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Topic: Do you take Tamoxifen? Why/why not?

Forum: DCIS (Ductal Carcinoma In Situ) — Just diagnosed, in treatment, or finished treatment for DCIS.

Posted on: Apr 7, 2008 03:40PM, edited Apr 7, 2008 07:10PM by 3girls4me

3girls4me wrote:

Hi girls......

I am just back from my 6 month follow up with oncologist.  He just did bloodwork and physical exam.  This was my first follow-up after initially seeing him after my mastectomy 6 months ago.   At that appt, he mentioned Tamoxifen and its' benefits, etc.   But today, he was really suggesting that I take it!

This really threw me, I was already nervous about the appt.   My DCIS was low grade, non comedo and multifocal.  I had bilateral mastectomies with recon.  I was diagnosed at 36, no family history or any other risk factors.  I don't drink or smoke, I'm not obese, I had all my kids before 30, and I nursed all of them.   I didn't "qualify" for the genetic testing, so no results there.   He says my "overall risk factor" for getting DCIS or cancer anywhere else in the body is less than 10% lifetime.   He says taking Tamoxifen will decrease this risk by 30%, leaving me with a 7% risk.   I'm not much into statistics, since I had practically ZERO risk of getting this to begin with, but I did anyway!

Anyway,  I picked up the prescription since I was there, but I'm still on the fence about taking it.   I worry about the side effects.   But would like to reduce my cancer risk further, if possible. 

I'm wondering how many of you ladies are taking the Tamoxifen, why or why not, and what are your experiences with it?

THANKS!   It's great knowing I can always come here and count on you guys!

P.S. I should add that I was er/pr +, oncologist said that makes a difference. 

Leslie

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Apr 7, 2008 04:12PM michmom wrote:

Hi Leslie  I am taking tamoxifen but my situation is slightly different from yours.  I was also DCIS Stage 0 and had mastectomy on Rt in Jan 07.  The pathology report came back ER+.  My doctor wants me on tamox to reduce risk to other side.  Being that you had a bilateral and it remained Stage 0 after the path report I wonder with an even smaller risk than me, why your oncologist wants you to take it.  I thought since tamox blocks estrogen from working on those cancer cells that react to estrogen, what other body parts can it help?  There are side effects including a risk of uterine cancer, so I think you might want to question him more about it.

Hope this helps

Michele

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Apr 7, 2008 04:42PM lollybeth wrote:

I am curious too.  I thought that with your DX and decision to have bilaterals, you'd be "done" with treatment.  Maybe someone else out there can shed light.....

Dx 7/7/2007, DCIS, 2cm, Stage 0, Grade 2, 0/3 nodes, ER+/PR+
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Apr 7, 2008 05:14PM MarieKelly wrote:

I was diagnosed in 2/04 with a small low grade tumor that was a mixture of both IDC and DCIS. The ONLY treatment I've had was a lumpectomy and SNB. I had just turned 49 when diagnosed and was already about 9 months into a natural menopause at that time. The first oncologist I saw was one who I had previously worked part-time for (I used to be an oncology nurse) and never really cared much for him even then, but was more or less railroaded into consulting with him by the breast care coordinator while I was still shell shocked from the diagnosis. He tried to get me to take tamoxifen and pooh-poohed my various concerns about potential side effects vs actual benefit, telling me that there really were no significant side effects...I fired him on the spot and had my records transfered to a different oncologist (one who happens to be my neighbor).  My neighbor oncologist agreed with me that tamoxifen wasn't a very good idea considering some pre-existing medical issues I already had, but suggested I give arimidex a try. I refused that as well, but was able to get him to admit (off the record) that although he agreed with my rationale that I would probably do fine without anything, he couldn't officially recommend that to me.   

My cancer was small and low grade and the surgeon (also now a neighbor), knowing that I was probably going to refuse radiation, made sure to remove the needle biopsy tract along with the lumpectomy specimen. Having the biopsy needle track removed significantly decreased the chance of THAT cancer recurring. With wide, clear margins, a small low grade tumor, negative SNB, very low Ki-67 (5%), no vascular invasion, excision of the biopsy track and good surgical lumpectomy technique, non-dense breast tissue (making mammogram ID of a new or recurrent tumor very easy), and already being in a natural menopause all add up to the odds of both systemic spread and local recurrence being very low and the probability of a complete surgical cure being very high.  Those odds were good enough for me because I'm not worried all that much

about THAT cancer should it return. Not having altered the cellular DNA with radiation and drug therapy, it's very likely that should it return, or a new cancer develop, it will again be another low grade cancer (and surely caught much earlier the next time)...and my choice of no treatment other than surgical excision will likely be repeated once again..

Ki-67 5%. Wide margin lumpectomy and biopsy track removal. Refused radiation and hormonal therapy.

Dx 2/22/2004, IDC, <1cm, Stage Ia, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Apr 7, 2008 07:07PM roseg wrote:

I think the standard of care is to offer and encourage every woman to take tamoxifen.

Since you had only DCIS and a bilateral I think you're justified in passing on it.  Were you expressing worried feelings about the possibility of breast cancer? 

If it doesn't worry you and you don't want to take it then don't! 

Rose

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Apr 7, 2008 07:38PM, edited Apr 7, 2008 07:39PM by Beesie

Leslie, my diagnosis was more 'severe' than yours, since I had multifocal high grade DCIS and a microinvasion.  I also only had a single mastectomy.  My surgeon and my oncologist both agreed that after the mastectomy, my recurrence risk is approx. 1% - 2%.  I've done tons of research on this and a 1% - 2% recurrence rate after a mastectomy for DCIS seems to be what most studies have shown.

For that amount of risk, my oncologist recommended against taking Tamoxifen.  He did say that I might want to consider taking Tamoxifen to protect my remaining breast, but he actually recommended against it, saying that he felt that for me, the risks would outweigh the benefits.  Again I did a lot of research, and I reached the same conclusion.  Tamoxifen is not without risks (as well as possible quality of life side effects) and I don't feel that the benefit that I'll get from Tamoxifen warrants exposing myself to those risks. 

Leslie, in your case, you've had a bilateral, so your risk of a contralateral (i.e. other breast) BC should be very low.  The one factor that goes against you is your age - the younger you are when diagnosed, the more likely it is that your cancer may be aggressive.  But you had low grade DCIS, which is non-invasive, and since virtually all your breast tissue has been removed (with your bilateral), I'm a bit surprised that your oncologist would put your risk to be as high as 10%.  There's always a little bit of breast tissue left after a mastectomy, so of course there always will be some risk, but 10% is on the high side. It must be your young age that is driving that.

If you really aren't sure that you want to take Tamoxifen, my best advice is to get a 2nd opinion from another oncologist.  See if another oncologist also puts your risk at 10%, and if he/she also recommends Tamoxifen. 

Dx 9/15/05, DCIS-MI, 6cm+ Gr3 DCIS w/IDC microinvasion, Stage I, 0/3 nodes, ER+/PR- “No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke

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Apr 7, 2008 08:13PM geebung wrote:

Hi Lesley,

I had just turned 50 when I had a left mastectomy April last year for extensive, grades 2 & 3 DCIS. Tamoxifen was at no stage mentioned to me by any of the doctors or breast care nurses. My surgeon also told me that I only have a 1% - 2% chance of recurrence on that side. I am not particularly concerned about the other side and would prefer to do without any of the side effects of Tamoxifen. I went into natural menopause as soon as I had my mastectomy. As Beesie and others have said, your young age is probably behind your doctor's 10% estimate.

gb 

Dx 2/26/2007, DCIS, 6cm+, Stage 0, Grade 3, 0/2 nodes, ER+/PR+
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Apr 7, 2008 08:31PM PSK07 wrote:

Dx at age 46, pre-meno, with intermediate grade DCIS. The original plan was partial mx (lumpectomy), then radiation and tamoxifen. After some hemming and hawing and a second opinion, I had rads. The onc I met with was 'on the fence' about tamox & said he hadn't prescribed it to his mother due to the potential SEs. After rads, the rad onc talked to one of his colleagues who said that tamox would probably be overkill for me.  I've been experiencing some uterine issues that are still to be resolved. Once those are taken care of, I'll revisit tamoxifen - probably with the gynocologist as there really isn't a med onc around to see.

Pam - adding LCIS & ALH to the mix, 8/25/08

Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+
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Apr 7, 2008 10:33PM 3girls4me wrote:

Thanks to ALL of you!  Your input greatly appreciated!

Yes, I'm VERY confused, and still surprised he's pushing it on me.  I'd done my homework and thought that by having bilateral, would not be needing tamoxifen.   Everything I've read all day, INCLUDING the prescription literature itself, says I'm not a candidate!  Go figure!

You guys are the best!

DX 6/12/07 Stage 0, Grade 1 & 2, 0/0 nodes, Bilat Mast w/recon 9/12/07, Exch Surg 3/21/08, Nipple Recon 7/29/08, Tattoos 10/1/10--finally DONE!

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Apr 8, 2008 02:49PM 4Ms1A wrote:

I had DCIS in 2005 and my radiation oncologist suggested I take tamoxifen as did my surgeon.  I hate the side effects but at the same time I elect to take it because if I ever have a recurrence, I want to know that I did everything I could to prevent a recurrence so I do not have to live with "what if".......

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Apr 8, 2008 03:47PM lvtwoqlt wrote:

3 girls, after 2 abnormal biopsies with ADH my surgeon put me on tamox because of family history of OC and BC. After 6 months on Tamox I was dx last April with DCIS in the right breast, I decided to have the bilat mast. At that point my surgeon - I never was refered to an oncologist - told me that I no longer needed to take it and he took me off of it. I am not sure what my hormone receptor status was on the DCIS but it was low grade and non commedo. My surgeon is up to date on the latest procedures for BC, he even looked into the Evista vs Tamox on pre-menopausal women before putting me on the tamox.

Sheila

Women are like tea bags, we don't know how strong we are until we were thrown into hot water. Eleanore Roosevelt Diagnosed ADH Feb 2005, ADH Sept 2006

Dx 4/27/2007, DCIS, Stage 0, Grade 1, 0/7 nodesSurgery 02/12/2005 Lumpectomy (Left)Surgery 09/10/2006 Lumpectomy (Right)Hormonal Therapy 10/12/2006 TamoxifenSurgery 06/01/2007 Mastectomy (Both)
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Apr 8, 2008 06:08PM PhyllisCC wrote:

Hi,

I was dx with DCIS in Oct 2007.  Biopsy showed extensive multi focal dcis grade 1 and 2. Rt Mast in November 2007. That pathology showed comedo necrosis and a mixture of intermediate and high grade.  Even with that diagnosis, my BS did not see any reason for me to see an oncologist, except that I requested the referral.  My concern was for my remaining "good" breast.  After meeting with the oncologist in January he said No to  tamox.  Mostly due to my age, 56, and no family history.  His opinion was that tamox was actually a better choice for pre-menopausal woman as they seem to handle the side affects better.  In my case, even though taking tamox would reduce my reoccurance rate in my good breast by half,  the rate was already pretty low and he didn't feel it was worth it to risk some of the bad side affects. There is a small risk of reoccurance in my left breast, but I am quite comfortable with my decision. But I made it after reviewing the statistics with a trusted professional.  Confusing, isn't it?  You might want to see another oncologist for a second opinion or an explanation of why tamox is your recomendation.  Phyllis

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Apr 9, 2008 01:45AM WendyInCalif wrote:

http://www.nccn.org/patients/patient_gls/_english/pdf/NCCN%20Breast%20Guidelines.pdf

This is a site the American Cancer Society has created which gives great detail about the treatment for the different kinds of BC.  It is comprehensive, as well.

DX 3/07, G1, S1, IDC, RT.

Dx 3/25/2007, IDC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2-
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Apr 9, 2008 03:10AM Anharad wrote:

I don't. I think that there are better drugs, with better results and fewer side effects. I had to find another doctor to do this though. It is Femara. When the druggist filled my prescription, he said that it was the first he had filled and added that he thought it was a big improvement over other drugs.

I have had very few side effects and am really satisfied with the results.

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Apr 9, 2008 03:29AM Anharad wrote:

I had a bilateral mastectomy with slight (20th %ile according to test) genetic predisposition. THe cancer was Invasive Ductal and was aggressive, though small, classified as stage IIa, with cancer cells in breast fluid, but not in lymph nodes.

I already commented but thought that I would add some info. I would definitely get a second opinion. I have had good luck with Femara and have taken it since June of 07.

Stick to your feelings! THe treatment is yours!

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Apr 9, 2008 07:21AM hopefor30 wrote:

Although you might like Femara better and think it is a better drug, it cannot be taken by premenopausal women -- the only option for hormonal therpay for premenopausal (unless you have your ovaries removed) is tamoxifen.

M.

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Apr 9, 2008 08:47AM southernchick wrote:

My tumor was diagnosed in March 07.  Tried a lumpectomy but couldn't get clear margins.  They went back in three times but still couldn't get clear margins.  I had a bilateral mastectomy in July 07.  It was a very difficult decision for me as I was initially leaning towards just doing one side.  But I eventually decided I just couldn't got through this again and there was no guarantee that there wasn't cancer in the other side.  I do take Tamoxifen.  My understanding of the reasoning behind it is this:  I was 45 and premenopausal.  My tumor was ER+.  It was explained to me that  breast cancer and ovarian cancer sometimes go hand in hand.  (Which sucks because I had a hysterectomy a year prior but because of my age they left the ovaries.)  The Tamoxifen blocks the production of estrogen and since my tumor was ER+ it significantly lowers the risk of getting ovarian cancer.  Reference to the side effects, I know everyone is different but I understand a lot of women don't have any side effects from it.  When I first started on the Tamoxifen, I got hot flashes for a couple weeks. They then disappeared and I haven't had any other side effects at all.  I know this is a personal decision for everyone, but for me, I need to know that I am doing everything I can to prevent a recurrence.  Especially since I (Thank you Lord)  didn't have to go through chemo.  Hope this helps.

Friends are angels who lift us to our feet when our wings have trouble remembering how to fly.

Dx 2007, IDC, 1cm, Stage I, 0/8 nodes, ER+/PR+, HER2-
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Apr 9, 2008 11:44AM PSK07 wrote:

DCIS patients can take only tamoxifen or nothing - no other hormonal treatment is approved for DCIS. Anharad, since you have IDC, there are different options such as Femara. Us DCIS girls don't. (lucky us, ha!)

take care.

Pam - adding LCIS & ALH to the mix, 8/25/08

Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+
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Apr 9, 2008 01:29PM, edited Apr 9, 2008 01:30PM by Beesie

Pam, you just made the very important point that I was thinking of as I was reading the recent posts - for women who have DCIS, the only option is Tamoxifen.  None of the other drugs such as Femara or Armidex are approved for DCIS women; they are prescribed only to women who were diagnosed with invasive cancer.  And for anyone who is pre-menopausal, whether with DCIS or invasive cancer, Tamoxifen is the only option.  Femara and the others are only for women who are post-menopausal.

southernchick, did you have DCIS or did you have invasive cancer (Stage 1 or higher)?  That might make a difference in whether Tamoxifen would be prescribed after a bilateral mastectomy.  For those with invasive cancer, Tamoxifen provides a dual benefit - it reduces the risk of both local recurrence (in the small amount of remaining breast tissue) and distant recurrence (outside of the breast, i.e. mets).  For someone who has DCIS, there is technically no risk of distant recurrence so there is less need for and less benefit from Tamoxifen after a bilateral mastectomy.   So if you had a bilateral but had invasive cancer, that would make your situation different than Leslie, who had low grade DCIS.

Leslie, where are you now on your thoughts about this?  Have you considered a 2nd opinion?

Dx 9/15/05, DCIS-MI, 6cm+ Gr3 DCIS w/IDC microinvasion, Stage I, 0/3 nodes, ER+/PR- “No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke

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Apr 9, 2008 02:22PM 3girls4me wrote:

Thanks again to all......

Beesie, you ROCK!   I always look to your information.

Well, after calling my oncologist back yesterday to ask why exactly he was recommending the Tamoxifen, and did the benefits outweigh the risks, he called me back to say that since I had bilateral that normally Tamoxifen would NOT be recommended.  BUT, since my DCIS was "multi-focal", that that presents a twist.   And that my risk of metastasis was very low.  (Does Tamoxifen help prevent recurrence ANYWHERE in the body?   Lillie Shockeny at Hopkins says yes).   He said he couldn't give an exact % of recurrence, just less than 10%, and that taking Tamoxifen would reduce it by 30%, leaving a 7% risk.  But that I could possibly have a 5% chance, and tamoxifen would lower it to 3%.   He agreed that it wasn't a significant reduction to warrant the risks.   Everything I've read says I have a 1-2% chance of recurrence.   I don't know why his numbers are higher......maybe my age?

He said he conferred with 2 colleagues, and both of them said they would NOT recommend it for me.   But admitted he is "ultra conservative".    He then said he changed his mind and said he's not recommending it, but it is my choice if I want to take it.

I think I'm NOT going to take it.   But it's sure had my head spinning for 2 days!

DX 6/12/07 Stage 0, Grade 1 & 2, 0/0 nodes, Bilat Mast w/recon 9/12/07, Exch Surg 3/21/08, Nipple Recon 7/29/08, Tattoos 10/1/10--finally DONE!

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Apr 9, 2008 03:43PM Beesie wrote:

Leslie,

It's good that you decided to press your oncologist about this.  And it's great that now you don't have to worry about getting a 2nd opinion - your doctor did that for you, getting the 2nd and 3rd opinions himself.  It's interesting that your doctor has changed his recommendation now that he's heard what the others have to say. 

Even using the 5% - 10% recurrence risk numbers that your oncologist gave you, which do seem to be on the high side (but that could be because of your age), the benefit that you would get from Tamoxifen would be quite small.   So weighing the risks & benefits, it is a logical decision to say that you won't take Tamoxifen.   With that decision, do you have a follow-up plan with your oncologist?   Women who take Tamoxifen often continue to see their oncologist for 5 years, and get regular checks of their breast area.  For those of us who aren't on any treatments, we often stop seeing the oncologist, and the surgeon, after a year or two.  So it's important that you work out a follow-up screening schedule with your doctor, with manual checks of your breast area at minimum, and possibly, MRIs (although not necessarily annually).  Sometimes it's the oncologist who does these checks, sometimes it's the surgeon, or your oncologist may send you to back your gynecologist or even your PCP.  Just be sure that you have an agreed-to schedule and plan for regular screening.  The risk of recurrence may be small, but it still needs to be watched for.       

Dx 9/15/05, DCIS-MI, 6cm+ Gr3 DCIS w/IDC microinvasion, Stage I, 0/3 nodes, ER+/PR- “No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke

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Jul 25, 2008 11:37PM mcinky wrote:

My mother just passed away on JULY 4,2008. She was diagnosed with uterine cancer three months prior. She had breast cancer 13 years ago and her Dr. gave her tamoxifen. She took it everyday for six years so her breast cancer would not come back. The first side effect for this drug is uterine cancer. My mom went to radiation everyday. She wanted to live. Her Dr. told us that she should not have been on this drug longer than 2 years. Please do some research before you take this.

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Apr 4, 2011 04:04AM bsatlanta wrote:

Yaa I want to do it.

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Apr 4, 2011 05:12AM, edited Apr 4, 2011 05:22AM by Ruth_in_singapore

my 60 year old mother (cancer stats in my signature) was prescribed with Tamoxifen after her bilateral mastectomy along with TCH and radiation.

I have to reiterate that she is post-menopausal so we do not have to worry about her ovaries producing hormones or estrogen. (it seems you are pre-menopausal so this is still something that you have to worry about-- it probably helps that according to a clinical study (AFP and HCG- just google it)-- being pregnant an early age, can reduce breast cancer risk-- it probably will help you reduce the risk of DCIS progressing to invasive cancer-- this is just a wild guess-- feel free to challenge)

did she take it? (Tamoxifen) --

answer: No

why?

because she prefer to work at the root cause rather than working on the symptoms. she preferred to balance her hormones under the guidance of an endocrinologist specializing on women related illnesses (including breast cancer) and hormones. She is taking a specialized supplement called I3C/DIM to balance her hormones.

she also reduced her meat/dairy intake to reduce her exposure to growth hormones that inhibits the production of estrogen.

due to her being post-menopausal and the quality of life she is experiencing now.. (no more arthritis, liver spots and no more mood swings and no more difficulty sleeping at night( we are pretty confident with this decision, have considered both the conventional and alternative option-- meanwhile-- the story does not end here.. i will just end my response for now, based on your question..

I am not a health professional so take everything I say as opinion and not fact. Consult your health professional for medical advice.

Dx 1/9/2010, IDC, 3cm, Stage IIb, Grade 3, 3/25 nodes, ER+/PR-, HER2+
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Apr 4, 2011 07:56AM SuebeeBC wrote:

I was offered it too...but I wasnt pressured at all either way.  I had similar numbers and risk.  I had a SMX.  My Onc acknowleged the side effects and said the mild ones are temporary (hot flashes etc) and the major ones are forever even if you stop taking it (blood clots, cancer).  She said its possible to reduce my risk just the same by diet and exercise.  she also said if I had IDC, we would have a different conversation. 

I voted diet, exercise and careful monitoring over the pills.  a 3% risk deduction wasnt worth the risks of side effects.  MHO

Sue - Uni Mx 1/26/11 (-o-Y o ) Exchange and Augmentation completed 6/13/11. Mentor HP Smooth Round Gel 350 and 475. Nipple added 9/29/11...which failed. New nipple added 2/23/12 and holding.

Dx 11/19/2010, DCIS, Stage 0, Grade 3, 0/5 nodes, ER+/PR+
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Apr 4, 2011 08:19AM ALANA49 wrote:

I also decided to go with diet, exercise and watch my body for changes.  I took tamoxifen for 1 month and had severe abdominal pains so I stopped and have been fine since.  Good luck all.

Alana Barnes

Dx 7/21/2010, DCIS, Stage Ib, Grade 3
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Apr 6, 2011 03:07PM AnnieBear wrote:

Amazing - I live in Pittsburgh and every single oncologist, radiologist, surgeon, regular doctor, gynecologist that I have seen have all said TAKE THE TAMOXIFEN.  I was resistant at first but I've caved in and I am taking it. 

Dx 4/2010, DCIS, Stage 0, ER+/PR+, HER2-
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Apr 6, 2011 04:39PM poptart wrote:

I had hormone positive dcis in my "good breast."  I had two mastectomies, no invasive hormone positive bc.  I have no breasts now (well, I have foobs!).  I was told by both my onc and my consultation onc - no tamoxifen.  If I had invasive hormone+ bc or still had breasts, they would prescribe it; however, under the circumstances, they think the risks of adverse effects from the tamoxifen would outweigh its benefits.

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Apr 6, 2011 08:03PM CTMOM1234 wrote:

Interesting how some people got a hard sell. I'm glad that mine did not. Rad.onc. told me straight up that she was 60-40 to take tamoxifen vs. not and the only reason why she wasn't 50-50 was because of the possible modest benefit to reduce chances on my good side. The benefits on the lumpectomy/rad side were something like a 3% benefit and I'd rather avoid playing around with my hormones.

A recent study came out that stated that there was no recognizable benefits to taking tamox. in women who'd had lump + rads. But there was a difference when comparing rads v. no rads -- so I continue to be glad that I chose to go through with the rads . . . and at least for now do not plan to add tamox.

When I grow up I want to be an old woman. Jan'10 lump.for grade 2 DCIS;SURPRISE1.75mm grade 2 idc in path report,stage 1a; Jan'10 snb 0/3 nodes; Mar-Apr'10 rads: 25 full+5 boosts prone position, stickers/no tats; May'10 declined tamox. Doing fine.

Dx 11/1/2009, ER+/PR+
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Jun 6, 2011 04:46PM Mainecoonmomone wrote:

I was diagnosed with Stage 0 DCIS in December 2008 and had a lumpectomy.  I opted against the radiation which I am happy with that decision.  Radiation is a one time only Treatment and I did not feel right about using it as a preventive measure.  I reluctantly went on Tamoxifen 20 mg and after 2 years and 1 month I found myself to have two cataracts as a side effect.  I am 58 and needless to say was angry because I will have to have two surgeries to correct the problem. It seemed the Tamoxifen created a problem and it is still uncertain if it will be efficacious.  I just came back from my visit with my oncologist and I decided I will not stay on it for the full five years,  I plan on going off at the 2.5 year point and will take my chances,  I no longer feel comfortable taking the drug and if it did this to my eyes I feel what elese will it do ti other body systems.

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Jul 7, 2011 10:30PM ferbevi2001 wrote:

Sorry for the late response. I was on Tamoxifen for 17 month until  I got a superficial clot on  a chest vein. The doctor said that probably it was a side effect of the Tamoxifen and he recomend to stop the medicine because that  time it was superficial clot but I could get a very dangerous one. In my case the benefits of the medicine are not worth it.

Dx 6/29/2009, DCIS, Stage 0, Grade 3, ER+

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