blank "why aren't you feeling bad and in bed", "it seems like you're doing fine".   I feel like those are loaded questions because if I answer with the truth I feel like I'm complaining, if I respond with my normal "today is a good day" I feel like I'm not letting people know what we really have to endure and how hard some days are. 


Diagnosis: 6/19/2009, IDC, 1cm, Stage IIIa, Grade 3, 4/15 nodes, mets, ER-/PR-, HER2-
Shanagirl
Monmouth County, NJ
Joined: Jan 2009
Posts: 271
Nov 3, 2009 11:36 am Shanagirl wrote:

Jenn I hate those convrsations with people who want to talk about everone they knew who had cancer.  Totally not interested. 

Sherri,  I know, I too hate the word survivor.  Am I better or fighting harder, or stronger than one who stopped being a survivor because she 'lost her battle" and became a "dier" ?

I'm not too comfy with the word "Thriver " either.  I don;t feel like I am thriving at all.  Thriving sounds strong and healthy, growing just great.  Like a green plant or a puppy in a litter.   If people ask me I just say I;m in treatment for BC.

Shanagirl
Diagnosis: 1/13/2009, IDC, 5cm, Stage IIIa, Grade 1, 2/18 nodes, ER+/PR+, HER2-
BMac
Oakville, On
Joined: May 2008
Posts: 502
Nov 4, 2009 09:03 am BMac wrote:

I don't mind survivor but I don't think it makes me better than one who didn't.  I'm lucky that I'm a survivor, well and truly.  I know how lucky I am to be alive today.  Two years ago I thought my life was about to end.

Does it help?  No!  I'm so angry and sad at the same time.  I "should" be grateful but I'm not.  Actually I have every right to feel the way I do.  Getting cancer once is horrible; getting twice is devastating.  Just when you thought you were safe...

Barbara
Diagnosis: 10/23/2007, IDC, 2cm, Stage IIIc, Grade 3, 1/13 nodes, ER-/PR-, HER2+

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