CA in rt-heavy family history of BC and stomach CA- neg BRAC1&2 -my insurance co is paying for rt mx- not left- anyone out there with advice on this tipic?
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Somuch Joined: Aug 2009 Posts: 59 |
Oct 18, 2009 10:29 am
Somuch wrote:
I might be wrong but it is my understanding that there is a federal law stating that they have to pay for both and if you go back and have reconstruction they have to pay for that as well. Not sure how you check that out - must be something on the internet - or contact a lawyer - maybe try the American Cancer Society. There are many groups that support BC patients - there has to be one that can help you. Good Luck, you have enough to deal with, this shouldn't have to be one more. Sandy
Diagnosis: 7/31/2009, DCIS, <1cm, Stage 0, Grade 3, ER-/PR- |
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melissa1518
Joined: Sep 2009 Posts: 130 |
Oct 18, 2009 10:34 am
melissa1518 wrote:
how come we are the only ones that "get it"? thanks I am looking for the help you mentioned and proceding with the bilat and will fight after the fact- once to the OR is enough for me- so much so that I won't even consider recon. thanks-love you you and you will be in my prayers Melissa
Diagnosis: 9/10/2009, DCIS, Stage 0, Grade 2, ER-/PR- |
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Bless Joined: Aug 2009 Posts: 57 |
Oct 18, 2009 10:59 am
Bless wrote:
The Women's Health and Cancer Rights Act (WHCRA) contains important protections for breast cancer patients who choose breast reconstruction with a mastectomy. It was signed into law on October 21, 1998. The US Departments of Labor and Health and Human Services oversee it. The WHCRA is a complex law. If you have questions or concerns about it, please contact the Department of Labor's toll-free number at 866-275-7922. I found that at the ACS site www.cancer.org by doing a yahoo search for insurance pay masectomy. The ACS phone number is 800-228-9954 I hope that helps. Has any one mentioned immediate reconstruction to you? It's not right for everyone. I'm just hoping that you've been given all possible options so that you can choose what is right for you. God Bless Bless~
Diagnosis: 8/11/2009, DCIS, <1cm |
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Maire67 Joined: Sep 2007 Posts: 404 |
Oct 18, 2009 12:11 pm
Maire67 wrote:
When it comes to insurance companies be prepared to fight with everything you have and the telephone and postal mail are the weapons. The current AARP magazine has an article about how insurance companies deny and 50 % of patients accept that and don't fight back. They are counting on you being sick and too tired to do this. Write letters to your representatives in Congress,cc the president of the insurance company, and the office of your local health company office, your governor if it's an election year. Call your local library for names and addresses of the CEO and also telephone numbers. Call your consumer protection office in your state. Write to the president of the hospital and the doctor. Having said all that all you need to do is write one letter and cc it to everyone on your list. Nothing scares insurance companies more than cc to consumer agencies. If you aren't up to doing this find a friend who can do the research for you and type the letter. Send letter to CEO and representatives as registered mail to draw attention to it. I had the fight when some insurance person decided they only needed to pay $120 for my surgeon to do a lumpectomy. Followed a denial of the sentinal node procedure since it was done on the same day???? Work with your doctor's office too . Good luck.. Diagnosis: 6/2005, ILC, 5cm, ER+/PR+, HER2+ |
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melissa1518
Joined: Sep 2009 Posts: 130 |
Nov 7, 2009 11:10 am
melissa1518 wrote:
Bless and Marie- you are both correct- I attended a workman comp seminar (forced additional "duties as assigned") and a quote from the state level was "Deny everything, only 50% will appeal and only 25% of those will fight to the end"- my new job is evident! Thanks for your suggestions. May you have a physically and emotionally pain free day- Best wishes your way. Melissa, " Since I have lost my Double D's, maybe I will work on my personality: LOL
Diagnosis: 9/10/2009, DCIS, <1cm, Stage 0, Grade 3, 0/7 nodes, ER-/PR- |
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KEW Joined: Dec 2008 Posts: 564 |
Nov 7, 2009 11:21 am, edited Nov 7, 2009 11:23 AM
by KEW
KEW wrote:
Bless--Good description of the Law, I'm writing about it right now in my Social Welfare policy class. I have come across a section that states an insurance company only has to pay, if it pays for MX, I know your company is paying for the one, but see if have any weeny words about paying for MX . Here is the whole bill. Also check your state law. As passed in H.R. 4328, the Omnibus Appropriations bill FY 99 Conference Report 105-825; Karen Age DX: 48. Dx Oct 2008, IDC, 2.6cm, Stage IIa, Grade 2, 0/10 nodes, MIB low, 100%ER+/Pr+, HER2-, Oncotype Score 15. Nipple sparing BLM with reconstruction Nov 2008. Exchange to Mentor HP 800cc, hyster/ooph May 2009. Tamoxifen.
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melissa1518
Joined: Sep 2009 Posts: 130 |
Nov 7, 2009 11:26 am
melissa1518 wrote:
This is GOLD- Thank you! Melissa, " Since I have lost my Double D's, maybe I will work on my personality" LOL
Diagnosis: 9/10/2009, DCIS, <1cm, Stage 0, Grade 3, 0/7 nodes, ER-/PR- |
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melissa1518
Joined: Sep 2009 Posts: 130 |
Nov 7, 2009 07:16 pm
melissa1518 wrote:
Karen you wouldn't happen to know the average cost of unilaterial recon would you? Melissa, " Since I have lost my Double D's, maybe I will work on my personality" LOL
Diagnosis: 9/10/2009, DCIS, <1cm, Stage 0, Grade 3, 0/7 nodes, ER-/PR- |
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KEW Joined: Dec 2008 Posts: 564 |
Nov 7, 2009 09:17 pm
KEW wrote:
Melissa--I do not--this is one of the greatest issues we have with our health-care system, it depends on the hospital, doctors, region, and insurance companies involved, there is no standard cost for anything. There was a thread called the Cost of Cancer and it was interesting until it became hijacked by someone who would not stay on topic and was verbally abusive, so it slowly died. It became pretty nasty--even I got a little snarky towards her. When some compared procedures there were thousands if not tens of thousands of dollars difference depending on where they were in the country, for the same procedure. I'm sorry I can't be more helpful. Karen Age DX: 48. Dx Oct 2008, IDC, 2.6cm, Stage IIa, Grade 2, 0/10 nodes, MIB low, 100%ER+/Pr+, HER2-, Oncotype Score 15. Nipple sparing BLM with reconstruction Nov 2008. Exchange to Mentor HP 800cc, hyster/ooph May 2009. Tamoxifen.
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melissa1518
Joined: Sep 2009 Posts: 130 |
Nov 7, 2009 10:43 pm
melissa1518 wrote:
Karen that is good information also and too bad someone had to ruin the thread- the 10% rule- am going to search insurance web sites and maybe some statistics web sites- a general goggle search mostly produced PS advertising recon and augmentation- stating that "insurance companies will pay for recon after mx." Thanks for the good info and by the way you look so young in your photo I would never believe 48! Melissa, " Since I have lost my Double D's, maybe I will work on my personality" LOL
Diagnosis: 9/10/2009, DCIS, <1cm, Stage 0, Grade 3, 0/7 nodes, ER-/PR- |
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KEW Joined: Dec 2008 Posts: 564 |
Nov 8, 2009 10:26 am
KEW wrote:
HI Melissa--Actually I'll be 50 in April. I was 48 at DX. Thank you for the compliment, but I think it was all that crazy estrogen in my body that was making me look young and feeding my cancer. Does the hospital have a breast center? Usually there are social workers in hospitals who should be able to give you some information on your state's laws. Also, call your state department of insurance. I'm sorry you have to go through all of this. Best--Karen Age DX: 48. Dx Oct 2008, IDC, 2.6cm, Stage IIa, Grade 2, 0/10 nodes, MIB low, 100%ER+/Pr+, HER2-, Oncotype Score 15. Nipple sparing BLM with reconstruction Nov 2008. Exchange to Mentor HP 800cc, hyster/ooph May 2009. Tamoxifen.
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melissa1518
Joined: Sep 2009 Posts: 130 |
Nov 11, 2009 01:08 pm
melissa1518 wrote:
Just another fight!-Maybe the outcome will help others in the future. and you still look young! Melissa, " Since I have lost my Double D's, maybe I will work on my personality" LOL
Diagnosis: 9/10/2009, DCIS, <1cm, Stage 0, Grade 3, 0/7 nodes, ER-/PR- |
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melissa1518
Joined: Sep 2009 Posts: 130 |
Nov 15, 2009 11:25 am
melissa1518 wrote:
How shocking - I received and EOB from the insurance company and it appears that they MAY be paying w/o the FIGHT! I will wait and see. Melissa, " Since I have lost my Double D's, maybe I will work on my personality" LOL
Diagnosis: 9/10/2009, DCIS, <1cm, Stage 0, Grade 3, 0/7 nodes, ER-/PR- |
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KEW Joined: Dec 2008 Posts: 564 |
Nov 15, 2009 12:44 pm
KEW wrote:
Melissa--I hope so, you need to be healing not fighting. Take care! KarenW Age DX: 48. Dx Oct 2008, IDC, 2.6cm, Stage IIa, Grade 2, 0/10 nodes, MIB low, 100%ER+/Pr+, HER2-, Oncotype Score 15. Nipple sparing BLM with reconstruction Nov 2008. Exchange to Mentor HP 800cc, hyster/ooph May 2009. Tamoxifen.
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unklezwifeo
Joined: Aug 2009 Posts: 965 |
Nov 15, 2009 01:00 pm
unklezwifeonty wrote:
Dear Melissa, Heal first. Fight with insurance co later. You should be able to get the insurance co to pay up but right now if I were you I would focus on getting treated. This is no time to add stress and frustration. Onty. Lumpectomy 8/2009. Chemo 9/2009 to 2/2010. DD 4AC --> 12T +/- B (ECOG 5103)
Diagnosis: 7/2009, IDC, 3cm, Stage IIb, Grade 3, 1/9 nodes, ER-/PR-, HER2- |
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melissa1518
Joined: Sep 2009 Posts: 130 |
Nov 15, 2009 02:43 pm
melissa1518 wrote:
You are both completely right and I really don't think about it except when the EOB came- actually I am doing well but need to build up stamina. Any suggestions? I have great range of motion, little discomfort, can sleep in any position but wear out easily. Need a nap everyday and Monday is 4 weeks- is that "normal"? Melissa, " Since I have lost my Double D's, maybe I will work on my personality" LOL
Diagnosis: 9/10/2009, DCIS, <1cm, Stage 0, Grade 3, 0/7 nodes, ER-/PR- |
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